Designing interactivity on consumer health websites: PARAFORUM for spinal cord injury

Patient Education and Counseling

Volumn 93, Issue 3, 2013, Pages 459-463

  Rubinelli, Sara ^a   Collm, Alexandra ^b   Glässel, Andrea ^a   Diesner, Fabian ^a   Kinast, Johannes ^a   Stucki, Gerold ^a   Brach, Mirjam ^a  

^a SWISS PARAPLEGIC RESEARCH   (Switzerland)

^b UNIVERSITY OF ST GALLEN   (Switzerland)

Author keywords

Consumer health websites; Innovation; Internet; Open communities; Self management; Spinal cord injury

Indexed keywords

ACCESS TO INFORMATION; ARTICLE; COMMUNITY CARE; DOCTOR PATIENT RELATION; HEALTH CARE ORGANIZATION; HEALTH EDUCATION; HUMAN; MASS COMMUNICATION; PARAFORUM; PEER GROUP; PRIORITY JOURNAL; PUBLIC HEALTH; SELF CARE; SPINAL CORD INJURY; SUPPORT GROUP; WEB BROWSER; CHRONIC DISEASE; COMPUTER INTERFACE; CONSUMER; CONSUMER HEALTH INFORMATION; HEALTH BEHAVIOR; HEALTH CARE DELIVERY; INTERNET; PROCEDURES;

CHRONIC DISEASE; CONSUMER HEALTH INFORMATION; CONSUMER PARTICIPATION; DELIVERY OF HEALTH CARE; HEALTH BEHAVIOR; HEALTH EDUCATION; HUMANS; INTERNET; SELF CARE; SPINAL CORD INJURIES; USER-COMPUTER INTERFACE;

EID: 84888352488     PISSN: 07383991     EISSN: 18735134     Source Type: Journal    
DOI: 10.1016/j.pec.2013.09.015     Document Type: Article

References (40)

