Enhanced quality and productivity of long-term aftercare of cancer in young people

Archives of Disease in Childhood

Volumn 98, Issue 10, 2013, Pages 818-824

  Glaser, Adam ^a,b   Levitt, Gill ^c,d   Morris, Patricia ^d   Tapp, Judi ^d   Gibson, Faith ^e,f  

^a LEEDS TEACHING HOSPITALS NHS TRUST   (United Kingdom)

^b International HIV/AIDS Alliance   (United Kingdom)

^c GREAT ORMOND STREET HOSPITAL   (United Kingdom)

^d NATIONAL HEALTH SERVICE   (United Kingdom)

^e LONDON SOUTH BANK UNIVERSITY   (United Kingdom)

^f Children and Young People Anna Freud Centre   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

CANCER CENTER; CHILDHOOD CANCER; FOLLOW UP; HEALTH CARE QUALITY; HEALTH SERVICE; HUMAN; LONG TERM CARE; NURSING CARE; PATIENT CARE; PATIENT REFERRAL; PRIORITY JOURNAL; PRODUCTIVITY; REVIEW; RISK ASSESSMENT; SELF CARE;

LATE EFFECTS; MODELS OF CARE; ONCOLOGY; SERVICE IMPROVEMENT;

AFTERCARE; DELIVERY OF HEALTH CARE; ENGLAND; HUMANS; NEOPLASMS; QUALITY IMPROVEMENT; QUALITY OF HEALTH CARE;

EID: 84884557591     PISSN: 00039888     EISSN: 14682044     Source Type: Journal    
DOI: 10.1136/archdischild-2013-304348     Document Type: Review

References (39)

