메뉴 건너뛰기




Volumn 32, Issue 3, 2013, Pages 302-321

"It just becomes much more complicated": Genetic counselors' views on genetics and prenatal testing

Author keywords

bioethics; genetic counselors; genetic testing; prenatal testing; reflexive ambivalence

Indexed keywords

ARTICLE; BIOETHICS; FOLLOW UP; GENETIC COUNSELING; GENETIC RISK; GENETIC SCREENING; HEALTH CARE; HUMAN; MEDICAL PROFESSION; PERSONALIZED MEDICINE; PREGNANT WOMAN; PRENATAL CARE; PRENATAL DIAGNOSIS; PRIORITY JOURNAL; PROFESSIONAL KNOWLEDGE; SEX CHROMOSOME ABERRATION;

EID: 84883560984     PISSN: 14636778     EISSN: 14699915     Source Type: Journal    
DOI: 10.1080/14636778.2013.822174     Document Type: Article
Times cited : (12)

References (89)
  • 1
    • 84883559254 scopus 로고    scopus 로고
    • American Board of Genetic Counseling, Accessed July 18, 2013
    • American Board of Genetic Counseling. 2013. "Bylaws/History." Accessed July 18, 2013. http://www.abgc.net/About-ABGC/ABGCBylaws.asp
    • (2013) Bylaws/History
  • 3
    • 36949021591 scopus 로고    scopus 로고
    • Decision-making and ante-natal screening for sickle cell and thalassaemia disorders
    • Atkin, K., S. Ahmed, J. Hewison, and J. M. Green. 2008. "Decision-Making and Ante-Natal Screening for Sickle Cell and Thalassaemia Disorders." Current Sociology 56 (1): 77-98.
    • (2008) Current Sociology , vol.56 , Issue.1 , pp. 77-98
    • Atkin, K.1    Ahmed, S.2    Hewison, J.3    Green, J.M.4
  • 4
    • 84869117361 scopus 로고    scopus 로고
    • The Department of health-supported genetic counselor training post scheme in England: A unique initiative?
    • Barnes, C., L. Kerzin-Storrar, H. Skirton, and J. Tocher. 2012. "The Department of Health-Supported Genetic Counselor Training Post Scheme in England: A Unique Initiative?" Journal of Community Genetics 3 (4): 297-302.
    • (2012) Journal of Community Genetics , vol.3 , Issue.4 , pp. 297-302
    • Barnes, C.1    Kerzin-Storrar, L.2    Skirton, H.3    Tocher, J.4
  • 5
    • 0030823283 scopus 로고    scopus 로고
    • Nondirectiveness in genetic counseling: A survey of practitioners
    • DOI 10.1002/(SICI)1096-8628(19971017)72:2<172::AID-AJMG9>3.0.CO;2-X
    • Bartels, D. M., B. S. LeRoy, P. McCarthy, and A. L. Caplan. 1997. "Nondirectiveness in Genetic Counseling: A Survey of Practitioners." American Journal of Medical Genetics 72 (2): 172-179. (Pubitemid 27426082)
    • (1997) American Journal of Medical Genetics , vol.72 , Issue.2 , pp. 172-179
    • Bartels, D.M.1    LeRoy, B.S.2    McCarthy, P.3    Caplan, A.L.4
  • 6
    • 0031082775 scopus 로고    scopus 로고
    • Nuance, complexity, and context: Qualitative methods in genetic counseling research
    • Beeson, D. 1997. "Nuance, Complexity and Context: Qualitative Methods in Genetic Counseling Research." Journal of Genetic Counseling 6 (1): 21-43. (Pubitemid 127716865)
    • (1997) Journal of Genetic Counseling , vol.6 , Issue.1 , pp. 21-43
    • Beeson, D.1
  • 7
    • 0346095411 scopus 로고    scopus 로고
    • Genetic counselors: Translating genomic science into clinical practice
    • DOI 10.1172/JCI200320113
    • Bennett, R. L., H. L. Hampel, J. B. Mandell, and J. H. Marks. 2003. "Genetic Counselors: Translating Genomic Science into Clinical Practice." The Journal of Clinical Investigation 112 (9): 1274-1279. (Pubitemid 38057677)
    • (2003) Journal of Clinical Investigation , vol.112 , Issue.9 , pp. 1274-1279
    • Bennett, R.L.1    Hampel, H.L.2    Mandell, J.B.3    Marks, J.H.4
  • 9
    • 0029295201 scopus 로고
    • Narrative and medical genetics: On ethics and therapeutics
    • Brock, S. 1995. "Narrative and Medical Genetics: On Ethics and Therapeutics." Qualitative Health Research 5 (2): 150-168.
