Self-management in heart failure: Where have we been and where should we go?

Journal of Multidisciplinary Healthcare

Volumn 4, Issue , 2011, Pages 39-51

  Gardetto, Nancy Jean ^a,b  

^a VETERANS AFFAIRS MEDICAL CENTER   (United States)

^b UNIFORMED SERVICES UNIVERSITY OF THE HEALTH SCIENCES   (United States)

Author keywords

Chronic disease; Disease management; Heart failure; Self care; Self management

Indexed keywords

EID: 84860826934     PISSN: None     EISSN: 11782390     Source Type: Journal    
DOI: 10.2147/JMDH.S8174     Document Type: Article

References (67)

1. Hunt SA, Abraham WT, Chin MH, et al. Focused update incorporated into the ACC/AHA 2005 Guidelines for the diagnosis and management of heart failure in adults: A report of the American College of Cardiology Foundation/American Heart Association Task Force on practice guidelines developed in collaboration with the international society for heart and lung transplantation. J Am Coll Cardiol. 2009;53(15): 1–90
2. Lloyd-Jones D, Adams RJ, Brown TM, et al. Executive Summary: heart disease and stroke statistics – 2010 update: a report from the American Heart Association. Circulation. 2010;121(7):948–954
3. Curtis LH, Greiner MA, Hammill BG, et al. Early and long-term outcomes of heart failure in elderly persons, 2001–2005. Arch Intern Med. 2008;168(22):2481–2488
4. Dunlay SM, Redfield MM, Weston SA, et al. Hospitalizations after heart failure diagnosis: A community perspective. Am Coll Cardio. 2009;54(18):1695–1702
5. Jencks AF, Williams MV, Coleman EA. Rehospitalizations among patients in the Medicare Fee-for-Service Program. N Engl J Med. 2009;360(14):1418–1427
6. Ross JS, Chen J, Lin Z, et al. Recent national trends in readmission rates after heart failure hospitalization. Circ Heart Fail. 2010;3(1): 97–103
7. Adams K, Corrigan JM, Editors. Institute of Medicine. Priority Areas for National Action: Transforming Health Care Quality. Washington, DC: National Academic Press; 2003
8. Bodenheimer T, Chen E, Bennett HD. Confronting the growing burden of chronic disease: can the US health care workforce do the job? Health Aff (Millwood). 2009;28(1):64074
9. Sochalski H, Jaarsma T, Krumholz HM, et al. What works in chronic care management: the case of Heart Failure? Health Aff (Millwood). 2009;28(1):179–189
10. Krumholz HM, Currie PM, Riegel B, et al. Taxonomy for disease management: a scientific statement from the American Heart Association Disease Management Taxonomy Writing Group. Circulation. 2006; 114(13):1432–1445
11. Center for Disease Control and Prevention. State of aging and health in America report. Washington, DC: US Department of Health and Human Services; 2007
12. Bodenheimer T. Disease management in the American market. BMJ. 2000;320(7234):563–566
13. Hoffman C, Rice D, Sung HY. Persons with chronic conditions: their prevalence and cost. JAMA. 1996;276(18):1473–1479
14. Agency for Healthcare Research and Quality. Patient Self-Management Support Programs: An Evaluation. Final contract report. AHRQ publication No. 08-0011. November 2007. Rockville, MD. http://www.ahrq.gov/qual/ptmgmt/. Accessed December 9, 2010
15. Lorig KR, Holman HR. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;23(1):1–7
16. Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Selfmanagement approaches for people with chronic conditions: a review. Patient Educ Couns. 2002;48(2):177–187
17. Riegel B, Moser DK, Anker SD, et al. State of the science: promoting self-care in persons with heart failure. A scientific statement from the American Heart Association. Circulation. 2009;120(12): 1131–1163
18. Fonarow GC, Yancy CW, Heywood JT, et al. Adherence to heart failure quality-of-care indicators in US hospitals: analysis of the ADHERE Registry. Arch Intern Med. 2005;165(13):1469–1477
19. Cameron J, Worrall-Carter L, Riegel B, Lo SK, Stewart S. Testing a model of patient characteristics, psychological status, and cognitive function as predictors of self-care in persons with chronic heart failure. Heart Lung. 2009;38(5):410–441
20. Jaarsma T, Abu-Saad HH, Dracup K, Halfens R. Self-care behaviour of patients with heart failure. Scand J Caring Sci. 2000;14(2):112–119
