Survivors of brain injury through the eyes of the public: A systematic review

Brain Injury

Volumn 27, Issue 13-14, 2013, Pages 1475-1491

  Ralph, Andrea ^a   Derbyshire, Catherine ^a  

^a UNIVERSITY OF HULL   (United Kingdom)

Author keywords

Attitude; Brain injury; Knowledge; Prejudice; Public; Stigma

Indexed keywords

AGE DISTRIBUTION; ATTITUDE TO HEALTH; ATTITUDE TO ILLNESS; BRAIN INJURY; CLINICAL ASSESSMENT; EDUCATIONAL STATUS; HUMAN; INJURY SEVERITY; MEMORY DISORDER; PATIENT ATTITUDE; PERSONAL EXPERIENCE; RELIGION; REVIEW; SEX DIFFERENCE; SOCIAL STATUS; SURVIVOR; SYMPTOM ASSESSMENT; SYSTEMATIC REVIEW; UNCONSCIOUSNESS;

AWARENESS; BRAIN INJURIES; FEMALE; HEALTH EDUCATION; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERPERSONAL RELATIONS; MALE; PUBLIC OPINION; QUALITATIVE RESEARCH; QUALITY ASSURANCE, HEALTH CARE; SOCIAL STIGMA; SURVIVORS;

EID: 84888876113     PISSN: 02699052     EISSN: 1362301X     Source Type: Journal    
DOI: 10.3109/02699052.2013.823653     Document Type: Review

References (63)

