Socio-environmental factors associated with lone parenting chronically ill children

Children's Health Care

Volumn 42, Issue 3, 2013, Pages 264-280

  Wiener, Lori ^a   Pao, Maryland ^b   Battles, Haven ^a   Zadeh, Sima ^a   Patenaude, Andrea Farkas ^c   Madan Swain, Avi ^d   Friebert, Sarah ^e   Elkin, David ^f   Kupst, Mary Jo ^g   Sherman Bien, Sandra ^h   Kearney, Julia ⁱ   Mullins, Larry ^j   Phipps, Sean ^k   Elkin, T David ^l  

^a NATIONAL CANCER INSTITUTE   (United States)

^b NATIONAL INSTITUTE OF MENTAL HEALTH   (United States)

^c DANA FARBER CANCER INSTITUTE   (United States)

^d UNIVERSITY OF ALABAMA SCHOOL OF MEDICINE   (United States)

^e AKRON CHILDREN'S HOSPITAL   (United States)

^f UNIVERSITY OF MISSISSIPPI SCHOOL OF MEDICINE   (United States)

^g MEDICAL COLLEGE OF WISCONSIN   (United States)

^h MILLER CHILDREN S HOSPITAL   (United States)

ⁱ MEMORIAL SLOAN KETTERING CANCER CENTER   (United States)

^j OKLAHOMA STATE UNIVERSITY   (United States)

^k ST JUDE CHILDREN S RESEARCH HOSPITAL   (United States)

^l UNIVERSITY OF MISSISSIPPI MEDICAL CENTER   (United States)

more..

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO HEALTH; BRIEF SYMPTOM INVENTORY; CANCER PATIENT; CAREGIVER BURDEN; CHILD; CHILD HEALTH; CHILD PARENT RELATION; CHILDHOOD CANCER; CHRONIC DISEASE; CHRONIC PATIENT; CONTROLLED STUDY; DEPRESSION; EMOTIONAL STRESS; ENVIRONMENTAL FACTOR; FEMALE; HUMAN; INFANT; LOWEST INCOME GROUP; MAJOR CLINICAL STUDY; MALE; MARRIED PERSON; OUTCOME ASSESSMENT; PARENTAL ATTITUDE; PRESCHOOL CHILD; QUESTIONNAIRE; SCHOOL CHILD; SINGLE PARENT; SOCIOECONOMICS;

EID: 84887918746     PISSN: 02739615     EISSN: 15326888     Source Type: Journal    
DOI: 10.1080/02739615.2013.816612     Document Type: Article

References (38)

