Reformulating psychological difficulties in people with Parkinson's disease: The potential of a social relational approach to disablism

Parkinson's Disease

Volumn , Issue , 2013, Pages

  Simpson, Jane ^a   McMillan, Helen ^b   Reeve, Donna ^c  

^a LANCASTER UNIVERSITY   (United Kingdom)

^b PENNINE CARE NHS FOUNDATION TRUST   (United Kingdom)

^c LANCASTER UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ALZHEIMER DISEASE; ATTITUDE; DEPRESSION; DISABILITY; EMOTIONAL STRESS; HUMAN; INTERPERSONAL COMMUNICATION; PARKINSON DISEASE; PERCEPTION; PRIORITY JOURNAL; PSYCHOLOGICAL WELL BEING; REVIEW; SELF ESTEEM; SHAME; SOCIAL BEHAVIOR; SOCIAL INTERACTION; SOCIAL ISOLATION; STEREOTYPY; STIGMA;

EID: 84884254222     PISSN: None     EISSN: 20420080     Source Type: Journal    
DOI: 10.1155/2013/608562     Document Type: Review

References (95)

1. Reijnders J. S. A. M., Ehrt U., Weber W. E. J., Aarsland D., Leentjens A. F. G., A systematic review of prevalence studies of depression in Parkinson's disease. Movement Disorders 2008 23 2 183 189 2-s2.0-39749146383 10.1002/mds.21803
2. Walsh K., Bennett G., Parkinson's disease and anxiety. Postgraduate Medical Journal 2001 77 904 89 93 2-s2.0-0035141144 10.1136/pmj.77.904.89
3. Pluck G. C., Brown R. G., Apathy in Parkinson's disease. Journal of Neurology, Neurosurgery & Psychiatry 2002 73 6 636 642 2-s2.0-0036904301 10.1136/jnnp.73.6.636
4. Hanagasi H. A., Emre M., Treatment of behavioural symptoms and dementia in Parkinson's disease. Fundamental and Clinical Pharmacology 2005 19 2 133 146 2-s2.0-17144422091 10.1111/j.1472-8206.2005.00317.x
5. Weintraub D., Koester J., Potenza M. N., Siderowf A. D., Stacy M., Voon V., Whetteckey J., Wunderlich G. R., Lang A. E., Impulse control disorders in Parkinson disease: a cross-sectional study of 3090 patients. Archives of Neurology 2010 67 5 589 595 2-s2.0-77952157407 10.1001/archneurol.2010.65
6. Schneider F., Althaus A., Backes V., Dodel R., Psychiatric symptoms in Parkinson's disease. European Archives of Psychiatry and Clinical Neuroscience 2008 258 5 55 59 2-s2.0-55549137746 10.1007/s00406-008-5012-4
7. Witjas T., Kaphan E., Azulay J. P., Blin O., Ceccaldi M., Pouget J., Poncet M., Chérif A. A., Nonmotor fluctuations in Parkinson's disease: frequent and disabling. Neurology 2002 59 3 408 413 2-s2.0-0037072288
8. Aarsland D., Larsen J. P., Lim N. G., Janvin C., Karlsen K., Tandberg E., Cummings J. L., Range of neuropsychiatric disturbances in patients with Parkinson's disease. Journal of Neurology, Neurosurgery & Psychiatry 1999 67 4 492 496 2-s2.0-0032837272
9. Schrag A., Jahanshahi M., Quinn N. P., How does Parkinson's disease affect quality of life? A comparison with quality of life in the general population. Movement Disorders 2001 15 1112 1118
10. Schrag A., Jahanshahi M., Quinn N., What contributes to quality of life in patients with Parkinson's disease? Journal of Neurology, Neurosurgery & Psychiatry 2000 69 3 308 312 2-s2.0-0033875826 10.1136/jnnp.69.3.308
11. Brown R., Jahanshahi M., Depression in Parkinson's disease: a psychosocial viewpoint. Advances in Neurology 1995 65 61 84 2-s2.0-0029207335
12. Chaudhuri K. R., Schapira A. H., Non-motor symptoms of Parkinson's disease: dopaminergic pathophysiology and treatment. The Lancet Neurology 2009 8 5 464 474 2-s2.0-64349083816 10.1016/S1474-4422(09)70068-7
13. Leentjens A. F. G., Scholtissen B., Vreeling F. W., Verhey F. R. J., The serotonergic hypothesis for depression in Parkinson's disease: an experimental approach. Neuropsychopharmacology 2006 31 5 1009 1015 2-s2.0-33646158468 10.1038/sj.npp.1300914
14. Weintraub D., Burn D. J., Parkinson's disease: the quintessential neuropsychiatric disorder. Movement Disorders 2011 26 6 1022 1031 2-s2.0-79957590886 10.1002/mds.23664
15. Delaney M., Simpson J., Leroi I., Perceptions of cause and control of impulse control behaviours in people with Parkinson's disease. British Journal of Health Psychology 2012 17 3 522 535 10.1111/j.2044-8287.2011.02052.x
