Assessing participant-centered outcomes to improve clinical research

New England Journal of Medicine

Volumn 369, Issue 23, 2013, Pages 2179-2181

  Kost, Rhonda G ^a   Lee, Laura M ^b   Yessis, Jennifer ^c   Wesley, Robert A ^b   Henderson, David K ^b   Coller, Barry S ^a  

^a ROCKEFELLER UNIVERSITY   (United States)

^b NATIONAL INSTITUTES OF HEALTH   (United States)

^c UNIVERSITY OF WATERLOO   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

CLINICAL PRACTICE; CLINICAL RESEARCH; GENETICS; HEALTH CARE QUALITY; HEALTH CARE SYSTEM; HEALTH SURVEY; HUMAN; OUTCOME ASSESSMENT; PATIENT SATISFACTION; PRIORITY JOURNAL; QUALITY CONTROL; QUESTIONNAIRE; SHORT SURVEY; UNITED STATES; VOLUNTEER;

EID: 84889249608     PISSN: 00284793     EISSN: 15334406     Source Type: Journal    
DOI: 10.1056/NEJMp1311461     Document Type: Article

References (5)

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3. Kost RG, Lee LM, Yessis J, Coller BS, Henderson DK. Assessing research participants' perceptions of their clinical research experiences. Clin Transl Sci 2011;4:403-13.
4. Klitzman R, Appelbaum PS. Research ethics. To protect human subjects, review what was done, not proposed. Science 2012;335:1576-7.
5. Leshner AI, Terry SF, Schultz AM, Liverman CT, eds. The CTSA program at NIH: opportunities for advancing clinical and translational research. Washington, DC: National Academies Press, 2013 (http://www.iom.edu/reports/2013/ the-ctsa-program-at-nih-opportunities-for-advancing-clinical-and-translational- research.aspx).