Assessment of quality of life for home ventilated patients with Duchenne muscular dystrophy;Indices de satisfaction des patients atteints d'une dystrophie musculaire de Duchenne de boulogne et ventilés à domicile

Revue Neurologique

Volumn 158, Issue 4, 2002, Pages 453-460

  Raphael J C ^a   Dazord, A ^b   Jaillard, P ^a   Andronikof Sanglade, A ^c   Benony, H ^d   Kovess, V ^e   Charpak, Y ^f   Auriant, I ^a  

^a RAYMOND POINCARÉ HOSPITAL   (France)

^b Hopital Saint Jean de Dieu   (France)

^c Institut de Psychologie   (France)

^d UNIVERSITÉ DE BOURGOGNE   (France)

^e MGEN   (France)

^f CEMKA EVAL   (France)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; ARTIFICIAL VENTILATION; CONTROLLED STUDY; DUCHENNE MUSCULAR DYSTROPHY; DYSPNEA; EQUIPMENT; FATIGUE; HEADACHE; HOME CARE; HUMAN; INTERMETHOD COMPARISON; MAJOR CLINICAL STUDY; PATIENT SATISFACTION; PHYSICAL CAPACITY; QUALITY OF LIFE; SEXUAL BEHAVIOR; SKIN DEFECT; SLEEP DISORDER; TRACHEOSTOMY; TREATMENT OUTCOME;

ADULT; FEMALE; HOME CARE SERVICES; HUMANS; MALE; MUSCULAR DYSTROPHY, DUCHENNE; PATIENT SATISFACTION; QUALITY OF LIFE; QUESTIONNAIRES; RESPIRATION DISORDERS; RESPIRATION, ARTIFICIAL; SEVERITY OF ILLNESS INDEX; TIME FACTORS; TRACHEOSTOMY;

EID: 0036252974     PISSN: 00353787     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (32)

1. Mechanical ventilation of patients with late stage Duchenne muscular dystrophy: Management in the home
2. Management of end stage respiratory failure in Duchenne muscular dystrophy
3. Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support
4. Decline in respiratory function and experience with long-term assisted ventilation in advanced Duchenne's muscular dystrophy
5. Approche psychologique de la qualité de vie chez des myopathes de Duchenne de Boulogne ventilés non hospitalisés
6. Evaluation de la qualité de vie de patients psychotiques chroniques vivant en institution
7. Clinical trial in Duchenne dystrophy. I. The design of the protocol
8. Clinical investigation in Duchenne dystrophy. II. Determination of the power of therapeutic trials based on the natural history
9. Clinical indications for noninvasive positive pressure ventilation in chronic respiratory failure due to restrictive lung disease, COPD, and nocturnal hypoventilation. A consensus conference report
10. Ventilator management in Duchenne muscular dystrophy and postopoliomyelitis syndrome: Twelve years' experience
11. Évaluation de la qualité de vie: Mise au point d'un instrument d'évaluation dans un contexte francophone
12. Évaluation de la qualité de vie de patients déprimés traités de maniėre ambulatoire
13. Quality of life and socio-professional rehabilitation: Study on patients with chronic mental diseases
14. The subjective quality of life (SOLP): An updated review of validation and results
15. Quality of life assessment in psychiatry
16. Santé mentale et qualité de vie dans des situations de précarité liée à la maladie ou aux conditions sociales. Données issues d'enquêtes
17. The psychological general well-being scale
18. Quality of life assessment in therapeutic trials: Rationale for and presentation of a more appropriate instrument
19. Long-term ventilation for patients With Duchenne muscular dystrophy
20. Pulmonary function in Duchenne muscular dystrophy related to stage of disease
21. Practice parameter: The care of the patient with amyotrophic lateral sclerosis (an evidence-based review). Report of the Quality Standards Subcommittee of the American Academy of Neurology
22. Long-term tracheostomy ventilation in neuromuscular diseases: Patient acceptance and quality of life
23. Étude de la qualité de vie de patients psychotiques fréquentant un hôpital de jour
24. Ventilation mécanique à domicile dans la dystrophie musculaire de Duchenne de Boulogne. Ventilation de nécessité et ventilation de prévention. Éditorial
25. A prospective multicentre study of home mechanical ventilation in Duchenne de Boulogne muscular dystrophy
26. Randomised trial of preventive nasal ventilation in Duchenne muscular dystrophy
27. Ventilation à domicile au long cours dans les maladies neurologiques de I'adulte
28. Treatment of respiratory insufficiency in Duchenne's muscular dystrophy: Nasal ventilation in the initial stages
29. Should patients with neuromuscular disease be denied the choice of the treatment of mechanical ventilation
30. Practical problems in the respiratory care of patients with muscular dystrophy
31. Long-term nasal intermittent positive pressure ventilation in advanced Duchenne's muscular dystrophy
32. Effects of noninvasive ventilation on survival in patients with Duchenne's muscular dystrophy