Narration and neuroscience: Encountering the social on the ''last frontier of medicine"

Advances in Medical Sociology

Volumn 13, Issue , 2011, Pages 51-74

  Shostak, Sara ^a   Waggoner, Miranda ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84886376508     PISSN: 10576290     EISSN: None     Source Type: Book Series    
DOI: 10.1108/S1057-6290(2011)0000013007     Document Type: Article

References (96)

1. Anspach, R. (1987). Prognostic conflict in life-and-death decisions: The organization as an ecology of knowledge. Journal of Health and Social Behavior, 28, 215-231.
2. Anspach, R. (1988). Notes on the sociology of medical discourse: The language of case presentation. Journal of Health and Social Behavior, 29, 357-375. (Pubitemid 19047794)
3. Armstrong, D. (1995). The rise of surveillance medicine. Sociology of Health & Illness, 17, 393-404.
4. Armstrong, E. M. (2003). Conceiving risk, bearing responsibility: Fetal alcohol syndrome and the diagnosis of moral disorder. Baltimore, MD: The Johns Hopkins University Press.
5. Aronowitz, R. A. (1991). Lyme disease: The social construction of a new disease and its social consequences. Milbank Quarterly, 69, 79-112.
6. Aronowitz, R. A. (2001). When do symptoms become a disease? Annals of Internal Medicine, 134, 803-808. (Pubitemid 32405686)
7. Atkinson, P., & Glasner, P. (2007). Introduction: New genetics, new identities? In: P. Atkinson, P. Glasner & H. Greenslade (Eds.), New genetics, new identities (pp. 1-10). London: Routledge.
8. Balint, M. (1957/2000). The doctor, his patient and the illness. New York, NY: International Universities Press.
9. Bearman, P. (Ed.). M. Martin & S. Shostak (associate ed.). (2008). Exploring genetics and social structure (Special Issue). American Journal of Sociology, 114, S1.
10. Beaulieu, A. (2001). Voxels in the brain: Neuroscience, informatics and changing notions of objectivity. Social Studies of Science, 31, 635-680. (Pubitemid 33591200)
11. Beghi, E. (2009). The concept of the epilepsy syndrome: How useful is it in clinical practice? Epilepsia, 50, 4-10. Series 4.
12. Berg, A. T., Berkovic, S. F., Brodie, M. J., Buchhalter, J., Cross, J. H., van Emde Boas, W.,y Scheffer, I. E. (2010). Revised terminology and concepts for organization of seizures and epilepsies: Report of the ILAE commission on classification and terminology, 2005-2009. Epilepsia, 51, 676-685.
13. Bowker, G. C., & Star, S. L. (1999). Sorting things out: Classification and its consequences. Cambridge, MA: MIT Press.
14. Brown, P. (1995). Naming and framing: The social construction of diagnosis and illness. Journal of Health and Social Behavior, 36, 34-52.
15. Canguilhem, G. (1966/1998). The normal and the pathological. New York, NY: Zone Books.
16. Casper, M. J., & Berg, M. (1995). Introduction to special issue on constructivist perspectives on medical work: Medical practices in science and technology studies. Science, Technology & Human Values, 20(4), 395-407.
17. Cerulo, K. A. (2010). Mining the intersections of cognitive sociology and neuroscience. Poetics, 38, 115-132.
18. Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. London: Sage Publications.
19. Charon, R. (2001). Narrative medicine: A model for empathy, reflection, profession, and trust. JAMA, 286, 1897-1902. (Pubitemid 33010245)
20. Choi, H., Winawer, M., Kalachikov, S., Pedley, T., Hauser, W., & Ottman, R. (2006). Classification of partial seizure symptoms in genetic studies of the epilepsies. Neurology, 66, 1648-1653. (Pubitemid 43964616)
21. Choudhury, S., Nagel, S. K., & Slaby, J. (2009). Critical neuroscience: Linking neuroscience and society through critical practice. BioSocieties, 4, 61-77.
22. Clarke, A. E. (2005). Situational analysis: Grounded theory after the postmodern turn. Thousand Oaks, CA: Sage Publications.
