메뉴 건너뛰기




Volumn 2, Issue 2, 2011, Pages 71-79

A holistic approach to education programs in thalassemia for a multi-ethnic population: Consideration of perspectives, attitudes, and perceived needs

Author keywords

Attitudes; Education programs; Multi ethnic population; Needs; Perspectives; Thalassemia

Indexed keywords

ADULT; ARTICLE; ASIAN; ATTITUDE TO ABORTION; ATTITUDE TO ILLNESS; BLOOD EXAMINATION; CONFUSION; CULTURAL FACTOR; ETHNIC GROUP; FEMALE; GENETIC SCREENING; HEALTH BELIEF; HEALTH CARE NEED; HEALTH EDUCATION; HETEROZYGOTE; HOLISTIC CARE; HUMAN; INHERITANCE; MALAYSIA; MALE; MEDICAL EXAMINATION; MEDICAL INFORMATION; PHYSICAL CAPACITY; PRENATAL DIAGNOSIS; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; PUBLIC OPINION; RELIGION; RISK ASSESSMENT; STIGMA; THALASSEMIA MAJOR;

EID: 80051645666     PISSN: 1868310X     EISSN: 18686001     Source Type: Journal    
DOI: 10.1007/s12687-011-0039-z     Document Type: Article
Times cited : (23)

