Effect of financial costs on caregiving burden of family caregivers of older adults

SAGE Open

Volumn 2, Issue 4, 2012, Pages 1-14

  Lai, Daniel W L ^a  

^a UNIVERSITY OF CALGARY   (Canada)

Author keywords

Care receivers; Caregiver burden; Caregiving; Finance; Financial costs

Indexed keywords

EID: 84883216498     PISSN: None     EISSN: 21582440     Source Type: Journal    
DOI: 10.1177/2158244012470467     Document Type: Article

References (107)

1. Acton, G. J., & Kang, J. (2001). Interventions to reduce the burden of caregiving for an adult with dementia: A meta-analysis. Research in Nursing & Health, 24, 349-360.
2. Addington-Hall, J. M., MacDonald, L. D., Anderson, H. R., Chamberlain, J., Freeling, P., Bland, J. M., & Raferty, J. (1992). Randomized controlled trail of effects of coordinating care for terminally ill cancer patients. British Medical Journal, 305, 1317-1322.
3. Aoun, S. M., Kristjanson, L. J., Currow, D. C., & Hudson, P. L. (2005). Caregiving for the terminally ill: At what cost? Palliative Medicine, 19, 551-555.
4. Archer, C. K., & MacLean, M. J. (1993). Husbands and sons as caregivers of chronically-ill elderly women. Journal of Gerontological Social Work, 21, 5-23.
5. Arno, P. S., Levine, C., & Memmott, M. M. (1999). The economic value of informal caregiving. Health Affairs, 18, 182-188.
6. Ashley, N. R., & Kleinpeter, C. H. (2002). Gender differences in coping strategies of spousal dementia caregivers. Journal of Human Behavior in the Social Environment, 6, 29-46.
7. Barker, J. (2002). Neighbors, friends, and other nonkin caregivers of community-living dependent elders. Journal of Gerontology: Social Sciences, 57B, S158-S167.
8. Beeson, R. A. (2003). Loneliness and depression in spousal caregivers of those with Alzheimer's disease versus non-caregiving spouses. Archives of Psychiatric Nursing, 17, 135-143.
9. Bookwala, J., & Schulz, R. (2000). A comparison of primary stressors, secondary stressors, and depressive symptoms between elderly caregiving husbands and wives: The caregiver health effects study. Psychology and Aging, 15, 607-616.
10. Braithwaite, V. (1996). Understanding stress in informal caregiving: Is burden a problem of the individual or of society? Research on Aging, 18, 139-174.
11. Brienbaum, L. K., & Clarke-Steffen, L. (1992). Terminal care costs in childhood cancer. Journal of Pediatric Nursing, 18, 2858.
12. Brooks, C. H. (1989). Cost differences between hospice and nonhospice care: A comparison of insurer payments and provider charges. Evaluation & the Health Professions, 12, 159-178.
13. Calasanti, T., & Bowen, M. E. (2006). Spousal caregiving and crossing gender boundaries: Maintaining gendered identities. Journal of Aging Studies, 20, 253-263.
14. Calasanti, T., & King, N. (2007). Taking "women's work" "like a man": Husbands' experiences of care work. Gerontologist, 47, 516-527.
15. Chadiha, L. A., Rafferty, J., & Pickard, J. (2003). Influence of caregiving stressors, social support, and caregiving appraisal on marital functioning among African American wife caregivers. Journal of Marital & Family Therapy, 29, 479-490.
16. Chappell, N. L., & Kuehne, V. K. (1998). Congruence among husband and wife caregivers. Journal of Aging Studies, 12, 239-254.
17. Chiou, C. J., Chen, I. P., & Wang, H. H. (2005). Health status of family caregivers in Taiwan: An analysis of gender differences. International Journal of Geriatric Psychiatry, 20, 821-826.
18. Choi, N. G., & Bohman, T. M. (2007). Predicting the changes in depressive symptomatology in later life: How much do changes in health status, marital and caregiving status, work and volunteering, and health-related behaviors contribute? Journal of Aging and Health, 19, 152-177.
19. Coleman, C. K., Piles, C. L., & Poggenpoel, M. (1995). Influence of caregiving on families of older adults. Journal of Gerontological Nursing, 20, 40-49.
20. Covinsky, K. E., Goldman, L., & Cook, E. F. (1994). The impact of serious illness on patients' families. Journal of the American Medical Association, 272, 1839-1844.