16. Todd D., Simpson J., Murray C., An interpretative phenomenological analysis of delusions in people with Parkinson's disease. Disability and Rehabilitation 2010 32 15 1291 1299 2-s2.0-77952280318 10.3109/09638280903514705
17. Eccles F. J. R., Murray C., Simpson J., Perceptions of cause and control in people with Parkinson's disease. Disability and Rehabilitation 2011 33 15-16 1409 1420 2-s2.0-79959449665 10.3109/09638288.2010.533241
18. Frazier L. D., Coping with disease-related stressors in Parkinson's disease. The Gerontologist 2000 40 1 53 63 2-s2.0-0034065528
19. de Ridder D., Schreurs K., Bensing J., The relative benefits of being optimistic: optimism as a coping resource in multiple sclerosis and Parkinson's disease. British Journal of Health Psychology 2000 5 2 141 155 2-s2.0-0034055833
20. Goodley D., Watson N., Roulstone A., Thomas C., The psychology of disability. Routledge Handbook of Disability Studies 2012 London, UK Routledge 310 324
21. Reeve D., Goodley D., Lawthom R., Towards a psychology of disability: the emotional effects of living in a disabling society. Disability and Psychology: Critical Introductions and Reflections 2006 Basingstoke, UK Macmillan 94 107
22. Simpson J., Lekwuwa G., Crawford T., Illness beliefs and psychological outcome in people with Parkinson's disease. Chronic Illness 2013 9 2 165 176 10.1177/1742395313478219
23. Evans D., Norman P., Illness representations, coping and psychological adjustment to Parkinson's disease. Psychology & Health 2009 24 10 1181 1196 2-s2.0-77952782798
24. Thomas C., Female Forms: Experiencing and Understanding Disability 1999 Buckingham, UK Open University Press
25. Oliver M., Understanding Disability: From Theory to Practice 2009 Basingstoke, UK Macmillan
26. Rojo A., Aguilar M., Garolera M. T., Cubo E., Navas I., Quintana S., Depression in Parkinson's disease: clinical correlates and outcome. Parkinsonism and Related Disorders 2003 10 1 23 28 2-s2.0-0141453806 10.1016/S1353-8020(03) 00067-1
27. Oliver M., Understanding Disability: From Theory to Practice 1996 Basingstoke, UK Macmillan
28. Barnes C., Watson N., Roulstone A., Thomas C., Understanding the social model of disability: past, present and future. Routledge Handbook of Disability Studies 2012 London, UK Routledge 12 29
29. Thomas C., Sociologies of Disability and Illness: Contested Ideas in Disability Studies and Medical Sociology 2007 Basingstoke, UK Macmillan
30. Thomas C., How is disability understood? An examination of sociological approaches. Disability and Society 2004 19 6 569 583 2-s2.0-7544239146 10.1080/0968759042000252506
31. Reeve D., Barnes C., Mercer G., Psycho-emotional dimensions of disability and the social model. Implementing the Social Model of Disability: Theory and Research 2004 Leeds, UK The Disability Press 83 100
32. Reeve D., Watson N., Roulstone A., Thomas C., Psycho-emotional disablism: the missing link? Routledge Handbook of Disability Studies 2012 London, UK Routledge 78 93
33. Reeve D., Anderson J., Sapey B., Spandler H., Psycho-emotional disablism in the lives of people experiencing mental distress. Distress or Disability? Proceedings of a Symposium Held at Lancaster University 2011 Lancaster, UK Lancaster University: Centre for Disability Research (CeDR) 24 29
34. Goodley D., 'Learning difficulties', the social model of disability and impairment: challenging epistemologies. Disability and Society 2001 16 2 207 231 2-s2.0-0035609076 10.1080/09687590120035816
35. Gilliard J., Means R., Beattie A., Daker-White G., Dementia care in England and the social model of disability. Dementia 2005 4 4 571 586 10.1177/1471301205058312
36. Kitwood T., Dementia Reconsidered 1997 Berkshire, UK Open University Press
37. Beresford P., Thinking about "mental health": towards a social model. Journal of Mental Health 2002 11 6 581 584 2-s2.0-0036945821 10.1080/09638230020023921
