What is the potential for social networks and support to enhance future telehealth interventions for people with a diagnosis of schizophrenia: A critical interpretive synthesis

BMC Psychiatry

Volumn 13, Issue , 2013, Pages

  Daker White, Gavin ^a   Rogers, Anne ^b  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

^b UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

Author keywords

E health; Meta synthesis; Peer support; Review; Schizophrenia; Self management; Social networks; Telemedicine

Indexed keywords

ARTICLE; COGNITIVE THERAPY; CRITICAL INTERPRETIVE SYNTHESIS; HUMAN; INTERNET; MEDICAL INFORMATION; MEDICATION COMPLIANCE; MOBILE PHONE; PEER GROUP; QUALITATIVE RESEARCH; QUANTITATIVE STUDY; SCHIZOPHRENIA; SELF CARE; SOCIAL NETWORK; SYNTHESIS; TELEHEALTH; TELEPSYCHIATRY; HEALTH SERVICE; PSYCHOLOGICAL MODEL; PSYCHOLOGY; SOCIAL SUPPORT; TELEMEDICINE;

COGNITIVE THERAPY; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INTERNET; MODELS, PSYCHOLOGICAL; SCHIZOPHRENIA; SCHIZOPHRENIC PSYCHOLOGY; SELF CARE; SOCIAL NETWORKING; SOCIAL SUPPORT; TELEMEDICINE;

EID: 84886733528     PISSN: None     EISSN: 1471244X     Source Type: Journal    
DOI: 10.1186/1471-244X-13-279     Document Type: Article

References (51)

