Dementia care in England and the social model of disability:Lessons and issues

Dementia

Volumn 4, Issue 4, 2005, Pages 571-586

  Gilliard, Jane ^a   Means, Robin ^b   Beattie, Angela ^c   Daker White, Gavin ^c  

^a BLACKBERRY HILL HOSPITAL   (United Kingdom)

^b UNIVERSITY OF THE WEST OF ENGLAND   (United Kingdom)

^c UNIVERSITY OF BRISTOL   (United Kingdom)

Author keywords

ageism; Alzheimer's disease; impairment; medical model; normalization; younger people with dementia

Indexed keywords

EID: 84993811193     PISSN: 14713012     EISSN: None     Source Type: Journal    
DOI: 10.1177/1471301205058312     Document Type: Article

References (50)

1. Allan, K. (2001). Communication and consultation – exploringways for staff to involve people with dementia in developing services. Bristol: Joseph Rowntree Foundation/The Policy Press.
2. Audit Commission (2000). Forget-me-not. London: Audit Commission.
3. Barnes, C. (1996). Theories of disability and the origins of theoppression of disabled people in western society. In L. Barton (Ed.), Disability and society: Emerging issues and insights(pp.43–60). London: Longman.
4. Barnes, C. (2003). What a difference a decade makes: Reflections on doing‘emancipatory’ disability research. Disability and Society, 18(1), 3–18.
5. Begum, N., Hill, M., & Stevens, A. (Eds.). (1994). Reflections: Views of black disabled peoplein their lives and community care. London: Central Council for Education andTraining in Social Work.
6. Campbell, J., & Oliver, M. (1996). Disability politics: Understanding our past, changingour future. London: Routledge.
7. Chappell, A. (1992). Towards a sociological critique of the normalisation principle. Disability, Handicap and Society, 7(1), 35–52.
8. Daker-White, G., Beattie, A., Gilliard, J., & Means, R. (2002a). Minority ethnic groups in dementia care: A review of service needs, serviceprovision and models of good practice. Ageing and Mental Health 6(2), 101–108.
9. Daker-White, G., Beattie, A., Means, R., & Gilliard, J. (2002b). Serving the needs of marginalized groups in dementiacare: Younger people and minority ethnic groups. Bristol: University of the West of England andDementia Voice. [www.dementia-voice.org.uk]
10. Deal, M. (2003). Disabled people's attitudes towardsimpairment groups: A hierarchy of impairments' disability andsociety, 18(7), 897–910.
11. DoH (Department of Health) (1999). National Service Framework for mental health modernstandards and service models. London: DoH
12. DoH (Department of Health) (2001). National Service Framework for older people. London: DoH.
13. Downs, M. (1997). The emergence of the person in dementia research. Ageing and Society, 17, 597–607.
14. Downs, M. (2000). Dementia in a socio-cultural context: An idea whose time has come. Ageing and Society, 20(3), 369–375.
15. Emerson, E. (1992). What is Normalisation? In H. Brown and H. Smith (Eds.), Normalisation: A reader for the nineties(pp.1–18). London: Tavistock/Routledge.
16. Fox, P., Kelly, S., & Tobin, S. (1999). Defining dementia: Social and historical background of Alzheimer disease. Genetic Testing, 3(1), 13–19.
17. Goldsmith, M. (1996). Hearing the voice of people with dementia. London: Jessica Kingsley.
18. Goodley, D. (1997). Locating self advocacy in models of disability: Understanding disability inthe support of self advocates with learning difficulties. Disability and Society, 12(3), 362–380.
19. Goodley, D. (2001). 'Learning difficulties’, the social model of disabilityand impairment: Challenging epistemologies. Disabilities and Society, 16, 207–231.
20. Gwilliam, C., & Gilliard, J. (1996). Dementia and the social model of disability. Journal of Dementia Care, 4(1), 14–15.
21. Heywood, F., Oldman, C., & Means, R. (2002). Housing and home in later life. Buckingham: Open University Press.
22. Hopkin, R. (2001, April). Gate keeping: Accessing ‘vulnerable’ participants forresearch projects. Paper presented at the Royal College of Nursing InternationalResearch Conference, Glasgow, 4th April 2001.
23. Hughes, B., & Paterson, K. (1997). The social model of disability and the disappearing body: Towards asociology of impairment. Disability and Society, 12, 325–340.