    • (1995) Qualitative Health Research , vol.5 , Issue.2 , pp. 150-168
    • Brock, S.1
  • 11
    • 0002164790 scopus 로고
    • The normalization of prenatal diagnostic testing
    • edited by F. Ginsburg and R. Rapp. Berkeley: University of California Press
    • Browner, C. H., and N. Press. 1995. "The Normalization of Prenatal Diagnostic Testing." In Conceiving the New World Order: The Global Politics of Reproduction, edited by F. Ginsburg and R. Rapp, 307-322. Berkeley: University of California Press.
    • (1995) Conceiving the New World Order: The Global Politics of Reproduction , pp. 307-322
    • Browner, C.H.1    Press, N.2
  • 12
    • 0000246936 scopus 로고
    • Resistance and adherence to the norms of genetic counseling
    • Brunger, F., and A. Lippman. 1995. "Resistance and Adherence to the Norms of Genetic Counseling." Journal of Genetic Counseling 4 (3): 151-167.
    • (1995) Journal of Genetic Counseling , vol.4 , Issue.3 , pp. 151-167
    • Brunger, F.1    Lippman, A.2
  • 14
    • 83055162163 scopus 로고    scopus 로고
    • Biomedicalization: A theoretical and substantive introduction
    • edited by A. E. Clarkefvn1 L. Mamo, J. R. Fosket, J. R. Fishmanand and J. K. Shim. Durham, NC: Duke University Press
    • Clarke, A. E., J. K. Shim, L. Mamo, J. R. Fosket, and J. R. Fishman. 2010. "Biomedicalization: A Theoretical and Substantive Introduction." In Biomedicalization: Technoscience, Health, and Illness in the U.S., edited by A. E. Clarke, L. Mamo, J. R. Fosket, J. R. Fishmanand and J. K. Shim, 1-44. Durham, NC: Duke University Press.
    • (2010) Biomedicalization: Technoscience, Health, and Illness in the U.S , pp. 1-44
    • Clarke, A.E.1    Shim, J.K.2    Mamo, L.3    Fosket, J.R.4    Fishman, J.R.5
  • 15
    • 77950440741 scopus 로고    scopus 로고
    • Has the revolution arrived?
    • Collins, F. 2010. "Has the Revolution Arrived?" Nature 464 (7289): 674-675.
    • (2010) Nature , vol.464 , Issue.7289 , pp. 674-675
    • Collins, F.1
  • 20
    • 0033181467 scopus 로고    scopus 로고
    • Experts as 'storytellers' in reproductive genetics: Exploring key issues
    • Ettorre, E. 1999. "Experts as 'Storytellers' in Reproductive Genetics: Exploring Key Issues." Sociology of Health & Illness 21 (5): 539-549.
    • (1999) Sociology of Health & Illness , vol.21 , Issue.5 , pp. 539-549
    • Ettorre, E.1
  • 22
    • 37249053409 scopus 로고    scopus 로고
    • The impact of ethical beliefs on decisions about prenatal screening tests: Searching for justification
    • DOI 10.1016/j.socscimed.2007.10.010, PII S0277953607005321
    • Garcia, E., D. R. M. Timmermans, and E. van Leeuwen. 2008. "The Impact of Ethical Beliefs on Decisions about Prenatal Screening Tests: Searching for Justification." Social Science & Medicine 66 (3): 753-64. (Pubitemid 350266954)
    • (2008) Social Science and Medicine , vol.66 , Issue.3 , pp. 753-764
    • Garcia, E.1    Timmermans, D.R.M.2    Van Leeuwen, E.3
  • 24
    • 77953053792 scopus 로고    scopus 로고
    • Grounded theory in genetic counseling research: An interpretive perspective
    • Grubs, R. E., and M. Piantanida. 2010. "Grounded Theory in Genetic Counseling Research: An Interpretive Perspective." Journal of Genetic Counseling 19 (2): 99-111.