23. Clarke, A. E., Fishman, J., Fosket, J., Mamo, L., & Shim, J. (2003). Biomedicalization: Technoscientific transformations of health, illness, and U.S. biomedicine. American Sociological Review, 68, 161-194. (Pubitemid 36696071)
24. Cohn, S. (2008). Making objective facts from intimate relations: The case of neuroscience and its entanglements with volunteers. History of the Human Sciences, 21, 86-103.
25. Conrad, P., & Schneider, J. W. (1992). Deviance and medicalization: From badness to sickness. Philadelphia, PA: Temple University Press.
26. Cromby, J. (2007). Integrating social science with neuroscience: Potentials and problems. BioSocieties, 2, 149-169.
27. Cullen, J., & Cohn, S. (2006). Making sense of mediated information: Empowerment and dependency. In: A. Webster (Ed.), New technologies in health care: Challenge, change and innovation (pp. 112-130). Basingstoke, UK: Palgrave Macmillan.
28. Duster, T. (2006). Comparative perspectives and competing explanations: Taking on the newly configured reductionist challenge to sociology. American Sociological Review, 71, 1-15. (Pubitemid 44943429)
29. Dwyer, E. (1992). Stories of epilepsy, 1880-1930. In: C. Rosenberg & J. Golden (Eds.), Framing disease: Studies in cultural history (pp. 248-272). New Brunswick, NJ: Rutgers University Press.
30. Epstein, S. (2008). The rise of "Recruitmentology": Clinical research, racial knowledge, and the politics of inclusion and difference. Social Studies of Science, 38, 801-832.
31. Featherstone, K., Atkinson, P., Bharadwaj, A., & Clarke, A. (2006). Risky relations: Family, kinship and the new genetics. Oxford, UK: Berg Publishers.
32. Freese, J., Jui-Chung Allen, L. I., & Wade, L. D. (2003). The potential relevances of biology to social inquiry. Annual Review of Sociology, 29, 233-256. (Pubitemid 37416682)
33. Freese, J., & Shostak, S. (2009). Genetics and social inquiry. Annual Review of Sociology, 35, 107-128.
34. Garro, L. C., & Mattingly, C. (2000). Narrative as construct and construction. In: C. Mattingly & L. C. Garro (Eds.), Narrative and the cultural construction of illness and healing (pp. 1-49). Berkeley, CA: University of California Press.
35. Gibbon, S., & Novas, C. (Eds.). (2008). Biosocialities, genetics and the social sciences. London: Routledge.
36. Gilbert, G. N., & Mulkay, M. (1984). Opening Pandora's box: A sociological analysis of scientists' discourse. Cambridge, MA: Cambridge University Press.
37. Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory. Chicago, IL: Aldine.
38. Good, B., & Good, M.-J. D. (2000). "Fiction" and "historicity" in doctors' stories. In: Narrative and the cultural construction of illness and healing (pp. 50-69). Berkeley, CA: University of California Press.
39. Greenhalgh, S. (2001). Under the medical gaze: Facts and fictions of chronic pain. Berkeley, CA: University of California Press.
40. Hauser, W. A., Annegers, J. F., & Kurland, L. T. (1991). Prevalence of epilepsy in Rochester, Minnesota: 1940-1980. Epilepsia, 32, 429-445.
41. Hauser, W. A., Annegers, J. F., & Rocca, W. A. (1996). Descriptive epidemiology of epilepsy: Contributions of population-based studies from Rochester, Minnesota. Mayo Clinic Proceedings, 71, 576-586.
42. Hedgecoe, A. (2001). Schizophrenia and the narrative of enlightened geneticization. Social Studies of Science, 31, 875-911. (Pubitemid 33573701)
43. Horwitz, A. V. (2005). Media portrayals and health inequalities: A case study of characterizations of gene x environment interactions. Journals of Gerontology Series B-Psychological Sciences and Social Sciences, 60, 48-52. (Pubitemid 41552228)
44. Hunt, L. (1994). Practicing oncology in provincial Mexico: A narrative analysis. Social Science & Medicine, 38, 843-853. (Pubitemid 24064631)
