The ambulatory and home care record: A methodological framework for economic analyses in end-of-life care

Journal of Aging Research

Volumn 2011, Issue , 2011, Pages

  Guerriere, Denise N ^a   Coyte, Peter C ^a  

^a UNIVERSITY OF TORONTO   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

AMBULATORY AND HOME CARE RECORD; CAREGIVER SUPPORT; COST BENEFIT ANALYSIS; COST OF ILLNESS; HEALTH CARE COST; HEALTH CARE UTILIZATION; HEALTH ECONOMICS; HEALTH INSURANCE; HOSPITAL COST; HUMAN; PALLIATIVE THERAPY; PRIORITY JOURNAL; RANDOMIZED CONTROLLED TRIAL (TOPIC); RESOURCE ALLOCATION; REVIEW; SYSTEMATIC REVIEW; TERMINAL CARE;

EID: 84869383079     PISSN: 20902204     EISSN: 20902212     Source Type: Journal    
DOI: 10.4061/2011/374237     Document Type: Review

References (68)

1. Coyte P. C., McKeever P., Home care in Canada: passing the buck. Canadian Journal of Nursing Research 2001 33 2 11 25 2-s2.0-0035468191 (Pubitemid 33659516)
2. Fassbender K., Fainsinger R., Brenneis C., Brown P., Braun T., Jacobs P., Utilization and costs of the introduction of system-wide palliative care in Alberta, 1993-2000. Palliative Medicine 2005 19 7 513 520 2-s2.0-27844532021 10.1191/0269216305pm1071oa (Pubitemid 41645509)
3. Brumley R. D., Enguidanos S., Cherin D. A., Effectiveness of a home-based palliative care program for end-of-life. Journal of Palliative Medicine 2003 6 5 715 724 2-s2.0-1542750256 10.1089/109662103322515220 (Pubitemid 38435448)
4. Bruera E., Neumann C. M., Gagnon B., Brenneis C., Quan H., Hanson J., The impact of a regional palliative care program on the cost of palliative care delivery. Journal of Palliative Medicine 2000 3 2 181 186 2-s2.0-0033942247 (Pubitemid 30483407)
5. Shnoor Y., Szlaifer M., Aoberman A. S., Bentur N., The cost of home hospice care for terminal patients in Israel. American Journal of Hospice and Palliative Medicine 2007 24 4 284 290 2-s2.0-34548162124 10.1177/ 1049909107300212
6. Chan A. T. C., Jacobs P., Yeo W., Lai M., Hazlett C. B., Mok T. S. K., Leung T. W. T., Lau W. Y., Johnson P. J., The cost of palliative care for hepatocellular carcinoma in Hong Kong. PharmacoEconomics 2001 19 9 947 953 2-s2.0-0034791581 (Pubitemid 32937945)
7. Dumont S., Jacobs P., Fassbender K., Anderson D., Turcotte V., Harel F., Costs associated with resource utilization during the palliative phase of care: a Canadian perspective. Palliative Medicine 2009 23 8 708 717 2-s2.0-74849101551 10.1177/0269216309346546
8. Guerriere D. N., Zagorski B., Fassbender K., Masucci L., Librach L., Coyte P. C., Cost variations in ambulatory and home-based palliative care. Palliative Medicine 2010 24 5 523 532 2-s2.0-77953974402 10.1177/ 0269216310364877
9. Aoun S. M., Kristjanson L. J., Currow D. C., Hudson P. L., Caregiving for the terminally ill: at what cost? Palliative Medicine 2005 19 7 551 555 2-s2.0-27844506949 10.1191/0269216305pm1053oa (Pubitemid 41645514)
10. Jo S., Brazil K., Lohfeld L., Willison K., Caregiving at the end of life: perspectives from spousal caregivers and care recipients. Palliative & Supportive Care 2007 5 1 11 17 10.1017/S1478951507070034
11. Doorenbos A. Z., Given B., Given C. W., Wyatt G., Gift A., Rahbar M., Sangchoon J., The influence of end-of-life cancer care on caregivers. Research in Nursing and Health 2007 30 3 270 281 2-s2.0-34250865001 10.1002/nur.20217
12. Emanuel E. J., Fairclough D. L., Slutsman J., Emanuel L. L., Understanding economic and other burdens of terminal illness: the experience of patients and their caregivers. Annals of Internal Medicine 2000 132 6 451 459 (Pubitemid 30149042)