21. Cullen, J. S., Grayson, D. A., & Jorm, A. F. (1997). Clinical diagnoses and disability of cognitively impaired older persons as predictors of stress in their carers. International Journal of Geriatric Psychiatry, 12, 1019-1028.
22. Dautzenberg, M. G. H., Diederiks, J. P. M., Philipsen, H., & Tan, F. E. S. (1999). Multigenerational caregiving and well-being: Distress of middle-aged daughters providing assistance to elderly parents. Women & Health, 29(4), 57-74.
23. Decima Research. (2002). National profile of family caregivers in Canada: Final report. Ottawa, Ontario: Health Canada.
24. de Figueiredo, R. M., & Turato, E. R. (2001). Needs for assistance and emotional aspects of caregiving reported by AIDS patient caregivers in a day-care unit in Brazil. Issues in Mental Health Nursing, 22, 633-643.
25. Enright, R. B., Jr., & Firss, L. (1987). Employed caregivers of brain-impaired adults: An assessment of dual role (Final report submitted to the Gerontological Society of America). San Francisco, CA: Family Survival Project.
26. Faison, K. J., Faria, S. H., & Frank, D. (1999). Caregivers of chronically ill elderly: Perceived burden. Journal of Community Health Nursing, 16, 243-253.
27. Fast, J. E., Williamson, D. L., & Keating, N. C. (1999). The hidden costs of informal elder care. Journal of Family and Economic Issues, 20, 301-326.
28. Ferris, F. D., Wodinsky, H. B., Kerr, I. G., Sone, M., Hume, S., & Coons, C. (1991). A cost-minimization study of cancer patients requiring a narcotic infusion in hospital and at home. Journal of Clinical Epidemiology, 44, 313-327.
29. Fruhauf, C. A., Jarrott, S. E., & Allen, K. R. (2006). Grandchildren's perceptions of caring for grandparents. Journal of Family Issues, 27, 887-991.
30. Gibeau, J. L., & Anastas, J. W. (1989). Breadwinners and caregivers: Interviews with working women. Journal of Gerontological Social Work, 14, 19-20.
31. Gignac, M. A. M., Kelloway, E. K., & Gottlieb, B. H. (1996). Impact of caregiving on employment: A mediational model of work-family conflict. Canadian Journal on Aging, 15, 525-542.
32. Gitlin, L. N., Belle, S. H., Burgio, L. D., Czaja, S. J., Mahoney, D., Gallagher-Thompson, D., Ory, M. (2003). Effect of multicomponent interventions on caregiver burden and depression: The REACH multisite initiative at 6-Month follow-up. Psychology and Aging, 18, 361-374.
33. Greenberger, H., & Litwin, H. (2003). Can burdened caregivers be effective facilitators of elder care-recipient health care? Journal of Advanced Nursing, 41, 332-341.
34. Gregory, D. M., Peters, N., & Cameron, C. F. (1990). Elderly male spouses as caregivers: Toward an understanding of their experience. Journal of Gerontological Nursing, 17, 20-24.
35. Grunfeld, E. (1997). Caring for elderly people at home: The consequences to caregivers. Canadian Medical Association Journal, 157, 1101-1105.
36. Haddock, S. A., Zimmerman, T. S., Lyness, K. P., & Ziemba, S. J. (2006). Practices of dual earner couples successfully balancing work and family. Journal of Family and Economic Issues, 27, 207-234.
37. Hayden, M. F., & Heller, T. (1997). Support, problem-solving/coping ability, and personal burden of younger and older caregivers of adults with mental retardation. Mental Retardation, 35, 364-372.
38. Hayman, J. A., Langa, K. M., Kabeto, M. U., Katz, S. J., DeMonner, S. M., Chernew, M. E., Fendrick, A. M. (2001). Estimating the cost of informal caregiving for elderly patients with cancer. Journal of Clinical Oncology, 19, 3219-3225.
39. Hébert, R., Bravo, G., & Preville, M. (2000). Reliability, validity and reference values of the Zarit Burden Interview for assessing informal caregivers of community-dwelling older persons with dementia. Canadian Journal on Aging, 19, 494-507.
40. Hepburn, K. W., Tornatore, J., Center, B., & Ostwald, S. W. (2001). Dementia family caregiver training: Affecting belies about caregiving and caregiver outcomes. Journal of the American Geriatrics Society, 49, 450-457.
41. Hickenbottom, S. L., Fendrick, A. M., Kucher, J. S., Kabeto, M. U., Katz, S. J., & Langa, K. M. (2002). A national study of the quantity and cost of informal caregiving for the elderly with stroke. Neurology, 58, 1754-1759.
