The adolescent and young adult with cancer: State of the art - Psychosocial aspects

Current Oncology Reports

Volumn 15, Issue 4, 2013, Pages 325-331

  Epelman, Claudia L ^a  

^a HOSPITAL SANTA MARCELINA   (Brazil)

Author keywords

Adolescent; Cancer; Optimal Care; Psychosocial aspects; Quality of life; Young Adult

Indexed keywords

ADOLESCENT HEALTH; AGE DISTRIBUTION; AGE SPECIFIC CARE; ARTICLE; BODY IMAGE; CANCER DIAGNOSIS; CANCER PROGNOSIS; CANCER THERAPY; CLINICAL DECISION MAKING; CLINICAL HANDOVER; COGNITION; COPING BEHAVIOR; DISEASE COURSE; DISTRESS SYNDROME; EMOTIONAL STABILITY; FAMILY RELATION; FERTILITY; FRUSTRATION; HEALTH CARE ACCESS; HEALTH CARE NEED; HEALTH CARE QUALITY; HEALTH SERVICE; HUMAN; MALIGNANT NEOPLASTIC DISEASE; MEDICAL EDUCATION; MEDICAL INFORMATION; MEDICAL SPECIALIST; OFF TREATMENT CARE; OVERALL SURVIVAL; PATIENT CARE; PATIENT PARTICIPATION; PATIENT REFERRAL; PEER GROUP; PERSONAL NEEDS; PROFESSIONAL KNOWLEDGE; QUALITY OF LIFE; SEXUAL FUNCTION; SOCIAL INTERACTION; SOCIAL PSYCHOLOGY; SOCIAL SUPPORT; SPIRITUAL CARE; SUPPORT GROUP; SURVIVAL RATE; SYMPTOMATOLOGY; TREATMENT OUTCOME;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADOLESCENT BEHAVIOR; ADULT; DELIVERY OF HEALTH CARE; HUMANS; NEOPLASMS; QUALITY OF LIFE; SOCIAL BEHAVIOR; YOUNG ADULT;

EID: 84880845072     PISSN: 15233790     EISSN: 15346269     Source Type: Journal    
DOI: 10.1007/s11912-013-0324-6     Document Type: Article

References (54)

