메뉴 건너뛰기




Volumn 6, Issue 4, 2013, Pages 343-351

Future plans and social/recreational activities of youth with special health care needs: The implications of parental help in completing surveys

Author keywords

Future plans; Parent perception; Parental assistance; Recreation; Social activity; Youth with special health care needs

Indexed keywords

ADOLESCENT; ADULT; BIVARIATE ANALYSIS; CAREGIVER; CHILD; CHILD HEALTH; CONFERENCE PAPER; FEMALE; HEALTH CARE NEED; HEALTH CARE POLICY; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; MATERNAL WELFARE; MULTIVARIATE LOGISTIC REGRESSION ANALYSIS; NEEDS ASSESSMENT; PARENT; PRIORITY JOURNAL; RECREATION; SCHOOL CHILD; SOCIAL BEHAVIOR;

EID: 84884671604     PISSN: None     EISSN: 19366574     Source Type: Journal    
DOI: 10.1016/j.dhjo.2013.04.010     Document Type: Conference Paper
Times cited : (6)

References (38)
  • 1
    • 0031804649 scopus 로고    scopus 로고
    • A new definition of children with special health care needs
    • M. McPherson, P. Arango, and H. Fox A new definition of children with special health care needs Pediatrics 102 1 1998 117 123
    • (1998) Pediatrics , vol.102 , Issue.1 , pp. 117-123
    • McPherson, M.1    Arango, P.2    Fox, H.3
  • 2
    • 19944413853 scopus 로고    scopus 로고
    • National Center for Health Statistics NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [10/01/2012] from
    • National Center for Health Statistics. National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [10/01/2012] from www.childhealthdata.org.
    • National Survey of Children with Special Health Care Needs
  • 3
    • 79959924109 scopus 로고    scopus 로고
    • Supporting the health care transition from adolescence to adulthood in the medical home
    • American Academy of Pediatrics American Academy of Family Physicians American College of Physicians Transitions Clinical Report Authoring Group
    • American Academy of Pediatrics American Academy of Family Physicians American College of Physicians Transitions Clinical Report Authoring Group Supporting the health care transition from adolescence to adulthood in the medical home Pediatrics 128 1 2011 182 200
    • (2011) Pediatrics , vol.128 , Issue.1 , pp. 182-200
  • 4
    • 59449095511 scopus 로고    scopus 로고
    • Planning for health care transitions: Results from the 2005-2006 National Survey of Children with Special Health Care Needs
    • D.S. Lotstein, R. Ghandour, A. Cash, E. McGuire, B. Strickland, and P. Newacheck Planning for health care transitions: results from the 2005-2006 National Survey of Children with Special Health Care Needs Pediatrics 123 1 2009 e145 e152
    • (2009) Pediatrics , vol.123 , Issue.1
    • Lotstein, D.S.1    Ghandour, R.2    Cash, A.3    McGuire, E.4    Strickland, B.5    Newacheck, P.6
  • 5
    • 79151484112 scopus 로고    scopus 로고
    • Association of provider scope of practice with successful transition for youth with special health care needs
    • B.R. Nishikawa, T.P. Daaleman, and S. Nageswaran Association of provider scope of practice with successful transition for youth with special health care needs J Adolesc Health 48 2 2011 209 211
    • (2011) J Adolesc Health , vol.48 , Issue.2 , pp. 209-211
    • Nishikawa, B.R.1    Daaleman, T.P.2    Nageswaran, S.3
  • 7
    • 49349112888 scopus 로고    scopus 로고
    • Transition to adult care: Experiences and expectations of adolescents with a chronic illness
    • L.K. Tuchman, G.B. Slap, and M.T. Britto Transition to adult care: experiences and expectations of adolescents with a chronic illness Child Care Health Dev 34 5 2008 557 563
    • (2008) Child Care Health Dev , vol.34 , Issue.5 , pp. 557-563
    • Tuchman, L.K.1    Slap, G.B.2    Britto, M.T.3
  • 8
    • 33745770485 scopus 로고    scopus 로고
    • Health, education, work, and independence of young adults with disabilities
    • K.B. Blomquist Health, education, work, and independence of young adults with disabilities Orthop Nurs 25 3 2006 168 187
    • (2006) Orthop Nurs , vol.25 , Issue.3 , pp. 168-187