13. Grunfeld E., Coyle D., Whelan T., Clinch J., Reyno L., Earle C. C., Willan A., Viola R., Coristine M., Janz T., Glossop R., Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. Canadian Medical Association Journal 2004 170 12 1795 1801 2-s2.0-3042553652 10.1503/cmaj.1031205 (Pubitemid 38833404)
14. Hwang S. S., Chang V. T., Alejandro Y., Osenenko P., Davis C., Cogswell J., Srinivas S., Kasimis B., Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a Veterans Affairs (VA) medical center. Palliative & supportive care. 2003 1 4 319 329 2-s2.0-33645101468
15. Kim Y., Schulz R., Family caregivers' strains: comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving. Journal of Aging and Health 2008 20 5 483 503 2-s2.0-46749158316 10.1177/ 0898264308317533 (Pubitemid 351951631)
16. Marwit S. J., Chibnall J. T., Dougherty R., Jenkins C., Shawgo J., Assessing pre-death grief in cancer caregivers using the Marwit-Meuser Caregiver Grief Inventory (MM-CGI). Psycho-Oncology 2008 17 3 300 303 2-s2.0-40949152496 10.1002/pon.1218 (Pubitemid 351410769)
17. Rhee Y.S., Yun Y. H., Park S., Dong OK. S., Kwang MI. L., Han J. Y., Jeong H. K., Soon OK. K., Lee R., Youn OK. L., Nam S. K., Depression in family caregivers of cancer patients: the feeling of burden as a predictor of depression. Journal of Clinical Oncology 2008 26 36 5890 5895 2-s2.0-58049208394 10.1200/JCO.2007.15.3957
18. Given B., Wyatt G., Given C., Sherwood P., Gift A., DeVoss D., Rahbar M., Burden and depression among caregivers of patients with cancer at the end of life. Oncology Nursing Forum 2004 31 6 1105 1117 2-s2.0-32044463055
19. Vanderwerker L. C., Laff R. E., Kadan-Lottick N. S., McColl S., Prigerson H. G., Psychiatric disorders and mental health service use among caregivers of advanced cancer patients. Journal of Clinical Oncology 2005 23 28 6899 6907 2-s2.0-27244442115 10.1200/JCO.2005.01.370
20. Dumont S., Turgeon J., Allard P., Gagnon P., Charbonneau C., Vézina L., Caring for a loved one with advanced cancer: determinants of psychological distress in family caregivers. Journal of Palliative Medicine 2006 9 4 912 921 2-s2.0-33747888382 10.1089/jpm.2006.9.912 (Pubitemid 44289912)
21. Zapart S., Kenny P., Hall J., Servis B., Wiley S., Home-based palliative care in Sydney, Australia: the carer's perspective on the provision of informal care. Health and Social Care in the Community 2007 15 2 97 107 2-s2.0-33846936872 10.1111/j.1365-2524.2006.00665.x
22. Gaugler J. E., Hanna N., Linder J., Given C. W., Tolbert V., Kataria R., Regine W. F., Cancer caregiving and subjective stress: a multi-site, multi-dimensional analysis. Psycho-Oncology 2005 14 9 771 785 2-s2.0-24944435359 10.1002/pon.916 (Pubitemid 41320790)
23. Bainbridge D., Krueger P., Lohfeld L., Brazil K., Stress processes in caring for an end-of-life family member: application of a theoretical model. Aging and Mental Health 2009 13 4 537 545 2-s2.0-70350051068 10.1080/13607860802607322
24. Dumont S., Fillion L., Gagnon P., Bernier N., A new tool to assess family caregivers' burden during end-of-life care. Journal of Palliative Care 2008 24 3 151 161 2-s2.0-54149084741
25. Brazil K., Bainbridge D., Rodriguez C., The stress process in palliative cancer care: a qualitative study on informal caregiving and its implication for the delivery of care. American Journal of Hospice and Palliative Medicine 2010 27 2 111 116 2-s2.0-77649267350 10.1177/1049909109350176