1. Harvey C., Whitney J.H. Medical library: top consumer health websites 2013, http://doc.med.yale.edu/portals/consumer-t.html [accessed 15.08.13].
2. Nuffield Council on bioethics Chapter 5: online health information. Medical profiling and online medicine: the ethics of personalized healthcare in a consumer age 2010, October, Nuffield Council on bioethics, London, http://www.nuffieldbioethics.org [accessed 15.08.13].
3. University of Washington The Northwest Regional Spinal Cord Injury System SCI resources on the internet 2013, http://sci.washington.edu/resources/links.asp [accessed 15.08.13].
4. Neuhauser L., Kreps G. Rethinking communication in the e-Health era. J Health Psychol 2003, 8:7-23.
5. Rubinelli S., Nakamoto K., Schulz P.J. Health literacy beyond knowledge and behaviour. Int J Public Health 2009, 54:307-311.
6. Schulz P.J., Nakamoto K. Health literacy and patient empowerment in health communication: the importance of separating conjoined twins. Patient Educ Couns 2013, 90:4-11.
7. Neuhauser L., Kreps G.L. Ehealth communication and behavior change: promise and performance. Soc Semiot 2010, 20:7-24.
8. Kreps G.L., Neuhauser L. New directions in eHealth communication: opportunities and challenges. Patient Educ Couns 2010, 78:329-336.
9. Smith D.H. Studying health communication: an agenda for the future. Health Commun 1989, 1:17-28.
10. Stellefson M., Chaney B., Barry A.E., Chavarria E., Tennant B., Walsh-Childers K., et al. Web 2.0 chronic disease self-management for older adults: a systematic review. J Med Internet Res 2013, 15:e35.
11. McDermott M.S., While A.E. Maximizing the healthcare environment: a systematic review exploring the potential of computer technology to promote self-management of chronic illness in healthcare settings. Patient Educ Couns 2013, 92:13-22.
12. Green N., Rubinelli S., Scott D., Visser A. Health communication meets artificial intelligence. Patient Educ Couns 2013, 92:139-141.
13. Rice R.E. The internet and health communication: a framework of experiences. The internet and health communication 2001, Sage, Thousand Oaks, CA. R.E. Rice, J.E. Katz (Eds.).
14. Street R.L., Rimal R. Health promotion and interactive technology: a conceptual foundation. Health promotion and interactive technology: theoretical applications and future directions 1997, Lawrence Erlbaum Associates, Mahwah, NJ. R.L. Street, W. Gold, T. Manning (Eds.).
15. Thurlow C., Lengel L., Tomic A. Computer mediated communication: social interaction and the internet 2004, Sage, London.
16. Walther J.B. Computer-mediated communication: impersonal, interpersonal, and hyperpersonal interaction. Commun Res 1996, 23:3-43.
17. Kraut R.E., Resnick P. Building successful online communities. Evidence-based social design 2011, The MIT Press, Cambridge, MS-London.
18. Forman E.A. Knowledge building in discourse communities. Hum Dev 2000, 43:364-368.
19. Gilbert K.G., Dabbagh N. How to structure online discussions for meaningful discourse: a case study. Brit J Educ Technol 2005, 36:5-18.
20. Hardey M. E-health: the internet and the transformation of patients into consumers and producers of health knowledge. Inf Comm Soc 2010, 4:388-405.
21. Kaplan B., Brennan P.F. Consumer informatics supporting patients as co-producers of quality. J Am Med Inform Assoc 2001, 8:309-316.
22. Kommers P., Coulson N.S. Editorial: special issue on web-based communities and healthcare. Int J Web Based Communities 2010, 6:335-336.
23. Swan M. Emerging patient-driven health care models: an examination of health social networks, consumer personalized medicine and quantified self-tracking. Int J Environ Res Public Health 2009, 6:492-525.
24. Chesbrough H.W. Open innovation. The new imperative for creating and profiting from technology 2003, Harvard Business School Press, Boston.
25. Chesbrough H.W., Vanhaverbeke W., West J. Open Innovation. Researching a new paradigm 2006, Oxford University Press, Oxford.
26. Bullinger A.C., Rass M., Adamczyk S., Sohn S. Open innovation in health care - analysis of an open health platform. Health Policy 2012, 105:165-175.
27. WHO International classification of functioning, disability and health (ICF) 2001, WHO, Geneva.
28. Schubart J.R., Stuckey H.L., Ganeshamoorthy A., Sciamanna C.N. Chronic health conditions and internet behavioral interventions: a review of factors to enhance user engagement. Comput Inform Nurs 2011, 29:81-92.
29. Powell J.A., Lowe P., Griffiths F.E., Thorogood M. A critical analysis of the literature on the Internet and consumer health information. J Telemed Telecare 2005, 11:41-43.
30. Kaufman N. Internet and information technology use in treatment of diabetes. Int J Clin Pract Suppl 2010, 166:41-46.
31. Eysenbach G., Powell J., Englesakis M., Rizo C., Stern A. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. Brit Med J 2004, 328:1-6.
32. Bullinger A., Rass M., Moeslein K. Towards open innovation in health care. ECIS 2012 Proceedings 2012, Paper 120.
33. Quinn E.M., Corrigan M.A., McHugh S.M., Murphy D., O'Mullane J., Hill A.D., et al. Who's talking about breast cancer? Analysis of daily breast cancer posts on the internet. Breast 2013, 22:24-27.
34. Donelle L., Hoffman-Goetz L. Functional health literacy and cancer care conversations in online forums for retired persons. Inform Health Soc Care. 2009, 34:59-72.
35. Minkler M., Wallerstein N. Community-based participatory research for health: from process to outcomes 2008, Jossey-Bass, San Francisco.
36. Neuhauser L. Participatory design for better interactive health communication: a statewide model in the USA. Electron J Commun La Revue Electronique de Commun 2001, 11:3-4.
37. Neuhauser L., Kreps G.L., Morrison K., Athanasoulis M., Kirienko N., Van Brunt D. Using design science and artificial intelligence to improve health communication: ChronologyMD case example. Patient Educ Couns 2013, 92:211-217.
38. Osborne S.P., Brown L. Innovation in public services 2013, Edward Elgar Publishing, Glos-Northampton.
39. Straus S., Tetroe J., Graham I.D. Knowledge translation in health care 2009, BMJ Books. Blackwell Publishing, Oxford.
40. Charles M.Ess., William H Dutton. Internet studies: perspectives on a rapidly developing field. New Media Soc 2013, 10.1177/1461444812462845.