Understanding the Similarities and Differences in Aging with an Intellectual Disability. Linking Irish General Population and Intellectual Disability Datasets

International Review of Research in Developmental Disabilities

Volumn 45, Issue , 2013, Pages 225-256

  McCallion, P ^a   Swinburne, J ^b   Burke, E ^b   McGlinchey, E ^b   McCarron, M ^c  

^a STATE UNIVERSITY OF NEW YORK   (United States)

^b TRINITY COLLEGE DUBLIN   (Ireland)

^c The University of Dublin   (Ireland)

Author keywords

Aging; Health; Intellectual disability; Longitudinal; Quality of life

Indexed keywords

EID: 84885702428     PISSN: 22116095     EISSN: None     Source Type: Book Series    
DOI: 10.1016/B978-0-12-407760-7.00006-2     Document Type: Chapter

References (63)

1. Fifty plus in Ireland, the first results of the Irish Longitudinal Study on Ageing 2011, Trinity College Dublin, Dublin. A. Barrett, G. Savva, V. Timonen, R.A. Kenny (Eds.).
2. Bhaumik S., Tyrer F.C., McGrother C., Ganghadaran S.K. Psychiatric service use and psychiatric disorders in adults with intellectual disability. Journal of Intellectual Disability Research 2008, 52(11):986-995.
3. Bittles A.H. Endogamy, consanguinity and community genetics. Journal of Genetics 2002, 81(3):91-98.
4. Cambridge Cambridge advance learners dictionary 2011, Retrieved from, Accessed 15 August 2011. http://dictionary.cambridge.org/dictionary/british/proxy?q=proxy.
5. Cooper S.A., Melville C., Morrison J. People with intellectual disabilities. Their health needs differ and need to be recognized and met. British Medical Journal 2004, 329:414-415.
6. Cooper S.A., Morrison J., Melville C., Finlayson J., Allan L., Martin G., et al. Improving the health of people with intellectual disabilities: Outcomes of a health screening programme after 1 year. Journal of Intellectual Disability Research 2006, 50(9):667-677.
7. Cooper S.A., Smiley E., Morrison J., Williamson A., Allan L. Mental ill-health in persons with ID: Prevalence and associated factors. British Journal of Psychiatry 2007, 190:27-35.
8. Council of Europe Council Council of Europe Disability Action Plan 2006-2015. A plan about how to make things better for people with disabilities in Europe 2006, Easy-to-read version retrieved from, Accessed 12 August 2011. http://www.coe.int/t/e/social_cohesion/soc-sp/Action%20Plan%20CoE%20-%20Easy%20to%20Read%20%2013.11.08%20_EN_pdf.
9. Cronin H., O'Regan C., Kenny R.A. Physical and behavioural health of older Irish people. Fifty plus in Ireland 2011, first results from the Irish longitudinal study on ageing 2011, 72-154. Trinity College Dublin, Dublin. A. Barrett, G. Savva, V. Timonen, R.A. Kenny (Eds.).
10. Cummins R.A., Lau A.L.D. Community integration or community exposure: A review and discussion in relation to people with an intellectual disability. Journal of Applied Research in Intellectual Disabilities 2003, 16:145-157.
11. Day K., Jancar J. Mental and physical health and ageing in mental handicap: A review. Journal of Intellectual Disability Research 1994, 38(3):241-256.
12. Department of Health and Children Quality and fairness. A health system for you 2001, Stationery Office, Dublin.
13. Department of Health Human Services Health centers: America's primary care safety net reflections on success, 2002-2007 2002, U.S. Department of Health and Human Services. Health Resources and Services Administration, Bureau of Primary Health Care, Washington, DC.
14. Evenhuis H.M., Theunissen M., Denkers I., Verschuure H., Kemme H. Prevalence of visual and hearing impairment in a Dutch institutionalized population with intellectual disability. Journal of Intellectual Disabilility Research 2001, 45(5):457-464.
15. Felce D., Emerson E. Living with support in a home in the community: Predictors of behavioural development and household and community activity. Mental Retardation and Developmental Disabilities Research Review 2001, 7(2):75-83.
16. Felce D., Lowe K., Perry J., Baxter H., Jones E., Hallam A., et al. Service support to people in Wales with severe intellectual disability and the most severe challenging behaviours: Processes, outcomes and costs. Journal of Intellectual Disability Research 1998, 42(5):390-408.
17. Foran S., McCarron M., McCallion P. Expanding assessment of Fear of Falling among older adults with an intellectual disability: A pilot study to assess the value of proxy responses. ISRN Geriatrics 2013, 2013:9. doi:10.1155/2013/493042.
18. Gilbert T., Todd M., Jackson N. People with learning disabilities who also have mental health problems: Practice issues and directions for learning disability nursing. Journal of Advanced Nursing 1998, 27(6):1151-1157.
