Health-related quality of life among Norwegian children and adolescents with type 1 diabetes on intensive insulin treatment: A population-based study

Acta Paediatrica, International Journal of Paediatrics

Volumn 102, Issue 9, 2013, Pages 889-895

  Frøisland, Dag Helge ^a,b   Graue, Marit ^c,d   Markestad, Trond ^b,c   Skrivarhaug, Torild ^e,f   Wentzel Larsen, Tore ^g,h   Dahl Jørgensen, Knut ^e,f,i  

^a INLAND NORWAY UNIVERSITY OF APPLIED SCIENCES   (Norway)

^b INNLANDET HOSPITAL TRUST   (Norway)

^c UNIVERSITY OF BERGEN   (Norway)

^d BERGEN UNIVERSITY COLLEGE   (Norway)

^e OSLO UNIVERSITY HOSPITAL   (Norway)

^f Oslo Diabetes Research Centre   (Norway)

^g ULLEVÅL UNIVERSITY HOSPITAL   (Norway)

^h Norwegian Centre for Violence and Traumatic Stress Studies   (Norway)

ⁱ UNIVERSITY OF OSLO   (Norway)

Author keywords

Adolescent; Diabetes mellitus type 1; Health related quality of life; Insulin administration dosage; Metabolic control

Indexed keywords

HEMOGLOBIN A1C; INSULIN DERIVATIVE; LONG ACTING INSULIN;

ADOLESCENT; ARTICLE; BLOOD GLUCOSE MONITORING; CHILD; COMORBIDITY; DIABETIC KETOACIDOSIS; DISEASE DURATION; ECONOMIC ASPECT; EDUCATION; EMOTION; FEMALE; HUMAN; HYPOGLYCEMIA; INDEPENDENCE; INSULIN DEPENDENT DIABETES MELLITUS; INSULIN INFUSION; INSULIN PUMP; INSULIN TREATMENT; MAJOR CLINICAL STUDY; MALE; MARRIAGE; METABOLIC REGULATION; NORWAY; PHYSICAL ACTIVITY; PRIORITY JOURNAL; QUALITY OF LIFE; SCHOOL CHILD; SELF CARE; SOCIAL EXCLUSION;

ADOLESCENT; DIABETES MELLITUS TYPE 1; HEALTH-RELATED QUALITY OF LIFE; INSULIN/ADMINISTRATION & DOSAGE; METABOLIC CONTROL;

ADOLESCENT; AGE FACTORS; BODY MASS INDEX; CHILD; CROSS-SECTIONAL STUDIES; DIABETES MELLITUS, TYPE 1; DOSE-RESPONSE RELATIONSHIP, DRUG; DRUG ADMINISTRATION SCHEDULE; FEMALE; FOLLOW-UP STUDIES; HEMOGLOBIN A, GLYCOSYLATED; HUMANS; INJECTIONS, SUBCUTANEOUS; INSULIN; INSULIN INFUSION SYSTEMS; MALE; NORWAY; QUALITY OF LIFE; QUESTIONNAIRES; RISK ASSESSMENT; SEX FACTORS; SICKNESS IMPACT PROFILE;

EID: 84881315217     PISSN: 08035253     EISSN: 16512227     Source Type: Journal    
DOI: 10.1111/apa.12312     Document Type: Article

References (31)