1. Amato, P. R. (2008). Recent changes in family structure: Implications for children, adults, and society. Littleton, CO: National Healthy Marriage Resource Center. Retrieved from http://www.healthymarriageinfo.org/resource- detail/index.aspx?rid=3372
2. American Psychological Association Task Force on Socioeconomic Status. (2007). Report of the APA Task Force on socioeconomic status. Washington, DC: American Psychological Association. Retrieved from http://www.apa.org/pi/ses/ resources/publications/task-force-2006.pdf
3. Anthony, K. K., Gil, K. M., & Schanberg, L. E. (2003). Parental perceptions of child vulnerability in children with chronic illness. Journal of Pediatric Psychology, 28, 185-190.
4. Askins, M. A., Sahler, O. J. Z., Sherman, S. A., Fairclough, D. L., Butler, R. W., Katz, E. R., ... Phipps, S. (2009). Report from a multi-institutional randomized clinical trial examining computerassisted problem-solving skills training for English- and Spanish-speaking mothers of children with newly diagnosed cancer. Journal of Pediatric Psychology, 34, 551-563.
5. Bethell, C. D., Kogan, M. D., Strickland, B. B., Schor, E. L., Robertson, J., & Newacheck, P.W. (2011). A national and state profile of leading health problems and health care quality for US children. Academic Pediatric, 11(3), S22-S33.
6. Brown, R. T., Wiener, L., Kupst, M. J., Brennan, T., Behrman, R., Compas, B. E., & Zeltzer, L. (2008). Single parents of children with chronic illness: An understudied phenomenon. Journal of Pediatric Psychology, 33, 408-421.
7. Cairney, J., Boyle, M., Offord, D. R., & Racine, Y. (2003). Stress, social support and depression in single and married mothers. Social Psychiatry & Psychiatric Epidemiology, 38, 442-449.
8. Cooper, C., Bebbington, P. E., Meltzer, H., Bhugra, D., Brugha, T., Jenkins, R., ... King, M. (2008). Depression and common mental disorders in lone parents: Results of the 2000 National Psychiatric Morbidity Survey. Psychological Medicine, 38, 335-342.
9. Crosier, T., Butterworth, P., & Rodgers, B. (2007). Mental health problems among single and partnered mothers: the role of financial hardship and social support. Social Psychiatry and Psychiatric Epidemiology, 42, 6-13.
10. Da Silva, F. M., Jacob, E., & Nascimento, L. C. (2010). Impact of childhood cancer on parents' relationships: An integrative review. Journal of Nursing Scholarship, 42, 250-261.
11. Derogatis, L. R., & Fitzpatrick, M. (2004). The SCL-90-R, the Brief Symptom Inventory (BSI) and the BSI-18. In M. E. Maruish (Ed.), The use of psychological testing for treatment planning and outcome assessment (pp. 1-41). Mahwah, NJ: Erlbaum.
12. Dolgin, M., Phipps, S., Fairclough, D., Sahler, O. J., Askins, M., Noll, R., ... Katz, E. R. (2007). Trajectories of adjustment in mothers of children with newly diagnosed cancer: A natural history investigation. Journal of Pediatric Psychology, 32, 771-782.
13. Eiser, C. (1997). Effects of chronic illness on children and their families. Advances in Psychiatric Treatment, 3, 204-210.
14. Federal Register, Vol. 75, No. 148, August 3, 2010, pp. 45628-45629.
15. Hockenberry, M., Hinds, P., Barrera, P., Bryant, R., Adams-McNeill, J., Hooke, C., ... Manteuffel, B. (2003). Three instruments to assess fatigue in children with cancer: The child, parent and staff perspectives. Journal of Pain and Symptom Management, 25, 319-328.
16. Honkalampi, K., Hintikka, J., Haatainem, K., Koivumaa-Honkanen, H., Tanskenen, A., & Viinamäki, H. (2005). Adverse childhood experiences, stressful life events, or demographic factors: Which are more important in women's depression? A 2-year follow-up population study. Australian and New Zealand Journal of Psychiatry, 39, 627-632.
17. Jacobsen, P. B., Donovan, K. A., Trask, P. C., Fleishman, S. B., Zabora, J., Baker, F., & Holland, J. C. (2005). Screening for psychologic distress in ambulatory cancer patients. Cancer, 103, 1494-1502.
18. Keck, J., Gerkensmeyer, J., Joyce, B., & Schade, J. (1996). Reliability and validity of the FACES and Word Descriptor scales to measure procedural pain. Journal of Pediatric Nursing, 11, 368-374.
19. Klassen, A., Rainia, P., Reineking, S., Dix, D., Pritchard, S., & O'Donnell, M. (2007). Developing a literature base to understand the caregiving experience of parents of children with cancer. A systematic review of factors related to parental health and well-being. Supportive Care in Cancer, 15, 807-818.