24. Keady, J., & Gilliard, J. (1999). The early experience of dementia: Implications forpartnership and practice. In T. Adams & C. Clarke (Eds.), Partnership in dementia care (pp.227–256). London, Bailliëre Tindall.
25. Keady, J., & Gilliard, J. (2002). Testing times: The experience ofneuro-psychological assessment for people with suspected Alzheimer'sdisease. In P.B. Harris (Ed.), The person with Alzheimer's disease: Pathways tounderstanding the experience(pp. 3–28). Baltimore, MD: Johns Hopkins University Press.
26. Kitwood, T. (1997). Dementia reconsidered: The person comes first. Buckingham: Open University Press.
27. Kitwood, T., & Benson, S. (1995). The new culture of dementia care. London: Hawker Publications.
28. Marks, D. (1999). Disability: Controversial debates and psycho-socialPerspectives. London: Routledge.
29. Marshall, M. (1994, September). Emerging trends in dementia care: Some thoughts on the next ten years. Concluding presentation at ADI (Alzheimer's DiseaseInternational) conference, Edinburgh, UK, 23rd September 1994.
30. Marshall, M. (2000). The potential of technology for people with dementia and their carers. Paper presented at the ASTRID conference (A Social andTechnological Response to meeting the needs of Individuals with Dementia andtheir carers), 15 June 2000, Northampton, UK.
31. Mason, A., & Wilkinson, H. (2001). Whose hands are on the wheel? Journal of Dementia Care, 9(6), 33–36.
32. Means, R., Beattie, A., Daker-White, G., & Gilliard, J. (2002). Meeting the needs of marginalised groups. Journal of Dementia Care, 11(2), 37–38.
33. Morris, J. (1991). Pride against Prejudice. London: Women's Press.
34. Morris, J. (1996). Feminism and Disability. London: Women's Press.
35. Oldman, C. (2002). Later life and the social model of disability: A comfortable partnership? Ageing and Society, 22(6), 791–806.
36. Oldman, C., & Beresford, B. (2000). Making homes fit for children: Working together tomeet the housing needs of disabled children. Bristol: The Policy Press.
37. Oliver, M. (1990). The politics of disablement. Basingstoke: Macmillan.
38. Oliver, M. (1996). Understanding disability: From theory topractice. Basingstoke: Macmillan.
39. Palfrey, C., & Harding, N. (1997). The social construction of dementia. London: Jessica Kingsley.
40. Pratt, R., & Wilkinson, H. (2001). 'Tell me the truth': The effectof being told the diagnosis of dementia from the perspective of the person withdementia. Stirling: Centre for Social Research in Dementia.
41. Priestley, M., & Rabiee, P. (2002). Same difference? Older people's organisations and disability issues. Disability and Society, 17(6), 597–612.
42. Shakespeare, T. (1994). Cultural representation of disabled people: Dustbin or disavowal? Disability and Society, 9(3), 283–301.
43. Shakespeare, T., Gillespie-Sells, K., & Davis, D. (1996). The sexual politics of disability: Untoldstories. London: Cassell.
44. Thomas, C. (1999). Female forms: Experiencing and understandingdisability. Buckingham: Open University Press.
45. Tregaskis, C. (2002). Social model theory: The story so far. Disability and Society, 17(4), 457–470.
46. Union of the Physically Impaired Against Segregation (UPIAS). (1976). Fundamental principles of disability. London: UPIAS.
47. Wilkinson, H. (2002). The perspectives of people with dementia: Researchmethods and motivations. London: Jessica Kingsley.
48. Wills, G., Feldman, R., & Robinson, K. (2000). Dementia and past trauma – caring forJewish refugees from the Holocaust in a long-term residential setting. London: Otto Schiff Housing Association.
49. Wolfensberger, W., & Thomas, S. (1983). Program Analysis of Service Systems'Implementation of Normalisation Goals (PASSING): A method of evaluating thequality of human services according to the principles of normalisation,normalisation criteria and ratings manual. Toronto: National Institute on Mental Retardation.
50. Woods, R.C. (2001). Discovering the person with Alzheimer's disease: Cognitive,emotional and behavioural aspects. Ageing and Mental Health, 5 (Supplement1), S16-S16.