The magnitude, share and determinants of unpaid care costs for home-based palliative care service provision in Toronto, Canada

Health and Social Care in the Community

Volumn 22, Issue 1, 2014, Pages 30-39

  Chai, Huamin ^a,b   Guerriere, Denise N ^b   Zagorski, Brandon ^c   Coyte, Peter C ^b  

^a NANKAI UNIVERSITY   (China)

^b UNIVERSITY OF TORONTO   (Canada)

^c BMZ Analytics   (Canada)

Author keywords

Costs; Home based care; Palliative care; Unpaid care

Indexed keywords

AGED; CANADA; COMMUNITY CARE; COST; ECONOMICS; FEMALE; HOME CARE; HUMAN; MALE; MIDDLE AGED; PALLIATIVE THERAPY; PROSPECTIVE STUDY; PUBLIC HEALTH; QUALITATIVE RESEARCH; REGRESSION ANALYSIS; VERY ELDERLY;

AGED; AGED, 80 AND OVER; COSTS AND COST ANALYSIS; FEMALE; HOME CARE SERVICES; HUMANS; MALE; MIDDLE AGED; NATIONAL HEALTH PROGRAMS; ONTARIO; PALLIATIVE CARE; PROSPECTIVE STUDIES; QUALITATIVE RESEARCH; REGRESSION ANALYSIS; UNCOMPENSATED CARE;

EID: 84889683034     PISSN: 09660410     EISSN: 13652524     Source Type: Journal    
DOI: 10.1111/hsc.12058     Document Type: Article

References (41)

