Stigma and psychiatric morbidity among mothers of children with epilepsy in Zambia

International Health

Volumn 5, Issue 4, 2013, Pages 288-294

  Elafros, Melissa A ^a,b   Sakubita Simasiku, Claire ^c   Atadzhanov, Masharip ^c   Haworth, Alan ^c   Chomba, Elwyn ^d   Birbeck, Gretchen L ^e,f  

^a MICHIGAN STATE UNIVERSITY   (United States)

^b MICHIGAN STATE UNIVERSITY   (United States)

^c UNIVERSITY OF ZAMBIA   (Zambia)

^d Ministry of Community Development   (Zambia)

^e Chikankata Hospital   (Zambia)

^f UNIVERSITY OF ROCHESTER SCHOOL OF MEDICINE AND DENTISTRY   (United States)

Author keywords

Affiliate stigma; Africa; Caregiver; Depression; Education; Felt stigma

Indexed keywords

ADULT; ARTICLE; CAREGIVER; EPILEPSY; FEMALE; HEALTH EDUCATION; HUMAN; MATERNAL ATTITUDE; MATERNAL MORBIDITY; PEOPLE WITH EPILEPSY; PRIORITY JOURNAL; PSYCHOLOGICAL WELL BEING; SEIZURE; STIGMA;

AFFILIATE STIGMA; AFRICA; CAREGIVER; DEPRESSION; EDUCATION; FELT STIGMA;

ADULT; ANXIETY DISORDERS; ATTITUDE TO HEALTH; CAREGIVERS; CHILD, PRESCHOOL; DEPRESSIVE DISORDER; EPILEPSY; FEMALE; HUMANS; MALE; MOTHERS; ODDS RATIO; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX; STEREOTYPING; ZAMBIA;

EID: 84890072135     PISSN: 18763413     EISSN: 18763405     Source Type: Journal    
DOI: 10.1093/inthealth/iht028     Document Type: Article

References (34)