    • (2010) Journal of Genetic Counseling , vol.19 , Issue.2 , pp. 99-111
    • Grubs, R.E.1    Piantanida, M.2
  • 25
    • 0033181470 scopus 로고    scopus 로고
    • Doing the right thing: Genetic risk and responsibility
    • Hallowell, N. 1999. "Doing the Right Thing: Genetic Risk and Responsibility." Sociology of Health & Illness 21 (5): 597-621.
    • (1999) Sociology of Health & Illness , vol.21 , Issue.5 , pp. 597-621
    • Hallowell, N.1
  • 27
    • 33751350527 scopus 로고    scopus 로고
    • Genetic counseling for sex chromosome anomalies (SCAs) in Israel and Germany: Assessing medical risks according to the importance of fertility in two cultures
    • DOI 10.1525/maq.2006.20.4.469
    • Hashiloni-Dolev, Y. 2006. "Genetic Counseling for Sex Chromosome Anomalies (SCA) in Israel and Germany: Assessing Medical Risks According to the Importance of Fertility in Two Cultures." Medical Anthropology Quarterly 20 (4): 469-486. (Pubitemid 44801207)
    • (2006) Medical Anthropology Quarterly , vol.20 , Issue.4 , pp. 469-486
    • Hashiloni-Dolev, Y.1
  • 28
    • 77951235287 scopus 로고    scopus 로고
    • Between social hypocrisy and social responsibility: Professional views of eugenics, disability and repro-genetics in Germany and Israel
    • Hashiloni-Dolev, Y., and A. E. Raz. 2010. "Between Social Hypocrisy and Social Responsibility: Professional Views of Eugenics, Disability and Repro-Genetics in Germany and Israel." New Genetics and Society 29 (1): 87-102.
    • (2010) New Genetics and Society , vol.29 , Issue.1 , pp. 87-102
    • Hashiloni-Dolev, Y.1    Raz, A.E.2
  • 29
    • 18744406611 scopus 로고    scopus 로고
    • An oral history of the national society of genetic counselors
    • Heimler, A. 1997. "An Oral History of the National Society of Genetic Counselors." Journal of Genetic Counseling 6 (3): 315-336. (Pubitemid 127716883)
    • (1997) Journal of Genetic Counseling , vol.6 , Issue.3 , pp. 315-336
    • Heimler, A.1
  • 30
    • 0033629555 scopus 로고    scopus 로고
    • Does knowledge make a difference the association between knowledge about genes and attitudes towards genetic tests
    • Jallinoja, P., and A. R. Aro. 2000. "Does Knowledge Make a Difference? The Association Between Knowledge About Genes and Attitudes Towards Genetic Tests." Journal of Health Communication 5 (1): 29-39.
    • (2000) Journal of Health Communication , vol.5 , Issue.1 , pp. 29-39
    • Jallinoja, P.1    Aro, A.R.2
  • 31
    • 0037992598 scopus 로고    scopus 로고
    • The work of genetic care providers: Managing uncertainty and ambiguity
    • Karlberg, K. 2000. "The Work of Genetic Care Providers: Managing Uncertainty and Ambiguity." Research in the Sociology of Health Care 17: 81-97.
    • (2000) Research in the Sociology of Health Care , vol.17 , pp. 81-97
    • Karlberg, K.1
  • 32
    • 0030879584 scopus 로고    scopus 로고
    • Opportunities and impediments for a consolidating and expanding profession: Genetic counseling in the united states
    • Keenan, R. 1997. "Opportunities and Impediments for a Consolidating and Expanding Profession: Genetic Counseling in the United States." Social Science & Medicine 45 (9): 1377-1386.
    • (1997) Social Science & Medicine , vol.45 , Issue.9 , pp. 1377-1386
    • Keenan, R.1
  • 33
    • 58849153345 scopus 로고    scopus 로고
    • Choosing not to choose: Reproductive responses of parents of children with genetic conditions or impairments
    • Kelly, S. E. 2009. "Choosing Not to Choose: Reproductive Responses of Parents of Children with Genetic Conditions or Impairments." Sociology of Health & Illness 31 (1): 91-97.
