Validation and evaluation of the German Brief Index of Lupus Damage (BILD) - A self-reported instrument to record damage in systemic lupus erythematosus

Lupus

Volumn 22, Issue 10, 2013, Pages 1050-1055

  Chehab, G ^a   Sander, O ^a   Richter, J ^a   Acar, H ^a   Vordenbaumen S ^a   Brinks, R ^a   Schneider, M ^a   Fischer Betz, R ^a  

^a HEINRICH HEINE UNIVERSITY   (Germany)

Author keywords

BILD; damage; SDI; self reported instrument; Systemic lupus erythematosus

Indexed keywords

ADULT; AGE; ARTICLE; BRIEF INDEX OF LUPUS DAMAGE; BYPASS SURGERY; CATARACT; CEREBROVASCULAR ACCIDENT; CLINICAL ASSESSMENT TOOL; DISEASE ACTIVITY; DISEASE DURATION; FEMALE; FUNCTIONAL STATUS; GERMANY; HUMAN; HYPOGONADISM; INTERMETHOD COMPARISON; INTERSTITIAL LUNG DISEASE; LANGUAGE; LUPUS DAMAGE INDEX QUESTIONNAIRE; MAJOR CLINICAL STUDY; MALE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; OSTEOPOROSIS; OUTCOME ASSESSMENT; PENSION; PRIORITY JOURNAL; PSYCHOSIS; QUESTIONNAIRE; SELF REPORT; SYSTEMIC LUPUS ERYTHEMATOSUS; SYSTEMIC LUPUS ERYTHEMATOSUS DAMAGE INDEX; VALIDATION STUDY;

BILD; DAMAGE; SDI; SELF-REPORTED INSTRUMENT; SYSTEMIC LUPUS ERYTHEMATOSUS;

ADOLESCENT; ADULT; AGED; FEMALE; GERMANY; HUMANS; LUPUS ERYTHEMATOSUS, SYSTEMIC; MALE; MIDDLE AGED; QUESTIONNAIRES; SELF REPORT; SEVERITY OF ILLNESS INDEX;

EID: 84883009738     PISSN: 09612033     EISSN: 14770962     Source Type: Journal    
DOI: 10.1177/0961203313500369     Document Type: Article

References (16)

1. Cervera R, Khamashta MA, Font J, et al. Morbidity and mortality in systemic lupus erythematosus during a 10-year period: A comparison of early and late manifestations in a cohort of 1,000 patients. Medicine (Baltimore). 2003 ; 82: 299-308
2. Urowitz MB, Bookman AA, Koehler BE, Gordon DA, Smythe HA, Ogryzlo MA. The bimodal mortality pattern of systemic lupus erythematosus. Am J Med. 1976 ; 60: 221-225
3. Fischer-Betz R, Schneider M. Connective tissue diseases: Evaluation of clinical response. Rheumatology (Oxford). 2006 ; 45: iii5-7
4. Mosca M, Tani C, Aringer M, et al. European League Against Rheumatism recommendations for monitoring patients with systemic lupus erythematosus in clinical practice and in observational studies. Ann Rheum Dis. 2010 ; 69: 1269-1274
5. Gladman D, Ginzler E, Goldsmith C, et al. The development and initial validation of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology damage index for systemic lupus erythematosus. Arthritis Rheum. 1996 ; 39: 363-369
6. Mok CC, Ho LY, Cheung MY, Yu KL, To CH. Effect of disease activity and damage on quality of life in patients with systemic lupus erythematosus: A 2-year prospective study. Scand J Rheumatol. 2009 ; 38: 121-127
7. Rahman P, Gladman DD, Urowitz MB, Hallett D, Tam LS. Early damage as measured by the SLICC/ACR damage index is a predictor of mortality in systemic lupus erythematosus. Lupus. 2001 ; 10: 93-96
8. Costenbader KH, Khamashta M, Ruiz-Garcia S, et al. Development and initial validation of a self-assessed lupus organ damage instrument. Arthritis Care Res (Hoboken). 2010 ; 62: 559-568
9. Pons-Estel BA, Sánchez-Guerrero J, Romero-Díaz J, et al. Validation of the Spanish, Portuguese and French versions of the Lupus Damage Index questionnaire: Data from North and South America, Spain and Portugal. Lupus. 2009 ; 18: 1033-1052
10. Yazdany J, Trupin L, Gansky SA, et al. Brief index of lupus damage: A patient-reported measure of damage in systemic lupus erythematosus. Arthritis Care Res (Hoboken). 2011 ; 63: 1170-1177
11. Guillemin F. Cross-cultural adaptation and validation of health status measures. Scand J Rheumatol. 1995 ; 24: 61-63
12. Karlson EW, Daltroy LH, Rivest C, et al. Validation of a Systemic Lupus Activity Questionnaire (SLAQ) for population studies. Lupus. 2003 ; 12: 280-286
13. Laustrup H, Voss A, Green A, Junker P. SLE disease patterns in a Danish population-based lupus cohort: An 8-year prospective study. Lupus. 2010 ; 19: 239-246
14. Swaak AJ, van den Brink HG, Smeenk RJ, et al. Systemic lupus erythematosus. Disease outcome in patients with a disease duration of at least 10 years: Second evaluation. Lupus. 2001 ; 10: 51-58
15. Chambers SA, Allen E, Rahman A, Isenberg D. Damage and mortality in a group of British patients with systemic lupus erythematosus followed up for over 10 years. Rheumatology (Oxford). 2009 ; 48: 673-675
16. Urowitz MB, Gladman DD, Ibañez D, et al. Evolution of disease burden over five years in a multicenter inception systemic lupus erythematosus cohort. Arthritis Care Res (Hoboken). 2012 ; 64: 132-137