1. Pilgrim D, Rogers A. Chapter 10: users of mental health services. A sociology of mental health and illness 1999, 189-209. Buckingham: Open University Press, 2.
2. Graham C, Arthur A, Howard R. The social functioning of older adults with schizophrenia. Aging Ment Health 2002, 6(2):149-152.
3. Forrester-Jones R, Carpenter J, Coolen-Schrijner P, Cambridge P, Tate A, Hallam A, Beecham J, Knapp M, Wooff D. Good friends are hard to find? The social networks of people with mental illness 12 years after deinstitutionalisation. J Ment Health 2012, 21(1):4-14.
4. Pilgrim D, Rogers A. Danger and diagnosed mental disorder. The SAGE handbook of mental health and illness 2011, 261-284. London: Sage Publications Ltd, Pilgrim D, Rogers A, Pescosolido B.
5. Ennis L, Rose D, Denis M, Pandit N, Wykes T. Can't surf, won't surf: The digital divide in mental health. J Ment Health 2012, 21(4):395-403.
6. Sanders C, Rogers A, Gardner C, Kennedy A. Managing 'difficult emotions' and family life: exploring insights and social support within online self-management training. Chronic Illn 2011, 7(2):134-146.
7. Vassilev I, Rogers A, Blickem C, Brooks H, Kapadia D, Kennedy A, Sanders C, Kirk S, Reeves D. Social networks, the 'work' and work force of chronic illness self-management: a survey and analysis of personal communities. PLOS ONE 2013, 4:e59723. 10.1371/journal.pone.0059723.
8. Steventon A, Bardsley M, Billings J, Dixon J, Doll H, Hirani S, Cartwright M, Rixon L, Knapp M, Henderson C, Rogers A, Fitzpatrick R, Hendy J, Newman S. Effect of telehealth on use of secondary care and mortality: findings from the Whole System Demonstrator cluster randomised trial. BMJ 2012, 344:e3874. doi: 10.1136/bmj.e3874.
9. Rogers A, Vassilev I, Sanders C, Kirk S, Chew-Graham C, Kennedy A, Protheroe J, Bower P, Blickem C, Reeves D, Kapadia D, Brooks H, Fullwood C, Richardson G. Social networks, work and network-based resources for the management of long-term conditions: a framework and study protocol for developing self-care support. Implement Sci 2011, 6:56.
10. Takahashi Y, Uchida C, Miyaki K, Sakai M, Shimbo T, Nakayama T. Potential benefits and harms of a peer support social network service on the internet for people with depressive tendencies: qualitative content analysis and social network analysis. J Med Internet Res 2009, 11(3):e29.
11. Rigby M, Ashman D. Service innovation: a virtual informal network of care to support a 'lean' therapeutic community in a new rural personality disorder service. Psychiatrist 2008, 32:64-67.
12. Powell J, Clarke A. Investigating internet use by mental health service users: interview study. Stud Health Technol Inform 2007, 129(Pt 2):1112-1116.
13. Khan N, Bower P, Rogers A. Guided self-help in primary care mental health. Br J Gen Pract 2007, 191:206-211.
14. Brugha TS, Wing JK, Brewin CR, MacCarthy B, Lesage A. The relationship of social network deficits with deficits in social functioning in long-term psychiatric disorders. Soc Psychiatry Psychiatr Epidemiol 1993, 28(5):218-224.
15. Horan WP, Subotnik KL, Snyder KS, Nuechterlein KH. Do recent-onset schizophrenia patients experience a " social network crisis" ?. Psychiatry 2006, 69(2):115-129.
16. Muller B, Nordt C, Lauber C, Rossler W. Changes in social network diversity and perceived social support after psychiatric hospitalization: results from a longitudinal study. Int J Soc Psychiatry 2007, 53(6):564-575.
17. Macdonald EM, Jackson HJ, Hayes RL, Baglioni AJ, Madden C. Social skill as a determinant of social networks and perceived social support in schizophrenia. Schizophr Res 1998, 29(3):275-286.
18. Castelein S, Bruggeman R, van Busschbach JT, van der Gaag M, Stant AD, Knegtering H, Wiersma D. The effectiveness of peer support groups in psychosis: a randomized controlled trial. Acta Psychiatr Scand 2008, 118(1):64-72.
19. Dixon-Woods M, Cavers D, Agarwal S, Annandale E, Arthur A, Harvey J, Hsu R, Katbamna S, Olsen R, Smith L, Riley R, Sutton AJ. Conducting a critical interpretive synthesis of the literature on access to healthcare by vulnerable groups. BMC Med Res Methodol 2006, 6:35.
20. Noblit GW, Hare RD. Meta-ethnography: synthesizing qualitative studies 1988, London: Sage Publications.
21. Powell J, Clarke J. Internet information-seeking in mental health. Br J Psychiatry 2006, 189:273-277.
22. Pearce KE, Rice RE. Digital divides from access to activities: comparing mobile and personal computer internet users. J Commun 2013, 63:721-744.
23. Health NCCfM Schizophrenia: core interventions in the treatment and management of schizophrenia in adults in primary and secondary care (updated edition); national clinical guideline number 82 2009, http://publications.nice.org.uk/schizophrenia-cg82, Health NCCfM.
24. Campbell R, Pound P, Morgan M, Daker-White G, Britten N, Pill R, Yardley L, Pope C, Donovan J. Evaluating meta-ethnography: systematic analysis and synthesis of qualitative research. Health Technol Assess 2011, 15(43):1-164.
25. Major CH, Savin-Baden M. An introduction to qualitative research synthesis: managing the information explosion in social science research 2010, Abingdon: Routledge.
