메뉴 건너뛰기




Volumn 56, Issue 6, 2013, Pages 443-454

Evolution of life expectancy of patients with Duchenne muscular dystrophy at AFM Yolaine de Kepper centre between 1981 and 2011

Author keywords

Duchenne muscular dystrophy; Survival; Tracheotomy; Ventilatory assistance

Indexed keywords

ADULT; ARTICLE; ASSISTED VENTILATION; CARDIOVASCULAR MORTALITY; CAUSE OF DEATH; DUCHENNE MUSCULAR DYSTROPHY; EVOLUTION; FRANCE; HUMAN; LIFE EXPECTANCY; LUNG COMPLICATION; MAJOR CLINICAL STUDY; RETROSPECTIVE STUDY; SEPTIC SHOCK; SURVIVAL; TRACHEOTOMY;

EID: 84884209816     PISSN: 18770657     EISSN: 18770665     Source Type: Journal    
DOI: 10.1016/j.rehab.2013.06.002     Document Type: Article
Times cited : (152)

References (29)
  • 1
    • 0027380080 scopus 로고
    • A comparison of long-term ventilatory support alternatives from the perspective of the patient and care giver
    • Bach J.R. A comparison of long-term ventilatory support alternatives from the perspective of the patient and care giver. Chest 1993, 104:1702-1706.
    • (1993) Chest , vol.104 , pp. 1702-1706
    • Bach, J.R.1
  • 2
    • 0025835096 scopus 로고
    • Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support
    • Bach J.R., Campagnolo D.I., Hoeman S. Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support. Am J Phys Med Rehabil 1991, 70:129-135.
    • (1991) Am J Phys Med Rehabil , vol.70 , pp. 129-135
    • Bach, J.R.1    Campagnolo, D.I.2    Hoeman, S.3
  • 3
    • 77951805051 scopus 로고    scopus 로고
    • Extubation of patients with neuromuscular weakness: a new management paradigm
    • Bach J.R., Gonçalves M.R., Hamdani I., Winck J.C. Extubation of patients with neuromuscular weakness: a new management paradigm. Chest 2010, 137:1033-1039.
    • (2010) Chest , vol.137 , pp. 1033-1039
    • Bach, J.R.1    Gonçalves, M.R.2    Hamdani, I.3    Winck, J.C.4
  • 4
    • 84874291816 scopus 로고    scopus 로고
    • Changing trends in the management of end-stage neuromuscular respiratory luscle failure: recommendations of an international consensus
    • Bach J.R., Gonçalves M.R., Hon A., Ishikawa Y., De Vito E.L., Prado F., et al. Changing trends in the management of end-stage neuromuscular respiratory luscle failure: recommendations of an international consensus. Am J Phys Med Rehabil 2013, 92:267-277.
    • (2013) Am J Phys Med Rehabil , vol.92 , pp. 267-277
    • Bach, J.R.1    Gonçalves, M.R.2    Hon, A.3    Ishikawa, Y.4    De Vito, E.L.5    Prado, F.6
  • 6
    • 33646034598 scopus 로고    scopus 로고
    • Trends in survival from muscular dystrophy in England and Wales and impact on respiratory services
    • Calvert L.D., McKeever T.M., Kinnear W.J.M., Britton J.R. Trends in survival from muscular dystrophy in England and Wales and impact on respiratory services. Respir Med 2006, 100:1058-1063.
    • (2006) Respir Med , vol.100 , pp. 1058-1063
    • Calvert, L.D.1    McKeever, T.M.2    Kinnear, W.J.M.3    Britton, J.R.4
  • 7
    • 44349129859 scopus 로고    scopus 로고
    • Characteristics and outcomes of cardiomyopathy in children with Duchenne or Becker muscular dystrophy: a comparative study from the pediatric cardiomyopathy registry
    • Connuck D.M., Sleeper L.A., Colan S.D., Cox G.F., Towbin J.A., Lowe A.M., et al. Characteristics and outcomes of cardiomyopathy in children with Duchenne or Becker muscular dystrophy: a comparative study from the pediatric cardiomyopathy registry. Am Heart J 2008, 155:998-1005.
    • (2008) Am Heart J , vol.155 , pp. 998-1005
    • Connuck, D.M.1    Sleeper, L.A.2    Colan, S.D.3    Cox, G.F.4    Towbin, J.A.5    Lowe, A.M.6
  • 8
    • 14844318046 scopus 로고    scopus 로고
    • Effect of perindopril on the onset and progression of left ventricular dysfunction in Duchenne muscular dystrophy
    • Duboc D., Meune C., Lerebours G., Devaux J.Y., Vaksmann G., Bécane H.M. Effect of perindopril on the onset and progression of left ventricular dysfunction in Duchenne muscular dystrophy. J Am Coll Cardiol 2005, 15:855-857.