38. Mulvany J., Disability, impairment or illness? The relevance of the social model of disability to the study of mental disorder. Sociology of Health & Illness 2000 22 5 582 601 2-s2.0-0034257442
39. Ferrie J., The psycho-emotional impact of impairment effects: where chronic illness meets disability studies. Paper Presented at a Symposium Held at Lancaster University November 2011 Lancaster, UK Lancaster University: Centre for Disability Research (CeDR)
40. Oldman C., Later life and the social model of disability: a comfortable partnership? Ageing and Society 2002 22 6 791 806 2-s2.0-0036867096 10.1017/S0144686X02008887
41. Quackenbush N., Speaking of-and as-stigma: performativity and Parkinson's in the rhetoric of Michael J. Fox. Disability Studies Quarterly 2011 31 3 12
42. Clarke C. E., Zobkiw R. M., Gullaksen E., Quality of life and care in Parkinson's disease. The British Journal of Clinical Practice 1995 49 6 288 293 2-s2.0-0028832847
43. Findley L. J., The economic impact of Parkinson's disease. Parkinsonism and Related Disorders 2007 13 S8 S12 2-s2.0-34548819028 10.1016/j.parkreldis. 2007.06.003
44. Martikainen K. K., Luukkaala T. H., Marttila R. J., Parkinson's disease and working capacity. Movement Disorders 2006 21 12 2187 2191 2-s2.0-33846455413 10.1002/mds.21171
45. Rubenstein L. M., Chrischilles E. A., Voelker M. D., The impact of Parkinson's disease on health status, health expenditures, and productivity: estimates from the national medical expenditure survey. PharmacoEconomics 1997 12 4 486 498 2-s2.0-0030867180
46. Banks P., Lawrence M., The disability discrimination act, a necessary, but not sufficient safeguard for people with progressive conditions in the workplace? The experiences of younger people with Parkinson's disease. Disability and Rehabilitation 2006 28 1 13 24 2-s2.0-30844435257 10.1080/09638280500165120
47. Schrag A., Banks P., Time of loss of employment in Parkinson's disease. Movement Disorders 2006 21 11 1839 1843 2-s2.0-33845230173 10.1002/mds.21030
48. Calne S. M., Lidstone S. C., Kumar A., Psychosocial issues in young-onset Parkinson's disease: current research and challenges. Parkinsonism & Related Disorders 2008 14 2 143 150 2-s2.0-44249122789 10.1016/j.parkreldis. 2007.07.012
49. Zesiewicz T. A., Patel-Larson A., Hauser R. A., Sullivan K. L., Social security disability insurance (SSDI) in Parkinson's disease. Disability and Rehabilitation 2007 29 24 1934 1936 2-s2.0-36448986402 10.1080/09638280701257247
50. Waddell G., Burton A. K., Is Work Good for Your Health and Well-Being? 2006 Norwich, UK The Stationery Office
51. Benharoch J., Wiseman T., Participation in occupations: some experiences of people with Parkinson's disease. British Journal of Occupational Therapy 2004 67 9 380 387 2-s2.0-5044245995
52. Schrag A., Hovris A., Morley D., Quinn N., Jahanshahi M., Young- versus older-onset Parkinson's disease: impact of disease and psychosocial consequences. Movement Disorders 2003 18 11 1250 1256 2-s2.0-1342347420 10.1002/mds.10527
53. Goffman E., Stigma: Notes on the Management of Spoiled Identity 1963 New York, NY, USA Simon & Schuster
54. Link B. G., Phelan J. C., Conceptualizing stigma. Annual Review of Sociology 2001 27 363 385 2-s2.0-0035629556
55. Peto V., Jenkinson C., Fitzpatrick R., Greenhall R., The development and validation of a short measure of functioning and well being for individuals with Parkinson's disease. Quality of Life Research 1995 4 3 241 248 2-s2.0-0029005131 10.1007/BF02260863
56. Chapuis S., Ouchchane L., Metz O., Gerbaud L., Durif F., Impact of the motor complications of Parkinson's disease on the quality of life. Movement Disorders 2005 20 2 224 230 2-s2.0-14944364987 10.1002/mds.20279
57. Dubayova T., Nagyova I., Havlikova E., Rosenberger J., Gdovinova Z., Middel B., van Dijk J. P., Groothoff J. W., Neuroticism and extraversion in association with quality of life in patients with Parkinson's disease. Quality of Life Research 2009 18 1 33 42 2-s2.0-59449094835 10.1007/s11136-008-9410-x
