'INSPIRED' approaches to better care for patients with advanced COPD

Clinical and Investigative Medicine

Volumn 36, Issue 3, 2013, Pages 114-120

  Rocker, Graeme M ^a   Cook, Deborah ^b  

^a DALHOUSIE UNIVERSITY   (Canada)

^b Clinical Epidemiology and Biostatistics   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84880003059     PISSN: 0147958X     EISSN: None     Source Type: Journal    
DOI: 10.25011/cim.v36i3.19721     Document Type: Article

References (41)

1. Gore JM, Brophy CJ, Greenstone MA. How well do we care for patients with end stage chronic obstructive pulmonary disease (COPD)? A comparison of palliative care and quality of life in COPD and lung cancer. Thorax. 2000 Dec;55(12):1000-6. PubMed PMID: 15.
2. Health Indicators 2008. Canadian Institute of Health Information. Page 21. .
3. Steer J, Gibson J, Bourke SC. The DECAF Score: predicting hospital mortality in exacerbations of chronic obstructive pulmonary disease. Thorax. 2012 Nov;67(11):970-6. PubMed PMID: 22895999.
4. Tabak YP, Sun X, Johannes RS, Gupta V, Shorr AF. Mortality and need for mechanical ventilation in acute exacerbations of chronic obstructive pulmonary disease: development and validation of a simple risk score. Arch Intern Med. 2009 Sep 28;169(17):1595-602. PubMed PMID: 19786679.
5. Horton R, Rocker G. Contemporary issues in refractory dyspnoea in advanced chronic obstructive pulmonary disease. Curr Opin Support Palliat Care. 2010 Jun;4(2):56-62. PubMed PMID: 20407378. Epub 2010/04/22. eng.
6. Elkington H, White P, Addington-Hall J, Higgs R, Edmonds P. The healthcare needs of chronic obstructive pulmonary disease patients in the last year of life. Palliat Med. 2005 Sep;19(6):485-91. PubMed PMID: 16218161.
7. Crawford GB, Brooksbank MA, Brown M, Burgess TA, Young M. The unmet needs of people with end-stage chronic obstructive pulmonary disease: recommendations for change in Australia. Intern Med J. 2012 Apr 4. PubMed PMID: 22471972. Epub 2012/04/05. Eng.
8. Bailey PH. The dyspnea-anxiety-dyspnea cycle--COPD patients' stories of breathlessness: "It's scary /when you can't breathe". Qual Health Res. 2004 Jul;14(6):760-78. PubMed PMID: 15200799.
9. Rocker GM, Dodek PM, Heyland DK. Toward optimal end-of-life care for patients with advanced chronic obstructive pulmonary disease: Insights from a multicentre study. Can Respir J. 2008 July/August;15(5):249-54. PubMed PMID: 18716686.
10. O'Donnell DE, Aaron S, Bourbeau J, Hernandez P, Marciniuk DD, Balter M, et al. Canadian Thoracic Society recommendations for management of chronic obstructive pulmonary disease - 2007 update. Can Respir J. 2007 Sep;14 Suppl B:5B-32B. PubMed PMID: 17885691. Epub 2007/11/24. eng.
11. Nici L, ZuWallack R. An official American Thoracic Society workshop report: the Integrated Care of the COPD Patient. Proc Am Thorac Soc. 2012 Mar;9(1):9-18. PubMed PMID: 22421582. Epub 2012/03/17. eng.
12. Bourbeau J, Julien M, Maltais F, Rouleau M, Beaupre A, Begin R, et al. Reduction of hospital utilization in patients with chronic obstructive pulmonary disease: a disease-specific self-management intervention. Arch Intern Med. 2003 Mar 10;163(5):585-91. PubMed PMID: 12622605. Epub 2003/03/08.eng.
13. Rice KL, Dewan N, Bloomfield HE, Grill J, Schult TM, Nelson DB, et al. Disease management program for chronic obstructive pulmonary disease: a randomized controlled trial. Am J Respir Crit Care Med. 2010 Oct 1;182(7):890-6. PubMed PMID: 20075385. Epub 2010/01/16. eng.
14. Casas A, Troosters T, Garcia-Aymerich J, Roca J, Hernandez C, Alonso A, et al. Integrated care prevents hospitalisations for exacerbations in COPD patients. Eur Respir J. 2006 Jul;28(1):123-30. PubMed PMID: 16611656. Epub 2006/04/14. eng.
15. Effing T, Monninkhof EM, van der Valk PD, van der Palen J, van Herwaarden CL, Partidge MR, et al. Self-management education for patients with chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2007 (4):CD002990. PubMed PMID: 17943778. Epub 2007/10/19. eng.
16. Fan VS, Gaziano JM, Lew R, Bourbeau J, Adams SG, Leatherman S, et al. A Comprehensive Care Management Program to Prevent Chronic Obstructive Pulmonary Disease Hospitalizations: A Randomized, Controlled Trial. Ann Intern Med. 2012 May 15;156(10):673-83. PubMed PMID: 22586006. Epub 2012/05/16. Eng.
17. Mittmann N, Kuramoto L, Seung SJ, Haddon JM, Bradley-Kennedy C, Fitzgerald JM. The cost of moderate and severe COPD exacerbations to the Canadian healthcare system. Respir Med. 2008 Mar;102(3):413-21. PubMed PMID: 18086519. Epub 2007/12/19. eng.
18. Bailey PH. Death stories: acute exacerbations of chronic obstructive pulmonary disease. Qual Health Res. 2001 May;11(3):322-38. PubMed PMID: 11339077.
19. Rocker GM, Young J, Simpson AC. Advanced chronic obstructive lung disease: more than a lung disease. Prog Palliat Care. 2009;17:117-25.