1. Ngugi AK, Bottomley C, Kleinschmidt I, et al. Estimation of the burden of active and life-time epilepsy: A meta-analytic approach. Epilepsia 2010;51:883-90.
2. WHO. Global campaign against epilepsy atlas. WHO: Geneva; 2005.
3. Baskind R, Birbeck GL. Epilepsy-associated stigma in sub-Saharan Africa: The social landscape of a disease. Epilepsy Behav 2005;7:68-73.
4. Link BG, Phelan JC. Conceptualizing stigma. Ann Rev Sociol 2011;27:363-85.
5. Jacoby A. Epilepsy and stigma: An update and critical review. Curr Neurol Neurosci Rep 2008;8:339-44.
6. Fernandes PT, Snape DA, Beran RG, et al. Epilepsy stigma: What do we know and where next. Epilepsy Behav 2011;22:55-62.
7. Goffman E. Stigma: notes on the management of spoiled identity. Harmondsworth: Penguin; 1963.
8. Mak WW, Kwok YT. Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Soc Sci Med 2010;70:2045-51.
9. Shibre T, Alem A, Tekle-Haimanot R, et al. Perception of stigma in people with epilepsy and their relatives in Butajira, Ethiopia. Ethiop J Health Dev 2006;20:170-6.
10. Shore CP, Austin JK, Dunn DW. Maternal adaptation to a child's epilepsy. Epilepsy Behav 2004;5:557-68.
11. Carlton-Ford S, Miller R, Nealeigh N, et al. The effects of perceived stigma and psychological over-control on the behavioural problems of children with epilepsy. Seizure 1997;6:383-91.
12. Mbuba CK, Abubakar A, Odermatt P, et al. Development and validation of the Kilifi Stigma Scale for Epilepsy in Kenya. Epilepsy Behav 2012;24:81-5.
13. Austin JK, MacLeod J, Dunn DWet al. Measuring stigma in children with epilepsy and their parents: Instrument development and testing. Epilepsy Behav 2004;5:472-82.
14. Dehnavi SR, Malekpour M, Faramarzi S, et al. The share of internalized stigma and autisim quotient in predicting the mental health of mothers with autism children in Iran. Int J Bus Soc Sci 2011;2:251-9.
15. Mak WW, Cheung RY. Psychological Distress and subjective burden of caregivers of people with mental illness. The role of affiliate stigma and face concern. Community Ment Health J 2012;48:270-274.
16. Rodenburg R, Meijer AM, Dekovic M, et al. Parents of children with enduring epilepsy: predictors of parenting stress and parenting. Epilepsy Behav 2007;11:197-207.
17. Hobdell E, Grant M, Valencia I, et al. Chronic sorrow and coping in families with children with epilepsy. J Neurosci Nurs 2007;39:76-82.
18. Soltanifar A, Ashrafzadeh F, Mohareri F, et al. Depression and anxiety in Iranian mothers of children with epilepsy. Iranian J Child Neurol 2012;6:29-34.
19. Ferro MA, Speechley KN. Depressive symptoms among mothers of children with epilepsy: A review of prevalence, associated factors, and impact on children. Epilepsia 2009;50:2344-54.
20. Mu PF, Wong TT, Chang KP, et al. Predictors of maternal depression for families having a child with epilepsy. J Nurs Res 2001;9:116-26.
21. Adewuya. Parental psychopathology and self-rated quality of life in adolescents with epilepsy in Nigeria. Dev Med Child Neurol 2007;48:600-3.
22. Atadzhanov M, Chomba E, Haworth A, et al. Knowledge, attitudes, behaviors, and practices regarding epilepsy among Zambian clerics. Epilepsy Behav 2006;9:83-88.
23. Chomba EN, Haworth A, Atadzhanov M, et al. Zambian health care workers' knowledge, attitudes, beliefs, and practices regarding epilepsy. Epilepsy Behav 2007;10:111-119.
24. Baker GA, Jacoby A, Gorry J, et al. Quality of life of people with epilepsy in Iran, the Gulf, and Near East. Epilepsia 2005;46:132-140.
25. Birbeck G, Chomba E, Atadzhanov M, et al. The social and economic impact of epilepsy in Zambia: A cross-sectional study. Lancet Neurol 2007;6:39-44.
26. Patel V, Simunyu E, Gwanzura Fet al. The Shona Symptom Questionnaire: The development of an indigenous measure of common mental disorders in Harare. Acta Psychiatr Scand 1997;95:469-75.
27. Birbeck G, Kvalsund M, Byers P, et al. Neuropsychiatric and socioeconomic status impact antiretroviral adherence and mortality in rural Zambia. Am J Trop Med Hyg 2011;85:782-9.
28. Elafros MA, Mulenga J, Mbewe E, et al. Peer support groups as an intervention to decrease epilepsy-associated stigma. Epilepsy Behav 2013;27:188-192.
29. Jelsma J, Mhundwa K, De Weerdt Wet al. The reliability of the Shona version of the EQ-5D. Cent Afr J Med 2001;47:8-13.
30. Durkin MS, Davidson LL, Desai P, et al. Validity of the Ten Questions Screen for childhood disability results from population-based studies in Bangladesh, Jamaica, and Pakistan. Epidemiology 1994;5:283-9.
31. Chomba E, Taylor TE, Hauser W, et al. Seizure recurrence in rural Zambian children admitted with febrile seizures. Open Trop Med J 2008;1:101-7.
32. Goodman SH, Rouse MH, Connell AM, et al. Maternal depression and child psychopathology: A meta-analytic review. Clin Child Fam Psychol Rev 2011;14:1-27.
33. WHO. Mental Health Gap Action Programme (mhGAP): Scaling up care for mental, neurological and substance use disorders. Geneva: WHO; 2008.
34. Central Statistical Office, Lusaka. Nutritional status of children: Percentage of children under five years classified as malnourished according to three anthropometric indices of nutritional status: height-for-age, weight-for-height, and weight-for-age, by background categories, Zambia 2007. Monthly Bull 2007; 70:14.