Improving care at end of life in the ICU: A proposal for early discussion of goals of care

Journal of Gerontological Nursing

Volumn 39, Issue 8, 2013, Pages 52-58

  Seaman, Jennifer B ^a  

^a UNIVERSITY OF PITTSBURGH   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; DECISION MAKING; HEALTH CARE QUALITY; HUMAN; INTENSIVE CARE UNIT; LIVING WILL; ORGANIZATION; PROGNOSIS; STANDARD; TERMINAL CARE;

ADVANCE DIRECTIVES; DECISION MAKING; HUMANS; INTENSIVE CARE UNITS; ORGANIZATIONAL OBJECTIVES; PROGNOSIS; QUALITY OF HEALTH CARE; TERMINAL CARE;

EID: 84884314496     PISSN: 00989134     EISSN: None     Source Type: Journal    
DOI: 10.3928/00989134-20130530-01     Document Type: Article

References (44)

1. Agency for Healthcare Research & Quality (2006). Intensive care unit (ICU) palliative care: Percent of patients who have documentation in the medical record that an interdisciplinary family meeting was conducted on or before day five of ICU admission. Retrieved from http://www.qualitymeasures.ahrq.gov/content.aspx?id=28315&search=care+and+communication+bundle
2. Al-Khafaji, A., Angus, D.C., & Knaus, W.A. (2007). The Acute Physiology and Chronic Health Evaluation II. Journal of Critical Care, 22, 85-88. doi:10.1016/j.jcrc.2006.11.001
3. Angus, D.C., Barnato, A.E., Linde-Zwirble, W.T., Weissfeld, L.A., Watson, R.S., Rickert, T., & Rubenfeld, G.D. (2004). Use of intensive care at the end of life in the United States: An epidemiologic study. Critical Care Medicine, 32, 638-643.
4. Barnato, A.E., Albert, S.M., Angus, D.C., Lave, J.R., & Degenholtz, H.B. (2011). Disability among elderly survivors of mechanical ventilation. American Journal of Respiratory and Critical Care Medicine, 183, 1037-1042. doi:10.1164/rccm.201002-0301OC
5. Beauchamp, T.L., & Childress, J.F. (2009). Principles of biomedical ethics (6th ed.). New York: Oxford University Press.
6. Bergbom-Engberg, I., & Haljamäe, H. (1989). Assessment of patients' experience of discomforts during respirator therapy. Critical Care Medicine, 17, 1068-1072.
7. Buchanan, A.E., & Brock, D.W. (1989). Deciding for others: The ethics of surrogate decision making. New York: Cambridge University Press.
8. Callahan, D. (2000). Death and the research imperative. New England Journal of Medicine, 342, 654-656. doi:10.1056/ NEJM200003023420910
9. Callahan, D. (2005). Death: "The distinguished thing." Hastings Center Report, 36(6, Suppl.), S5-S8. doi:10.1353/hcr.2005.0090
10. Carson, S.S., Kahn, J.M., Hough, C.L., Seeley, E.J., White, D.B., Douglas, I.S.,...Rubenfeld, G.D. (2012). A multicenter mortality prediction model for patients receiving prolonged mechanical ventilation. Critical Care Medicine, 40, 1171-1176. doi:10.1097/ CCM.0b013e3182387d43
11. Center to Advance Palliative Care. (2006, December 7). Hospital palliative care programs continue rapid growth: New data show fifth consecutive annual increase [News release]. Retrieved from http://www.capc.org/news-and-events/releases/items/december-2006-release
12. Charles, C., Gafni, A., & Whelan, T. (1999). Decision-making in the physician-patient encounter: Revisiting the shared treatment decision-making model. Social Science & Medicine, 49, 651-661. doi:10.1016/S0277-9536(99)00145-8
13. Chelluri, L., Im, K.A., Belle, S.H., Schulz, R., Rotondi, A.J., Donahoe, M.P.,...Pinsky, M.R. (2004). Long-term mortality and quality of life after prolonged mechanical ventilation. Critical Care Medicine, 32, 61-69.
14. Clark, D. (2007). From margins to centre: A review of the history of palliative care in cancer. The Lancet Oncology, 8, 430-438. doi:10.1016/S1470-2045(07)70138-9