    • (2005) J Am Coll Cardiol , vol.15 , pp. 855-857
    • Duboc, D.1    Meune, C.2    Lerebours, G.3    Devaux, J.Y.4    Vaksmann, G.5    Bécane, H.M.6
  • 9
    • 34547934811 scopus 로고    scopus 로고
    • Perindopril preventive treatment on mortality in Duchenne muscular dystrophy: 10years' follow-up
    • Duboc D., Meune C., Pierre B., Wahbi K., Eymard B., Toutain A., et al. Perindopril preventive treatment on mortality in Duchenne muscular dystrophy: 10years' follow-up. Am Heart J 2007, 154:596-602.
    • (2007) Am Heart J , vol.154 , pp. 596-602
    • Duboc, D.1    Meune, C.2    Pierre, B.3    Wahbi, K.4    Eymard, B.5    Toutain, A.6
  • 10
    • 34249099687 scopus 로고    scopus 로고
    • Managing Duchenne muscular dystrophy--the additive effect of spinal surgery and home nocturnal ventilation in improving survival
    • Eagle M., Bourke J., Bullock R., Gibson M., Mehta J., Giddings D., et al. Managing Duchenne muscular dystrophy--the additive effect of spinal surgery and home nocturnal ventilation in improving survival. Neuromuscul Disord 2007, 17:470-475.
    • (2007) Neuromuscul Disord , vol.17 , pp. 470-475
    • Eagle, M.1    Bourke, J.2    Bullock, R.3    Gibson, M.4    Mehta, J.5    Giddings, D.6
  • 11
    • 0019151724 scopus 로고
    • Duchenne muscular dystrophy: genetic aspects, carrier detection and antenatal diagnosis
    • Emery A.E.H. Duchenne muscular dystrophy: genetic aspects, carrier detection and antenatal diagnosis. Br Med Bull 1980, 36:117-122.
    • (1980) Br Med Bull , vol.36 , pp. 117-122
    • Emery, A.E.H.1
  • 12
    • 22144433052 scopus 로고    scopus 로고
    • Late complications of tracheostomy
    • Epstein S.K. Late complications of tracheostomy. Respir Care 2005, 50:542-549.
    • (2005) Respir Care , vol.50 , pp. 542-549
    • Epstein, S.K.1
  • 13
    • 0036259705 scopus 로고    scopus 로고
    • Duchenne muscular dystrophy: prolongation of life by noninvasive ventilation and mechanically assisted coughing
    • Gomez-Merino E., Bach J.R. Duchenne muscular dystrophy: prolongation of life by noninvasive ventilation and mechanically assisted coughing. Am J Phys Med Rehabil 2002, 81:411-415.
    • (2002) Am J Phys Med Rehabil , vol.81 , pp. 411-415
    • Gomez-Merino, E.1    Bach, J.R.2
  • 14
    • 79551545969 scopus 로고    scopus 로고
    • Impact of bisphosphonates on survival for patients with Duchenne muscular dystrophy
    • Gordon K.E., Dooley J.M., Sheppard K.M., MacSween J., Esser M.J. Impact of bisphosphonates on survival for patients with Duchenne muscular dystrophy. Pediatrics 2011, 127:e353-e358.
    • (2011) Pediatrics , vol.127
    • Gordon, K.E.1    Dooley, J.M.2    Sheppard, K.M.3    MacSween, J.4    Esser, M.J.5
  • 16
  • 17
    • 58249134742 scopus 로고    scopus 로고
    • Beneficial effects of beta-blockers and angiotensin-converting enzyme inhibitors in Duchenne muscular dystrophy
    • Ogata H., Ishikawa Y., Ishikawa Y., Minami R. Beneficial effects of beta-blockers and angiotensin-converting enzyme inhibitors in Duchenne muscular dystrophy. J Cardiol 2009, 53:72-78.
    • (2009) J Cardiol , vol.53 , pp. 72-78
    • Ogata, H.1    Ishikawa, Y.2    Ishikawa, Y.3    Minami, R.4
  • 18
    • 57149123999 scopus 로고    scopus 로고
    • Prise en charge de l'insuffisance respiratoire aiguë d'origine neuromusculaire
    • Orlikowski D., Prigent H., Sharshar T., Raphael J.C. Prise en charge de l'insuffisance respiratoire aiguë d'origine neuromusculaire. J Eur Urg 2008, 21:94-98.
    • (2008) J Eur Urg , vol.21 , pp. 94-98
    • Orlikowski, D.1    Prigent, H.2    Sharshar, T.3    Raphael, J.C.4
  • 20
    • 0036344202 scopus 로고    scopus 로고
    • Patterns and predictors of sleep disordered breathing in primary myopathies
    • Ragette R., Mellies U., Schwake C., Voit T., Teschler H. Patterns and predictors of sleep disordered breathing in primary myopathies. Thorax 2002, 57:724-728.
    • (2002) Thorax , vol.57 , pp. 724-728