42. Himes, C. L., Jordan, A. K., & Farkas, J. I. (1996). Factors influencing parental caregiving by adult women: Variations by care intensity and duration. Research on Aging, 18, 349-370.
43. Hollander, M. J., Liu, G., & Chappell, N. L. (2009). Who cares and how much? The imputed economic contribution to the Canadian healthcare system of middle-aged and older unpaid caregivers providing care to the elderly. Healthcare Quarterly, 12, 42-49.
44. Jutras, S., & Veilleux, F. (1991). Gender roles and care giving to the elderly: An empirical study. Sex Roles, 25, 1-18.
45. Keefe, J. M., & Medjuck, S. (1997). Contribution of long-term economic costs to predicting strain among employed women caregivers. Journal of Women & Aging, 9, 3-25.
46. Kim, S. W., Kim, J. M., Stewart, R., Bae, K. L., Yang, S. J., Shin, H. S., & Yoon, J. S. (2006). Correlates of caregiver burden for Korean elders according to cognitive and functional status. International Journal of Geriatric Psychiatry, 21, 853-861.
47. Knight, B. G., Fox, L. S., & Chou, C. -P. (2000). Factor structure of the Burden Interview. Journal of Clinical Geropsychology, 6, 249-258.
48. Knight, B. G., Longmire, C. V. F., Dave, J., Kim, J. H., & David, S. (2007). Mental health and physical health of family caregivers for persons with dementia: A comparison of African American. Aging & Mental Health, 11, 538-546.
49. Knight, B. G., Robinson, G. S., Longmire, C. V. F., Chun, M., Nakao, K., & Kim, J. H. (2002). Cross-cultural issues in caregiving for persons with dementia: Do familism values reduce burden and distress? Aging International, 27, 70-95.
50. Koenig, T. L. (2005). Caregivers' use of spirituality in ethnical decision making. Journal of Gerontological Social Work, 45, 155-172.
51. Koerner, S. S., & Kenyon, D. B. (2007). Understanding "Good Days" and "Bad Days": Emotional and physical reactivity among caregivers for elder relatives. Family Relations, 56, 1-11.
52. Koh, S. K., & MacDonald, M. (2006). Financial reciprocity and elder care: Interdependent resource transfers. Journal of Family and Economic Issues, 27, 420-436.
53. Koopmanschap, M. A., Van Den Berg, B., Brouwer, W. B. F., & Van Den Bos, G. A. M. (2005). Buren of informal caregiving for stroke patients: Identification of caregivers at risk of adverse health effects. Cerebrovascular Diseases, 19, 11-17.
54. Kosberg, J. I., & Cairl, R. E. (1986). The cost of care index: A case management tool for screening informal care providers. Gerontologist, 26, 273-278.
55. Krach, P., & Brooks, J. A. (1995). Identifying the responsibilities and needs of working adults who are primary caregivers. Journal of Gerontological Nursing, 21, 41-50.
56. Lai, D. W. L. (2007a). Cultural predictors of caregiving burden of Chinese-Canadian family caregivers. Canadian Journal on Aging, 26, 133-147.
57. Lai, D. W. L. (2007b). Validation of the Zarit Burden Interview for Chinese Canadian caregivers. Social Work Research, 31, 45-53.
58. Lai, D. W. L., & Leonenko, W. (2007). Effects of caregiving on employment and economic costs of Chinese family caregivers in Canada. Journal of Family and Economic Issues, 28, 411-428.
59. Lai, D. W. L., Luk, P. K. F., & Andruske, C. L. (2007). Gender differences in caregiving: A case in Chinese Canadian caregivers. Journal of Women & Aging, 19, 161-178.
60. Lai, D. W. L., & Surood, S. (2008). Predictors of depression in aging South Asian Canadians. Journal of Cross-Cultural Gerontology, 23, 57-75.
61. Lai, D. W. L., Tsang, K. T., Chappell, N. L., Lai, D. C. Y., & Chau, S. B. Y. (2007). Relationships between culture and health status: A multi-site study on older Chinese in Canada. Canadian Journal on Aging, 26, 171-184.
62. Langa, K. M., Valenstein, M. A., Fendrick, A. M., Kabeto, M. U., & Vijan, S. (2004). Extent and cost of informal caregiving for older Americans with symptoms of depression. American Journal of Psychiatry, 161, 857-863.
63. Lawrence, J. A., Goodnow, J. J., Woods, K., & Karantzas, G. (2002). Distribution of caregiving tasks among family members: The place of gender and availability. Journal of Family Psychology, 16, 493-509.
