The relative importance of undesirable truths

Medicine, Health Care and Philosophy

Volumn 16, Issue 4, 2013, Pages 683-690

  Bortolotti, Lisa ^a  

^a UNIVERSITY OF BIRMINGHAM   (United Kingdom)

Author keywords

Autonomy; Genetic testing; Open future; Personal narratives; Right not to know; Self authorship; Self knowledge

Indexed keywords

DECISION MAKING; ETHICS; GENETIC SCREENING; HUMAN; INTERPERSONAL COMMUNICATION; PATIENT RIGHT; PERSONAL AUTONOMY;

DECISION MAKING; GENETIC TESTING; HUMANS; PATIENT RIGHTS; PERSONAL AUTONOMY; TRUTH DISCLOSURE;

EID: 84888127976     PISSN: 13867423     EISSN: 15728633     Source Type: Journal    
DOI: 10.1007/s11019-012-9449-x     Document Type: Article

References (39)

1. Allport, G. 1937. The functional autonomy of motives. American Journal of Psychology 50: 141-156.
2. Andorno, R. 2004. The right not to know: An autonomy based approach. Journal of Medical Ethics 30: 435-439.
3. Armitage, C., and J. Christian (eds.). 2004. Planned behavior: The relationship between human thought and action. New Brunswick: Transaction.
4. Austin, J., and J. Vancouver. 1996. Goal constructs in psychology: Structure, process and content. Psychological Bulletin 120: 338-375.
5. Bortolotti, L. 2010. Agency, life extension, and the meaning of life. The Monist 93(1): 38-56.
6. Bortolotti, L., and M. Mameli. 2006. Deception in psychology: Moral costs and benefits of unsought self-knowledge. Accountability in Research 13(3): 259-275.
7. Bortolotti, L., and H. Widdows. 2011. The right not to know: The case of psychiatric disorders. Journal of Medical Ethics 37: 673-676.
8. Bortolotti, L., Cox, R., Broome, M., and Mameli, M. (2012). Rationality and self-knowledge in delusions and confabulations: Implications for autonomy as self-governance. In L. Radoilska (ed.) Autonomy and Mental Disorder. Oxford University Press, pp. 100-122.
9. Butow, P., E. Lobb, B. Meiser, A. Barratt, and K. Tucker. 2003. Psychological outcomes and risk perception after genetic testing and counselling in breast cancer: A systematic review. Medical Journal of Australia 178(2): 77-81.
10. Carel, H. 2009. "I Am Well, Apart from the Fact that I Have Cancer": Explaining Wellbeing within Illness. In Philosophy and Happiness, ed. L. Bortolotti, 82-99. Palgrave: Basingstoke.
11. Chadwick, R., M. Levitt, and D. Shickle (eds.). 1997. The right to know and the right not to know. London: Ashgate Publishing Company.
12. Dworkin, G. 1988. The theory and practice of autonomy. Cambridge: Cambridge University Press.
13. Elms, A. 1982. Keeping deception honest: Justifying conditions for social scientific research stratagems. In Ethical issues in social science, ed. T. Beauchamp, R. Faden, J. Wallace, and L. Walters, 232-245. Baltimore: John Hopkins University Press.
14. Ford, M. 1992. Motivating humans: Goals, emotions, and personal agency beliefs. Newbury Park: Sage.
15. Frankfurt, H. (1988). Identification and Wholeheartedness. In: The Importance of What We Care About. Cambridge: Cambridge University Press, pp. 159-176.
16. Gerrans, P. 2009. Mad scientists or unreliable autobiographers? Dopamine dysregulation and delusion. In Psychiatry as cognitive neuroscience: Philosophical perspectives, ed. M. Broome, and L. Bortolotti, 151-172. Oxford: Oxford University Press.
17. Harris, J., and K. Keywood. 2001. Ignorance, information and autonomy. Theoretical Medicine 22: 415-436.
18. Häyry, M., and T. Takala. 2001. Genetic information, rights and autonomy. Theoretical Medicine 22: 403-414.
19. Haÿry, M., R. Chadwick, V. Árnason, and G. Árnason (eds.). 2007. The ethics and governance of human genetic databases. Cambridge: Cambridge University Press.
20. Kennett, J., and S. Matthews. 2009. Mental time travel, agency and responsibility. In Psychiatry as cognitive neuroscience: Philosophical perspectives, ed. M. R. Broome, and L. Bortolotti, 327-350. Oxford: Oxford University Press.
21. Kimmel, A. 2001. Ethical trends in marketing and psychological research. Ethics and Behavior 11(2): 131-149.
22. Kuhl, J., and J. Beckman (eds.). 1985. Action control: From cognitions to behaviors. New York: Springer.
23. Lerman, C., R. Croyle, K. Tercyak, and H. Hamann. 2002. Genetic testing: Psychological aspects and implications. Journal of Consulting and Clinical Psychology 70(3): 784-797.
24. Malpas, P. 2005. The right to remain in ignorance about genetic information-can such a right be defended in the name of autonomy? Journal of the New Zealand Medical Association 118(1220): 6-101.
25. Mameli, M. 2007. Reproductive cloning, genetic engineering, and the autonomy of the child: The moral agent and the open future. Journal of Medical Ethics 33(2): 87-93.
26. Marteau, T., and R. Croyle. 1998. The new genetics: Psychological responses to genetic testing. British Medical Journal 316: 693-696.
27. McAdams, D. 1997. The stories we live by: Personal myths and the making of the self. New York: Guilford Press.
28. McLeod, C. 2002. Self-trust and reproductive autonomy. Harvard: MIT Press.
29. Milgram, S. 1974. Obedience to authority. New York: Harper & Row.
30. Moran, R. 2001. Authority and estrangement: An essay on self-knowledge. Princeton (NJ): Princeton University Press.
31. Pingitore, R., B. Dugoni, S. Tindale, and B. Spring. 1994. Bias against overweight job applicants in a simulated employment interview. Journal of Applied Psychology 79(6): 909-917.
32. Räikkä, J. 1998. Freedom and a Right (not) to Know. Bioethics 12(1): 49-63.
33. Rhodes, R. 1998. Genetic links, family ties and social bonds: Rights and responsibilities in the face of genetic knowledge. Journal of Medicine and Philosophy 23(1): 10-30.
34. Solbakk, J., S. Holm, and B. Hofmann (eds.). 2009. The ethics of research biobanking. Dordrecht: Springer.
35. The Human Genetics Commission (2000). Whose Hands on Your Genes? London: The Human Genetics Commission, 2000. URL: http://www. hgc. gov. uk/UploadDocs/DocPub/Document/business_consultations2maintext. pdf. Accessed March 2012.
36. UC Berkeley Program in Genetic Counseling and Georgetown University Medical Center (2011). The Exploratorium: Diving into the Gene Pool. URL: www. exploratorium. edu/genepool/scenario_1. html. Accessed March 2012.
37. Velleman, D. 2006. Self to self. New York: Cambridge University Press.
38. Widdows, H. 2009. Between the individual and the community: The impact of genetics on ethical models. New Genetics and Society 28(2): 173-188.
39. Wilson, T. 2002. Strangers to ourselves: Discovering the adaptive unconscious. Harvard: Harvard University Press.