Pain over time and its effects on life in thalassemia

American Journal of Hematology

Volumn 88, Issue 11, 2013, Pages 939-943

  Oliveros, Olivia ^a   Trachtenberg, Felicia ^b   Haines, Dru ^a   Gerstenberger, Eric ^b   Martin, Marie ^c   Carson, Susan ^d   Green, Sage ^c   Calamaras, Diane ^e   Hess, Pauline ^e   Yamashita, Robert ^f   Vichinsky, Elliott ^a  

^a CHILDREN S HOSPITAL OAKLAND   (United States)

^b NEW ENGLAND RESEARCH INSTITUTES   (United States)

^c CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^d CHILDREN S HOSPITAL LOS ANGELES   (United States)

^e CHILDREN'S MEMORIAL HOSPITAL   (United States)

^f CALIFORNIA STATE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; AGED; ANXIETY DISORDER; ARTICLE; BRIEF PAIN INVENTORY; CHILD; DAILY LIFE ACTIVITY; DEPRESSION; EDUCATION; EMPLOYMENT; FEMALE; HOSPITAL ANXIETY AND DEPRESSION SCALE; HUMAN; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; MARRIAGE; PAIN; PAIN ASSESSMENT; PRIORITY JOURNAL; QUALITY OF LIFE; SCHOOL CHILD; SHORT FORM 36; THALASSEMIA;

ADOLESCENT; ADULT; AGED; ANXIETY; CHILD; DEPRESSION; FEMALE; HUMANS; MALE; MIDDLE AGED; PAIN; PILOT PROJECTS; QUALITY OF LIFE; THALASSEMIA; YOUNG ADULT;

EID: 84886244305     PISSN: 03618609     EISSN: 10968652     Source Type: Journal    
DOI: 10.1002/ajh.23565     Document Type: Article

References (21)

1. Cohen AR, Galanello R, Pennell DJ, et al. Thalassemia. Hematology Am Soc Hematol Educ Program 2004:14-34.
2. Olivieri NF, Brittenham GM. Iron-chelating therapy and the treatment of thalassemia. Blood 1997;89:739-761.
3. Borgna-Pignatti C, Cappellini MD, De Stefano P, et al. Survival and complications in thalassemia. Ann NY Acad Sci 2005;1054:40-47.
4. Kolnagou A, Kontoghiorghes GJ. Advances in the prevention and treatment are changing thalassemia from a fatal to a chronic disease. Experience from a Cyprus model and its use as a paradigm for future applications. Hemoglobin 2009;33:287-295.
5. Haines D, Martin M, Carson S, et al. Pain in thalassaemia: The effects of age on pain frequency and severity. Br J Haematol 2013;160:680-687.
6. Pakbaz Z, Treadwell M, Kim H-Y, et al. Education and employment status of children and adults with thalassemia in North America. Pediatr Blood Cancer 2010;55:678-683.
7. Trachtenberg F, Foote D, Martin M, et al. Pain as an emergent issue in thalassemia. Am J Hematol 2010;85:367-370.
8. Scalone L, Mantovani LG, Krol M, et al. Costs, quality of life, treatment satisfaction and compliance in patients with β-thalassemia major undergoing iron chelation therapy: The ITHACA study. Curr Med Res Opin 2008;24:1905-1917.
9. Vogiatzi MG, Macklin EA, Fung EB, et al. Bone disease in thalassemia: A frequent and still unresolved problem. J Bone Miner Res 2009;24:543-557.
10. Sobota A, Yamashita R, Xu Y, et al. Quality of life in thalassemia: A comparison of SF-36 results from the thalassemia longitudinal cohort to reported literature and the US norms. Am J Hematol 2011;86:92-95.
11. Panepinto JA. Health-related quality of life in patients with hemoglobinopathies. Hematology Am Soc Hematol Educ Program 2012;2012:284-289.
12. McClish DK, Penberthy LT, Bovbjerg VE, et al. Health related quality of life in sickle cell patients: The PiSCES project. Health Qual Life Outcomes 2005;3:50.
13. Pakbaz Z, Treadwell M, Yamashita R, et al. Quality of life in patients with thalassemia intermedia compared to thalassemia major. Ann NY Acad Sci 2005;1054:457-461.
14. Mednick L, Yu S, Trachtenberg F, et al. Symptoms of depression and anxiety in patients with thalassemia: Prevalence and correlates in the thalassemia longitudinal cohort. Am J Hematol 2010;85:802-805.
15. Cleeland CS. The Brief Pain Inventory User Guide [Internet]. The University of Texas M. D. Anderson Cancer Center; 2009. Available from: http://dl.owneriq.net/b/bda4b416-56f9-4179-a75a-e102e933c0b1.pdf.
16. Patt RB. Cancer Pain. Philadelphia: Lippincott; 1993.
17. Ware JE, Kosinski M, Bjorner B. User's Manual for the SF-36v2 Health Survey. QualityMetric Incorporated; 2007. Available from: http://www.qualitymetric.com/WhatWeDo/GenericHealthSurveys/SF36v2HealthSurvey/tabid/185/Default.aspx.
18. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983;67:361-370.
19. Mossey JM. Defining racial and ethnic disparities in pain management. Clin Orthop 2011;469:1859-1870.
20. Haidar R, Musallam KM, Taher AT. Bone disease and skeletal complications in patients with β thalassemia major. Bone 2011;48:425-432.
21. Vichinsky EP. The morbidity of bone disease in thalassemia. Ann NY Acad Sci 1998;850:344-348.