1. Levitt GA, Eshelman D. After cure in cancer: adolescents and young people; care and policy issues. Kelly D, Gibson F.eds. Oxford: Blackwell, 2008;167-83.
2. Green DM, Kawashima T, Stovall M, et al. Fertility of male survivors of Childhood Cancer: a report from the Childhood Cancer Survivor Study. J Clin Oncol 2010;28:332-9.
3. Green DM, Kawashima T, Stovall M, et al. Fertility of female survivors of childhood cancer: a report from the childhood cancer survivor study. J Clin Oncol 2009;27:2677-85.
4. Lancashire ER, Frobisher C, Reulen RC, et al. Educational attainment among adult survivors of childhood cancer in Great Britain: a population-based cohort study. J Natl Cancer Inst 2010;102:254-70.
5. Reulen RC, Winter DL, Frobisher C, et al. British Childhood Cancer Survivor Study Steering Group. Long-term cause-specific mortality among survivors of childhood cancer. JAMA 2010;304:172-9.
6. Reulen RC, Frobisher C, Winter DL, et al. British Childhood Cancer Survivor Study Steering Group. Long-term risks of subsequent primary neoplasms among survivors of childhood cancer. JAMA 2011;305:2311-19.
7. Nottage K, McFarlane J, Krasin MJ, et al. Secondary colorectal carcinoma after childhood cancer. J Clin Oncol 2012;30:2552-8.
8. Armstrong GT, Liu Q, Yasui Y, et al. Late mortality among 5-year survivors of childhood cancer: a summary from the Childhood Cancer Survivor Study. J Clin Oncol 2009;27:2328-38.
9. Tukenova M, Guibout C, Oberlin O, et al. Long-term overall and cardiovascular mortality following childhood cancer: the role of cancer treatment. J Clin Oncol 2010;28;1308-15.
10. Department of Health (England). Improving outcomes: a strategy for Cancer First Annual Report 2011. London, 2011. http://www.dh.gov.uk/prod-consum-dh/ groups/dh-digitalassets/@dh/@en/@ps/@pub/@ppg/documents/digitalasset/dh-131787. pdf (accessed 15 Apr 2013).
11. NICE. Guidance on Cancer Services: improving outcomes in children and young people with cancer, The manual, National Institute for Health and Clinical Excellence. National Collaborating Centre for Cancer 2005. http://www.nice.org. uk (accessed 15 Apr 2013).
12. Blaauwbroek R, Tuinier W, Meyboom-de Jong B, et al. Shared care by paediatric oncologists and family doctors for long-term follow-up of adult childhood cancer survivors: a pilot study. Lancet Oncol 2008;9:232-8.
13. Gibson F, Aslett H, Levitt G, et al. Follow up after childhood cancer: a typology of young people's health care needs. Clin Effectiveness Nurs 2005;9:133-46.
14. Brada M. Is there a need to follow-up cancer patients? Eur J Cancer 1995;31A:655-7.
15. National Cancer Survivorship Initiative. http://www.ncsi.org.uk/(accessed Dec2012).
16. Richards M, Corner J, Maher J. The National Cancer Survivorship Initiative: new and emerging evidence on the ongoing needs of Cancer Survivors. Br J Cancer 2011;105(Suppl 1):S1-4.
17. NHS improvement. PDSA improvement cycle. http://www.improvement.nhs.uk/ heart/sustainability/further-resources/techniques/pdsa.html (accessed Dec 2012).
18. Gao WJ, Yuan CR. Self-management programme for cancer patients: a literature review. Int Nurs Rev 2011;58:288-95.
19. Department of Health (England). National Cancer Survivorship Initiative: Vision. London, 2010. http://www.ncsi.org.uk (accessed 15 Apr 2013).
20. Wallace WHB, Blacklay A, Eiser C, et al. Developing strategies for long-term follow-up of survivors of childhood cancer. BMJ 2001;323:271-4.
21. Taylor A, Hawkins M, Griffiths A, et al. Long term follow-up of survivors of childhood cancer in the UK. Pediatr Blood Cancer 2004;42:161-8.
22. Department of Health (England). Living with and beyond cancer: Taking actions to improve outcomes. Chapter 2, London, 2013, 22. https://www.gov.uk/ government/publications/living-with-and-beyond-cancer-taking-action-to-improve- outcomes (accessed 15 Apr 2013).
23. Greenfield DM, Absolom K, Eiser C, et al. Follow-up care for cancer survivors: the views of clinicians. Br J Can 2009;101:568-74.
24. Department of Health (England). Hospital episode statistics. London, 2012. http://www.dh.gov.uk/en/Publicationsandstatistics/Statistics/ HospitalEpisodeStatistics/index. htm). (accessed Dec 2012).
25. Earle C. Failing to plan is planning to fail: improving the quality care with survivorship care plans. J Clin Oncol 2006;24:5112-16.
26. Royal College of Nursing. Competences: an integrated career and competence framework for nurses working in the field of long-term follow up and late effects care of children and young people after cancer. London: Royal College of Nursing, 2011.
27. Freyer DR. Transition of care for young adult survivors of childhood and adolescent cancer: rational and approaches. J Clin Oncol 2010;2:4810-16.
28. Casillas J, Kahn KL, Doose M, et al. Transitioning childhood cancer survivors to adult-centred healthcare: insights from parents, adolescent, and young adult survivors. Psycho-Oncology 2010;19:982-90.
29. Riley V, Hough R, Whelan J. Transition: the cancer perspective. Br J Hosp Med 2010;71:82-6.
30. Childhood Cancer and Leukaemia Group late effects group. Therapy based follow-up: practice statement 2nd edn. Skinner R.(Editor in chief) Leicester, 2005. http://www.cclg.org.uk/dynamic-files/LTFU-full.pdf. (accessed 15 Apr 2013).
31. Wallace WH, Thompson L, Anderson RA; Guideline Development Group. Long term follow-up of survivors of childhood cancer: summary of updated SIGN guidance. BMJ 2013;346:f1190.
32. Hollen PJ, Hobbie WL. Establishing comprehensive speciality follow-up clinics for long term survivors of cancer. Providing systematic physiological and psychosocial support. Support Care Cancer 1995;3:40-4.
33. Horne B. Postal follow-up of care for childhood cancer survivors. Cancer Nurs Practice 2004;3:26-8.
34. Department of Health (England). Equity and excellence: liberating the NHS. London: Department of Health, 2010.
35. Department of Health (England). Achieving equity and excellence for children: how liberating the NHS will help us meet the needs of children and young people. London: Department of Health, 2010.
36. Taylor A, Hawkins M, Griffiths A, et al. Long-term follow-up of survivors of childhood cancer in the UK. Pediatr Blood Cancer 2004;42:161-8.
37. Howell SJ, Searle C, Goode V, et al. The UK national breast cancer screening programme for survivors of Hodgkin lymphoma detects breast cancer at an early stage. Br J Can 2009;101:582-8.
38. Brabant G, Toogood AA, Shalet SM, et al. Hypothyroidism following childhood cancer therapy-an under diagnosed complication. Int J Cancer 2012;130:1145-50.
39. NHS Improvement. National Cancer Survivorship Initiative Resources (Children and Young People). http://www.improvement.nhs.uk/cancer/CancerHome/ UsefulResources/Publications.aspx#cyp (accessed 15 Apr 2013).