    • Blomquist, K.B.1
  • 9
    • 35148874673 scopus 로고    scopus 로고
    • Health and independence of young adults with disabilities, two years later
    • K.B. Blomquist Health and independence of young adults with disabilities, two years later Orthop Nurs 26 5 2007 296 309
    • (2007) Orthop Nurs , vol.26 , Issue.5 , pp. 296-309
    • Blomquist, K.B.1
  • 10
    • 17144380974 scopus 로고    scopus 로고
    • An exploratory study of future plans and extracurricular activities of transition-age youth and young adults
    • C.L. Betz, and G. Redcay An exploratory study of future plans and extracurricular activities of transition-age youth and young adults Issues Compr Pediatr Nurs 28 2005 33 61
    • (2005) Issues Compr Pediatr Nurs , vol.28 , pp. 33-61
    • Betz, C.L.1    Redcay, G.2
  • 11
    • 78049294312 scopus 로고    scopus 로고
    • Health care transitions among youth with disabilities or special health care needs: An ecological approach
    • G. Wang, B.B. McGrath, and C. Watt Health care transitions among youth with disabilities or special health care needs: an ecological approach J Pediatr Nurs 25 6 2010 505 550
    • (2010) J Pediatr Nurs , vol.25 , Issue.6 , pp. 505-550
    • Wang, G.1    McGrath, B.B.2    Watt, C.3
  • 12
    • 38049080522 scopus 로고    scopus 로고
    • Parent-reported quality of life of children with cerebral palsy in Europe
    • C. Arnaud, M. White-Konig, and S.I. Michelsen Parent-reported quality of life of children with cerebral palsy in Europe Pediatrics 121 1 2008 54 64
    • (2008) Pediatrics , vol.121 , Issue.1 , pp. 54-64
    • Arnaud, C.1    White-Konig, M.2    Michelsen, S.I.3
  • 13
  • 14
    • 1642474363 scopus 로고    scopus 로고
    • Differences between adolescents' and parents' report of health-related quality of life in cystic fibrosis
    • M.T. Britto, U.R. Kotagal, T. Chenier, J. Tsevat, H.D. Atherton, and R.W. Wilmott Differences between adolescents' and parents' report of health-related quality of life in cystic fibrosis Pediatr Pulmonol 37 2004 165 171
    • (2004) Pediatr Pulmonol , vol.37 , pp. 165-171
    • Britto, M.T.1    Kotagal, U.R.2    Chenier, T.3    Tsevat, J.4    Atherton, H.D.5    Wilmott, R.W.6
  • 15
    • 33750018655 scopus 로고    scopus 로고
    • Factors influencing agreement between child self-report and parent proxy-reports on the pediatric quality of life inventory 4.0 (PedsQL) generic core scales
    • J. Cremeens, C. Eiser, and M. Blades Factors influencing agreement between child self-report and parent proxy-reports on the pediatric quality of life inventory 4.0 (PedsQL) generic core scales Health Qual Life Outcomes 30 4 2006 58
    • (2006) Health Qual Life Outcomes , vol.30 , Issue.4 , pp. 58
    • Cremeens, J.1    Eiser, C.2    Blades, M.3
  • 16
    • 84866162868 scopus 로고    scopus 로고
    • Description and psychometric properties of the CP QOL-Teen: A quality of life questionnaire for adolescents with cerebral palsy
    • E. Davis, A. Mackinnon, and M. Davern Description and psychometric properties of the CP QOL-Teen: a quality of life questionnaire for adolescents with cerebral palsy Res Dev Disabil 34 1 2012 344 352
    • (2012) Res Dev Disabil , vol.34 , Issue.1 , pp. 344-352
    • Davis, E.1    MacKinnon, A.2    Davern, M.3
  • 17
    • 33744951263 scopus 로고    scopus 로고
    • Agreement between parent and child report of quality of life in children with attention-deficit/hyperactivity disorder
    • A.F. Klassen, A. Miller, and S. Fine Agreement between parent and child report of quality of life in children with attention-deficit/hyperactivity disorder Child Care Health Dev 32 4 2006 397 406
    • (2006) Child Care Health Dev , vol.32 , Issue.4 , pp. 397-406
    • Klassen, A.F.1    Miller, A.2    Fine, S.3
  • 18
    • 33646362296 scopus 로고    scopus 로고
    • Assessment of health-related quality of life in children with cancer
    • K.M.W. Russell, M. Hudson, A. Long, and S. Phipps Assessment of health-related quality of life in children with cancer Cancer 106 10 2006 2267 2274