1. Nochi M.'Loss of self'in the narratives of people with traumatic brain injuries: A qualitative analysis. Social Science and Medicine 1998;46:869-878.
2. Simpson G, Mohr R, Redman A. Cultural variations in the understanding of traumatic brain injury and brain injury rehabilitation. Brain Injury 2000;14:125-140.
3. Chamberlain DJ. The experience of surviving traumatic brain injury. Journal of Advanced Nursing 2006;54:407-417.
4. Royal College of Physicians. Rehabilitation following acquired brain injury: National clinical guidelines. London, UK: Royal College of Physicians & British Society of Rehabilitation Medicine; 2003.
5. Brain injury facts. [Internet]. Virginia, USA: International Brain Injury Association; 2012 May 03-[cited 2012 May 03]; Available from: http://www.internationalbrain.org/?q=Brain-Injury-Facts.
6. Zasler N, Martelli M. Mild traumatic brain injury: Impairment and disability assessment caveats. Neuropsychological Rehabilitation 2003;13:31-42.
7. Jones JM, Jetten J, Haslam SA, Williams WH. Deciding to disclose: The importance of maintaining social relationships for well-being after acquired brain injury. In: Jetten J, Haslam C, Haslam A, editors. The social cure: Identity, health and well-being. Hove: Psychology Press; 2012. p 255-272.
8. Rao V, Lyketsos C. Neuropsychiatric sequelae of traumatic brain injury. Psychosomatics 2000;41:95-103.
9. Ashman T, Spielman L, Hibbard M, Silver J, Chandna T, Gordon W. Psychiatric challenges in the first 6 years after traumatic brain injury: Cross-sectional analyses of axis I disorders. Archives of Physical Medicine and Rehabilitation 2004;85:S36-42.
10. Lefebvre H, Cloutier G, Levert M. Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Injury 2008;22:535-543.
11. Goffman E. Stigma: Notes on the management of a spoiled identity. Englewood Cliffs, NJ: Prentice Hall; 1963.
12. Link B, Phelan J. Conceptualizing stigma. Annual Review of Sociology 2001;27:363-385.
13. Link BG, Struening EL, Neese-Todd S, Asmussen S, Phelan JC. The consequences of stigma for the self-esteem of people with mental illnesses. Psychiatric Services 2001;52:1621-1626.
14. Penn D, Wykes T. Stigma, discrimination and mental illness. Journal of Mental Health 2003;12:203-208.
15. Time to change: Lets end mental health discrimination. [Internet] London, UK: Mind and Rethink Mental Illness; 2008-[cited 2012 May 03]. Available from: http://www.time-to-change.org.uk/.
16. Corrigan PW, Watson AC. The paradox of self-stigma and mental illness. Clinical Psychology: Science and Practice 2002;9:35-53.
17. Hamilton D, Sherman J. Stereotypes. In: RS Wyer, TK Srull, editors. Handbook of social cognition, vol. 1: Basic processes. 2nd ed. Hillsdale, NJ: Erlbaum; 1994.
18. Ajzen I. The theory of planned behavior. Organizational Behavior and Human Decision Processed 1991;50:179-211.
19. Bos AER, Kanner D, Muris P, Janssen B, Mayer B. Mental illness stigma and disclosure: Consequences of coming out of the closet. Issues in Mental Health Nursing 2009;30:509-513.
20. Katrak P, Bialocerkowski AE, Massy-Westropp N, Kumar S, Grimmer KA. A systematic review of the content of critical appraisal tools. BMC Medical Research Methodology 2004;4:22.
21. Fowkes FG, Fulton PM. Critical appraisal of published research: Introductory guidelines. British Medical Journal 1991;302: 1136-1140.
22. Downs SH, Black N. The feasibility of creating a checklist for the assessment of the methodological quality both of randomised and non-randomised studies of health care interventions. Journal of Epidemiology and Community Health 1998;52:377-384.
23. National Institute for Health and Clinical Excellence (NICE). The guidelines manual. London: National Institute for Health and Clinical Excellence; 2007.
24. National Institute for Health and Clinical Excellence (NICE). The guidelines manual. London: National Institute for Health and Clinical Excellence; 2009.
25. Landis J, Koch G. The measurement of observer agreement for categorical data. Biometrics 1988;33:159-174.
26. Linden MA, Boylan A.'To be accepted as normal': Public understanding and misconceptions concerning survivors of brain injury. Brain Injury 2010;24:642-650.
27. McKinlay A, Bishop A, McLellan T. Public knowledge of'concussion'and the different terminology used to communicate about mild traumatic brain injury (MTBI). Brain Injury 2011;25: 761-766.
28. Gouvier WD, Prestholdt PH, Warner MS. A survey of common misconceptions about head injury and recovery. Archives of Clinical Neuropsychology 1988;3:331-343.
29. Taylor SM, Dear MJ. Scaling community attitudes toward the mentally ill. Schizophrenia Bulletin 1981;7:225-240.
30. Kelly JA, St. Lawrence JS, Smith S, Hood HV. Medical students'attitudes toward AIDS and homosexual patients. Journal of Medical Education 1987;62:549-556.
31. Siperstein G. Adjective checklist (ACL) and friendship activity scale (FAS): Instruments for measuring children's attitudes. Boston, MA: University of Massachusetts, Center for the Study of Social Acceptance; 1980.
32. Greenwald AG, McGhee DE, Schwartz JLK. Measuring individual differences in implicit cognition: The implicit association test. Journal of Personality and Social Psychology 1998;74: 1464-1480.