45. Joffe, S., & Miller, F. G. (2008). Bench to bedside. Hastings Center Report, 38, 30-42.
46. Joyce, K. A. (2008). Magnetic appeal: MRI and the myth of transparency. Ithaca, NY: Cornell University Press.
47. Kerr, A. (2005). Understanding genetic disease in a socio-historical context: A case study of cystic fibrosis. Sociology of Health & Illness, 27, 873-896. (Pubitemid 41796888)
48. Kleinman, A. (1988). The illness narratives: Suffering, healing, & the human condition. New York, NY: Basic Books.
49. Kumar, D. (2007). Genomic medicine: A new frontier of medicine in the twenty first century. Genomic Medicine, 1, 3-7. (Pubitemid 47319595)
50. Lakoff, A. (2005). Diagnostic liquidity: Mental illness and the global trade in DNA. Theory and Society, 34, 63-92. (Pubitemid 40530896)
51. Latimer, J., Featherstone, K., Atkinson, P., Clarke, A., Pilz, D. T., & Shaw, A. (2006). Rebirthing the clinic: The interaction of clinical judgment and genetic technology in the production of medical science. Science, Technology & Human Values, 31, 599-630. (Pubitemid 44219992)
52. Latour, B., & Woolgar, S. (1979). Laboratory life: The social construction of scientific facts. Princeton, NJ: Princeton University Press.
53. Lindee, S. (2005). Moments of truth in genetic medicine. Baltimore, MD: The Johns Hopkins University Press.
54. Mattingly, C. F. (1991). The narrative nature of clinical reasoning. American Journal of Occupational Therapy, 45, 998-1005.
55. Mattingly, C. F. (1994). The concept of "therapeutic emplotment". Social Science & Medicine, 38, 811-822.
56. May, C., Rapley, T., Moreira, T., Finch, T., & Heaven, B. (2006). Technogovernance: Evidence, subjectivity, and the clinical encounter in primary care medicine. Social Science & Medicine, 62, 1022-1030. (Pubitemid 43087375)
57. Meencke, H.-J. (2009). Clinical neuropathology of the epilepsies in the 100 years of the ILAE (1909-2009). Epilepsia, 50, 8-16. Series 4.
58. Miller, F. A., Ahern, C., Smith, C. A., & Harvey, E. A. (2006). Understanding the new human genetics: A review of scientific editorials. Social Science & Medicine, 62, 2373-2385.
59. Miller, F. G., & Rosenstein, D. L. (2003). The therapeutic orientation to clinical trials. New England Journal of Medicine, 348, 1383-1386. (Pubitemid 36384108)
60. Mol, A. (2002). The body multiple: Ontology in medical practice. Durham, NC: Duke University Press.
61. Morris, N., Armstrong, V., & Balmer, B. (2009). Constructing a safe research environment: Technology talk between researchers and volunteer research subjects. Health, Risk & Society, 11, 99-116.
62. Ottman, R. (2005). Analysis of genetically complex epilepsies. Epilepsia, 46(suppl.10), 7-14. (Pubitemid 44922015)
63. Perrin, A. J., & Lee, H. (2007). The undertheorized environment: Sociological theory and the ontology of behavioral genetics. Sociological Perspectives, 50, 303-322.
64. Pickersgill, M. (2009). Between soma and society: Neuroscience and the ontology of psychopathy. BioSocieties, 4, 45-60.
65. Pickersgill, M. (2010). Ordering disorder: Knowledge production and uncertainty in neuroscience research. Science as Culture, 20, 71-87.
66. Ponder, M., Statham, H., Hallowell, N., Moon, J. A., Richards, M., & Raymond, F. L. (2008). Genetic research on rare familial disorders: Consent and the blurred boundaries between clinical service and research. Journal of Medical Ethics, 34, 690-694.
67. Prasad, A. (2005). Scientific culture in the "other" theater of "modern science": An analysis of the culture of magnetic resonance imaging research in India. Social Studies of Science, 35, 463-489. (Pubitemid 40816303)
68. Rabinow, P., & Rose, N. (2006). Biopower today. BioSocieties, 1, 195-217.
69. Racine, E., Waldman, S., Rosenberg, J., & Illes, J. (2010). Contemporary neuroscience in the media. Social Science & Medicine, 71, 725-733.
70. Rose, N. (1999). Governing the soul: The shaping of the private self. London: Free Associations Books.
71. Rosenberg, C. (1992). Explaining epidemics and other studies in the history of medicine. Cambridge: Cambridge University Press.
72. Rosenberg, C. (2007). Our present complaint: American medicine, past and present. Baltimore, MD: The Johns Hopkins University Press.