20. Marciniuk DD, Goodridge D, Hernandez P, Rocker G, Balter M, Bailey P. et al for the Canadian Thoracic Society COPD Committee Dyspnea Expert Working Group. Managing dyspnea in patients with advanced chronic obstructive pulmonary disease: A Canadian Thoracic Society clinical practice guideline. Can Respir J. 2011;18(2):1-10.
21. Rocker GM, Sinuff T, Horton R, Hernandez P. Advanced Chronic Obstructive Pulmonary Disease: Innovative Approaches to Palliation. J Palliat Med. 2007;10(3):783-97.
22. Simpson AC, Rocker GM. Advanced chronic obstructive pulmonary disease: rethinking models of care. Qjm. 2008 Sep;101(9):697-704. PubMed PMID: 18669555.
23. Fromer L. Implementing chronic care for COPD: planned visits, care coordination, and patient empowerment for improved outcomes. Int J Chron Obstruct Pulmon Dis. 2011;6:605-14. PubMed PMID: 22162647. Epub 2011/12/14.eng.
24. Ortiz G, Fromer L. Patient-Centered Medical Home in chronic obstructive pulmonary disease. J Multidiscip Healthc. 2011;4:357-65. PubMed PMID: 22096340. Epub 2011/11/19. eng.
25. Booth S, Bausewein C, Rocker G. New models of care for advanced lung disease. Prog Palliat Care. 2011;19:254-63.
26. White P, White S, Edmonds P, Gysels M, Moxham J, Seed P, et al. Palliative care or end-of-life care in advanced chronic obstructive pulmonary disease: a prospective community survey. Br J Gen Pract. 2011 Jun;61(587):e362-70. PubMed PMID: 21801516. Epub 2011/08/02. eng.
27. Horton R. Reducing emergency room utilization in end-stage COPD - feasible or fantasy? Chron Respir Dis.10(1):49-54. PubMed PMID: 23355405. Epub 2013/01/29. eng.
28. Young J, Simpson AC, Demmons J, Conrad W, Rocker G. Evaluating the Impacts Of "INSPIRED": A New Outreach Program For Patients And Families Living With Advanced Chronic Obstructive Pulmonary Disease (COPD). Am J Respir Crit Care Med. 2012;185:A3732.
29. Horton R, Rocker G, Dale A, Young J, Hernandez P, Sinuff T. Implementing a Palliative Care Trial in Advanced COPD: A Feasibility Assessment (The COPD IMPACT Study). J Palliat Med. 2013 Jan;16(1):67-73. PubMed PMID: 23317322. Epub 2013/01/16. eng.
30. Patel K, Janssen DJ, Curtis JR. Advance care planning in COPD. Respirology. 2012 Jan;17(1):72-8. PubMed PMID: 22008225. Epub 2011/10/20. eng.
31. Barnard D. Advance care planning is not about "getting it right". J Palliat Med. 2002 Aug;5(4):475-81. PubMed PMID: 12243673. Epub 2002/09/24. eng.
32. Wright AA, Zhang B, Ray A, Mack JW, Trice E, Balboni T, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008 Oct 8;300(14):1665-73. PubMed PMID: 18840840. Epub 2008/10/09. eng.
33. Au DH, Udris EM, Fihn SD, McDonell MB, Curtis JR. Differences in health care utilization at the end of life among patients with chronic obstructive pulmonary disease and patients with lung cancer. Arch Intern Med. 2006 Feb 13;166(3):326-31. PubMed PMID: 16476873.
34. Sudore RL, Fried TR. Redefining the "planning" in advance care planning: preparing for end-of-life decision making. Ann Intern Med. 2010 Aug 17;153(4):256-61. PubMed PMID: 20713793. Epub 2010/08/18. eng.
35. Rocker G, Young J, Donahue M, Farquhar M, Simpson C. Perspectives of patients, family caregivers and physicians about the use of opioids for refractory dyspnea in advanced chronic obstructive pulmonary disease. CMAJ. 2012 Jun 12;184(9):E497-504. PubMed PMID: 22529167. Epub 2012/04/25.eng.
36. Lanken PN, Terry PB, Delisser HM, Fahy BF, Hansen-Flaschen J, Heffner JE, et al. An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med. 2008 Apr 15;177(8):912-27. PubMed PMID: 18390964.
37. Mahler DA, Selecky PA, Harrod CG, Benditt JO, Carrieri-Kohlman V, Curtis JR, et al. American College of Chest Physicians consensus statement on the management of dyspnea in patients with advanced lung or heart disease. Chest. 2010 Mar;137(3):674-91. PubMed PMID: 20202949. Epub 2010/03/06.eng.
38. Rocker GM, Simpson AC, Joanne Young B, Horton R, Sinuff T, Demmons J, et al. Opioid therapy for refractory dyspnea in patients with advanced chronic obstructive pulmonary disease: patients' experiences and outcomes. Canadian Medical Association Open Access Journal. 2013 January 16, 2013;1(1):E27-E36.
39. Currow DC, McDonald C, Oaten S, Kenny B, Allcroft P, Frith P, et al. Once-daily opioids for chronic dyspnea: a dose increment and pharmacovigilance study. J Pain Symptom Manage. 2011 Sep;42(3):388-99. PubMed PMID: 21458217. Epub 2011/04/05. eng.
40. Lynn J. Palliative Care Beyond Cancer: Reliable comfort and meaningfulness. BMJ. 2008 Apr 26;336(7650):958-9. PubMed PMID: 18397941. Epub 2008/04/10.eng.
41. Murray SA, Sheikh A. Palliative Care Beyond Cancer: Care for all at the end of life. Bmj. 2008 Apr 26;336(7650):958-9. PubMed PMID: 18397942.