1. Andersen R. & Newman J.F. (1973) Societal and individual determinants of medical care utilisation in the United States. Milbank Memorial Fund Quarterly: Health and Society 51 (1), 95-124.
2. Aoun S.M., Kristjanson L.J., Currow D.C. & Hudson P.L. (2005) Caregiving for the terminally ill: at what cost? Palliative Medicine 19 (7), 551-555.
3. Baltagi B.H. (1995) Econometric Analysis of Panel Data. John Wiley & Sons, New York.
4. Bruera E., Neumann C.M., Gagnon B., Brenneis C., Quan H. & Hanson J. (2000) The impact of a regional palliative care program on the cost of palliative care delivery. Journal of Palliative Medicine 3, 181-186.
5. Brumley R.D., Enguidanos S. & Cherin D. (2003) Effectiveness of a home-based palliative care program for end-of-life. Journal of Palliative Medicine 6 (5), 715-724.
6. Brumley R., Enguidanos S., Jamison P. et al. (2007) Increased satisfaction with care and lower costs: results of a randomised trial of in-home palliative care. Journal of the American Geriatrics Society 55, 993-1000.
7. Carstairs V. & Morris R. (1991) Deprivation and Health in Scotland. Abderdeen University Press, Scotland.
8. Statistics Canada. (2006) 2006 Census of Population. Available at: http://www12.statcan.ca/census-recensement/2006/index-eng.cfm (accessed on 10/2/2012).
9. Chan B., Coyte P. & Heick C. (1996) Economic impact of cardiovascular disease in Canada. Canadian Journal of Cardiology 12, 1000-1006.
10. Chan A.T.C., Jacobs P., Yeo W. et al. (2001) The cost of palliative care for hepatocellular carcinoma in Hong Kong. Pharmacoeconomics 19 (9), 947-953.
11. Downing M., Lau F., Lesperance M. et al. (2007) Meta-analysis of survival prediction with Palliative Performance Scale. Journal of Palliative Care 23 (4), 245-252.
12. Dumont S., Jacobs P., Fassbender K., Anderson D., Turcotte V. & Harel F. (2009) Costs associated with resource utilisation during the palliative phase of care: a Canadian perspective. Palliative Medicine 23 (8), 708-717.
13. Dumont S., Jacobs P., Turcotte V., Anderson D. & Harel F. (2010) The trajectory of palliative care costs over the last 5 months of life: a Canadian longitudinal study. Palliative Medicine 24 (6), 630-640.
14. Dunbrack J. (2005) The information needs of informal caregivers involved in providing support to a critically ill loved one. Available at: http://hc-sc.gc.ca/hcs-sss/pubs/home-domicile/2005-info-caregiver-aidant/index-eng.php (accessed on 12/12/2011).
15. Fassbender K., Fainsinger R., Brenneis C., Brown P., Braun T. & Jacobs P. (2005) Utilisation and costs of the introduction of system-wide palliative care in Alberta, 1993-2000. Palliative Medicine 19 (7), 513-520.
16. Gómez-Batiste X., Tuca A., Corrales E. et al.; Grupo de Evaluación-SECPAL (2006) Resource consumption and costs of palliative care services in Spain: a multicenter prospective study. Journal of Pain and Symptom Management 31 (6), 522-532.
17. Guerriere D.N. & Coyte P.C. (2011) The Ambulatory and Home Care Record: A Methodological Framework for Economic Analyses in End-of-Life Care. Journal of Aging Research 2011, 11.
18. Guerriere D.N., Tullis E., Ungar W.J. et al. (2006a) Economic burden of ambulatory and home-based care for adults with cystic fibrosis. Treatments in Respiratory Medicine 5 (5), 351-359.
19. Guerriere D.N., Ungar W.J., Corey M., Croxford R., Tranmer J.E., Tullis E. & Coyte P.C. (2006b) Evaluation of the ambulatory and home care record: agreement between self-reports and administrative data. International Journal of Technology Assessment in Health Care 22 (2), 203-210.
20. Guerriere D.N., Wong A.Y.M., Croxford R., Leong V.W., Mckeever P. & Coyte P. (2008a) Costs and determinants of privately financed home-based health care in Ontario, Canada. Health & Social Care in the Community 16 (2), 126-136.
21. Guerriere D.N., Tranmer J.E., Ungar W.J., Manoharan V. & Coyte P. (2008b) Valuing care recipient and family caregiver time: a comparison of methods. International Journal of Technology Assessment in Health Care 24 (1), 52-59.
22. Guerriere D.N., Choinière M., Dion D. et al. (2010a) The Canadian STOP-PAIN project - part 2: what is the cost of pain for patients on waitlists of multidisciplinary pain treatment facilities? Canadian Journal of Anaesthesia 57 (6), 549-558.
23. Guerriere D.N., Zagorski B., Fassbender K., Lisa M., Librach L. & Coyte P. (2010b) Cost variations in ambulatory and home-based palliative care. Palliative Medicine 24 (5), 523-532.
24. Guest J., Ruiz F.J., Greener M.J. & Trotman I.F. (2006) Palliative care treatment patterns and associated costs of healthcare resource use for specific advanced patients in the UK. European Journal of Cancer Care 15, 65-73.
25. Ho F., Lau F., Downing M.G. & Lesperance M. (2008) A reliability and validity study of the Palliative Performance Scale. BMC Palliative Care 7, 10.
26. Hodgson T. (1983) The State of the Art of Cost-of-Illness Estimate. JAI Press Inc, Greenwich, CT.
27. Jacobs P., Dumont S., Turcotte V. & Anderson D. (2011) Evaluating the economic loss of caregiving for palliative care patients. Journal of Palliative Care 27 (3), 210-215.
28. Jo S., Brazil K., Lohfeld L. & Willison K. (2007) Caregiving at the end of life: perspectives from spousal caregivers and care recipients. Palliative and Supportive Care 5 (1), 11-17.
29. Johnson A.P., Abernathy T., Howell D., Brazil K. & Scott S. (2009) Resource utilisation and costs of palliative cancer care in an interdisciplinary health care model. Palliative Medicine 23, 448-459.
30. Kaul P., McAlister F.A., Ezekowitz J.A. et al. (2011) Resource use in the last 6 months of life among patients with heart failure in Canada. Archives of Internal Medicine 171 (3), 211-217.
31. Leong V.W., Guerriere D.N., Croxford R. & Coyte P. (2007) The Magnitude, Share and Determinants of Private Costs Incurred by Clients (and Their Caregivers) of In-home Publicly Financed Care. Health Policy 3 (1), e141-e159.
32. Masucci L., Guerriere D.N., Cheng R. & Coyte P. (2010) Determinants of place of death for recipients of home-based palliative care. Journal of Palliative Care 26 (4), 279-286.
33. McGillion M.H., Croxford R., Watt-Watson J., Lefort S., Stevens B. & Coyte P. (2008) Cost of illness for chronic stable angina patients enrolled in a self-management education trial. Canadian Journal of Cardiology 24 (10), 759-764.
34. Oliver E., Killen J., Kiebert G. et al. (2001) Treatment pathways, resource use and costs in the management of small cell lung cancer. Thorax 56 (10), 785-790.
35. Shnoor Y., Szlaifer M., Aoberman A.S. & Bentur N. (2007) The cost of home hospice care for terminal patients in Israel. American Journal of Hospice & Palliative Care 24 (4), 284-290.
36. Stevens B., Guerriere D., McKeever P. et al. (2006) Economics of home vs. hospital breastfeeding support for newborns. Journal of Advanced Nursing 53 (2), 233-243.
37. Tamir O., Singer Y. & Shvartzman P. (2007) Taking care of terminally-ill patients at home - the economic perspective revisited. Palliative Medicine 21, 537-541.
38. Torgerson D.J., Donaldson C. & Reid D.M. (1994) Private versus social opportunity cost of time: valuing time in the demand for health care. Health Economics 3 (3), 149-155.
39. Walshe C., Todd C., Caress A. & Chew-Graham C. (2009) Patterns of access to community palliative services: a literature review. Journal of Pain and Symptom Management 37 (5), 884-912.
40. Witteveen P., Groenestijn M.A.C., Blijham G.H. & Schrijvers A.J.P. (1999) Use of resources and costs of palliative care with parenteral fluids and analgesics in the home setting for patients with end-stage cancer. Annals of Oncology 10, 161-165.
41. Zellner A. (1962) An efficient method of estimating seemingly unrelated regression equations and tests for aggregation bias. Journal of the American Statistical Association 57, 348-368.