73. Rutter, M., Moffit, T. E., & Caspi, A. (2006). Gene-environment interplay and psychopathology: Multiple varieties but real effects. Journal of Child Psychology and Psychiatry, 47, 226-261. (Pubitemid 43356058)
74. Schneider, J. W., & Conrad, P. (1983). Having epilepsy: The experience and control of illness. Philadelphia, PA: Temple University Press.
75. Schwartz, D., & Collins, F. S. (2007). Environmental biology and human disease. Science, 316, 695-696.
76. Shostak, S. (2003). Locating gene-environment interaction: At the intersections of genetics and public health. Social Science & Medicine, 56, 2327-2342. (Pubitemid 36444727)
77. Shostak, S. (2005). The emergence of toxicogenomics: A case study of molecularization. Social Studies of Science, 35(3), 367-403. (Pubitemid 40829148)
78. Shostak, S., & Ottman, R. (2006). Ethical, legal, and social dimensions of epilepsy genetics. Epilepsia, 47, 1595-1602. (Pubitemid 44556391)
79. Star, S. L. ( 1983). Simplification in scientific work: An example from neuroscience research. Social Studies of Science, 13(2), 205-228.
80. Star, S. L. ( 1985). Scientific work and uncertainty. Social Studies of Science, 15, 391-427.
81. Star, S. L. ( 1991). The sociology of the invisible: The primacy of work in the writings of Anselm Strauss. In: D. Maines (Ed.), Social organization and social process: Essays in honor of Anselm Strauss (pp. 265-283). Hawthorne, NY: Aldine de Gruyter.
82. Taylor, K. M., & Kelner, M. (1987). Interpreting physician participation in randomized clinical trials: The physician orientation profile. Journal of Health and Social Behavior, 28, 389-400. (Pubitemid 18017785)
83. Temkin, O. (1971). The falling sickness: A history of epilepsy from the Greeks to the beginnings of modern neurology. Baltimore, MD: The Johns Hopkins University Press.
84. Timmermans, S. (2006). Postmortem: How medical examiners explain suspicious deaths. Chicago, IL: University of Chicago Press.
85. Timmermans, S., & Almeling, R. (2009). Objectification, standardization, and commodification in health care: A conceptual readjustment. Social Science & Medicine, 69, 21-27.
86. Timmermans, S., & Berg, M. (1997). Standardization in action: Achieving local universality through medical protocols. Social Studies of Science, 27, 273-305. (Pubitemid 127431069)
87. Timmermans, S., & Epstein, S. (2010). A world of standards but not a standard world: Toward a sociology of standards and standardization. Annual Review of Sociology, 36, 69-89.
88. Timmermans, S., & Haas, S. (2008). Towards a sociology of disease. Sociology of Health & Illness, 30, 659-676.
89. Timmermans, S., & Tavory, I. (2007). Advancing ethnographic research through grounded theory practice. In: K. Charmaz & A. Bryant (Eds.), Handbook of grounded theory (pp. 493-513). London: Sage Publications.
90. Timmermans, S., & Tavory, I. (n.d.). Theory construction in qualitative research: Grounded theory and the logic of abduction. Unpublished manuscript. Author's Files.
91. Tolich, M. (2004). Internal confidentiality: When confidentiality assurances fail relational informants. Qualitative Sociology, 27(1), 101-106.
92. Tutton, R., Kaye, J., & Hoeyer, K. (2004). Governing UK biobank: The importance of ensuring public trust. Trends in Biotechnology, 6, 284-285. (Pubitemid 38639775)
93. Vidal, F. (2009). Brainhood, anthropological figure of modernity. History of the Human Sciences, 22, 5-36.
94. Wainwright, S. P., Michael, M., & Williams, C. (2009). Shifting paradigms? Reflections on regenerative medicine, embryonic stem cells and pharmaceuticals. Sociology of Health & Illness, 30, 959-974.
95. Zara, F., & Bianchi, A. (2009). The impact of genetics on the classification of epilepsy syndromes. Epilepsia, 50, 11-14. Series 4.
96. Zavestoski, S., Brown, P., McCormick, S., Mayer, B., D'Ottavi, M., & Lucove, J. C. (2004). Patient activism and the struggle for diagnosis: Gulf war illnesses and other medically unexplained physical symptoms in the US. Social Science & Medicine, 58, 161-175. (Pubitemid 37324004)