    • (2006) Cancer , vol.106 , Issue.10 , pp. 2267-2274
    • Russell, K.M.W.1    Hudson, M.2    Long, A.3    Phipps, S.4
  • 19
    • 77953363340 scopus 로고    scopus 로고
    • Self and proxy rating of quality of life in adults with intellectual disabilities: Results from the DISQOL study
    • S. Schmidt, M. Power, and A. Green Self and proxy rating of quality of life in adults with intellectual disabilities: results from the DISQOL study Res Dev Disabil 31 5 2010 1015 1026
    • (2010) Res Dev Disabil , vol.31 , Issue.5 , pp. 1015-1026
    • Schmidt, S.1    Power, M.2    Green, A.3
  • 20
    • 48449093719 scopus 로고    scopus 로고
    • Parent-child agreement across child health-related quality of life instruments: A review of the literature
    • P. Upton, J. Lawford, and C. Eiser Parent-child agreement across child health-related quality of life instruments: a review of the literature Qual Life Res 17 6 2008 895 913
    • (2008) Qual Life Res , vol.17 , Issue.6 , pp. 895-913
    • Upton, P.1    Lawford, J.2    Eiser, C.3
  • 21
    • 33846689378 scopus 로고    scopus 로고
    • Parent proxy-report of their children's health-related quality of life: An analysis of 13,878 parents' reliability and validity across age subgroups using the PedsQL 4.0 generic core scales
    • J.W. Varni, C.A. Limbers, and T.M. Burwinkle Parent proxy-report of their children's health-related quality of life: an analysis of 13,878 parents' reliability and validity across age subgroups using the PedsQL 4.0 generic core scales Health Qual Life Outcomes 5 2007 2
    • (2007) Health Qual Life Outcomes , vol.5 , pp. 2
    • Varni, J.W.1    Limbers, C.A.2    Burwinkle, T.M.3
  • 22
    • 35148879545 scopus 로고    scopus 로고
    • Determinants of child-parent agreement in quality-of-life reports: A European study of children with cerebral palsy
    • M. White-Koning, C. Arnaud, and H.O. Dickinson Determinants of child-parent agreement in quality-of-life reports: A European study of children with cerebral palsy Pediatrics 120 4 2007 e804 e814
    • (2007) Pediatrics , vol.120 , Issue.4
    • White-Koning, M.1    Arnaud, C.2    Dickinson, H.O.3
  • 23
    • 45049087326 scopus 로고    scopus 로고
    • Self-proxy agreement and correlates of health-related quality of life in young adults with epilepsy and mild intellectual disabilities
    • F. Zimmermann, and M. Endermann Self-proxy agreement and correlates of health-related quality of life in young adults with epilepsy and mild intellectual disabilities Epilepsy Behav 13 1 2008 202 211
    • (2008) Epilepsy Behav , vol.13 , Issue.1 , pp. 202-211
    • Zimmermann, F.1    Endermann, M.2
  • 24
    • 0035161833 scopus 로고    scopus 로고
    • Can parents rather their child's health-related quality of life? Results of a systematic review
    • C. Eiser, and R. Morese Can parents rather their child's health-related quality of life? Results of a systematic review Qual Life Res 10 4 2001 347 357
    • (2001) Qual Life Res , vol.10 , Issue.4 , pp. 347-357
    • Eiser, C.1    Morese, R.2
  • 25
    • 70350497723 scopus 로고    scopus 로고
    • Parent-versus-child-reported functional health status after the Fontan procedure
    • Pediatric Health Network Investigators
    • L.M. Lambert, L.L. Minich, J.W. Newburger Pediatric Health Network Investigators Parent-versus-child-reported functional health status after the Fontan procedure Pediatrics 12 45 2009 e942 e949
    • (2009) Pediatrics , vol.12 , Issue.45
    • Lambert, L.M.1    Minich, L.L.2    Newburger, J.W.3
  • 26
    • 73349085912 scopus 로고    scopus 로고
    • Comparison of self-reports and parent proxy-reports of function and quality of life of children with below-the-elbow deficiency
    • L.C. Sheffler, C. Hanley, A. Bagley, F. Molitor, and M.A. James Comparison of self-reports and parent proxy-reports of function and quality of life of children with below-the-elbow deficiency J Bone Joint Surg Am 91 12 2009 2852 2859
    • (2009) J Bone Joint Surg Am , vol.91 , Issue.12 , pp. 2852-2859
