"he didn't say that thalassaemia might come up" - β-thalassaemia carriers' experiences and attitudes

Journal of Community Genetics

Volumn 4, Issue 2, 2013, Pages 223-232

  Cousens, Nicole E ^a,b   Gaff, Clara L ^a,b   Metcalfe, Sylvia A ^a,b   Delatycki, Martin B ^a,b,c,d  

^a MURDOCH CHILDREN'S RESEARCH INSTITUTE   (Australia)

^b UNIVERSITY OF MELBOURNE   (Australia)

^c AUSTIN HEALTH   (Australia)

^d ROYAL CHILDREN'S HOSPITAL   (Australia)

Author keywords

Beta thalassaemia; Carrier screening; Consent; Genetic testing; Qualitative research; Screening program

Indexed keywords

ACCESS TO INFORMATION; ARTICLE; AUSTRALIA; BETA THALASSEMIA; DECISION MAKING; FEMALE; GENETIC RISK; GENETIC SCREENING; HETEROZYGOTE; HETEROZYGOTE DETECTION; HUMAN; INFORMED CONSENT; PREGNANT WOMAN; PRENATAL SCREENING; PRIORITY JOURNAL; SEMI STRUCTURED INTERVIEW; THERAPEUTIC MISCONCEPTION;

EID: 84883034831     PISSN: 1868310X     EISSN: 18686001     Source Type: Journal    
DOI: 10.1007/s12687-012-0136-7     Document Type: Article

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