26. Hanratty B., b.hanratty@liverpool.ac.uk Holland P., Jacoby A., Whitehead M., Financiai stress and strain associated with terminal cancer-a review of the evidence. Palliative Medicine 2007 21 7 595 607 10.1177/0269216307082476 (Pubitemid 350130908)
27. Tilden V. P., Tolle S. W., Drach L. L., Perrin N. A., Out-of-hospital death: advance care planning, decedent symptoms, and caregiver burden. Journal of the American Geriatrics Society 2004 52 4 532 539 2-s2.0-1842784026 10.1111/j.1532-5415.2004.52158.x (Pubitemid 38480629)
28. Axelsson B., Christensen S. B., Evaluation of a hospital-based palliative support service with particular regard to financial outcome measures. Palliative Medicine 1998 12 1 41 49 2-s2.0-0031964476 10.1191/026921698671336362 (Pubitemid 28048133)
29. Brumley R., Enguidanos S., Jamison P., Seitz R., Morgenstern N., Saito S., McIlwane J., Hillary K., Gonzalez J., Increased satisfaction with care and lower costs: results of a randomized trial of in-home palliative care. Journal of the American Geriatrics Society 2007 55 7 993 1000 2-s2.0-34347383556 10.1111/j.1532-5415.2007.01234.x (Pubitemid 47024627)
30. Cowan J. D., Hospital charges for a community inpatient palliative care program. American Journal of Hospice and Palliative Medicine 2004 21 3 177 190 2-s2.0-2642543845 (Pubitemid 38716370)
31. Elsayem A., Swint K., Fisch M. J., Palmer J. L., Ready S., Walker P., Zhukovsky D., Knight P., Bruera E., Palliative care inpatient service in a comprehensive cancer center: clinical and financial outcomes. Journal of Clinical Oncology 2004 22 10 2008 2014 2-s2.0-3042741114 10.1200/JCO.2004.11.003 (Pubitemid 41095194)
32. Gómez-Batiste X., Tuca A., Corrales E., Porta-Sales J., Amor M., Espinosa J., Borràs J. M. A., de la Mata I., Castellsagué X., Resource consumption and costs of palliative care services in Spain: a multicenter prospective study. Journal of Pain and Symptom Management 2006 31 6 522 532 2-s2.0-33745461826 10.1016/j.jpainsymman.2005.11.015 (Pubitemid 43949119)
33. Hanson L. C., Usher B., Spragens L., Bernard S., Clinical and economic impact of palliative care consultation. Journal of Pain and Symptom Management 2008 35 4 340 346 2-s2.0-40849139187 10.1016/j.jpainsymman.2007.06.008
34. Johnson A. P., Abernathy T., Howell D., Brazil K., Scott S., Resource utilisation and costs of palliative cancer care in an interdisciplinary health care model. Palliative Medicine 2009 23 5 448 459 2-s2.0-67649359892 10.1177/0269216309103193
35. Oliver E., Killen J., Kiebert G., Hutton J., Hall R., Higgins B., Bourke S., Paschen B., Treatment pathways, resource use and costs in the management of small cell lung cancer. Thorax 2001 56 10 785 790 2-s2.0-0034805632 10.1136/thorax.56.10.785 (Pubitemid 32917549)
36. Penrod J. D., Deb P., Luhrs C., Dellenbaugh C., Zhu C. W., Hochman T., Maciejewski M. L., Granieri E., Morrison R. S., Cost and utilization outcomes of patients receiving hospital-based palliative care consultation. Journal of Palliative Medicine 2006 9 4 855 860 2-s2.0-33747873162 10.1089/jpm.2006.9.855 (Pubitemid 44289907)
37. Smith T. J., Coyne P., Cassel B., Penberthy L., Hopson A., Hager M. A., A high-volume specialist palliative care unit and team may reduce in-hospital end-of-life care costs. Journal of Palliative Medicine 2003 6 5 699 705 2-s2.0-1542750268 10.1089/109662103322515202 (Pubitemid 38435446)