References (32)
  • 1
    • 0034064855 scopus 로고    scopus 로고
    • Prenatal diagnosis of beta-thalassaemia in Pakistan: Experience in a Muslim country
    • DOI 10.1002/(SI CI)1097-0223(20 0005)20:5<37 8::AID-PD81 5>3.0.CO;2-7
    • Ahmed S, Saleem M, Sultana N, Raashid Y, Waqar A, Anwar M, Modell B, Karamat KA, Petrou M (2000) Prenatal diagnosis of beta-thalassemia in Pakistan: experience in a Muslim country. Prenat Diagn 20(5):378-383 (Pubitemid 30261157)
    • (2000) Prenatal Diagnosis , vol.20 , Issue.5 , pp. 378-383
    • Ahmed, S.1    Saleem, M.2    Sultana, N.3    Raashid, Y.4    Waqar, A.5    Anwar, M.6    Modell, B.7    Karamat, K.A.8    Petrou, M.9
  • 2
    • 0037057643 scopus 로고    scopus 로고
    • Screening extended families for genetic hemoglobin disorders in Pakistan
    • Ahmed S, Saleem M, Modell B, Petrou M (2002) Screening extended families for genetic hemoglobin disorders in Pakistan. New Engl J Med 347(15):1162-1168
    • (2002) New Engl J Med , vol.347 , Issue.15 , pp. 1162-1168
    • Ahmed, S.1    Saleem, M.2    Modell, B.3    Petrou, M.4
  • 3
    • 20644466017 scopus 로고    scopus 로고
    • Antenatal thalassaemia carrier testing: Women's perceptions of 'information' and 'consent'
    • DOI 10.1258/0969141053908258
    • Ahmed S, Green J, Hewison J (2005) Antenatal thalassemia carrier testing: women's perceptions of "information" and "consent". J Med Screen 12(2):69-77 (Pubitemid 40835137)
    • (2005) Journal of Medical Screening , vol.12 , Issue.2 , pp. 69-77
    • Ahmed, S.1    Green, J.2    Hewison, J.3
  • 4
    • 33749466083 scopus 로고    scopus 로고
    • The influence of faith and religion and the role of religious and community leaders in prenatal decisions for sickle cell disorders and thalassaemia major
    • DOI 10.1002/pd.1507
    • Ahmed S, Atkin K, Hewison J, Green J (2006a) The influence of faith and religion and the role of religious and community leaders in prenatal decisions for sickle cell disorders and thalassemia major. Prenat Diagn 26(9):801-809 (Pubitemid 44519653)
    • (2006) Prenatal Diagnosis , vol.26 , Issue.9 , pp. 801-809
    • Ahmed, S.1    Atkin, K.2    Hewison, J.3    Green, J.4
  • 5
    • 33645397151 scopus 로고    scopus 로고
    • Attitudes towards prenatal diagnosis and termination of pregnancy for thalassemia in pregnant Pakistani women in the North of England
    • Ahmed S, Green JM, Hewison J (2006b) Attitudes towards prenatal diagnosis and termination of pregnancy for thalassemia in pregnant Pakistani women in the North of England. Prenat Diagn 26(3):248-257
    • (2006) Prenat Diagn , vol.26 , Issue.3 , pp. 248-257
    • Ahmed, S.1    Green, J.M.2    Hewison, J.3
  • 7
    • 0034927337 scopus 로고    scopus 로고
    • Attitude of Saudi families affected with hemoglobinopathies towards prenatal screening and abortion and the influence of religious ruling (Fatwa)
    • DOI 10.1002/pd.76
    • Alkuraya FS, Kilani RA (2001) Attitude of Saudi families affected with hemoglobinopathies towards prenatal screening and abortion and the influence of religious ruling (Fatwa). Prenat Diagn 21(6):448-451 (Pubitemid 32666615)
    • (2001) Prenatal Diagnosis , vol.21 , Issue.6 , pp. 448-451
    • Alkuraya, F.S.1    Kilani, R.A.2
  • 9
    • 26044459928 scopus 로고    scopus 로고
    • Comparing knowledge of β-thalassemia in samples of Italians, Italian-Americans, and non-Italian-Americans
    • DOI 10.1007/s10897-005-1123-5
    • Armeli C, Robbins SJ, Eunpu D (2005) Comparing knowledge of beta-thalassemia in samples of Italians, Italian-Americans, and non-Italian-Americans. J Genet Couns 14(5):365-376 (Pubitemid 41407043)
    • (2005) Journal of Genetic Counseling , vol.14 , Issue.5 , pp. 365-376
    • Armeli, C.1    Robbins, S.J.2    Eunpu, D.3
  • 10
    • 0034964422 scopus 로고    scopus 로고
    • Living a 'normal' life: Young people coping with thalassaemia major or sickle cell disorder
    • DOI 10.1016/S0277-9536(00)00364-6, PII S0277953600003646
    • Atkin K, Ahmad WI (2001) Living a "normal" life: young people coping with thalassemia major or sickle cell disorder. Soc Sci Med 53:615-626 (Pubitemid 32611682)
    • (2001) Social Science and Medicine , vol.53 , Issue.5 , pp. 615-626
    • Atkin, K.1    Ahmad, W.I.U.2
  • 11