58. Klepac N., Pikija S., Kraljić T., Relja M., Trkulja V., Juren S., Pavliček I., Babić T., Association of rural life setting and poorer quality of life in Parkinson's disease patients: a cross-sectional study in Croatia. European Journal of Neurology 2007 14 2 194 198 2-s2.0-33846403694 10.1111/j.1468-1331.2006.01604.x
59. Schrag A., Jahanshahi M., Quinn N. P., What contributes to depression in Parkinson's disease? Psychological Medicine 2001 31 1 65 73 2-s2.0-0035170129 10.1017/S0033291799003141
60. Burgener S. C., Berger B., Measuring perceived stigma in persons with progressive neurological disease: Alzheimer's dementia and Parkinson's disease. Dementia 2008 7 1 31 53 2-s2.0-38549181035 10.1177/1471301207085366
61. Parkinson's UK, Press release: people with Parkinson's subject to "intolerable" discrimination and prejudice. 2013, http://forum. parkinsons.org.uk/about-us/media-centre/press-release-paw-2013.aspx
62. Bramley N., Eatough V., The experience of living with Parkinson's disease: an interpretative phenomenological analysis case study. Psychology and Health 2005 20 2 223 235 2-s2.0-16644399290 10.1080/08870440412331296053
63. Caap-Ahlgren M., Lannerheim L., Dehlin O., Older Swedish women's experiences of living with symptoms related to Parkinson's disease. Journal of Advanced Nursing 2002 39 1 87 95 2-s2.0-0036636164 10.1046/j.1365-2648.2002. 02245.x
64. Oliver M., The Politics of Disablement 1992 Basingstoke, UK Macmillan
65. European Parkinson's Disease Association (EPDA), Perceptions of Parkinson's disease. Survey executive summary. 2009, http://www.oursocialmedia. com/wp-content/uploads/parkinsons-survey-executive-summary.pdf
66. Moore S., Knowles S., Beliefs and knowledge about Parkinson's disease. E-Journal of Applied Psychology 2006 2 1 15 21 10.7790/ejap.v2i1.32
67. Jahanshahi M., Playford D., The psychosocial impact of Parkinson's disease and its clinical management. Neurological Rehabilitation of Parkinson's Diseae 2003 London, UK Martin Dunitz 25 47
68. Joachim G., Acorn S., Stigma of visible and invisible chronic conditions. Journal of Advanced Nursing 2000 32 1 243 248 2-s2.0-0034222106
69. Rintamaki L. S., Witt W. P., Weaver F. M., Malis R. S., Breslow D., Simuni T., The experience of stigma among people living with Parkinson's disease. Movement Disorders 2006 21 135 136
70. Hemmesch A. R., The stigmatizing effects of facial masking and abnormal bodily movement on older adult's first impressions of individuals with Parkinson's disease [Ph.D. thesis] 2011 Waltham, Mass, USA Brandeis University
71. Hyman M. D., Sociopsychological obstacles to L-Dopa therapy that may limit effectiveness in Parkinsonism. Journal of the American Geriatrics Society 1972 20 5 200 208 2-s2.0-0015333996
72. Singer E., Premature social aging: the social psychological consequences of a chronic illness. Social Science and Medicine 1974 8 3 143 151 2-s2.0-0016153141
73. Cuddy A. J. C., Norton M. I., Fiske S. T., This old stereotype: the pervasiveness and persistence of the elderly stereotype. Journal of Social Issues 2005 61 2 267 285 2-s2.0-21144445256 10.1111/j.1540-4560.2005.00405.x
74. Tickle-Degnen L., Lyons K. D., Practitioners' impressions of patients with Parkinson's disease: the social ecology of the expressive mask. Social Science and Medicine 2004 58 3 603 614 2-s2.0-0344926506 10.1016/S0277-9536(03) 00213-2
75. Jaywant A., Pell M. D., Listener impressions of speakers with Parkinson's disease. Journal of the International Neuropsychological Society 2010 16 1 49 57 2-s2.0-77149133403 10.1017/S1355617709990919
76. Hemmesch A. R., Tickle-Degnen L., Zebrowitz L. A., The influence of facial masking and sex on older adults' impressions of individuals with Parkinson's disease. Psychology and Aging 2009 24 3 542 549 2-s2.0-70349396016 10.1037/a0016105
77. Lyons K. D., Tickle-Degnen L., Henry A., Cohn E., Impressions of personality in Parkinson's disease: can rehabilitation practitioners see beyond the symptoms? Rehabilitation Psychology 2004 49 4 328 333 2-s2.0-9244220600 10.1037/0090-5550.49.4.328