21. Braunstein JB, Anderson GF, Gerstenblith B, et al. Noncardiac Comorbidity Increases Preventable Hospitalizations and Mortality Among Medicare Beneficiaries With Chronic Heart Failure. J Am Coll Cardiol. 2003;42(7):1226–1233
22. Rich MW. Heart failure in the oldest patients: the impact of comorbid conditions. Am J Geriatric Cardiol. 2005;14(3):134–141
23. Kfoury AG, French TK, Horne BD, et al. Incremental survival benefit with adherence to standardized heart failure core measures: a performance evaluation study of 2,958 patients. J Card Fail. 2008; 14(2):103–105
24. Institute of Medicine of the National Academies, Committee on Redesigning Health Insurance Performance Measures, Payment, and Performance Improvement Programs. Rewarding Provider Performance: Aligning Incentives in Medicare. Washington, DC: National Academy Press, Inc; 2007
25. Fonarow GC, Corday E; ADHERE Scientific Advisory Committee. Overview of acutely decompensated congestive heart failure (ADHF): a report from the ADHERE registry. Heart Fail Rev. 2004;9(3):179–185
26. Fonarow GC, Abraham WT, Albert NM, et al. Organized Program to Initiate Lifesaving Treatment in Hospitalized Patients with Heart Failure (OPTIMIZE-HF): rationale and design. Am Heart J. 2004;148(1):43–51
27. O’Connor CM, Stough WG, Gallup DS, Hasselblad V, Gheorghiade M. Demographics, clinical characteristics, and outcomes of patients hospitalized for decompensated heart failure: observations from the IMPACT-HF registry. J Card Fail. 2005;11(3):200–205
28. Adams KF Jr, Fonarow GC, Emerman CL, et al. Characteristics and outcomes of patients hospitalized for heart failure in the United States: rationale, design, and preliminary observations from the first 100,000 cases in the Acute Decompensated Heart Failure National Registry (ADHERE). Am Heart J. 2005;149(2):209–216
29. Kociol RD, Hammill BD, Fonarow GC, et al. Generalizability and longitudinal outcomes of a national heart failure clinical registry: comparison of Acute Decompensated Heart Failure National Registry (ADHERE) and non-ADHERE Medicare beneficiaries. Am Heart J. 2010;160(5):885–892
30. Jha AK, Orav EJ, Epstein AM. Public reporting of discharge planning and rates of readmission. N Engl J Med. 2009;361(27):2637–2645
31. Zambroski CH, Moser DK, Bhat G, Ziegler C. Impact of symptom prevalence and symptom burden on quality of life in patients with heart failure. Eur J Cardiovasc Nurs. 2005;4(3):198–206
32. Trupp RJ, Hiestand B, Dodge G, et al. Patient Education. Crit Pathw Cardiol. 2008;7(2):116–121
33. Moser DK, Doering LV, Chung ML. Vulnerabilities of patients recovering from an exacerbation of chronic heart failure. Am Heart J. 2005;150(5):9847–98413
34. Lemon SC, Olenclzki B, Magner R, et al. The dietary quality of persons with heart failure in NHANES 1999–2006. J Gen Intern Med. 2010; 25(2):135–140
35. Ambardeckar AV, Fonarow GC, Hernandez AF, et al. Characteristics and in-hospital outcomes for nonadherent patients with heart failure: findings from Get with the Guidelines-Heart Failure (GWTG-HF). Am Heart J. 2009;158(4):644–652
36. Connelly CE. An empirical study of a model of self-care in chronic illness. Clin Nurse Spec. 1993;7(5):247–253
37. Chriss PM, Sheposh J, Carlson B, et al. Predictors of successful heart failure self-care maintenance in the first three months after hospitalization. Heart Lung. 2004;33(6):345–353
38. Rockwell JM, Riegel B. Predictors of self-care in persons with heart failure. Heart Lung. 2001;30(1):18–25
39. Artinian NT, Magnan M, Sloan M, Large MP. Self-care behaviors among patients with heart failure. Heart Lung. 2002;31(3):161–172
40. Riegel B, Carlson B. Facilitators and barriers to heart failure self-care. Patient Educ Couns. 2002;46(4):287–295
41. Riegel B, Vaughn Dickson V, Goldberg LR, Deatrick JA. Factors associated with the development of expertise in heart failure self-care. Nurs Res. 2007;56(4):235–243
42. Cameron C., Worrall-Carter Page, et al. Self-care behaviors among patients with heart failure. Heart Lung. 2010;31(3):161–172
43. Richardson LG. Psychosocial issues in patients with congestive heart failure. Prog Cardiovasc Nurs. 2003;18(1):19–27