    • 0031729528 scopus 로고    scopus 로고
    • Screening and counselling for sickle cell disorders and thalassaemia: The experience of parents and health professionals
    • DOI 10.1016/S0277-9536(98)00261-5, PII S0277953698002615
    • Atkin K, Ahmad WI, Anionwu EN (1998) Screening and counselling for sickle cell disorders and thalassemia: the experience of parents and health professionals. Soc Sci Med 47(11):1639-1651 (Pubitemid 28545389)
    • (1998) Social Science and Medicine , vol.47 , Issue.11 , pp. 1639-1651
    • Atkin, K.1    Ahmad, W.I.U.2    Anionwu, E.N.3
  • 12
    • 0000851710 scopus 로고
    • The health belief model and personal health behavior
    • Becker MH (1974) The health belief model and personal health behavior. Health Educ Monogr 2(4):324-473
    • (1974) Health Educ Monogr , vol.2 , Issue.4 , pp. 324-473
    • Becker, M.H.1
  • 13
    • 33749258721 scopus 로고    scopus 로고
    • 'Rakter dosh'-corrupting blood: The challenges of preventing thalassemia in Bengal, India
    • DOI 10.1016/j.socscimed.2006.06.031, PII S027795360600342X
    • Chattopadhyay S (2006) 'Rakter dosh'-corrupting blood: the challenges of preventing thalassemia in Bengal, India. Soc Sci Med 63(10):2661-2673 (Pubitemid 44485279)
    • (2006) Social Science and Medicine , vol.63 , Issue.10 , pp. 2661-2673
    • Chattopadhyay, S.1
  • 15
    • 37249053409 scopus 로고    scopus 로고
    • The impact of ethical beliefs on decisions about prenatal screening tests: Searching for justification
    • DOI 10.1016/j.socscimed.2007.10.010, PII S0277953607005321
    • Garcia E, Timmermans DR, van Leeuwen E (2008) The impact of ethical beliefs on decisions about prenatal screening tests: searching for justification. Soc Sci Med 66(3):753-764 (Pubitemid 350266954)
    • (2008) Social Science and Medicine , vol.66 , Issue.3 , pp. 753-764
    • Garcia, E.1    Timmermans, D.R.M.2    Van Leeuwen, E.3
  • 16
    • 80051607816 scopus 로고    scopus 로고
    • Thalassemia carrier diagnosis in Malaysia. Thalassemia diagnostic services (ThalDS)
    • Kuala Lumpur
    • George E (1998) thalassemia carrier diagnosis in Malaysia. thalassemia diagnostic services (ThalDS). SP-Muda Printing Sdn Bhd. Kuala Lumpur
    • (1998) SP-Muda Printing Sdn Bhd
    • George, E.1
  • 17
    • 0032547518 scopus 로고
    • Thalassemia in Britain: A tale of two communities
    • Gill PS, Modell B (1988) thalassemia in Britain: a tale of two communities. Br Med J 317:761-762
    • (1988) Br Med J , vol.317 , pp. 761-762
    • Gill, P.S.1    Modell, B.2
  • 18
    • 73649121687 scopus 로고    scopus 로고
    • Cascade screening for β-thalassemia: A practical approach for identifying and counseling carriers in India
    • Gorakshakar AC, Colah RB (2009) Cascade screening for β-thalassemia: a practical approach for identifying and counseling carriers in India. Indian J Community Med 34(4):354-356
    • (2009) Indian J Community Med , vol.34 , Issue.4 , pp. 354-356
    • Gorakshakar, A.C.1    Colah, R.B.2
  • 19
    • 80051637145 scopus 로고    scopus 로고
    • Health belief model teaching program for thalassemia education in high school students
    • Lagampan S, Lapvongwatana P, Tharapan C, Nonthikorn J (2004) Health belief model teaching program for thalassemia education in high school students. Chula Med Journal 48(11):725-735
    • (2004) Chula Med Journal , vol.48 , Issue.11 , pp. 725-735
    • Lagampan, S.1    Lapvongwatana, P.2    Tharapan, C.3    Nonthikorn, J.4
  • 20
    • 0033608822 scopus 로고    scopus 로고
    • Thalassemia among Asians in Britain
    • Lakhani N (1999) thalassemia among Asians in Britain. Br Med J 318 (7187):873
    • (1999) Br Med J , vol.318 , Issue.7187 , pp. 873
    • Lakhani, N.1
  • 21
    • 0018894923 scopus 로고
    • Effect of introducing antenatal diagnosis on reproductive behaviour of families at risk for thalassaemia major
    • Modell B, Ward RH, Fairweather DV (1980) Effect of introducing antenatal diagnosis on reproductive behaviour of families at risk for thalassemia major. Br Med J 280(6228):1347-1350 (Pubitemid 10124274)
    • (1980) British Medical Journal , vol.280 , Issue.6228 , pp. 1347-1350
    • Modell, B.1    Ward, R.H.T.2    Fairweather, D.V.I.3
  • 23
    • 0025542238 scopus 로고