15. Connors, A.F., Dawson, N.V., Desbiens, N.A., Fulkerson, W.J., Goldman, L., Knaus, W.A.,...Ransohoff, D. (1995). A con-trolled trial to improve care for seriously ill hospitalized patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). Journal of the American Medical Association, 274, 1591-1598. doi:10.1001/jama.1995.03530200027032
16. Curtis, J.R., Nielsen, E.L., Treece, P.D., Downey, L., Dotolo, D., Shannon, S.E.,...Engelberg, R.A. (2011). Effect of a quality-improvement intervention on end-of-life care in the intensive care unit: A randomized trial. American Journal of Respiratory and Critical Care Medicine, 183, 348-355. doi:10.1164/rccm.201006-1004OC
17. Davidson, J.E., Jones, C., & Bienvenu, O.J. (2012). Family response to critical illness: Postintensive care syndrome-family. Critical Care Medicine, 40, 618-624. doi:10.1097/CCM.0b013e318236ebf9
18. Emanuel, E.J., & Emanuel, L.L. (1998). The promise of a good death. Lancet, 351(Suppl. 2), SII21-SII29. doi:10.1016/S0140-6736(98)90329-4
19. Farfel, J.M., Franca, S.A., Sitta, M.D., Filho, W.J., & Carvalho, C.R.R. (2009). Age, invasive ventilatory support and outcomes in elderly patients admitted to intensive care units. Age and Ageing, 38, 515-520. doi:10.1093/ageing/afp119
20. Goodman, D.C., Fisher, E.S., Chang, C.-H., Morden, N., Jacobson, J.O., Murray, K., & Bonner, K. (2010). Quality of end-of-life cancer care for Medicare beneficiaries: Regional and hospital-specific analyses. Retrieved from the Robert Wood Johnson Foundation website: http://www.rwjf.org/content/dam/farm/reports/reports/2010/rwjf68851
21. Happ, M.B. (2000). Interpretation of nonvocal behavior and the meaning of voicelessness in critical care. Social Science & Medicine, 50, 1247-1255. doi:10.1016/s0277-9536(99)00367-6
22. Hofmann, B. (2002). Is there a technological imperative in health care? International Journal of Technology Assessment in Health Care, 18, 675-689.
23. Hofsø, K., & Coyer, F.M. (2007). Part 1. Chemical and physical restraints in the management of mechanically ventilated patients in the ICU: Contributing factors. Intensive and Critical Care Nursing, 23, 249-255. doi:10.1016/j.iccn.2007.04.003
24. Hweidi, I.M. (2007). Jordanian patients' perception of stressors in critical care units: A questionnaire survey. International Journal of Nursing Studies, 44, 227-235.
25. Institute of Medicine. (1997). Approaching death: Improving care at the end of life. Retrieved from the National Academies Press website: http://www.nap.edu/openbook.php?record_id=5801
26. Kwak, J., & Haley, W.E. (2005). Current research findings on end-of-life decision making among racially or ethnically diverse groups. The Gerontologist, 45, 634-641.
27. Lewis, M.J. (2007). Medicine and care of the dying: A modern history. New York: Oxford University Press.
28. Lilly, C.M., De Meo, D.L., Sonna, L.A., Haley, K.J., Massaro, A.F., Wallace, R.F., & Cody, S. (2000). An intensive communication intervention for the critically ill. American Journal of Medicine, 109, 469-475.
29. McAdam, J.L., Dracup, K.A., White, D.B., Fontaine, D.K., & Puntillo, K.A. (2010). Symptom experiences of family members of intensive care unit patients at high risk for dying. Critical Care Medicine, 38, 1078-1085. doi:10.1097/CCM.0b013e3181cf6d94
30. Nelson, J.E., Walker, A.S., Luhrs, C.A., Cortez, T.B., & Pronovost, P.J. (2009). Family meetings made simpler: A toolkit for the intensive care unit. Journal of Critical Care, 24, 626.e627-626.e614. doi:10.1016/j. jcrc.2009.02.007
