From silence to storm - patient illness trajectory from diabetes diagnosis to haemodialysis in Taiwan: A qualitative study of patients' perceptions

Journal of Advanced Nursing

Volumn 69, Issue 9, 2013, Pages 1943-1952

  Yu, I Chen ^a,b   Tsai, Yun Fang ^c,d  

^a CHANG GUNG UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Taiwan)

^b CHANG GUNG UNIVERSITY   (Taiwan)

^c CHANG GUNG UNIVERSITY COLLEGE OF MEDICINE   (Taiwan)

^d CHANG GUNG MEMORIAL HOSPITAL   (Taiwan)

Author keywords

Diabetes; Haemodialysis; Illness trajectory; Nurses; Qualitative study

Indexed keywords

ARTICLE; DIABETES MELLITUS; DIABETIC NEPHROPATHY; FEMALE; HEMODIALYSIS; HUMAN; ILLNESS TRAJECTORY; MALE; NURSE; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; RENAL REPLACEMENT THERAPY; TAIWAN;

DIABETES; HAEMODIALYSIS; ILLNESS TRAJECTORY; NURSES; QUALITATIVE STUDY;

DIABETES MELLITUS; DIABETIC NEPHROPATHIES; FEMALE; HUMANS; MALE; QUALITATIVE RESEARCH; RENAL DIALYSIS; TAIWAN;

EID: 84882248902     PISSN: 03092402     EISSN: 13652648     Source Type: Journal    
DOI: 10.1111/jan.12055     Document Type: Article

References (33)