64. Lee, M., & Kolomer, S. R. (2005). Caregiver burden, dementia, and elder abuse in South Korea. Journal of Elder Abuse & Neglect, 17, 61-74.
65. Liebig, P. S. (1993). Factors affecting the development of employersponsored eldercare programs: Implications for employed caregivers. Journal of Women & Aging, 5, 59-78.
66. Litz, B. T., Zeiss, A. M., & Davis, H. D. (1990). Sexual concerns of male spouses of female Alzheimer's disease patients. Gerontologist, 30, 113-116.
67. Lubben, J. E. (1988). Assessing social networks among elderly populations. Family & Community Health, 11, 42-52.
68. Lutzky, S. M., & Knight, B. G. (1994). Explaining gender differences in caregiver distress: The roles of emotional attentiveness and coping styles. Psychology and Aging, 9, 513-519.
69. Lyonette, C., & Yardley, L. (2006). Predicting mental health outcomes in female working carers: A longitudinal analysis. Aging & Mental Health, 10, 368-377.
70. Marvadi, M., Mattioli, P., Spazzafumo, L., Mastriforti, R., Rinaldi, P., Polidori, M. C., Bonaiuto, S. (2005). Caregiver Burden Inventory in evaluating the burden of caregivers of elderly demented patients: Results from multicenter study. Aging Clinical and Experimental Research, 17, 46-53.
71. McClendon, M. J., Smyth, K. A., & Neundorfer, M. M. (2004). Survival of persons with Alzheimer's disease: Caregiver coping matters. Gerontologist, 44, 508-519.
72. Meddaugh, D., O'Bryant, S. L., & Straw, L. B. (1991). After effects of Alzheimer's caregiving on widows' health and financial well-being. Journal of Women & Aging, 3, 45-62.
73. Mendez-Luck, C., Kennedy, D., & Wallace, S. (2008). Concepts of burden in giving care to older relatives: A study of female caregivers in Mexico City neighbourhood. Journal of Cross-Cultural Gerontology, 23, 265-282.
74. Metropolitan Life Insurance Company. (1999). The MetLife Juggling Act Study: Balancing caregiving with work and the costs involved. Westport, CT: Author.
75. Mosher, C. E., & Danoff-Burg, S. (2004). Effects of gender and employment status on support provided to caregivers. Sex Roles, 51, 589-596.
76. Neal, M. B., Chapman, N. J., & Ingersoll-Dayton, B. (1988). Elder care, employees, and the workplace: Findings from a survey of employees. Portland, OR: Portland State University, Regional Research Institute for Human Services and Institute on Aging.
77. Nijboer, C., Tempelaar, R., Triemstra, M., van den Bos, G. A., & Sanderman, R. (2001). The role of social and psychologic resources in caregiving of cancer patients. Cancer, 91, 1029-1039.
78. Orel, N. A., Landry-Meyer, L., & Spence, M. A. S. (2007). Women's caregiving careers and retirement financial insecurity. Adultspan Journal, 6, 49-62.
79. Ory, M., Yee, J. L., Tennstedt, S. L., & Schulz, R. (2000). The extent and impact of dementia care: Unique challenges experienced by family caregivers. In R. Schulz (Ed.), Handbook on dementia caregiving: Evidence-based interventions for family caregivers (pp.1-32). New York, NY: Springer.
80. Pakenham, K. I. (2001). Application of a stress and coping model to caregiving in multiple sclerosis. Psychology, Health & Medicine, 6, 13-27.
81. Panda, S. M., & Coleman, B. (2001). The high cost of at-home caregiving. American Journal of Hospice & Palliative Care, 18, 157.
82. Parrish, M. M., & Adams, S. (2003). Caregiver comorbidity and the ability to manage stress. Journal of Gerontological Social Work, 42, 41-58.
83. Parrish, M. M., Satariano, W. A., Freisthler, B., Feinberg, L. F., & Adams, S. (2005). Older women with breast cancer: Caregiving and the risk of depression: An exploratory analysis. Social Work in Health Care, 40, 41-59.
84. Pickett-Schenk, S. A., Bennet, C., Cook, J. A., Steigman, P., Lippincott, R., Villagracia, I., & Grey, D. (2006). Changes in caregiving satisfaction and information needs among relatives of adults with mental illness: Results of a randomized evaluation of a family-led education intervention. American Journal of Orthopsychiatry, 74, 545-553.
85. Prigerson, H. G., Cherlin, E., Chen, J. H., Kasl, S. V., Hurzeler, R., & Bradley, E. H. (2003). Stressful caregiving adult reactions to experiences of dying (SCARED) scale. American Journal of Geriatric Psychiatry, 11, 309-319.