44. Sayers SL, Riegel B, Pawlowski S, Coyne JC, Samaha FF. Social support and self-care of patients with heart failure. Ann Behav Med. 2008;35(1):70–79
45. Hibbard JH, Stockard J, Mahoney E., Tusler M. Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res. 2004;39(4 part 1): 1005–1026
46. US Department of Health and Human Services, Agency for Healthcare Research and Quality. The Guide to Clinical Preventive Services: 2006 Recommendations of the US Preventive Services Task Force. Washington, DC: US Dept of Health and Human Services; June 2006. AHRQ publication 06-0588
47. Institute of Medicine’s Committee on Quality of Health Care in America (2001). Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: National Press
48. Hibbard JH. Engaging health care consumers to improve the quality of care. Med Care. 2003;41(1 Suppl):I61–I70
49. Hibbard J, Mahoney E. Toward a theory of patient and consumer activation. Patient Educ Couns. 2010;78(3):377–381
50. Hibbard JH, Mahoney E., Stockard J, Tusler M. Development and testing of a short form of the patient activation measure. Health Serv Res. 2005;40(1-6):1918–1930
51. Hibbard JH, Mahoney E., Stock R, Tusler M. Do increases in patient activation result in improved self-management behaviors? Health Serv Res. 2007;42(4):14443–14463
52. Mosen DM, Schmittdiel J, Hibbard J, Sobel D, Remmers C, Bellows J. Is patient activation associated with outcomes of care for adults with chronic conditions? J Ambul Care Manage. 2007;30(1):21–29
53. Dixon A, Hibbard J, Tusler M. How do people with different levels of activation self-manage their chronic conditions? Patient. 2009;2(4): 257–268
54. Hamner JB, Ellison KJ. Predictors of hospital readmission after discharge in patients with congestive heart failure. Heart Lung. 2005; 34(4):231–239
55. Philbin EF, Dec GG, Jenkins PL, DiSalvo TG. Socioeconomic status as an independent risk factor for hospital readmission for heart failure. Am J Cardiol. 2001;87(12):1367–1371
56. Setoguchi S, Warner Stevenson L. Hospitalizations in patients with heart failure: who and why. J Am Coll Cardiol. 2009;54(18):1703–1705
57. Naylor MD, Sochalski JA. Scaling up: bringing the transitional care model into the mainstream. Issue Brief (Commonwealth Fund). 2010 Nov;103:1–12
58. Naylor MD, Feldman PH, Keating S, et al. Translating research into practice: transitional care for older adults. J Eval Clin Pract. 2009;15(6): 1164–1170
59. NewCourtland Center for Transitions and Health, University of Pennsylvania School of Nursing, Philadelphia, PA. The Transitional care model. Published 2008–2009. http://www.transitionalcare.info. Accessed January 15, 2011
60. American College of Cardiology. Hospital to Home: H2H National Quality Improvement Initiative. Published 2011. http://www.h2hquality. org/Home/tabid/38/Default.aspx. Accessed January 15, 2011
61. Ditewig JB, Blok H, Havers J, van Veenendaal H. Effectiveness of self-management interventions on mortality, hospital readmissions, chronic heart failure. Patient Educ Couns. 2010;78(3):297–315
62. Jovicic A, Holroyd-Leduc JM, Straus SE. Effects of self-management intervention on health outcomes of patients with heart failure: a systematic review of randomized controlled trials. BMC Cardiovasc Disord. 2006;6:1–8
63. Holland R, Battersby I, Harvey E, Lenaghan E, Smith J, Hay L. Systematic review of multidisciplinary interventions in heart failure. Heart Lung. 2005;91(7):899–906
64. McAlister FA, Stewart S, Ferrua S, McMurray JJ. Multidisciplinary strategies for the management of heart failure patients at high risk for admission: a systematic review of randomized trials. J Am Coll Cardiol. 2004;44(4):810–819
65. Konstam M, Konstam V. Heart failure disease management: A sustainable energy source for the health care engine. JACC. 2010; 56(5):379–381
66. Clark AM, Savard LA, Thompson DR. What is the strength of evidence for heart failure disease-management programs? JACC. 2009;54(5): 397–401
67. Moser DK, Watkins JF. Conceptualizing self-care in heart failure: a life course model of patient characteristics. J Cardiovasc Nurs. 2008;23(3): 205–218.