19. Hastings R.P., Hatton C., Taylor J.L., Maddison C. Life events and psychiatric symptoms in adults with intellectual disabilities. Journal of Intellectual Disability Research 2004, 48:42-46.
20. Haveman M., Heller T., Maaskant M., Lee L., Shooshtari S., Strydom A. Health risks in older adults with intellectual disabilities: A review of studies (IASSID report) 2009, Retrieved from, Accessed 01 August 2011. http://www.IASSID.org.
21. Heller T., Miller A.B., Factor A. Environmental characteristics of nursing homes and community-based settings and the well-being of adults with intellectual disability. Journal of Intellectual Disability Research 1998, 42(5):418-428.
22. Howard S., Spencer A. Effects of resettlement on people with learning disabilities. British Journal of Nursing 1997, 6(8):436-441.
23. HSE Time to move on from congregated settings-A strategy for community inclusion report of the working group on congregated settings 2011, Health Service Executive, Dublin.
24. Iacono T., Sutherland G. Health screening and developmental disability. Journal of Policy and Practice in Intellectual Disability 2006, 3(3):155-163.
25. Institute of Medicine Living well with chronic illness: A call for public health action 2012, The National Academies Press, Washington, DC.
26. Jackson R., Howe N., Nakashima K. Global aging preparedness index 2011, Center for Strategic and International Studies, Washington, DC.
27. Janicki M.P., Dalton A.J., Henderson C.M., Davidson P.W. Mortality and morbidity among older adults with intellectual disability: Health services considerations. Disability Rehabilitation 1999, 21(5-6):284-294.
28. Jokinen N., Janicki M.P., Keller S., McCallion P., Force L.T. Guidelines for structuring community care and supports for people with intellectual disabilities affected by dementia. Journal of Policy & Practice in Intellectual Disabilities 2013, 10(1):1-24.
29. Jones R.G., Kerr M.P. A randomized control trial of an opportunistic health screening tool in primary care for people with intellectual disability. Journal of Intellectual Disability Research 1997, 41(5):409-415.
30. Kamiya Y., Sofroniou N. Socio-demographic characteristics of older people In Ireland. Fifty plus in Ireland 2011, first results from the Irish longitudinal study on ageing 2011, 37-50. Trinity College Dublin, Dublin. A. Barrett, G. Savva, V. Timonen, R.A. Kenny (Eds.).
31. Kamiya Y., Timonen V. Older people as members of their families and communities. Fifty plus in Ireland 2011, first results from the Irish longitudinal study on ageing 2011, 37-50. Trinity College Dublin, Dublin. A. Barrett, G. Savva, V. Timonen, R.A. Kenny (Eds.).
32. Kelly C., Craig S., Kelly F. Annual report of the National Intellectual Disability Database Committee 2010, Health Research Board, Dublin.
33. Kelly C., Craig S., Kelly F. Annual report of the National Intellectual Disability Database Committee 2012, Health Research Board, Dublin.
34. Kerr M., Dunstan F., Thapar A. Attitudes of general practitioners to caring for people with learning disability. British Journal of General Practice 1996, 46(403):92-94.
35. Kinsella K., Velkoff V. An Aging World: 2001 2001, U.S. Census Bureau, Washington, DC.
36. Lavin K.E., McGuire B.E., Hogan M.J. Age at death of people with an intellectual disability in Ireland. Journal of Intellectual Disability 2006, 10(2):155-164.
37. Lennox N., Bain Rey-Conde T., Purdie D., Bush R., Pandeya N. Effects of a comprehensive health assessment programme for Australian adults with intellectual disability: A cluster randomized trial. International Journal of Epidemiology 2007, 36:139-146.
38. McCallion P. Social work research and ageing. Sage handbook of social work research 2009, Sage, London. I. Shaw, K. Briar-Lawson, J. Orme, R. Ruckdeschel (Eds.).
39. McCallion P., Ferretti L., Park G. Financial issues and an aging population: Responding to an increased potential for financial abuse. Financial education & capability: Research, education, policy and practice 2013, Oxford University Press, New York. J. Birkenmaier, J. Curley, M. Sherraden (Eds.).
40. McCarron M., McCallion P. An intellectual disability supplement to the Irish longitudinal study of ageing 2007, Trinity College Dublin, Dublin, A proposal submitted to the Health Research Board.
41. McCarron M., Swinburne J., Burke E., McGlinchey E., Mulryan N., Andrews V., et al. Growing older with an intellectual disability in Ireland 2011: First results from the intellectual disability supplement of the Irish longitudinal study on ageing 2011, School of Nursing & Midwifery, Trinity College Dublin, Dublin.