    • (2009) Sociology of Health & Illness , vol.31 , Issue.1 , pp. 91-97
    • Kelly, S.E.1
  • 34
    • 0000845202 scopus 로고    scopus 로고
    • The new genetics: Professionals' discursive boundaries
    • Kerr, A., S. Cunningham-Burley, and A. Amos. 1997. "The New Genetics: Professionals' Discursive Boundaries." The Sociological Review 45 (2): 279-303.
    • (1997) The Sociological Review , vol.45 , Issue.2 , pp. 279-303
    • Kerr, A.1    Cunningham-Burley, S.2    Amos, A.3
  • 35
    • 47349133647 scopus 로고    scopus 로고
    • Exploring ambivalence about genetic research and its social context
    • Kerr, A., S. Cunningham-Burley, and R. Tutton. 2007. "Exploring Ambivalence About Genetic Research and Its Social Context." Social Theory & Health 5 (1): 53-69.
    • (2007) Social Theory & Health , vol.5 , Issue.1 , pp. 53-69
    • Kerr, A.1    Cunningham-Burley, S.2    Tutton, R.3
  • 37
    • 80755184794 scopus 로고    scopus 로고
    • Competencies for the physician medical geneticist in the 21st century
    • Korf, B. R., M. Irons, and M. S.Watson. 2011. "Competencies for the Physician Medical Geneticist in the 21st Century." Genetics in Medicine 13 (11): 911-12.
    • (2011) Genetics in Medicine , vol.13 , Issue.11 , pp. 911-912
    • Korf, B.R.1    Irons, M.2    Watson, M.S.3
  • 41
    • 0025913958 scopus 로고
    • Prenatal genetic testing and screening: Constructing needs and reinforcing inequities
    • Lippman, A. 1991. "Prenatal Genetic Testing and Screening: Constructing Needs and Reinforcing Inequities." American Journal of Law and Medicine 17: 15-50.
    • (1991) American Journal of Law and Medicine , vol.17 , pp. 15-50
    • Lippman, A.1
  • 42
    • 84883038038 scopus 로고    scopus 로고
    • 'Is this something you want?': Genetic counselors' accounts of their role in prenatal decision-making
    • Markens, S. 2013. "'Is this Something you Want?': Genetic Counselors' Accounts of Their Role in Prenatal Decision-Making." Sociological Forum 28 (3): 431-451.
    • (2013) Sociological Forum , vol.28 , Issue.3 , pp. 431-451
    • Markens, S.1
  • 43
    • 77955868855 scopus 로고    scopus 로고
    • Interrogating the dynamics between power, knowledge and pregnant bodies in amniocentesis decision-making
    • Markens, S., C. H. Browner, and H. M. Preloran. 2010. "Interrogating the Dynamics Between Power, Knowledge and Pregnant Bodies in Amniocentesis Decision-Making." Sociology of Health & Illness 32 (1): 37-56.
    • (2010) Sociology of Health & Illness , vol.32 , Issue.1 , pp. 37-56
    • Markens, S.1    Browner, C.H.2    Preloran, H.M.3
  • 44
    • 0033015696 scopus 로고    scopus 로고
    • 'Because of the risks': How us pregnant women account for refusing prenatal screening
    • Markens, S., C. H. Browner, and N. Press. 1999. "'Because of the Risks': How US Pregnant Women Account for Refusing Prenatal Screening." Social Science & Medicine 49 (3): 359-469.
    • (1999) Social Science & Medicine , vol.49 , Issue.3 , pp. 359-469
    • Markens, S.1    Browner, C.H.2    Press, N.3
  • 45
    • 84879140227 scopus 로고    scopus 로고
    • Breaking a gene barrier
    • March 8
    • Markoff, J. 2012. "Breaking a Gene Barrier." New York Times, March 8, B1.
    • (2012) New York Times
    • Markoff, J.1
  • 46
    • 79953760489 scopus 로고    scopus 로고
    • The genetic counseling outcome scale: A new patient-reported outcome measure for clinical genetics services
    • McAllister, M., A. M. Wood, G. Dunn, S. Shiloh, and C. Todd. 2011. "The Genetic Counseling Outcome Scale: A New Patient-Reported Outcome Measure for Clinical Genetics Services." Clinical Genetics 79 (5): 413-424.
