Genetic counseling/consultation in South-East Asia: A report from the workshop at the 10th Asia pacific conference on human genetics

Journal of Genetic Counseling

Volumn 22, Issue 6, 2013, Pages 917-924

  Zayts, Olga ^a   Sarangi, Srikant ^b   Thong, Meow Keong ^c   Chung, Brian Hon Yin ^a   Lo, Ivan Fao Man ^d   Kan, Anita Sik Yau ^a   Lee, Juliana Mei Har ^e   Padilla, Carmencita David ^f   Cutiongco De La Paz, Eva Maria ^f   Faradz, Sultana M H ^g   Wasant, Pornswan ^h  

^a UNIVERSITY OF HONG KONG   (Hong Kong)

^b CARDIFF UNIVERSITY   (United Kingdom)

^c UNIVERSITY OF MALAYA   (Malaysia)

^d DEPARTMENT OF HEALTH   (Hong Kong)

^e UNIVERSITY MALAYA MEDICAL CENTRE   (Malaysia)

^f UNIVERSITY OF THE PHILIPPINES MANILA   (Philippines)

^g DIPONEGORO UNIVERSITY   (Indonesia)

^h MAHIDOL UNIVERSITY   (Thailand)

Author keywords

Collaborative research; Communication research; Culture; Genetic counseling consultation; Language; Professional training; Religion; South East Asia

Indexed keywords

CONFERENCE PAPER; GENETIC COUNSELING; HUMAN; MEDICAL GENETICS; SOUTHEAST ASIA;

ASIA, SOUTHEASTERN; GENETIC COUNSELING; GENETICS, MEDICAL; HUMANS;

EID: 84888102014     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-013-9646-7     Document Type: Conference Paper

References (23)

1. Arribas-Ayllon, M.; Sarangi, S.; Clarke, A. (2011). Genetic Testing: Accounts of Autonomy, Responsibility and Blame. London: Routledge.
2. Biesecker, B. B.; Peters, K. F. (2001). Process studies in genetic counseling: Peering into the black box. American Journal of Medical Genetics, 106(3), 191-198.
3. Harper, P. S. (2004). Practical Genetic Counselling. London: Hodder Arnold.
4. Laurino, M. Y.; Padilla, C. D.; Alcausin, M. B.; Silao, C. L.; de la Paz, E. M. C. (2011). A Master of Science in Genetic Counseling Program in the Philippines. Acta Medica Philippina, 45(4), 7-9.
5. Levinson, S. (1979). Activity types and language. Linguistics, 17, 365-399.
6. Lutfey, K.; McKinlay, J. (2009). What happens along the Diagnostic Pathways to CHD Treatment? Qualitative Results Concerning Cognitive Processes. Sociology of Health and Illness, 31(7), 1077-1092.
7. Ota Wang, V. (1998). Introduction. Journal of Genetic Counseling, 7(1), 3-13.
8. Pilnick, A.; Dingwall, R. (2001). Research directions in genetic counselling: a review of the literature. Patient Education and Counseling, 44, 95-105.
9. Pilnick, A.; Zayts, O. (2012). Let's have it tested first": Choice and circumstances in decision-making following positive antenatal screening in Hong Kong. Sociology of Health and Illness, 34(2), 266-282. Reprinted in N. Armstrong & H. Eborall (Eds.), The Sociology of Medical Screening: Critical Perspectives, New Directions, 105-120. Wiley-Blackwell Publishing Ltd.
10. Rapp, R. (1988). Chromosomes and communication: The discourse of genetic counseling. Medical Anthropology Quarterly, 2, 143-157.
11. Rapp, R. (1999). Testing Women, Testing the Fetus: Some Social Impact of Amniocentesis in America. New York: Routledge.
12. Sarangi, S. (2000). Activity types, discourse types and interactional hybridity: the case of genetic counselling. In S. Sarangi & M. Coulthard (Eds.), Discourse and Social Life (pp. 1-27). London: Pearson.
13. Sarangi, S.; Bennert, K.; Howell, L.; Clarke, A. (2003). 'Relatively speaking': relativisation of genetic risk in counseling for predictive testing. Health, Risk & Society, 5(2), 155-170.
14. Sarangi, S.; Bennert, K.; Howell, L.; Clarke, A.; Harper, P.; Gray, G. (2004). Initiation of reflective frames in counselling for Huntington's Disease predictive testing. Journal of Genetic Counseling, 13(2), 135-155.
15. Sarangi, S.; Bennert, K.; Howell, L.; Clarke, A.; Harper, P.; Gray, J. (2005). (Mis)alignments in clients' responses to reflective frames in counselling for Huntington's Disease predictive testing: Uncertainty revisited. Journal of Genetic Counseling, 14(1), 29-42.
16. Silverman, D. (1987). Communication and Medical Practice: Social Relations in the Clinic. London: Sage.
17. Sorjonen, M.-L.; Raevaara, L.; Haakana, M.; Tammi, T.; Perakyla, A. (2006). Lifestyle discussions in medical interviews. In J. Heritage & D. Maynard (Eds.), Communication in Medical Care: Interaction between Primary Care Physicians and Patients (pp. 340-378). Cambridge: Cambridge University Press.
18. Steinberg Warren, N. (2011). Introduction to the special issue: Towards diversity and cultural competence in genetic counseling. Journal of Genetic Counseling, 20, 543-546.
19. Weil, J.; Mittman, I. (1993). A teaching framework for cross-cultural genetic counseling. Journal of Genetic Counseling, 2(3), 159-169.
20. Yoon, S. Y.; Thong, M. K.; Taib, N. A.; Yip, C. H.; Teo, S. H. (2011). Genetic Counseling for Patients and Families with Hereditary Breast and Ovarian Cancer in a Developing Asian country: An Observational Descriptive Study. Familial Cancer, 10(2), 199-205.
21. Zayts, O. & Pilnick, A. (in press). Genetic counseling in multilingual and multicultural contexts. In H. Hamilton & W.-Y. Chou (Eds.), The Routledge Handbook of Language and Health Communication. London: Routledge.
22. Zayts, O.; Sarangi, S. (2013). Modes of risk explanation in telephone consultations between nurses and parents for a genetic condition. Health, Risk & Society, 15(2), 194-215.
23. Zayts, O.; Wake, V. Y.; Schnurr, S. (2012). Chinese prenatal genetic counseling discourse in Hong Kong: Health care providers' (non)directive stance, or who is making the decision. In Y. Pan & D. Gazdar (Eds.), Chinese Discourse and Interaction: Theory and Practice (pp. 228-247). London: Equinox.