    • Ragette, R.1    Mellies, U.2    Schwake, C.3    Voit, T.4    Teschler, H.5
  • 21
    • 0028291379 scopus 로고
    • Randomised trial of preventive nasal ventilation in Duchenne muscular dystrophy. French Multicentre Cooperative Group on home mechanical ventilation assistance in Duchenne de Boulogne muscular dystrophy
    • Raphael J.C., Chevret S., Chastang C., Bouvet F. Randomised trial of preventive nasal ventilation in Duchenne muscular dystrophy. French Multicentre Cooperative Group on home mechanical ventilation assistance in Duchenne de Boulogne muscular dystrophy. Lancet 1994, 343:1600-1604.
    • (1994) Lancet , vol.343 , pp. 1600-1604
    • Raphael, J.C.1    Chevret, S.2    Chastang, C.3    Bouvet, F.4
  • 22
  • 23
    • 0020631061 scopus 로고
    • Prolongation of life in Duchenne's muscular dystrophy
    • Rideau Y., Gatin G., Bach J., Gines G. Prolongation of life in Duchenne's muscular dystrophy. Acta Neurol 1983, 5:118-124.
    • (1983) Acta Neurol , vol.5 , pp. 118-124
    • Rideau, Y.1    Gatin, G.2    Bach, J.3    Gines, G.4
  • 24
    • 79959852658 scopus 로고    scopus 로고
    • The natural history of cardiac and pulmonary function decline in patients with duchenne muscular dystrophy
    • Roberto R., Fritz A., Hagar Y., Boice B., Skalsky A., Hwang H., et al. The natural history of cardiac and pulmonary function decline in patients with duchenne muscular dystrophy. Spine 2011, 36:E1009-E1017.
    • (2011) Spine , vol.36
    • Roberto, R.1    Fritz, A.2    Hagar, Y.3    Boice, B.4    Skalsky, A.5    Hwang, H.6
  • 25
    • 30344464347 scopus 로고    scopus 로고
    • The incidence of tracheoarterial fistula in patients with chronic tracheostomy tubes: a retrospective study of 544patients in a long-term care facility
    • Scalise P., Prunk S.R., Healy D., Votto J. The incidence of tracheoarterial fistula in patients with chronic tracheostomy tubes: a retrospective study of 544patients in a long-term care facility. Chest 2005, 128:3906-3909.
    • (2005) Chest , vol.128 , pp. 3906-3909
    • Scalise, P.1    Prunk, S.R.2    Healy, D.3    Votto, J.4
  • 26
    • 0031759227 scopus 로고    scopus 로고
    • Impact of nasal ventilation on survival in hypercapnic Duchenne muscular dystrophy
    • Simonds A.K., Muntoni F., Heather S., Fielding S. Impact of nasal ventilation on survival in hypercapnic Duchenne muscular dystrophy. Thorax 1998, 53:949-952.
    • (1998) Thorax , vol.53 , pp. 949-952
    • Simonds, A.K.1    Muntoni, F.2    Heather, S.3    Fielding, S.4
  • 27
    • 79959297748 scopus 로고    scopus 로고
    • Cardiomyopathy of Duchenne muscular dystrophy: current understanding and future directions
    • Spurney C.F. Cardiomyopathy of Duchenne muscular dystrophy: current understanding and future directions. Muscle Nerve 2011, 44:8-19.
    • (2011) Muscle Nerve , vol.44 , pp. 8-19
    • Spurney, C.F.1
  • 28
    • 33751294514 scopus 로고    scopus 로고
    • Diurnal ventilation via mouthpiece: survival in end-stage Duchenne patients
    • Toussaint M., Steens M., Wasteels G., Soudon P. Diurnal ventilation via mouthpiece: survival in end-stage Duchenne patients. Eur Respir J 2008, 28:549-555.
    • (2008) Eur Respir J , vol.28 , pp. 549-555
    • Toussaint, M.1    Steens, M.2    Wasteels, G.3    Soudon, P.4
  • 29
    • 0242432505 scopus 로고    scopus 로고
    • Evaluation of health-related quality of life using the MOS 36-Item Short-Form Health Status Survey in patients receiving noninvasive positive pressure ventilation
    • Windisch W., Freidel K., Schucher B., Baumann H., Wiebel M., Matthys H., et al. Evaluation of health-related quality of life using the MOS 36-Item Short-Form Health Status Survey in patients receiving noninvasive positive pressure ventilation. Intensive Care Med 2003, 29:615-621.
    • (2003) Intensive Care Med , vol.29 , pp. 615-621
    • Windisch, W.1    Freidel, K.2    Schucher, B.3    Baumann, H.4    Wiebel, M.5    Matthys, H.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.