    • Sheffler, L.C.1    Hanley, C.2    Bagley, A.3    Molitor, F.4    James, M.A.5
  • 27
    • 0035087383 scopus 로고    scopus 로고
    • Quality of life measurement in children and adolescents: Issues, instruments, and applications
    • J.L. Wallander, M. Schmitt, and H.M. Koot Quality of life measurement in children and adolescents: issues, instruments, and applications J Clin Psychol 57 4 2001 571 585
    • (2001) J Clin Psychol , vol.57 , Issue.4 , pp. 571-585
    • Wallander, J.L.1    Schmitt, M.2    Koot, H.M.3
  • 28
    • 67651163999 scopus 로고    scopus 로고
    • Quality of life and participation
    • A. Colver Quality of life and participation Dev Med Child Neurol 51 8 2009 656 659
    • (2009) Dev Med Child Neurol , vol.51 , Issue.8 , pp. 656-659
    • Colver, A.1
  • 29
    • 84859620998 scopus 로고    scopus 로고
    • Quality of life and leisure participation in children with neurodevelopmental disabilities: A thematic analysis of the literature
    • N. Dahan-Oliel, K. Shikako-Thomas, and A. Majnemer Quality of life and leisure participation in children with neurodevelopmental disabilities: a thematic analysis of the literature Qual Life Res 21 2012 427 439
    • (2012) Qual Life Res , vol.21 , pp. 427-439
    • Dahan-Oliel, N.1    Shikako-Thomas, K.2    Majnemer, A.3
  • 30
    • 0037269806 scopus 로고    scopus 로고
    • A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities
    • G. King, M. Law, S. King, P. Rosenbaum, M.K. Kertoy, and N.L. Young A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities Phys Occup Ther Pediatr 23 1 2003 63 90
    • (2003) Phys Occup Ther Pediatr , vol.23 , Issue.1 , pp. 63-90
    • King, G.1    Law, M.2    King, S.3    Rosenbaum, P.4    Kertoy, M.K.5    Young, N.L.6
  • 31
    • 33645794289 scopus 로고    scopus 로고
    • Patterns of participation in recreational and leisure activities among children with complex physical disabilities
    • M. Law, G. King, and S. King Patterns of participation in recreational and leisure activities among children with complex physical disabilities Dev Med Child Neurol 48 2006 337 342
    • (2006) Dev Med Child Neurol , vol.48 , pp. 337-342
    • Law, M.1    King, G.2    King, S.3
  • 33
    • 79952672640 scopus 로고    scopus 로고
    • Alabama Rural Health Association cited 2009 Sept 23
    • Alabama Rural Health Association. What Is Rural? [cited 2009 Sept 23] Available from: http://www.arhaonline.org/what-is-rural.htm.
    • What Is Rural?
  • 36
    • 84863864237 scopus 로고    scopus 로고
    • Social skills training for young adults with high-functions autism spectrum disorders: A randomized controlled pilot study
    • A. Gantman, S.K. Kapp, K. Orenski, and E.A. Laugeson Social skills training for young adults with high-functions autism spectrum disorders: a randomized controlled pilot study J Autism Dev Disord 42 2012 1094 1103
    • (2012) J Autism Dev Disord , vol.42 , pp. 1094-1103
    • Gantman, A.1    Kapp, S.K.2    Orenski, K.3    Laugeson, E.A.4
  • 37
    • 84863875067 scopus 로고    scopus 로고
    • Evidence-based social skills training for adolescents with autism spectrum disorders: The UCLA PEERS program
    • E.A. Laugeson, F. Frankel, A. Gantman, A.R. Dillon, and C. Mogil Evidence-based social skills training for adolescents with autism spectrum disorders: the UCLA PEERS program J Autism Dev Disord 42 2012 1025 1036
    • (2012) J Autism Dev Disord , vol.42 , pp. 1025-1036
    • Laugeson, E.A.1    Frankel, F.2    Gantman, A.3    Dillon, A.R.4    Mogil, C.5
  • 38
    • 84884675136 scopus 로고    scopus 로고
    • The science of making friends: Evidence-based social skills for adolescents and adults with ASD
    • Tuscaloosa, AL: March 1
    • Laugeson EA. The science of making friends: evidence-based social skills for adolescents and adults with ASD. In: Presentation at the 12th Annual Alabama Autism Conference. Tuscaloosa, AL: March 1, 2013.
    • (2013) Presentation at the 12th Annual Alabama Autism Conference
    • Laugeson, E.A.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.