Comparison of proxy ratings of main family caregivers and physicians on the quality of dying of terminally III cancer patients

Japanese Journal of Clinical Oncology

Volumn 43, Issue 8, 2013, Pages 795-804

  Cheng, Shao Yi ^a   Dy, Sydney ^b   Huang, Sin Bao ^a   Chen, Ching Yu ^a   Chiu, Tai Yuan ^a  

^a NATIONAL TAIWAN UNIVERSITY   (Taiwan)

^b JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

Author keywords

Hospice; Palliative care; Proxy rating; Psycho oncology; Quality of dying

Indexed keywords

ANXIETY; ARTICLE; AUDIT SCALE; BEREAVEMENT; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CAREGIVER; COMPARATIVE STUDY; DEPRESSION; GOOD DEATH SCALE; HUMAN; INTERVIEW; MEDICAL AUDIT; MEDICAL DECISION MAKING; NONVERBAL COMMUNICATION; PATIENT SATISFACTION; PHYSICIAN; PREVALENCE; PROSPECTIVE STUDY; PSYCHOLOGICAL ASPECT; RATING SCALE; SOCIAL SUPPORT; TAIWAN; TERMINALLY ILL PATIENT; VERBAL COMMUNICATION;

HOSPICE; PALLIATIVE CARE; PROXY RATING; PSYCHO-ONCOLOGY; QUALITY OF DYING;

ADULT; AGED; ANXIETY; CAREGIVERS; DEATH; DEPRESSION; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PATIENTS; PHYSICIANS; PROSPECTIVE STUDIES; PROXY; QUALITY OF LIFE; TAIWAN; TERMINAL CARE; TERMINALLY ILL;

EID: 84881112788     PISSN: 03682811     EISSN: 14653621     Source Type: Journal    
DOI: 10.1093/jjco/hyt085     Document Type: Article

References (21)

1. Fowler FJ Jr, Coppola KM, Teno JM. Methodological challenges for measuring quality of care at the end of life. J Pain Symptom Manage 1999;17:114-9.
2. Higginson I, Priest P, McCarthy M. Are bereaved family members a valid proxy for a patient's assessment of dying? Soc Sci Med 1994;38:553-7.
3. McPherson CJ, Addington-Hall JM. Evaluating palliative care: bereaved family members' evaluations of patients' pain, anxiety and depression. J Pain Symptom Manage 2004;28:104-14.
4. Kutner JS, Bryant LL, Beaty BL, Fairclough DL. Symptom distress and quality-of-life assessment at the end of life: the role of proxy response. J Pain Symptom Manag 2006;32:300-10.
5. Milne DJ, Mulder LL, Beelen HC, Schofield P, Kempen GI, Aranda S. Patients' self-report and family caregivers' perception of quality of life in patients with advanced cancer: how do they compare? Eur J Cancer Care (Engl) 2006;15:125-32.
6. Bakitas M, Ahles TA, Skalla K, et al. Proxy perspectives regarding endof-life care for persons with cancer. Cancer 2008;112:1854-61.
7. Jones JM, McPherson CJ, Zimmermann C, Rodin G, Le LW, Cohen SR. Assessing agreement between terminally ill cancer patients' reports of their quality of life and family caregiver and palliative care physician proxy ratings. J Pain Symptom Manage 2011;42:354-65.
8. To TH, Ong WY, Rawlings D, Greene A, Currow DC. The disparity between patient and nurse symptom rating in a Hospice population. J Palliat Med 2012;15:542-7.
9. Weisman AD. Appropriate death and the hospice program. Hospice J 1988;4:65-77.
10. Yao CA, Hu WY, Lai YF, Cheng SY, Chen CY, Chiu TY. Does dying at home influence the good death of terminal cancer patients? J Pain Symptom Mange 2007;34:497-504.
11. Cheng SY, Hu WY, Liu WJ, Yao CA, Chen CY, Chiu TY. Good death study of elderly patients with terminal cancer in Taiwan. Palliat Med 2008;22:626-32.
12. Cheng SY, Dy S, Hu WY, Chen CY, Chiu TY. Factors affecting the improvement of quality of dying of terminally ill cancer patients through palliative care: A ten-year experience. J Palliat Med 2012;15:854-62.
13. Teno JM, Clarridge B, Casey V, Edgman-Levitan S, Fowler J. Validation of toolkit after-death bereaved family member interview. J Pain Symptom Manage 2001;22:752-8.
14. Akazawa T, Akechi T, Morita T, et al. Self-perceived burden in terminally ill cancer patients: a categorization of care strategies based on bereaved family members' perspectives. J Pain Symptom Manage 2010;40:224-34.
15. Viera AJ, Garrett JM. Understanding interobserver agreement: the kappa statistic. Fam Med 2005;37:360-3.
16. Feinstein AR, Cicchetti DV. High agreement but low kappa: I. The problems of two paradoxes. J Clin Epidemiol 1990;43:543-9.
17. Cicchetti DV, Feinstein AR. High agreement but low kappa: II. Resolving the paradoxes. J Clin Epidemiol. 1990;43:551-8.
18. Byrt T, Bishop J, Carlin JB. Bias, prevalence and kappa. J Clin Epidemiol 1993;46:423-9.
19. Bachner YG, O'Rourke N, Davidov E, Carmel S. Mortality communication as a predictor of psychological distress among family caregivers of home hospice and hospital inpatients with terminal cancer. Aging Ment Health 2009;13:54-63.
20. Morita T, Akechi T, Ikenaga M, et al. Communication about the ending of anticancer treatment and transition to palliative care. Ann Oncol 2004;15:1551-7.
21. Tong KL, Spicer BJ. The Chinese palliative patient and family in North America: a cultural perspective. J Palliat Care 1994;10:26-8.