Patients' self-report and family caregivers' perception of quality of life in patients with advanced cancer: How do they compare?

European Journal of Cancer Care

Volumn 15, Issue 2, 2006, Pages 125-132

  Milne, D J ^a,c   Mulder, L L ^b   Beelen, H C M ^b   Schofield, P ^c   Kempen, G I J M ^b   Aranda, S ^a  

^a UNIVERSITY OF MELBOURNE   (Australia)

^b MAASTRICHT UNIVERSITY   (Netherlands)

^c PETER MACCALLUM CANCER CENTRE   (Australia)

Author keywords

Advanced cancer; Caregivers' perceptions; Patients' self report; Quality of life

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CAREGIVER; COMPARATIVE STUDY; CUSTODY; EVALUATION; FAMILY; FEMALE; HUMAN; MALE; MIDDLE AGED; NEOPLASM; PROSPECTIVE STUDY; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; TUMOR RECURRENCE;

ADOLESCENT; ADULT; AGED; CAREGIVERS; FAMILY; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASM RECURRENCE, LOCAL; NEOPLASMS; PROSPECTIVE STUDIES; PROXY; QUALITY OF LIFE;

EID: 33645718209     PISSN: 09615423     EISSN: 13652354     Source Type: Journal    
DOI: 10.1111/j.1365-2354.2005.00639.x     Document Type: Article

References (24)

1. Aaronson NK. Ahmedzai S. Bergman B. Bullinger M. Cull A. Duez NJ. Filiberti A. Flechtner H. Fleishman SB. de Haes JCJM. Kaasa S. Klee M. Osoba D. Razavi D. Rofe PB. Schraub S. Sneeuw K. Sullivan M. Takeda F. 1993 The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology Journal of the National Cancer Institute 85 365 376
2. Aaronson NK. Cull AM. Kaassa S. Sprangers MAG. 1996 The European Organization for Research and Treatment of Cancer (EORTC) modular approach to quality of life assessment in oncology: an update In Quality of Life and Pharmacoeconomics in Clinical Trials (ed. Spilker B. pp. 179 189 Lippincott-Raven Publishers Philadelphia, PA, USA
3. Blazeby JM. Williams H. Alderson D. Farndon JR. 1995 Observer variation in assessment of quality of life in patients with oesophageal cancer British Journal of Surgery 82 1200 1203
4. Clipp EC. George LK. 1992 Patients with cancer and their spouse caregivers Cancer 69 1074 1079
5. Epstein AM. Hall HA. Tognetti J. Son LH. Conant L. Jr 1989 Using proxies to evaluate quality of life: can they provide valid information about patients' health and satisfaction with medical care? Medical Care 27 91 98
6. Fayers PM. Machin D. 2000 Quality of Life; Assessment, Analysis and Interpretation John Wiley & Sons Chichester, UK.
7. Ganz PA. Haskell CM. Figlin RA. La Soto N. Siau J. 1988 Estimating the quality of life in a clinical trial of patients with metastatic lung cancer using the Karnofsky Performance Status and the Functional Living Index - Cancer Cancer 61 849 856
8. Grootendorst PV. Feeny DH. Furlong W. 1997 Does it matter whom and how you ask? Inter- and intra-rater agreement in the Ontario Health Survey Journal of Clinical Epidemiology 50 127 135
9. Harrington V. Lackey NR. Gates MF. 1996 Needs of caregivers of clinic and hospice cancer patients Cancer Nursing 19 118 125
10. Higginson I. Wade A. McCarthy M. 1990 Palliative care: views of patients and their families British Medical Journal 301 277 281
11. Higginson I. Priest P. McCarthy M. 1994 Are bereaved family members a valid proxy for a patient's assessment of dying? Social Science and Medicine 38 553 557
12. Hjermstad MJ. Fossa SD. Bjordal K. Kaasa S. 1995 Test/retest study of the European Organization for Research and Treatment of Cancer Core Quality of Life Questionnaire Journal of Clinical Epidemiology 13 1249 1254
13. Kaasa S. Bjordal K. Aaronson N. Moum T. Wist E. Hagen S. Kvikstad A. 1995 The EORTC Core Quality of Life Questionnaire (QLQ-C30): validity and reliability when analysed patients treated with palliative radiotherapy European Journal of Cancer 13/14 2260 2263
14. Kristjanson LJ. Nikoletti S. Smith M. Lobchuk M. Pedler P. 1998 Congruence between patients' and family caregivers' perceptions of symptom distress in patients with terminal cancer Journal of Palliative Care 14 24 32
15. Larson PJ. Viele CS. Coleman S. Dibble SL. Cebulski C. 1993 Comparison of perceived symptoms of patients undergoing bone Marrow transplant and the nurses caring for them Oncology Nursing Forum 20 81 87
16. Magaziner J. 1992 The use of proxy respondents in health studies of the aged In The Epidemiologic Study of the Elderly (eds Wallace RB. Woolson RF. pp. 120 129 Oxford University Press New York, USA
17. Magaziner J. Simonsick EM. Kashner TM. Hebel JR. 1988 Patient-proxy response comparability on measures of patient health and functional status Journal of Clinical Epidemiology 41 1065 1074
18. Meeker MA. 2004 Family surrogate decision making at the end of life: seeing them through with care and respect Qualitative Health Research 14 204 225
19. Osoba D. Aaronson N. Zee B. Sprangers M. te Velde A. 1997 Modification of the EORTC QLQ-C30 (version 2.0) based on content validity and reliability testing in large samples of patients with cancer Quality of Life Research 6 103 108
20. Sneeuw KC. Aaronson NK. Osaba S. Muller MJ. Hsu MA. Yung WKA. Brada M. Newlands ES. 1997a The use of significant others as proxy raters of the quality of life of patients with brain cancer Medical Care 35 490 506
21. Sneeuw KC. Aaronson NK. de Haan RJ. Limburg M. 1997b Assessing quality of life after stroke: the value and limitations of proxy ratings Stroke 28 1541 1549
22. Sneeuw KC. Aaronson NK. Sprangers MA. Detmar SB. Wever LD. Schornagel JH. 1998 Comparison of patient and proxy EORTC QLQ-C30 ratings in assessing the quality of life of cancer patients Journal of Clinical Epidemiology 51 617 631
23. Sprangers MAG. Aaronson NK. 1992 The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review Journal of Clinical Epidemiology 45 745 760
24. Weinfurt KP. Trucco SM. Willke RJ. Schulman KA. 2002 Measuring agreement between patient and proxy responses to multidimensional health-related quality-of-life measures in clinical trials: an application of psychometric profile analysis Journal of Clinical Epidemiology 55 608 618