    • (2011) Clinical Genetics , vol.79 , Issue.5 , pp. 413-424
    • McAllister, M.1    Wood, A.M.2    Dunn, G.3    Shiloh, S.4    Todd, C.5
  • 48
    • 0000034151 scopus 로고
    • A comparison of public and professionals' attitudes towards genetic developments
    • Michie, S., H. Drake, T. Marteau, and M. Bobrow. 1995. "A Comparison of Public and Professionals' Attitudes Towards Genetic Developments." Public Understanding of Science 4 (3): 243-253.
    • (1995) Public Understanding of Science , vol.4 , Issue.3 , pp. 243-253
    • Michie, S.1    Drake, H.2    Marteau, T.3    Bobrow, M.4
  • 49
    • 33846080089 scopus 로고    scopus 로고
    • Perceived genetic knowledge, attitudes towards genetic testing, and the relationship between these among patients with a chronic disease
    • DOI 10.1016/j.pec.2006.07.005, PII S0738399106002308
    • Morren, M., M. Rijken, A. N. Baanders, and J. Bensing. 2007. "Perceived Genetic Knowledge, Attitudes Towards Genetic Testing, and the Relationship Between These Among Patients with Chronic Diseases." Patient Education and Counseling 65 (2): 197-204. (Pubitemid 46073559)
    • (2007) Patient Education and Counseling , vol.65 , Issue.2 , pp. 197-204
    • Morren, M.1    Rijken, M.2    Baanders, A.N.3    Bensing, J.4
  • 52
    • 33748544629 scopus 로고    scopus 로고
    • The genetic conception of health: Is it as radical as claimed?
    • DOI 10.1177/1363459306067315
    • Petersen, A. 2006. "The Genetic Conception of Health: Is it as Radical as Claimed?" Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 10 (4): 481-500. (Pubitemid 44372637)
    • (2006) Health , vol.10 , Issue.4 , pp. 481-500
    • Petersen, A.1
  • 53
    • 0036003310 scopus 로고    scopus 로고
    • 'There are no rights andwrongs in the situations': Identifying interactional difficulties in genetic counseling
    • Pilnick, A. 2002a. "'There are No Rights andWrongs in the Situations': Identifying Interactional Difficulties in Genetic Counseling." Sociology of Health & Illness 24 (1): 66-88.
    • (2002) Sociology of Health & Illness , vol.24 , Issue.1 , pp. 66-88
    • Pilnick, A.1
  • 54
    • 0036970245 scopus 로고    scopus 로고
    • What 'most people' do: Exploring the ethical implications of genetic counselling
    • DOI 10.1080/14636770216003
    • Pilnick, A. 2002b. "What 'Most People' Do: Exploring the Ethical Implications of Genetic Counselling." New Genetics and Society 21 (3): 339-350. (Pubitemid 36140388)
    • (2002) New Genetics and Society , vol.21 , Issue.3 , pp. 339-350
    • Pilnick, A.1
  • 55
    • 42449092777 scopus 로고    scopus 로고
    • 'It's something for you both to think about': Choice and decision making in nuchal translucency screening for down's syndrome
    • Pilnick, A. 2008. "'It's Something for you Both to Think About': Choice and Decision Making in Nuchal Translucency Screening for Down's Syndrome." Sociology of Health & Illness 30 (4): 511-530.
    • (2008) Sociology of Health & Illness , vol.30 , Issue.4 , pp. 511-530
    • Pilnick, A.1
  • 57
    • 67651129211 scopus 로고    scopus 로고
    • Patients DNA may be signal to tailor drugs
    • Pollack, A. 2008. "Patients DNA may be Signal to Tailor Drugs." New York Times, December 20, A1.
    • (2008) New York Times, December , vol.20
    • Pollack, A.1
  • 58
    • 84883045920 scopus 로고    scopus 로고
    • The ethics of advice
    • July 14
    • Pollack, A. 2012. "The Ethics of Advice." New York Times, July 14, B1.