78. Tickle-Degnen L., Zebrowitz L. A., Ma H.-I., Culture, gender and health care stigma: practitioners' response to facial masking experienced by people with Parkinson's disease. Social Science and Medicine 2011 73 1 95 102 2-s2.0-79959594728 10.1016/j.socscimed.2011.05.008
79. McKinlay A., Grace R. C., Dalrymple-Alford J. C., Anderson T. J., Fink J., Roger D., Neuropsychiatric problems in Parkinson's disease: comparisons between self and caregiver report. Aging and Mental Health 2008 12 5 647 653 2-s2.0-53949095442 10.1080/13607860802343225
80. Paterson K., Watson N., Roulstone A., Thomas C., It's about time! Understanding the experiences of speech impairment. Routledge Handbook of Disability Studies 2012 London, UK Routledge 165 177
81. Nijhof G., Parkinson's disease and a problem of shame in public appearance. Sociology of Health & Illness 1995 17 193 205
82. Caspermeyer J. J., Sylvester E. J., Drazkowski J. F., Watson G. L., Sirven J. I., Evaluation of stigmatizing language and medical errors in neurology coverage by US newspapers. Mayo Clinic Proceedings 2006 81 3 300 306 2-s2.0-33644687675 10.4065/81.3.300
83. Earnshaw V. A., Quinn D. M., The impact of stigma in healthcare on people living with chronic illnesses. Journal of Health Psychology 2012 17 2 157 168 2-s2.0-84857834835 10.1177/1359105311414952
84. van Brakel W. H., Measuring health-related stigma-a literature review. Psychology, Health & Medicine 2006 11 3 307 334 2-s2.0-33750985237 10.1080/13548500600595160
85. Menza M., Dobkin R. D., Marin H., Treatment of depression in Parkinson's disease. Current Psychiatry Reports 2006 8 3 234 240 2-s2.0-33745232788 10.1007/s11920-006-0029-8
86. Posen J., Moore O., Tassa D. S., Ginzburg K., Drory M., Giladi N., Young women with PD: a group work experience. Social Work in Health Care 2000 32 1 77 91 2-s2.0-0034466804 10.1300/J010v32n01-06
87. Charmaz K., Loss of self: a fundamental form of suffering in the chronically ill. Sociology of Health & Illness 1983 5 2 168 195 2-s2.0-0020790850
88. Haahr A., Kirkevold M., Hall E. O. C., Østergaard K., Living with advanced Parkinson's disease: a constant struggle with unpredictability. Journal of Advanced Nursing 2011 67 2 408 417 2-s2.0-78651467529 10.1111/j.1365-2648. 2010.05459.x
89. Wressle E., Engstrand C., Granérus A.-K., Living with Parkinson's disease: elderly patients' and relatives' perspective on daily living. Australian Occupational Therapy Journal 2007 54 2 131 139 2-s2.0-34250205635 10.1111/j.1440-1630.2006.00610.x
90. Charlton G. S., Barrow C. J., Coping and self-help group membership in Parkinson's disease: an exploratory qualitative study. Health and Social Care in the Community 2002 10 6 472 478 2-s2.0-0036832154 10.1046/j.1365-2524.2002. 00385.x
91. Fitzpatrick L., Simpson J., Smith A., A qualitative analysis of mindfulness-based cognitive therapy (MBCT) in Parkinson's disease. Psychology and Psychotherapy 2010 83 2 179 192 2-s2.0-77951871503 10.1348/147608309X471514
92. Holloway M., Burke P., Parker J., Living with chronic illness: the example of Parkinson's disease. Social Work and Disadvantage: Addressing the Roots of Stigma through Association 2007 London, UK Jessica Kingsley 130 145
93. Hurt C. S., Weinman J., Lee R., Brown R. G., The relationship of depression and disease stage to patient perceptions of Parkinson's disease. Journal of Health Psychology 2012 17 7 1076 1088 10.1177/1359105311428537
94. Oehlberg K., Barg F. K., Brown G. K., Taraborelli D., Stern M. B., Weintraub D., Attitudes regarding the etiology and treatment of depression in Parkinson's disease: a qualitative study. Journal of Geriatric Psychiatry and Neurology 2008 21 2 123 132 2-s2.0-43549087615 10.1177/0891988708316862
95. Martinez-Martin P., Rodriguez-Blazquez C., Kurtis M. M., Chaudhuri K. R., The impact of non-motor symptoms on health-related quality of life of patients with Parkinson's disease. Movement Disorders 2011 26 3 399 406 2-s2.0-79953276342 10.1002/mds.23462