86. Scharlach, A. E., & Boyd, S. L. (1989). Caregiving and employment: Results of an employee survey. Gerontologist, 29, 382-387.
87. Scharlach, A. E., Kellam, R., Ong, N., Baskin, A., Golstein, C., & Fox, P. J. (2006). Cultural attitudes and caregiver service use: Lessons from focus groups with racially and ethnically diverse family caregivers. Journal of Gerontological Social Work, 47, 133-156.
88. Schulz, R., Mendelsohn, A. B., Haley, W. E., Mahoney, D., Allen, R. S., Zhang, S., & Belle, S. H. (2003). End-of-life care and effects of bereavement on family caregivers of persons with dementia. New England Journal of Medicine, 349, 1936-1942.
89. Smerglia, V. L., Miller, N. B., Sotnak, D. L., & Geiss, C. A. (2007). Social support and adjustment to caring for elderly family members: A multi-study analysis. Aging & Mental Health, 11, 205-217.
90. Sörensen, S., & Pinquart, M. (2005). Racial and ethnic differences in the relationship of caregiving stressors, resources, and sociodemographic variables to caregiver depression and perceived physical health. Aging & Mental Health, 9, 482-495.
91. Stephans, S. A., & Christianson, J. B. (1986). Informal care of the elderly. Lexington, MA: Lexington Books.
92. Stoller, E. P., & Pugliesi, K. L. (1989). Other roles of caregivers: Competing responsibilities or supportive resources. Journals of Gerontology, 44, S231-S238.
93. Stolley, J. M., Reed, D., & Buckwalter, K. C. (2002). Caregiving appraisal and interventions based on the progressively lowered stress threshold model. American Journal of Alzheimer's Disease & Other Dementias, 17, 110-120.
94. Stommel, M., Given, C. W., & Given, B. A. (1993). The cost of cancer home care to families. Cancer, 71, 1867-1874.
95. Stone, R. I., Cafferata, G. L., & Sangl, J. (1987). Caregivers of the frail elderly: A national profile. Gerontologist, 27, 616-626.
96. Van Den Wijngaart, M. A. G., Vernooij-Dassen, M. J. F. J., & Felling, A. J. A. (2007). The influence of stressors, appraisal, and personal conditions on the burden of spousal caregivers of persons with dementia. Aging & Mental Health, 11, 626-636.
97. Van Wijgaarden, B., Schene, A. H., & Koeter, M. W. J. (2004). Family caregiving in depression: Impact on caregivers' daily life, distress, and help seeking. Journal of Affective Disorders, 81, 211-222.
98. Wakabayashi, C., & Donato, K. M. (2006). Does caregiving increase poverty among women in later life? Evidence from the health and retirement survey. Journal of Health and Social Behavior, 47, 258-274.
99. Wallace, W. S., Dilworth-Anderson, P., & Goodwin, P. Y. (2003). Caregiver role strain: The contribution of multiple roles and available resources in African-American women. Aging & Mental Health, 7, 103-112.
100. Wallsten, S. S. (2000). Effects of caregiving, gender, and race on the health, mutuality, and social supports of older couples. Journal of Aging and Health, 12, 90-111.
101. White-Means, S. I., & Rubin, R. M. (2004). Trade-offs between formal home health care and informal family caregiving. Journal of Family and Economic Issues, 25, 335-358.
102. Whitlatch, C. J., Zarit, S. H., & von Eye, A. (1991). Efficacy of interventions with caregivers: A reanalysis. Gerontologist, 31, 9-14.
103. Wong, O. M. H. (2005). Gender and intimate caregiving for the elderly in Hong Kong. Journal of Aging Studies, 19, 375-391.
104. Yajima, Y., Tsutsui, T., Nakajima, K., Li, H. Y., Takigawa, T., Wang, D. H., & Ogino, K. (2007). The effects of caregiving resources on the incidence of depression over one year in family caregivers of disabled elderly. Acta Medica Okayama, 61, 71-80.
105. Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist, 20, 649-655.
106. Zhan, H. J. (2005). Social-economic context of parent care: Explaining Chinese caregivers' psychological and emotional well-being. Journal of Gerontological Social Work, 45, 83-100.
107. Zhan, H. J., & Montgomery, R. J. V. (2003). Gender and elder care in China: The influence of filial piety and structural constraints. Gender & Society, 17, 209-229.