1. Swediabkids Nrfou. Annual report 2011. Gothenborg; 2013.
2. Icks A, Razum O, Rosenbauer J, Bächle C, Mönkemöller K, Müller-Godeffroy E, et al. Lower frequency of insulin pump treatment in children and adolescents of Turkish background with type 1 diabetes: analysis of 21,497 patients in Germany. Diabetes Technol Ther 2012; 14: 1105-9.
3. Delamater AM,. Psychological care of children and adolescents with diabetes. Pediatr Diabetes 2009; 10: 175-84.
4. Delamater AM, Jacobson AM, Anderson B, Cox D, Fisher L, Lustman P, et al. Psychosocial therapies in diabetes-report of the psychosocial therapies working group. Diabetes Care 2001; 24: 1286-92.
5. Grey M, Davidson M, Boland EA, Tamborlane WV,. Clinical and psychosocial factors associated with achievement of treatment goals in adolescents with diabetes mellitus. J Adolesc Health 2001; 28: 377-85.
6. Guthrie DW, Bartsocas C, Jarosz-Chabot P, Konstantinova M,. Psychosocial issues for children and adolescents with diabetes: overview and recommendations. Diabetes Spectr 2003; 16: 7-12.
7. Schiffrin A,. Psychosocial issues in pediatric diabetes [Review] [38 refs]. Curr DiabRep 2001; 1: 33-40.
8. Cameron FJ, Smidts D, Hesketh K, Wake M, Northam EA,. Early detection of emotional and behavioural problems in children with diabetes: the validity of the Child Health Questionnaire as a screening instrument. Diabet Med 2003; 20: 646-50.
9. Bullinger M, Schmidt S, Petersen C,. Assessing quality of life of children with chronic health conditions and disabilities: a European approach. Int J Rehabil Res 2002; 25: 197-206.
10. Wagner VM, Müller-Godeffroy E, von Sengbusch S, Häger S, Thyen U,. Age, metabolic control and type of insulin regime influences health-related quality of life in children and adolescents with type 1 diabetes mellitus. Eur J Pediatr 2005; 164: 491-6.
11. Hoey H, Aanstoot HJ, Chiarelli F, Daneman D, Danne T, Dorchy H, et al. Good metabolic control is associated with better quality of life in 2, 101 adolescents with type 1 diabetes. Diabetes Care 2001; 24: 1923-8.
12. Chaplin JE, Hanas R, Lind A, Tollig H, Wramner N, Lindblad B,. Assessment of childhood diabetes-related quality-of-life in West Sweden. Acta Paediatr 2009; 98: 361-6.
13. Hanberger L, Ludvigsson J, Nordfeldt S,. Health-related quality of life in intensively treated young patients with type 1 diabetes. Pediatr Diabetes 2009; 10: 374-81.
14. Sànchez-Lòpez M, Salcedo-Aguilar F, Solera-Martinez M, Moya-Martinez P, Notario-Pacheco B, Martinez-Vizcaino V,. Physical activity and quality of life in schoolchildren aged 11-13 years of Cuenca, Spain. Scand J Med Sci Sports 2009; 19: 879-84.
15. Valenzuela JM, Patino AM, McCullough J, Ring C, Sanchez J, Eidson M, et al. Insulin pump therapy and health-related quality of life in children and adolescents with type 1 diabetes. J Pediatr Psychol 2006; 31: 650-60.
16. Stahl A, Strassburger K, Lange K, Bñchle C, Holl RW, Giani G, et al. Health-related quality of life among German youths with early-onset and long-duration type 1 diabetes. Diabetes Care 2012; 35: 1736-42.
17. Froisland DH, Markestad T, Wentzel-Larsen T, Skrivarhaug T, Dahl-Jørgensen K, Graue M,. Reliability and validity of the Norwegian child and parent versions of the DISABKIDS chronic generic module (DCGM-37) and diabetes-specific module (DSM-10). Health Qual Life Outcomes 2012; 10: 19.
18. The DISABKIDS Group. Translation & Validation Procedure Guidelines and Documentation Form. 2000.
19. Osoba D, Bezjak A, Brundage M, Zee B, Tu D, Pater J,. Analysis and interpretation of health-related quality-of-life data from clinical trials: basic approach of The National Cancer Institute of Canada Clinical Trials Group. Eur J Cancer 2005; 41: 280-7.
20. Guttmann-Bauman I, Flaherty BP, Strugger M, McEvoy RC,. Metabolic control and quality-of-life self-assessment in adolescents with IDDM. Diabetes Care 1998; 21: 915-8.
21. Kalyva E, Malakonaki E, Eiser C, Mamoulakis D,. Health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): self and parental perceptions. Pediatr Diabetes 2011; 12: 34-40.
22. Williams C,. Doing health, doing gender: teenagers, diabetes and asthma [Review] [31 refs]. Soc Sci Med 2000; 50: 387-96.
23. Lawrence JM, Yi-Frazier JP, Black MH, Anderson A, Hood K, Imperatore G, et al. Demographic and clinical correlates of diabetes-related quality of life among youth with type 1 diabetes. J Pediatr 2012; 161: 201-7.
24. Whittemore R, Urban AD, Tamboriane WV, Grey M,. Quality of life in school-aged children with type 1 diabetes on intensive treatment and their parents. Diabetes Educ 2003; 29: 847-54.
25. Churchill JN, Ruppe RL, Smaldone A,. Use of continuous insulin infusion pumps in young children with type 1 diabetes: a systematic review. J Pediatr Health Care 2009; 23: 173-9.
26. Blair JC, Peak M, Gregory JW,. What is the best way to deliver subcutaneous insulin to infants, children, and young people with type 1 diabetes mellitus? BMJ 2011; 343: d 5221.
27. Graue M, Wentzel-Larsen T, Hanestad BR, Batsvik B, Sovik O,. Measuring self-reported, health-related, quality of life in adolescents with type 1 diabetes using both generic and disease-specific instruments. Acta Paediatr 2003; 92: 1190-6.
28. Grey M,. Interventions for children with diabetes and their families [Review] [79 refs]. Annu Rev Nurs Res 2000; 18: 149-70.
29. Northam EA, Lin A, Finch S, Werther GA, Cameron FJ,. Psychosocial well-being and functional outcomes in youth with type 1 diabetes 12 years after disease onset. Diabetes Care 2010; 33: 1430-7.
30. Haugstvedt A, Wentzel-Larsen T, Rokne B, Graue M,. Perceived family burden and emotional distress: similarities and differences between mothers and fathers of children with type 1 diabetes in a population-based study. Pediatr Diabetes 2011; 12: 107-14.
31. Frøisland DH, Årsand E, Skårderud F,. Improving diabetes care for young people with type 1 diabetes through visual learning on mobile phones: mixed-methods study. J Med Internet Res 2012; 14: e 111.