1. Hamburg BA. Psychosocial development. In: Friedman SB, Fisger MM, Shonberg SK, Alderman EM, editors. Comprehensive adolescent health care. St Louis: Mosby; 1998. p. 38-49.
2. Arnett JJ. Emerging adulthood: a theory of development from the late teens through the twenties. Am Psychol. 2000;55:469-80.
3. Haase JE, Phillips CR. The adolescent/young adult experience. J Pediatr Oncol Nurs. 2004;21:145-9. (Pubitemid 39107623)
4. Zebrack BJ, Chesler MA, Penn A. Psychosocial support. In: Bleyer A, Barr RD, editors. Cancer in adolescents and young adults. Berlin: Springer-Verlag; 2007. p. 375-85.
5. Evans M. Interacting with teenagers with cancer. In: Selby P, Bailey C, editors. Cancer and the adolescent. London: BMJ Publishing Group; 1996. p. 251-63.
6. Oppenheim D. Grandir avec un cancer: Adolescence et cancer. Bruxelles: De Boeck; 2003. p. 39-78.
7. Maguire P. Psychological and psychiatric morbidity. In: Selby P, Bailey C, editors. Cancer and the adolescent. London: BMJ Publishing Group; 1996. p. 136-46.
8. Smith M, Gurney J, Ries LAG, et al. Cancer among adolescents 15-19 years old. In: Ries LAG, Smith MA, Gurney J, editors. Cancer among children and adolescents. Bethesda: NIH Pub; 1999. p. 157-67. n 99-4649.
9. Bleyer A, Albritton KH, Ries LAG, Barr RD. Introduction. In: Bleyer A, Barr RD, editors. Cancer in adolescents and young adults. Berlin: Springer-Verlag; 2007. p. 1-26.
10. Eiser C, Kuperberg A. Psychological support for adolescents and young adults. In: Bleyer A, Barr RD, editors. Cancer in adolescents and young adults. Berlin: Springer-Verlag; 2007. p. 365-73.
11. Cooper LB. Potentially fatal illness. In: Friedman SB, Fisher MM, Shomberg SK, Alderman EM, editors. Comprehensive adolescent health care. St Louis: Mosby; 1998. p. 142-6.
12. Oppenheim D. L' Adolescent cancéreux et la beauté. Adolescence. 1997;15:1109-21.
13. Rowland JH. Developmental stage and adaptation: Child and adolescent model. In: Holland J, Massie J, editors. Handbook of psychosocial oncology. Oxford: Oxford University Press; 1991. p. 519-43.
14. Spinetta JJ, Masera G, Eden T, et al. SIOP Working Committee on Psychosocial Issues in Pediatric Oncology: Refusal, non-compliance, and abandonment of treatment in children and adolescents with cancer. Pediatr Blood Cancer. 2002;38:114-7. (Pubitemid 34113442)
15. Butow P, Palmer S, Pai A, et al. Review of adherence-related issues in adolescents and young adults with cancer. J Clin Oncol. 2010;28:4800-9.
16. Windebank KP, Spinetta JJ. Do as I say or die: compliance in adolescent with cancer. Pediatr Blood Cancer. 2008;50:1099-100. (Pubitemid 351500161)
17. Searle NS, Askins M, Bleyer A. Homebound schooling is the last favorable option for continued education of adolescent cancer patients: a preliminary report. Pediatr Blood Cancer. 2003;40:380-4. (Pubitemid 36514441)
18. Evan EE, Kaufman M, Cook AB, Zeltzer LK. Sexual health and self-esteem in adolescents and young adults with cancer. Cancer. 2006;107:1672-9. (Pubitemid 44537075)
19. Morgan S, Davies S, Palmer S, Plaster M. Sex, drugs, and rock 'n' roll: f childhood cancer survivors caring for adolescents and young adults with cancer. J Clin Oncol. 2010;28:4825-30.
20. Wallace WHB, Anderson RA, Irvine DS. Fertility preservation for young patients with cancer: who is at risk and what can be offered. Lancet Oncol. 2005;6:209-18. (Pubitemid 40450712)
21. Levine J, Canada A, Stern CJ. Fertility preservation in adolescents and young adults with cancer. J Clin Oncol. 2010;28:4831-41.
22. Delaney CH. Rites of passage in adolescence. Adolescence. 1995;30:891-7.
23. Zebrack B, Zeltzer L. Quality of live issues and cancer survivorship. Curr Probl Cancer. 2003;27:198-211. (Pubitemid 36876737)
24. van Dijk EM, van Dulmen-den BE, Kasper GJL, et al. Psychosexual functioning of childhood cancer survivors. Psychooncology. 2008;17:506-11. (Pubitemid 351802760)
25. Evan E, Zeltzer LK. Psychosocial dimensions of cancer in adolescents and young adults. Cancer. 2006;107:1663-71. (Pubitemid 44537074)
26. Tindle D, Denver K, Lilley F. Identity, image, and sexuality in young adults with cancer. Semin Oncol. 2009;36:281-8.
27. Zebrack B. Psychological, social, and behavioral issues for young adults with cancer. Cancer. 2011;117:2289-94.
28. Zebrack BJ, Chesler MA. Health-related worries, self-image and life outlooks of survivors of childhood cancer. Health Social Work. Health Soc Work. 2001;26:245-56. (Pubitemid 33612932)