    • (2012) New York Times
    • Pollack, A.1
  • 59
    • 0030803565 scopus 로고    scopus 로고
    • Why women say yes to prenatal diagnosis
    • DOI 10.1016/S0277-9536(97)00011-7, PII S0277953697000117
    • Press, N., and C. H. Browner. 1997. "Why Women say Yes to Prenatal Screening." Social Science & Medicine 45 (7): 979-989. (Pubitemid 27348231)
    • (1997) Social Science and Medicine , vol.45 , Issue.7 , pp. 979-989
    • Press, N.1    Browner, C.H.2
  • 60
    • 34250208423 scopus 로고    scopus 로고
    • Research scientists surveyed on ethical issues in genetic medicine: A comparison of attitudes of US and European researchers
    • DOI 10.1080/14636770601032957, PII 770168776
    • Rabino, I. 2006. "Research Scientists Surveyed on Ethical Issues in Genetic Medicine: A Comparison of Attitudes of US and European Researchers." New Genetics and Society 25 (3): 325-342. (Pubitemid 46895636)
    • (2006) New Genetics and Society , vol.25 , Issue.3 , pp. 325-342
    • Rabino, I.1
  • 62
    • 33644699330 scopus 로고    scopus 로고
    • The quest for the perfect baby: Why do Israeli women seek prenatal genetic testing?
    • DOI 10.1111/j.1467-9566.2006.00481.x
    • Remennick, L. 2006. "The Quest for the Perfect Baby: Why do Israeli Women Seek Prenatal Genetic Testing?" Sociology of Health & Illness 28 (1): 21-53. (Pubitemid 43332399)
    • (2006) Sociology of Health and Illness , vol.28 , Issue.1 , pp. 21-53
    • Remennick, L.1
  • 64
    • 70349501705 scopus 로고    scopus 로고
    • Race, gender, and genetic technologies: A new reproductive dystopia?
    • Roberts, D. 2009. "Race, Gender, and Genetic Technologies: A New Reproductive Dystopia?" Signs: Journal of Women in Culture and Society 34 (4): 783-804.
    • (2009) Signs: Journal of Women in Culture and Society , vol.34 , Issue.4 , pp. 783-804
    • Roberts, D.1
  • 67
    • 84888138475 scopus 로고    scopus 로고
    • Genetic counseling services and training of genetic counselors in israel: An overview
    • Published Online 24 February. Accessed March 8, 2013
    • Sagi, M., and W. R. Uhlmann. 2013. "Genetic Counseling Services and Training of Genetic Counselors in Israel: An Overview." Journal of Genetic Counseling, Published Online 24 February. Accessed March 8, 2013. http://link.springer.com/article/10.1007/s10897-013-9576-4
    • (2013) Journal of Genetic Counseling
    • Sagi, M.1    Uhlmann, W.R.2
  • 68
    • 23244442230 scopus 로고    scopus 로고
    • Educating genetic counselors in Australia: Developing an international perspective
    • Sahar,M. A., M. A. Young, L. J. Sheffield, and M. A. Aitken. 2005. "Educating Genetic Counselors in Australia: Developing an International Perspective." Journal of Genetic Counseling 14 (4): 283-93.
    • (2005) Journal of Genetic Counseling , vol.14 , Issue.4 , pp. 283-293
    • Sahar, M.A.1    Young, M.A.2    Sheffield, L.J.3    Aitken, M.A.4
  • 69
    • 33748535763 scopus 로고    scopus 로고
    • The unleashing of genetic terminology: How genetic counseling mobilizes for risk management
    • Samerski, S. 2006. "The Unleashing of Genetic Terminology: How Genetic Counseling Mobilizes for Risk Management." New Genetics and Society 25 (2): 97-208.
    • (2006) New Genetics and Society , vol.25 , Issue.2 , pp. 97-208
    • Samerski, S.1
  • 70
    • 70349507102 scopus 로고    scopus 로고
    • Genetic counseling and the fiction of choice: Taught self-determination as a new technique of social engineering
    • Samerski, S. 2009. "Genetic Counseling and the Fiction of Choice: Taught Self-Determination as a New Technique of Social Engineering." Signs: Journal of Women in Culture and Society 34 (4): 735-761.