20. Kovacs, M. (1992). Children's Depression Inventory manual. North Tonawanda, NY: Multi-Health Systems, Inc.
21. Kupst, M. J., Natta, M. B., Richardson, C. C., Schulman, J. L., Lavigne, J. V., & Das, L. (1995). Family coping with pediatric leukemia: A twelve year prospective study. Journal of Pediatric Psychology, 20, 601-617.
22. Landgraf, J., & Abetz, L. (1998). Influences of sociodemographic characteristics on parental reports of children's physical and psychosocial well-being: Early experiences with the Child Health Questionnaire. In D. Drotar (Ed.), Measuring health-related quality of life in children and adolescents: Implications for research and practice (pp. 105-126). Mahwah, NJ: Erlbaum.
23. Lavee, Y. (2005). Correlates of change in marital relationships under stress: The case of childhood cancer. Families in Society - Journal of Contemporary Social Services, 86(1), 112-120.
24. Lovell, B., Moss, M., & Wetherell, M. A. (2012). With a little help from my friends: Psychological, endocrine and health corollaries of social support in parental caregivers of children with autism or ADHD. Research of Developmental Disability, 33, 682-687.
25. Mather, M. (2010). U.S. children in single-mother families (Population Reference Bureau Data Brief). Retrieved from http://www.prb.org/pdf10/ singlemotherfamilies.pdf
26. Mehranfar, M., Younesi, J., & Banihashem, A. (2012). Effectiveness of mindfulness-based cognitive therapy on reduction of depression and anxiety symptoms in mothers of children with cancer. Iranian Journal of Cancer Prevention, 5(1), 1-9.
27. Mitchell, A. J. (2010). Short screening tools for cancer-related distress: A review and diagnostic validity meta-analysis. Journal of the National Comprehensive Cancer Network, 8, 487-494.
28. Mullins, L. L., Wolfe-Christensen, C., Chaney, J. M., Elkin, T. D., Wiener, L., Hullmann, S. E., ... Junghans, A. (2010). The relationship between single-parent status and parenting capacities in mothers of youth with chronic health conditions: The mediating role of income. Journal of Pediatric Psychology, 36, 249-257.
29. National Comprehensive Cancer Network. (2003). Distress management clinical practice guidelines. Journal of the National Comprehensive Cancer Network, 1, 344-374.
30. Patel, S. K., Mullins, W., Turk, A., Dekel, N., Kinjo, C., & Sato, J. K. (2011). Distress screening, rater agreement, and services in pediatric oncology. Psycho-Oncology, 20, 1324-1333.
31. Raina, P., O'Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D., ... Wood, E. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics, 115, e626-e636.
32. Rutter, M. (2006). Implications of resilience concepts for scientific understanding. Annals of the New York Academy of Sciences, 1094, 1-12.
33. Shudy, M., de Almeida, M. L., Ly, S., Landon, C., Groft, S., Jenkins, T. L., & Nicholson, C. E. (2006). Impact of pediatric critical illness and injury on families: A systematic literature review. Pediatrics, 118(Suppl. 3), S203-S218.
34. Spielberger, C. D., Reheiser, E. C., Owen, A. E., & Sydeman, S. J. (2004). Measuring the psychological vital signs of anxiety, anger, depression, and curiosity in treatment planning and outcomes assessment. In M. E. Maruish (Ed.), The use of psychological testing for treatment planning and outcome assessment (pp. 292-321). Mahwah, NJ: Erlbaum.
35. U.S. Census Bureau, Housing and Household Economic Statistics Division, Fertility & Family Statistics Branch. (2012). America's families and living arrangements: 2010. Washington, DC: Author. Retrieved from http://www.census. gov/population/www/socdemo/hh-fam/cps2010.html
36. Zabora, J. R., Smith-Wilson, R., Fetting, J. H., & Enterline, J. P. (1990). An efficient method for psychosocial screening of cancer patients. Psychosomatics, 30, 192-196.
37. Zadeh, S., Wiener, L., Battles, H. B., & Pao, M. (2012). Parent and provider ratings of patient distress. Are they valid and clinically meaningful? Psycho-Oncology, 21, 27.
38. Zwahlen, D., Hagenbuch, N., Carley, M. I., Recklitis, C. J., & Buchi, S. (2008). Screening cancer patients' families with the distress thermometer (DT): A validation study. Psycho-Oncology, 17, 959-966.