38. Tamir O., Singer Y., Shvartzman P., Taking care of terminally-ill patients at home-the economic perspective revisited. Palliative Medicine 2007 21 6 537 541 2-s2.0-35448953009 10.1177/0269216307080822 (Pubitemid 47616609)
39. White K. R., Stover K. G., Cassel J. B., Smith T. J., Nonclinical outcomes of hospital-based palliative care. Journal of Healthcare Management 2006 51 4 260 273 2-s2.0-33746298389 (Pubitemid 44106859)
40. Hughes S. L., Cummings J., Weaver F., Manheim L., Braun B., Conrad K., A randomized trial of the cost effectiveness of VA hospital-based home care for the terminally ill. Health Services Research 1992 26 6 801 817 2-s2.0-0026559658
41. Cantwell P., Turco S., Brenneis C., Hanson J., Neumann C. M., Bruera E., Predictors of home death in palliative care cancer patients. Journal of Palliative Care 2000 16 1 23 28 2-s2.0-0034152919
42. Guerriere D. N., Wong A. Y. M., Croxford R., Leong V. W., McKeever P., Coyte P. C., Costs and determinants of privately financed home-based health care in Ontario, Canada. Health and Social Care in the Community 2008 16 2 126 136 2-s2.0-39349116976 10.1111/j.1365-2524.2007.00732.x
43. Guerriere D. N., denise.guerriere@utoronto.ca Ungar W. J., wndy.ungar@sickkids.ca Corey M., mary.cory@sickkids.ca Croxford R., RuthC@ices.on.ca Tranmer J. E., jenn.tranmer@uontario.ca Tullis E., tullise@smh.toronto.on.ca Coyte P. C., pter.coyte@utoronto.ca Evaluation of the ambulatory and home care record: agreement between self-reports and administrative data. International Journal of Technology Assessment in Health Care 2006 22 2 203 210 10.1017/S0266462306051026
44. Gold M., Siegel J. E., Russel L. B., Weinstein M. C., Cost-Effectiveness in Health and Medicine 1996 New York, NY, USA Oxford University Press
45. Drummond M., O'Brien B., Stoddart G. L., Torrance G. W., Methods for the Economic Evaluation of Health Care Programmes 1997 Toronto, Canada Oxford University Press
46. Yates B., Analyzing Costs, Procedures, Processes, and Outcomes in Human Service 1997 Calif, USA Sage Publications
47. LeForte S., Watt-Watson J., Gray-Donald K., Webber K., Coyte P. C., Guerriere D. N., Evaluation of the Chronic Pain Self-Management Program Canadian Institutes of Health Research
48. Tranmer J. E., Guerriere D. N., Ungar W. J., Coyte P. C., Valuing patient and caregiver time: a review of the literature. PharmacoEconomics 2005 23 5 449 459 2-s2.0-22244459896 10.2165/00019053-200523050-00005 (Pubitemid 40994134)
49. Leong V., Guerriere D. N., Croxford R., Coyte P. C., The magnitude, share and determinants of private costs incurred by recipients (and their caregivers) of in-home publicly financed care. Healthcare Policy 2007 11 8
50. McGillion M., Croxford R., Watt-Watson J., LeFort S., Stevens B., Coyte P., Cost of illness for chronic stable angina patients enrolled in a self-management education trial. Canadian Journal of Cardiology 2008 24 10 759 764 2-s2.0-54449098921
51. Coyte P. C., Jamieson E., Mulkovich N., An Economic Evaluation of Hospital-Based and Home-Based Antibiotic Intravenous Therapy for Individuals with Cellulites Health Transition Fund
52. Stevens B., Guerriere D., McKeever P., Croxford R., Miller K. L., Watson-Macdonell JO., Gibbins S., Dunn M., Ohlsson A., Ray K., Coyte P., Economics of home vs. hospital breastfeeding support for newborns. Journal of Advanced Nursing 2006 53 2 233 243 2-s2.0-33645232912 10.1111/j.1365-2648.2006. 03720.x (Pubitemid 43455548)