26. Daley ML, Becker DF, Flaherty LT, Harper G, King RA, Lester P, Milosavljevic N, Onesti SJ, Rappaport N, Schwab-Stone M. Case study: the internet as a developmental tool in an adolescent boy with psychosis. J Am Acad Child Adolesc Psychiatry 2005, 44(2):187-190.
27. Haker H, Lauber C, Rossler W. Internet forums: a self-help approach for individuals with scizophrenia?. Acta Psychiatr Scand 2005, 112:474-477.
28. Schrank B, Sibitz I, Unger A, Amering M. How patients with schizophrenia use the internet: qualitative study. J Med Internet Res 2010, 12(5):e70.
29. Kaplan K, Salzer MS, Solomon P, Brusilovskiy E, Cousounis P. Internet peer support for individuals with psychiatric disabilities: a randomized controlled trial. Soc Sci Med 2011, 72(1):54-62.
30. Strecher VJ, McClure J, Alexander G, Chakraborty B, Nair V, Konkel J, Greene S, Couper M, Carlier C, Wiese C, Littloe R, Pomerleau C, Pomerleau O. The role of engagement in a tailored web-based smoking cessation program: randomized controlled trial. J Med Internet Res 2008, 10(5):e36.
31. Wuyts P, Broome M, McGuire P. Assessing the mental state through a blog: psychiatry in the 21st century?. Psychiatrist 2011, 35(10):361-363.
32. Rotondi AJ, Anderson CM, Haas GL, Eack SM, Spring MB, Ganguli R, Newhill C, Rosenstock J. Web-based psychoeducational intervention for persons with schizophrenia and their supporters: One-year outcomes. Psychiatr Serv 2010, 61(11):1099-1105.
33. Lederman R, Wadley G, Gleeson J, Alvarez-Jimenez M, Spiteri-Staines A. Supporting young people with psychosis in the community: an ICT enabled relapse prevention tool. PACIS 2011 Proceedings. Paper 104. http://aisel.aisnet.org/pacis2011/104.
34. Pijnenborg GHM, Withaar FK, Brouwer WH, Timmerman ME, van den Bosch RJ, Evans JJ. The efficacy of SMS text messages to compensate for the effects of cognitive impairments in schizophrenia. Br J Clin Psychol 2010, 49:259-274.
35. Granholm E, Loh C, Swendsen J. Feasibility and validity of computerized ecological momentary assessment in schizophrenia. Schizophr Bull 2008, 34(3):507-514.
36. Kimhy D, Corcoran C. Use of palm computer as an adjunct to cognitive-behavioural therapy with an ultra-high-risk patient: a case report. Early Interv Psychiatry 2008, 2(4):234-241.
37. Depp CA, Mausbach B, Granholm E, Cardenas V, Ben-Zeev D, Patterson TL, Lebowitz BD, Jeste DV. Mobile interventions for severe mental illness: design and preliminary data from three approaches. J Nerv Ment Dis 2010, 198(10):715-721.
38. Ruskin PE, Van Der Wende J, Clark CR, Fenton J, Deveau J, Thapar R, Prasad M, Kehr BA. Feasibility of using the Med-eMonitor system in the treatment of schizophrenia: a pilot study. Drug Inf J 2003, 37(3):283-291.
39. Frangou S, Sachpazidis I, Stassinakis A, Sakas G. Telemonitoring of medication adherence in patients with schizophrenia. Telemedicine and e-Health 2005, 11(6):675-683.
40. Pound P, Britten N, Morgan M, Yardley L, Pope C, Daker-White G, Campbell R. Resisting medicines: a synthesis of qualitative studies of medicine taking. Soc Sci Med 2005, 61(1):133-155.
41. Mittal VA, Tessner KD, Walker EF. Elevated social internet use and schizotypal personality disorder in adolescents. Schizophr Res 2007, 94(1-3):50-57.
42. Vassilev I, Rogers A, Sanders C, Kennedy A, Blickem C, Protheroe J, Bower P, Kirk S, Chew-Graham C, Morris R. Social networks, social capital and chronic illness self-management: a realist review. Chronic Illn 2011, 7(1):60-86.
43. Killackey E, Anda A, Gibbs M, Alvarez-Jimenez M, Thompson A, Sun P, Baksheev G. Using internet enabled mobile devices and social networking technologies to promote exercise as an intervention for young first episode psychosis patients. BMC Psychiatry 2011, 11(1):80.
44. Palmier-Claus JE, Rogers A, Ainsworth J, Machin M, Barrowclough C, Laverty L, Barkus E, Kapur S, Wykes T, Lewis SW. Integrating mobile-phone based assessments for psychosis into people's everyday lives and clinical care: a qualitative study. BMC Psychiatry 2013, 13:34.
45. James HF, Nicholas AC. Dynamic spread of happiness in a large social network: longitudinal analysis over 20 years in the framingham heart study. BMJ 2008, 337:a2338. doi:10.1136/bmj.a2338.
46. Rogers A, Kirk S, Gately C, May CR, Finch T. Established users and the making of telecare work in long term condition management: Implications for health policy. Soc Sci Med 2011, 72(7):1077-1084.
47. Siddiquee A, Kagan C. The internet, empowerment, and identity: an exploration of participation by refugee women in a community internet project (CIP) in the United Kingdom (UK). Journal of Community & Applied Social Psychology 2006, 16(3):189-206.
48. Välimäki M, Hätönen H, Lahti M, Kuosmanen L, Adams CE. Information and communication technology in patient education and support for people with schizophrenia. Cochrane Database Syst Rev 2012, 10. Art. No.: CD007198. DOI: 10.1002/14651858.CD007198.pub2.
49. Kasckow J, Felmet K, Appelt C, Thompson R, Rotondi A, Haas G. Telepsychiatry in the assessment and treatment of schizophrenia. Clin Schizophr Relat Psychoses 2013, doi: 10.3371/CSRP.KAFE.021513.
50. Halford S, Savage M. Reconceptualizing digital social inequality. Information, Communication & Society 2010, 13(7):937-955.
51. Ziebland S, Wyke S. Health and illness in a connected world: How might sharing experiences on the internet affect People's health?. Milbank Q 2012, 90(2):219-249.