33. Aubrey JB, Dobbs AR, Rule BG. Laypersons'knowledge about the sequelae of minor head injury and whiplash. Journal of Neurology, Neurosurgery & Psychiatry 1989;52:842-846.
34. Mittenberg W, DiGiulio DV, Perrin S, Bass AE. Symptoms following mild head injury: Expectation as aetiology. Journal of Neurology, Neurosurgery and Psychiatry 1992;55:200-204.
35. Willer B, Johnson WE, Rempel RG, Linn R. A note concerning misconceptions of the general public about brain injury. Archives of Clinical Neuropsychology 1993;8:461-465.
36. Vaughn SL, Frank RG, Leach LR, O'Neal GO. The public perception of head injury in Missouri. Brain Injury 1994;8: 149-158.
37. Lees-Haley PR, Dunn JT. The ability of naive subjects to report symptoms of mild brain injury, post-traumatic stress disorder, major depression, and generalized anxiety disorder. Journal of Clinical Psychology 1994;50:252-256.
38. O'Jile JR, Ryan LM, Parks-Levy J, Gouvier WD, Betz B, Haptonstahl DE, Coon RC. Effects of head injury experience on head injury misconceptions. International Journal of Rehabilitation and Health 1997;3:61-67.
39. Guilmette TJ, Paglia MF. The public's misconceptions about traumatic brain injury: A follow up survey. Archives of Clinical Neuropsychology 2004;19:183-189.
40. Mackenzie JA, McMillan TM. Knowledge of post-concussional syndrome in naive lay-people, general practitioners and people with minor traumatic brain injury. British Journal of Clinical Psychology 2005;44:417-424.
41. Hux K, Schram CD, Goeken T. Misconceptions about brain injury: A survey replication study. Brain Injury 2006;20:547-553.
42. Mulhern S, McMillan TM. Knowledge and expectation of postconcussion symptoms in the general population. Journal of Psychosomatic Research 2006;61:439-445.
43. Chapman RCG, Hudson JM. Beliefs about brain injury in Britain. Brain Injury 2010;24:797-801.
44. Redpath SJ, Linden MA. Attitudes towards behavioural versus organic acquisition of brain injury. Brain Injury 2004;18: 861-869.
45. Linden MA, Rauch RJ, Crothers IR. Public attitudes towards survivors of brain injury. Brain Injury 2005;19:1011-1017.
46. Linden MA, Crothers IR. Violent, caring, unpredictable: Public views on survivors of brain injury. Archives of Clinical Neuropsychology 2006;21:763-770.
47. Crothers IR, Linden MA, Kennedy N. Attitudes of children towards peers with acquired brain injury (ABI). Brain Injury 2007;21: 47-52.
48. Linden MA, Hanna D, Redpath SJ. The influence of aetiology and blame on prejudice towards survivors of brain injury. Archives of Clinical Neuropsychology 2007;22:665-673.
49. McLellan T, Bishop A, McKinlay A. Community attitudes toward individuals with traumatic brain injury. Journal of the International Neuropsychological Society 2010;16:705-710.
50. Gouvier WD, Cublic B, Jones G, Brantley P, Cutlip Q. Postconcussional symptoms and daily stress in normal and head injured college populations. Archives of Clinical Neuropsychology 1992;7:193-211.
51. Tsang HWH, Angel B, Corrigan PW, Lee Y, Shi K, Lam CS, Jin S, Fung KMT. A cross-cultural study of employers'concerns about hiring people with psychotic disorder: Implications for recovery. Social Psychiatry and Psychiatric Epidemiology 2007;42: 723-733.
52. Griffin KW, Rabkin JG. Perceived control over illness, realistic acceptance and psychological adjustment in people with aids. Journal of Social and Clinical Psychology 1998;17:407-424.
53. Weiner B. On sin versus sickness: A theory of perceived responsibility and social motivation. American Psychologist 1993; 48:957-965.
54. Lewis M. Shame and stigma. In: Gilbert P, Andrews B, editors. Shame: Interpersonal behaviour, psychopathology and culture. New York: Oxford University Press; 1998. p 126-140.
55. Gilworth G, Eyres S, Carey A, Bhakta BB, Tennant A. Working with a brain injury: Personal experiences of returning to work following a mild or moderate brain injury. Journal of Rehabilitation Medicine 2008;40:334-339.
56. Cross SE, Madson L. Models of the self: Self-construals and gender. Psychological Bulletin 1997;122:5-37.
57. Ng P, Chan K. Sex differences in opinion towards mental illness of secondary school students in Hong Kong. International Journal of Social Psychiatry 2000;46:79-88.
58. Fajardo DM. Author race, essay quality, and reverse discrimination. Journal of Applied Social Psychology 1985;15:255-268.
59. Pratto F, Sidanius J, Stallworth LM, Malle BF. Social dominance orientation: A personality variable predicting social and political attitudes. Journal of Personality and Social Psychology 1994;67: 741-763.
60. Corrigan PW, Edwards AB, Green A, Diwan SL, Penn DL. Prejudice, social distance, and familiarity with mental illness. Schizophrenia Bulletin 2001;27:219-225.
61. Tanaka G, Ogawa T, Inadomi H, Kikuchi Y, Ohta Y. Effects of an educational program on public attitudes towards mental illness. Psychiatry and Clinical Neurosciences 2003;57:595-602.
62. Rüsch N, Angermeyer MC, Corrigan PW. Mental illness stigma: Concepts, consequences, and initiatives to reduce stigma. European Psychiatry 2005;20:529-539.
63. Stroke-ACT F.A.S.T. [Internet]. London, UK: Department of Health, NHS Choices; 2011 June 09-[cited 2012 May 03]. Available from: http://www.nhs.uk/ actfast/pages/stroke.aspx.