    • Antenatal diagnosis. How to deliver a comprehensive service in the United Kingdom
    • Petrou M, Modell B, Darr A, Old J, Kin E, Weatherall D (1990) Antenatal diagnosis. How to deliver a comprehensive service in the United Kingdom. Ann NY Acad Sci 612:251-263
    • (1990) Ann NY Acad Sci , vol.612 , pp. 251-263
    • Petrou, M.1    Modell, B.2    Darr, A.3    Old, J.4    Kin, E.5    Weatherall, D.6
  • 24
    • 8744272457 scopus 로고    scopus 로고
    • Iranian national thalassemia screening program
    • Samavat A, Modell B (2004) Iranian national thalassemia screening program. Br Med J 329:1135-1137
    • (2004) Br Med J , vol.329 , pp. 1135-1137
    • Samavat, A.1    Modell, B.2
  • 25
    • 0346364573 scopus 로고    scopus 로고
    • Thalassaemia control by carrier screening: The Indian scenario
    • Saxena A, Phadke SR (2002) thalassemia control by carrier screening: the Indian scenario. Curr Sci 83(3):291-295 (Pubitemid 135714062)
    • (2002) Current Science , vol.83 , Issue.3 , pp. 291-295
    • Saxena, A.1    Phadke, S.R.2
  • 26
    • 19944428855 scopus 로고    scopus 로고
    • Molecular defects in the β-globin gene identified in different ethnic groups/populations during prenatal diagnosis for β-thalassemia: A Malaysian experience
    • DOI 10.1007/s10238-004-0048-x
    • Tan JAMA, Tan KL, George E, Chow TWP, Tan PC, Hassan J, Chia P, Subramanium R, Chandran R, Yap SF (2004) Molecular defects in the β-globin gene identified in different ethnic groups/populations during prenatal diagnosis for β-thalassemia-a Malaysian experience. Clin Exp Med 4(3):142-147 (Pubitemid 40100909)
    • (2004) Clinical and Experimental Medicine , vol.4 , Issue.3 , pp. 142-147
    • Tan, J.A.M.A.1    George, E.2    Tan, K.L.3    Chow, T.4    Tan, P.C.5    Hassan, J.6    Chia, P.7    Subramanium, R.8    Chandran, R.9    Yap, S.F.10
  • 27
    • 33749186191 scopus 로고    scopus 로고
    • Characterisation and confirmation of rare beta-thalassaemia mutations in the Malay, Chinese and Indian ethnic groups in Malaysia
    • DOI 10.1080/00313020600922538, PII H841502X5437X215
    • Tan JAMA, Chin PS, Wong YC, Tan KL, Chan LL, George E (2006) Characterisation and confirmation of rare β-thalassemia mutations in the Malay, Chinese and Indian ethnic groups in Malaysia. Pathology 38(5):437-441 (Pubitemid 44477593)
    • (2006) Pathology , vol.38 , Issue.5 , pp. 437-441
    • Tan, J.A.M.A.1    Chin, P.S.2    Wong, Y.C.3    Tan, K.L.4    Chan, L.L.5    George, E.6
  • 29
    • 22344441995 scopus 로고    scopus 로고
    • The global problem of genetic disease
    • DOI 10.1080/03014460500075480
    • Weatherall DJ (2005) The global problem of genetic disease. Ann Hum Biol 32:117-122 (Pubitemid 40995611)
    • (2005) Annals of Human Biology , vol.32 , Issue.2 , pp. 117-122
    • Weatherall, D.J.1
  • 30
    • 73449139750 scopus 로고    scopus 로고
    • Molecular characterization of hemoglobin constant spring and hemoglobin quong sze by combine-amplification refractory mutation system
    • Wee YC, Tan KL, Chua KH, George E, Tan JAMA (2009) Molecular characterization of Hemoglobin Constant Spring and Hemoglobin Quong Sze by combine-amplification refractory mutation system. Malays J Med Sci 16(3):23-30
    • (2009) Malays J Med Sci , vol.16 , Issue.3 , pp. 23-30
    • Wee, Y.C.1    Tan, K.L.2    Chua, K.H.3    George, E.4    Jama, T.5
  • 31
    • 67650708862 scopus 로고    scopus 로고
    • Preventing cervical cancer through human papillomavirus vaccination: Perspective from focus group
    • Wong LP (2009) Preventing cervical cancer through human papillomavirus vaccination: perspective from focus group. J Low Genit Tract Dis 13(2):85-93
    • (2009) J Low Genit Tract Dis , vol.13 , Issue.2 , pp. 85-93
    • Wong, L.P.1
  • 32
    • 0030957740 scopus 로고    scopus 로고
    • Acceptance of first-trimester prenatal diagnosis for the haemoglobinopathies in Lebanon
    • DOI 10.1002/(S ICI)1097-0223(19 9705)17:5<423::A ID-PD68>3.0.CO;2-P
    • Zahed L, Bou-Dames J (1997) Acceptance of first-trimester prenatal diagnosis for the haemoglobinopathies in Lebanon. Prenat Diagn 17(5):423-428 (Pubitemid 27212084)
    • (1997) Prenatal Diagnosis , vol.17 , Issue.5 , pp. 423-428
    • Zahed, L.1    Bou-Dames, J.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.