    • (2009) Signs: Journal of Women in Culture and Society , vol.34 , Issue.4 , pp. 735-761
    • Samerski, S.1
  • 71
    • 84857506376 scopus 로고    scopus 로고
    • Representing and intervening: 'doing' good care in first trimester
    • Schwennesen, N., and L. Koch. 2012. "Representing and Intervening: 'Doing' Good Care in First Trimester." Sociology of Health & Illness 34 (2): 283-298.
    • (2012) Sociology of Health & Illness , vol.34 , Issue.2 , pp. 283-298
    • Schwennesen, N.1    Koch, L.2
  • 72
    • 0002996003 scopus 로고
    • Back to the future? New genetics and disabled people
    • Shakespeare, T. 1995. "Back to the Future? New Genetics and Disabled People." Critical Social Policy 15 (44-45): 22-35.
    • (1995) Critical Social Policy , vol.15 , Issue.44-45 , pp. 22-35
    • Shakespeare, T.1
  • 73
    • 80051904419 scopus 로고    scopus 로고
    • What's at stake? Genetic information from the perspective of people with epilepsy and their family members
    • Shostak, S., D. Zarhin, and R. Ottman. 2011. "What's at Stake? Genetic Information from the Perspective of People with Epilepsy and their Family Members." Social Science & Medicine 73 (5): 645-654.
    • (2011) Social Science & Medicine , vol.73 , Issue.5 , pp. 645-654
    • Shostak, S.1    Zarhin, D.2    Ottman, R.3
  • 75
    • 33750528189 scopus 로고    scopus 로고
    • A historical comparison of the development of specialist genetic nursing in the United Kingdom and Japan
    • DOI 10.1111/j.1442-2018.2006.00288.x
    • Skirton, H., N. Arimori, and M. Aoki. 2006. "A Historical Comparison of the Development of Specialist Genetic Nursing in the United Kingdom and Japan." Nursing and Health Sciences 8 (4): 231-236. (Pubitemid 44660636)
    • (2006) Nursing and Health Sciences , vol.8 , Issue.4 , pp. 231-236
    • Skirton, H.1    Arimori, N.2    Aoki, M.3
  • 76
    • 84888133131 scopus 로고    scopus 로고
    • Building the genetic counsellor profession in the united kingdom: Two decades of growth and development
    • Published Online 22 January. Accessed March 8, 2013
    • Skirton, H., L. Kerzin-Storrar, C. Barnes, G. Hall, M. Longmuir, C. Patch, G. Scott, and J. Walford-Moore. 2013. "Building the Genetic Counsellor Profession in the United Kingdom: Two Decades of Growth and Development." Journal of Genetic Counseling, Published Online 22 January. Accessed March 8, 2013. http://link.springer.com/article/10.1007/s10897-012- 9560-4#page-1
    • (2013) Journal of Genetic Counseling
    • Skirton, H.1    Kerzin-Storrar, L.2    Barnes, C.3    Hall, G.4    Longmuir, M.5    Patch, C.6    Scott, G.7    Walford-Moore, J.8
  • 77
    • 58849104350 scopus 로고    scopus 로고
    • A quiet revolution: The birth of the genetic counselor at Sarah lawrence college, 1969
    • Stern, A. M. 2009. "A Quiet Revolution: The Birth of the Genetic Counselor at Sarah Lawrence College, 1969." Journal of Genetic Counseling 18 (1): 1-11.
    • (2009) Journal of Genetic Counseling , vol.18 , Issue.1 , pp. 1-11
    • Stern, A.M.1
  • 79
    • 0142186776 scopus 로고    scopus 로고
    • Predictive genetic test decisions for Huntington's disease: Context, appraisal and new moral imperatives
    • DOI 10.1016/S0277-9536(03)00155-2
    • Taylor, S. D. 2004. "Predictive Genetic Test Decisions for Huntington's Disease: Context, Appraisal, and New Moral Imperatives." Social Science & Medicine 58 (1): 137-149. (Pubitemid 37324002)
    • (2004) Social Science and Medicine , vol.58 , Issue.1 , pp. 137-149
    • Taylor, S.D.1
  • 82
    • 0042921459 scopus 로고    scopus 로고
    • Medical and lay attitudes towards genetic screening and testing in Finland
    • DOI 10.1038/sj.ejhg.5201006
    • Toiviainen, H., P. Jallinoja, A. R. Aro, and E. Hemminki. 2003. "Medical and Lay Attitudes Towards Genetic Screening and Testing in Finland." European Journal of Human Genetics 11 (8): 565-572. (Pubitemid 37038770)
    • (2003) European Journal of Human Genetics , vol.11 , Issue.8 , pp. 565-572
    • Toiviainen, H.1    Jallinoja, P.2    Aro, A.R.3    Hemminki, E.4
  • 83
    • 33745041941 scopus 로고    scopus 로고
    • The relationship of nondirectiveness to genetic counseling: Report of a workshop at the 2003 NSGC annual education conference
    • Weil, J., K. Ormand, J. Peters, K. Peters, B. B. Biesecker, and B. LeRoy. 2006. "The Relationship of Nondirectiveness to Genetic Counseling: Report of a Workshop at the 2003 NSGC Annual Education Conference." Journal of Genetic Counseling 15 (2): 89-93.