31. Nolan, M.T., Hughes, M., Narendra, D.P., Sood, J.R., Terry, P.B., Astrow, A.B.,...Sulmasy, D.P. (2005). When patients lack capacity: The roles that patients with terminal diagnoses would choose for their physicians and loved ones in making medical decisions. Journal of Pain and Symptom Management, 30, 342-353. doi:10.1016/j.jpainsymman.2005.04.010
32. Olden, A.M., Holloway, R., Ladwig, S., Quill, T.E., & van Wijngaarden, E. (2011). Palliative care needs and symptom patterns of hospitalized elders referred for consultation. Journal of Pain and Symptom Management, 42, 410-418. doi:10.1016/j.jpainsymman.2010.12.005 Patient Self Determination Act of 1990, H.R. 4449, 101st Cong. (1990).
33. Patient Self Determination Act of 1990, H.R. 4449, 101st Cong. (1990)
34. Penrod, J.D., Pronovost, P.J., Livote, E.E., Puntillo, K.A., Walker, A.S., Wallenstein, S.P.,... Nelson, J.E. (2012). Meeting standards of high-quality intensive care unit palliative care: Clinical performance and predictors. Critical Care Medicine, 40, 1105-1112. doi:10.1097/CCM.0b013e3182374a50
35. Puntillo, K.A., Arai, S.R., Cohen, N.H., Gropper, M.A., Neuhaus, J., Paul, S.M., & Miaskowski, C. (2010). Symptoms experienced by intensive care unit patients at high risk of dying. Critical Care Medicine, 38, 2155-2160. doi:10.1097/CCM.0b013e3181f267ee
36. Puntillo, K.A., Morris, A.B., Thompson, C.L., Stanik-Hutt, J.R., White, C.A., & Wild, L.R. (2004). Pain behaviors observed during six common procedures: Results from Thunder Project II. Critical Care Medicine, 32, 421-427.
37. Rabow, M.W., Hauser, J.M., & Adams, J. (2004). Supporting family caregivers at the end of life: "They don't know what they don't know." Journal of the American Medical Association, 291, 483-491. doi:10.1001/jama.291.4.483
38. Rotondi, A.J., Chelluri, L., Sirio, C., Mendelsohn, A., Schulz, R., Belle, S.,...Pinsky, M.R. (2002). Patients' recollections of stressful experiences while receiving prolonged mechanical ventilation in an intensive care unit. Critical Care Medicine, 30, 746-752.
39. Samuelson, K.A.M. (2011). Unpleasant and pleasant memories of intensive care in adult mechanically ventilated patients-Findings from 250 interviews. Intensive and Critical Care Nursing, 27, 76-84. doi:10.1016/j. iccn.2011.01.003
40. Scheunemann, L.P., Arnold, R.M., & White, D.B. (2012). The facilitated values history: Helping surrogates make authentic decisions for incapacitated patients with advanced illness. American Journal of Respiratory and Critical Care Medicine, 186, 480-486. doi:10.1164/rccm.201204-0710CP
41. Sulmasy, D.P., Hughes, M.T., Thompson, R.E., Astrow, A.B., Terry, P.B., & Nolan, M.T. (2007). How would terminally ill patients have others make decisions for them in the event of decisional incapacity? A longitudinal study. Journal of the American Geriatrics Society, 55, 1981-1988. doi:10.1111/j.1532-5415.2007.01473.x
42. Teno, J.M., Gruneir, A., Schwartz, Z., Nanda, A., & Wetle, T. (2007). Association between advance directives and quality of end-oflife care: A national study. Journal of the American Geriatrics Society, 55, 189-194. doi:10.1111/j.1532-5415.2007.01045.x
43. White, D.B. (2011). Rethinking interventions to improve surrogate decision making in intensive care units. American Journal of Critical Care, 20, 252-257. doi:10.4037/ajcc2011106
44. Wunsch, H.M.D.M., Linde-Zwirble, W.T., Angus, D.C., Hartman, M.E., Milbrandt, E.B., & Kahn, J.M. (2010). The epidemiology of mechanical ventilation use in the United States. Critical Care Medicine, 38, 1947-1953. doi:10.1097/CCM.0b013e3181ef4460