29. Langeveld NE, Stam H, Grootenhuis MA, Last BF. Quality of life in young adult survivors of childhood cancer. Support Care Cancer. 2002;10:579-600. (Pubitemid 36056257)
30. Koocher GP, O'Malley JE, editors. The Damocles syndrome: Psychological consequences of surviving childhood cancer. New York: McGraw-Hill; 1981.
31. Masten AS. Ordinary magic: resilience processes in development. Am Psychol. 2001;56:227-38. (Pubitemid 33609218)
32. Marsland AL, Ewing LJ, Thompson A. Psychological and social effects of surviving childhood cancer. In: Brown RT, editor. Comprehensive handbook of childhood cancer and sickle cell disease. New York: Oxford University Press; 2006. p. 237-61.
33. Newby WL, Brown RT, Pawletko TM, Gold SH, Whitt JK. Social skills and psychological adjustment of child and adolescent cancer survivors. Psycooncology. 2000;9:113-26. (Pubitemid 30237278)
34. Zebrack B, Bleyer A, Albritton K, et al. Assessing the health care needs of young adult cancer patients and survivors. Cancer. 2006;107:2915-23. (Pubitemid 44937047)
35. Freyer DR. Transition of care for young adult survivors of childhood and adolescent cancer: rationale and approaches. J Clin Oncol. 2010;28:4810-8.
36. Pritchard S, Cuvelier G, Harlos M, Barr R. Palliative care in adolescents and young adults with cancer. Cancer. 2011;117:2323-8.
37. Schrijvers D, Meijnders P. Palliative care in adolescents. Cancer Treat Rev. 2007;33:616-21. (Pubitemid 350047370)
38. Wein S, Pery S, Zer A. Role of palliative care in adolescent and young adult oncology. J Clin Oncol. 2010;28:4819-24.
39. Epelman CL. End-of-life management in pediatric cancer. Curr Oncol Rep. 2012;4:191-6.
40. Breitbart W. Thoughts on the goals of psychosocial palliative care. Palliat Support Care. 2008;6:211-2.
41. •• Coccia PF, Altman J, Bathia S, et al. Adolescent and young adult oncology. Clinical practice guidelines in oncology. J Natl Compr Cancer Netw. 2012;10:1112-50. This excellent guidelines includes all relevant recommendations to improve total care for adolescent and young adult with cancer.
42. Bluebond-Langner M. In the Shadow of illness. Princeton: Princeton University Press; 1996.
43. Zebrack B, Chesler M, Orbuch T, Parry C. Mothers of survivors of childhood cancer: their worries and concerns. J Psychosoc Oncol. 2002;20:1-26.
44. Whyte F, Smith L. A literature review of adolescence and cancer. Eur J Cancer Care. 1997;6:137-46. (Pubitemid 127501308)
45. Zebrack B, Chesler M, Kaplan S. To foster healing among adolescents and young adults with cancer. What helps? What hurts? Support Care Cancer. 2010;18:131-5.
46. Hayes-Lattin B, Mathews-Bradshaw B, Siegel S. Adolescent and young adult oncology training for health professionals: a position statement. J Clin Oncol. 2010;28:4858-61.
47. Worden W. Grief counseling and grief therapy - A handbook for the mental health practitioner. 3rd ed. New York: Springer; 2002.
48. Spinetta JJ, Jankovic M, Ben Arush MW, et al. Guidelines for the recognition, prevention and remediation of burnout in health care professionals participating in the care of children with cancer. Med Pediatr Oncol. 2000;35:122-5.
49. •• Ramphal R, Meyer R, Schacter B, et al. Active therapy and models of care for adolescents and young adults with cancer. Cancer. 2011;117:2316-22. This article emphasizes the importance of development of ideal model of care which includes medical care, psychosocial support services and an age-appropriate physical environment.
50. Albritton K, Eden T. Access to care. Pediatr Blood Cancer. 2008;50:1094-8. (Pubitemid 351500160)
51. Ferrari A, Montello M, Troy B, Bleyer A. The challenges of clinical trials for adolescents and young adults with cancer. Pediatr Blood Cancer. 2008;50:1101-4. (Pubitemid 351500162)
52. Albritton KH, Bleyer A. The management of cancer in the older adolescent. Eur J Cancer. 2003;39:2584-99. (Pubitemid 37468300)
53. LIVESTRONG Young Adult Alliance: Closing the Gap: A Strategic Plan: Adrdressing the Recommendations of the Adolescent and Young Adult Oncology Progress Review Group. Austin, Tx, Lance Armstrong Foundation, 2007. http://wwwlivestrong.org/pdfs/LAF-YAA-Report-pdf.
54. • Zebrack B, Mathews-Bradshaw B, Siegel S. Quality cancer care for adolescents and young adults: a position statement. J Clin Oncol. 2010;28:4862-7. This important article describes recommendations for the oncology community to stimulate interest and illustrate the need to enhance quality of care for adolescents and young adults with cancer.