42. McCarron M., Swinburne J., Burke E., McGlinchey E., Carroll R., McCallion P. Patterns of multimorbidity in an older population of persons with an intellectual disability: Results from the intellectual disability supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA). Research in Developmental Disabilities 2013, 34:521-527.
43. McGee H., Morgan K., Hickey A., Burke H., Savva G. Quality of life and beliefs about aging people. Fifty plus in Ireland 2011, first results from the Irish longitudinal study on ageing 2011, 265-292. Trinity College Dublin, Dublin. A. Barrett, G. Savva, V. Timonen, R.A. Kenny (Eds.).
44. Mikkelsen E.J. The rational use of psychotropic medication for individuals with intellectual disabilities 2007, NADD, Kingston, NY.
45. Moss S., Patel P., Prosser H., Goldberg D., Simpson N., Rowe S., et al. Psychiatric morbidity in older people with moderate and severe learning disability I: Development and reliability of the patient interview (PAS-ADD). British Journal of Psychiatry 1993, 163:471-480.
46. Nijre B. The normalisation principle and human management implications. Changing patterns in residential services for the mentally retarded 1969, 179-195. Presidents Committee on Mental Retardation, Washington, DC. R. Kugel, W. Wolfensberger (Eds.).
47. Normand C., Kamiya Y., Timonen v., Whelan B. Health and social care utilisation. Fifty plus in Ireland 2011, first results from the Irish longitudinal study on ageing 2011, 203-218. Trinity College Dublin, Dublin. A. Barrett, G. Savva, V. Timonen, R.A. Kenny (Eds.).
48. O'Brien E., Black M., Carley-Baxter L., Simon T. Sensitive topics, survey non-response, and considerations for interviewer training. American Journal of Preventive Medicine 2006, 31(5):419-426.
49. O'Regan C., Cronin H., Kenny R.A. Mental health and cognitive function. Fifty plus in Ireland 2011, first results from the Irish longitudinal study on ageing 2011, 155-202. Trinity College Dublin, Dublin. A. Barrett, G. Savva, V. Timonen, R.A. Kenny (Eds.).
50. O'Sullivan V., Layte R. Income and asset levels of older people. Fifty plus in Ireland 2011, first results from the Irish longitudinal study on ageing 2011, 243-264. Trinity College Dublin, Dublin. A. Barrett, G. Savva, V. Timonen, R.A. Kenny (Eds.).
51. Parry J.R. Overview of mental health problems in elderly persons with developmental disabilities 2002, NADD (National Association for the Dually Diagnosed), Kingston, NY.
52. Savva G. Methodology. Fifty plus in Ireland, the first results of the Irish Longitudinal Study on Ageing 2011, 293-303. Trinity College Dublin, Dublin. A. Barrett, G. Savva, V. Timonen, R. Kenny (Eds.).
53. Singh P. Prescription for change: A Mencap report on the role of GPs and carers in the provision of primary care for people with learning disabilities 1997, Mencap, London.
54. Strauss D., Kastner T.A., Shavelle R. Mortality of adults with developmental disabilities living in California Institution and community care, 1985-1994. Mental Retardation 1998, 36(5):360-371.
55. Timonen V., Kamiya Y., Maty S. Social engagement of older people. Fifty plus in Ireland 2011, first results from the Irish longitudinal study on ageing 2011, 51-57. Trinity College Dublin, Dublin. A. Barrett, G. Savva, V. Timonen, R.A. Kenny (Eds.).
56. U.S.Bureau of the Census Population Projections 1999, U.S. Census, Washington, DC.
57. U.S.Bureau of the Census Population Projections 2001, U.S. Census, Washington, DC.
58. vanSchrojenstein Lantman-De Valk H.M., Metsemakers J.F., Haveman M.J., Crebolder H.F. Health problems in people with intellectual disability in general practice: A comparative study. Family Practice 2000, 17(5):405-407.
59. Verdonschot M.M.L., de Witte L.P., Reichrath E., Buntinx W.H., Curfs L.M. Community participation of people with an intellectual disability: A review of empirical findings. Journal of Intellectual Disability Research 2009, 53(4):303-318.
60. Wagner E.H. Chronic disease management: What will it take to improve care for chronic illness?. Effective Clinical Practice 1998, 1(1):2-4.
61. Wolfensberger W. The principle of normalization and its implications to psychiatric services. American Journal of Psychiatry 1970, 127:291-297.
62. Wolfensberger W. A brief introduction to social role valorization as a higher-order concept for structuring human services 1992, Training Institute for Human Services Planning. Syracuse University, Leadership and Change Agentry, Syracuse, NY. revised ed.
63. World Health Organization (WHO) International classification of functioning, disability and health 2001, WHO, Geneva.