    • (2006) Journal of Genetic Counseling , vol.15 , Issue.2 , pp. 89-93
    • Weil, J.1    Ormand, K.2    Peters, J.3    Peters, K.4    Biesecker, B.B.5    Leroy, B.6
  • 84
    • 0023935508 scopus 로고
    • Attitudes of genetic counselors: A multinational survey
    • Wertz, D. C., and J. C. Fletcher. 1988a. "Attitudes of Genetic Counselors: A Multinational Survey." American Journal of Human Genetics 42 (4): 592-600.
    • (1988) American Journal of Human Genetics , vol.42 , Issue.4 , pp. 592-600
    • Wertz, D.C.1    Fletcher, J.C.2
  • 85
    • 0023987238 scopus 로고
    • Ethics and medical genetics in the united states: A national survey
    • Wertz, D. C., and J. C. Fletcher. 1988b. "Ethics and Medical Genetics in the United States: A National Survey." American Journal of Medical Genetics 29 (4): 815-27.
    • (1988) American Journal of Medical Genetics , vol.29 , Issue.4 , pp. 815-827
    • Wertz, D.C.1    Fletcher, J.C.2
  • 86
    • 0024951637 scopus 로고
    • Moral reasoning among medical geneticists in eighteen nations
    • Wertz, D. C., and J. C. Fletcher. 1989. "Moral Reasoning among Medical Geneticists in Eighteen Nations." Theoretical Medicine 10 (2): 123-38. (Pubitemid 20139387)
    • (1989) Theoretical Medicine , vol.10 , Issue.2 , pp. 123-138
    • Wertz, D.C.1    Fletcher, J.C.2
  • 87
    • 84883557664 scopus 로고    scopus 로고
    • July 28. Accessed March 6, 2013
    • Wicklund, C. 2008. "Genetics Education Pipeline andWorkforce." July 28. Accessed March 6, 2013. http://www.iom.edu/~/media/Files/ Activity%20Files/Research/GenomicBasedResearch/Wicklund.pdf
    • (2008) Genetics Education Pipeline and Workforce
    • Wicklund, C.1
  • 88
    • 0036136966 scopus 로고    scopus 로고
    • Is nondirectiveness possible within the context of antenatal screening and testing?
    • DOI 10.1016/S0277-9536(01)00032-6, PII S0277953601000326
    • Williams, C., P. Alderson, and B. Farsides. 2002a. "Is Nondirectiveness Possible within the Context of Antenatal Screening and Testing?" Social Science & Medicine 54 (3): 339-347. (Pubitemid 34028116)
    • (2002) Social Science and Medicine , vol.54 , Issue.3 , pp. 339-347
    • Williams, C.1    Alderson, P.2    Farsides, B.3
  • 89
    • 0036301972 scopus 로고    scopus 로고
    • Too many choices? Hospital and community staff reflect on the future of prenatal screening
    • DOI 10.1016/S0277-9536(01)00200-3, PII S0277953601002003
    • Williams, C., P. Alderson, and B. Farsides. 2002b. "Too Many Choices? Hospitals and Community Staff Reflect on the Future of Prenatal Testing." Social Science & Medicine 55 (5): 743-53. (Pubitemid 34754291)
    • (2002) Social Science and Medicine , vol.55 , Issue.5 , pp. 743-753
    • Williams, C.1    Alderson, P.2    Farsides, B.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.