53. Young N. L., Barden W., Lefort S., Nijssen-Jordan C., Daniels C., Booth M., Dick P. T., Loewen S., Robbins C., Daub S., To T., Stevens B., Filler R., Coyte P., McKeever P., Telehomecare: a comparison of three Canadian models. Telemedicine Journal and e-Health 2004 10 1 45 52 2-s2.0-11144354387 10.1089/153056204773644571 (Pubitemid 38480991)
54. Hadden K. G. D., Global and Molecular Pain Response in Children with and without Significant Neurological Impairment Canadian Institutes of Health Research
55. Guerriere D. N., Choinière M., Dion D., Peng P., Stafford-Coyte E., Zagorski B., Banner R., Barton P. M., Boulanger A., Clark A. J., Gordon A. S., Guertin M. C., Intrater H. M., Lefort S. M., Lynch M. E., Moulin D. E., Ong-Lam M., Racine M., Rashiq S., Shir Y., Taenzer P., Ware M., The Canadian STOP-PAIN project-part 2: what is the cost of pain for patients on waitlists of multidisciplinary pain treatment facilities? Canadian Journal of Anesthesia 2010 57 6 549 558 2-s2.0-77953286524 10.1007/s12630-010-9306-4
56. Tsimicalis A., Stevens B., Ungar W., Costs incurred by families of children newly diagnosed with cancer, Ph.D. thesis Toronto, Canada Department of Nursing, University of Toronto
57. Masucci L., Guerriere D. N., Cheng R., Coyte P. C., peter.coyte@utoronto. ca Determinants of place of death for recipients of home-based palliative care. Journal of Palliative Care 2010 26 4 279 286
58. Isaranuwatchai W., Guerriere D. N., Andrews G., Coyte P. C., Patterns, determinants, and spatial analysis of health service utilization following the 2004 tsunami in Thailand, Ph.D. thesis Toronto, Canada Department of Health Policy, Management and Evaluation, University of Toronto
59. Sutherland J., ICD-10-based Relative Cost Weights. PAC-10, 2004
60. Canadian Institute for Health Information (CIHI), Discharge Abstract Database (DAD) Resource Intensity Weights and Expected Length of Stay 2005 2005 Ottawa, Canada CIHI
61. Canadian Institute of Health Information (CIHI), Canadian Classification of Health Interventions (CCI)
62. Canadian Institute for Health Information (CIHI),. International Statistical Classification of Diseases and Related Health Problems Tenth Revision Canada (ICD-10-CA)
63. Canadian Institute for Health Information (CIHI),. CMG/Plx Directory 2002 (for use with ICD-10-CA/CCI), CIHI, Ottawa, Canada, 2002
64. Torgerson D. J., Donaldson C., Reid D. M., Private versus social opportunity cost of time: valuing time in the demand for health care. Health Economics 1994 3 3 149 155 2-s2.0-0028438742
65. Rabow M. W., Hauser J. M., Adams J., Supporting family caregivers at the end of life: They Don't Know What They Don't Know Journal of the American Medical Association 2004 291 4 483 491 2-s2.0-1642458586 10.1001/jama.291.4.483 (Pubitemid 38129753)
66. Osse B. H. P., Vernooij-Dassen M. J. F. J., Schadé E., Grol R. P. T. M., Problems experienced by the informal caregivers of cancer patients and their needs for support. Cancer Nursing 2006 29 5 378 388 2-s2.0-33749233814 10.1097/00002820-200609000-00005 (Pubitemid 44483995)
67. Brazil K., Bédard M., Willison K., Hode M., Caregiving and its impact on families of the terminally ill. Aging and Mental Health 2003 7 5 376 382 2-s2.0-0041320955 10.1080/1360786031000150649 (Pubitemid 37070946)
68. Wolff J. L., Dy S. M., Frick K. D., Kasper J. D., End-of-life care: findings from a national survey of informal caregivers. Archives of Internal Medicine 2007 167 1 40 46 2-s2.0-33846084176 10.1001/archinte.167.1.40 (Pubitemid 46072405)