1. Abdoli S., Ashktorab T., Ahmadi F., Parvizi S. & Dunning T. (2008) The empowerment process in people with diabetes: an Iranian perspective. International Nursing Review 55(4), 447-453.
2. American Association of Diabetes Educators (2003) Role of the diabetes educator. Retrieved from http://www.diabeteseducator.org/export/sites/aade/_resources/pdf/ Definition_Diabetes_Educator.pdf on 15 December 2010.
3. Atak N., Gurkan T. & Kose K. (2008) The effect of education on knowledge, self management behaviours and self efficacy of patients with type 2 diabetes. The Australian Journal of Advanced Nursing 26(2), 66-74.
4. Bureau of Health Promotion, Taiwan (2010) Retrieved from http://www.bhp.doh.gov.tw/BHPNet/Web/News/News.aspx?No=201011110001 on 12 January 2012.
5. Bureau of National Health Insurance (2007) Retrieved from http://www.nhi.gov.tw/ resource/Webdata/Attach_15428_1_nhi.pdf on 30 May 2011.
6. Ceriello A. (2009) The metabolic memory. Endocrine Abstracts 20(S15), 2.
7. Chlebowy D.O., Hood S. & LaJoie A.S. (2010) Facilitators and barriers to self-management of type 2 diabetes among urban African American adults: focus group findings. Diabetes Educator 36(6), 897-905.
8. Correa-Rotter R. & Gonzalez-Michaca L. (2005) Early detection and prevention of diabetic nephropathy: a challenge calling for mandatory action for Mexico and the developing world. Kidney International Supplement 98, S69-S75.
9. Department of Health (2010) Retrieved from http://www.doh.gov.tw/CHT2006/DM/DM2_p01.aspx?class_no=25&now_fod_list_no=10978&level_no=2&doc_no=75620 on 8 January 2012.
10. Elo S. & Kyngas H. (2008) The qualitative content analysis process. Journal of Advanced Nursing 62(1), 107-115.
11. Graneheim U.H. & Lundman B. (2004) Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today 24(2), 105-112.
12. Gubrium J.F. & Holstein J.A. (2001) Handbook of Interview Research: Context & Method. Sage, London.
13. Harwood L., Locking-Cusolito H., Spittal J., Wilson B. & White S. (2005) Preparing for hemodialysis: patient stressors and responses. Nephrology Nursing Journal 32(3), 295-302.
14. Ho A.Y.K., Berggren I. & Dahlborg-Lyckhage E. (2010) Diabetes empowerment related to Pender's Health Promotion Model: a meta-synthesis. Nursing & Health Sciences 12(2), 259-267.
15. Indian Health Service (2010). Patient-Provider Communication Toolkit. Retrieved from http://www.ihs.gov/healthcommunications/index.cfm?module=dsp_hc_toolkit on 20 July 2011.
16. Lai W.A. (2005) Communication of illness perception with diabetic patients. Cheng Ching Medical Journal 1(2), 16-25.
17. Lawton J., Rankin D., Peel E. & Douglas M. (2009) Patients' perceptions and experiences of transitions in diabetes care: a longitudinal qualitative study. Health Expectations 12(2), 138-148.
18. Leventhal H., Nerenz D.R. & Steele D.J. (1984) Illness Repre-sentations and Coping With Health Threats. Erlbaum, Hillsdale, NJ.
19. Levin A. (2000) Consequences of late referral on patient outcomes. Nephrology, Dialysis, Transplantation 15(Suppl. 3), 8-13.
20. Lin Y.C. & Yen M.A. (2005) Study of the health care seeking behaviors of chronic kidney disease patients. Journal of Evidence-Based Nursing 1(4), 263-272.
21. Lincoln Y.S. & Guba E.G. (1985) Naturalistic Inquiry. Sage, Newbury Park, CA.
22. Mok E. & Tam B. (2001) Stressors and coping methods among chronic haemodialysis patients in Hong Kong. Journal of Clinical Nursing 10(4), 503-511.
23. Oldenburg B., Macdonald G.J. & Perkins R.J. (1988) Prediction of quality of life in a cohort of end-stage renal disease patients. Journal of Clinical Epidemiology 41(6), 555-564.
24. Roderick P., Jones C., Tomson C. & Mason J. (2002) Late referral for dialysis: improving the management of chronic renal disease. QJM: Monthly Journal of the Association of Physicians 95(6), 363-370.
25. Rossing P., Hougaard P., Borch-Johnsen K. & Parving H.H. (1996) Predictors of mortality in insulin dependent diabetes: 10 year observational follow up study. British Medical Journal 313(7060), 779-784.
26. Sandelowski M. (2000) Whatever happened to qualitative description? Research in Nursing & Health 23(4), 334-340.
27. Sousa V.D., Hartman S.W., Miller E.H. & Carroll M.A. (2009) New measures of diabetes self-care agency, diabetes self-efficacy and diabetes self-management for insulin-treated individuals with type 2 diabetes. Journal of Clinical Nursing 18(9), 1305-1312.
28. Taillefer T.L. (2008) Nurses and dietitians collaborating to impact nutrition and diabetes mellitus management issues for patients with type 2 diabetes mellitus on hemodialysis. Nephrology Nursing Journal 35(5), 503-505.
29. Tang Y.H., Pang S.M.C., Chan M.F., Yeung G.S.P. & Yeung V.T.F. (2008) Health literacy, complication awareness and diabetic control in patients with type 2 diabetes mellitus. Journal of Advanced Nursing 62(1), 74-83.
30. United States Renal Data System Annual Data Report (2009)Retrieved from http://www.usrds. org/2009/pdf/V2_12_09.pdf on 15 December 2011.
31. Yang L.C. & Lin C.C. (2010) Using the illness representation model to provide care for a patient with diabetic nephropathy. The Journal of Nursing 57(3), 105-110.
32. Yang W.C., Hwang S.J., Chiang S.S., Chen H.F. & Tsai S.T. (2001) The impact of diabetes on economic costs in dialysis patients: experiences in Taiwan. Diabetes Research and Clinical Practice 54(Suppl. 1), S47-S54.
33. Youngman S. (2004) The developing role of the renal diabetes nurse. EDTNA/ERCA Journal 30(3), 169-172.