Identification of genetic counseling service delivery models in practice: A report from the NSGC service delivery model task force

Journal of Genetic Counseling

Volumn 22, Issue 4, 2013, Pages 411-421

  Cohen, Stephanie A ^a   Marvin, Monica L ^b   Riley, Bronson D ^c   Vig, Hetal S ^d   Rousseau, Julie A ^e   Gustafson, Shanna L ^f  

^a ST VINCENT HOSPITAL   (United States)

^b UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

^c Southeast Nebraska Cancer Center   (United States)

^d RUTGERS CANCER INSTITUTE OF NEW JERSEY   (United States)

^e BOSTON CHILDREN S HOSPITAL   (United States)

^f UNIVERSITY OF MICHIGAN HEALTH SYSTEM   (United States)

Author keywords

Access; Genetic counseling; Group genetic counseling; Inperson genetic counseling; National Society of Genetic Counselors; Service delivery models; Telegenetic counseling; Telephone genetic counseling

Indexed keywords

GENETIC COUNSELING; NONBIOLOGICAL MODEL; ARTICLE;

GENETIC COUNSELING; MODELS, ORGANIZATIONAL;

EID: 84879993498     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-013-9588-0     Document Type: Article

References (16)

1. Bradbury, A. R.; Patrick-Miller, L.; Fetzer, D.; Egleston, B.; Cummings, S. A.; Forman, A.; et al. (2011). Genetic counselor opinions of, and experiences with telephone communication of BRCA1/2 test results. Clinical Genetics, 79(2), 125-131. doi: 10.1111/j.1399-0004.2010.01540.x.
2. Calzone, K. A.; Prindiville, S. A.; Jourkiv, O.; Jenkins, J.; DeCarvalho, M.; Wallerstedt, D. B.; et al. (2005). Randomized comparison of group versus individual genetic education and counseling for familial breast and/or ovarian cancer. Journal of Clinical Oncology, 23(15), 3455-3464. doi: 10.1200/jco.2005.04.050.
3. Cohen, S.; Gustafson, S.; Marvin, M.; Riley, B.; Uhlmann, W.; Liebers, S.; et al. (2012). Report from the National Society of Genetic Counselors Service Delivery Model Task Force: a proposal to define models, components, and modes of referral. Journal of Genetic Counseling, 21(5), 645-651. doi: 10.1007/s10897-012-9505-y.
4. Doughty Rice, C.; Ruschman, J. G.; Martin, L. J.; Manders, J. B.; Miller, E. (2010). Retrospective comparison of patient outcomes after in-person and telephone results disclosure counseling for BRCA1/2 genetic testing. Familial Cancer, 9(2), 203-212. doi: 10.1007/s10689-009-9303-3.
5. Graves, K. D.; Wenzel, L.; Schwartz, M. D.; Luta, G.; Wileyto, P.; Narod, S.; et al. (2010). Randomized controlled trial of a psychosocial telephone counseling intervention in BRCA1 and BRCA2 mutation carriers. Cancer Epidemiology, Biomarkers & Prevention, 19(3), 648-654. doi: 10.1158/1055-9965.epi-09-0548.
6. Hall, A. G.; Lemak, C. H.; Steingraber, H.; Schaffer, S. (2008). Expanding the definition of access: it isn't just about health insurance. Journal of Health Care for the Poor and Underserved, 19(2), 625-638. doi: 10.1353/hpu.0.0011.
7. Harrison, T. A.; Doyle, D. L.; McGowan, C.; Cohen, L.; Repass, E.; Pfau, R. B.; et al. (2010). Billing for medical genetics and genetic counseling services: a national survey. Journal of Genetic Counseling, 19(1), 38-43. doi: 10.1007/s10897-009-9249-5.
8. Hyndman, J. C. G.; Holman, C. D. A. J.; de Klerk, N. H. (1999). A comparison of measures of access to child health clinics and the implications for modelling the location of new clinics. Australian and New Zealand Journal of Public Health, 23(2), 189-195. doi: 10.1111/j.1467-842X.1999.tb01233.x.
9. Jones, W.; Elwyn, G.; Edwards, P.; Edwards, A.; Emmerson, M.; Hibbs, R. (2003). Measuring access to primary care appointments: a review of methods. BMC Family Practice, 4(1), 8.
10. McGrail, M.; Humphreys, J. (2009). The index of rural access: an innovative integrated approach for measuring primary care access. BMC Health Services Research, 9(1), 124.
11. McPherson, E.; Zaleski, C.; Benishek, K.; McCarty, C. A.; Giampietro, P. F.; Reynolds, K.; et al. (2008). Clinical genetics provider real-time workflow study. Genetics in Medicine, 10(9), 699-706. doi: 10.1097/GIM.0b013e318182206f.
12. Shanley, S.; Myhill, K.; Doherty, R.; Ardern-Jones, A.; Hall, S.; Vince, C.; et al. (2007). Delivery of cancer genetics services: the Royal Marsden telephone clinic model. Familial Cancer, 6(2), 213-219. doi: 10.1007/s10689-007-9131-2.
13. Sutphen, R.; Davila, B.; Shappell, H.; Holtje, T.; Vadaparampil, S.; Friedman, S.; et al. (2010). Real world experience with cancer genetic counseling via telephone. Familial Cancer, 9(4), 681-689. doi: 10.1007/s10689-010-9369-y.
14. Tuckson, R. (2006). Coverage and reimbursement of genetic tests and services: Report of the Secretary's Advisory Committee on Genetics, Health, and Society. http://oba.od.nih.gov/oba/sacghs/reports/CR-report.pdf.
15. Uhlmann, W. R.; Schutte, J. L.; Yashar, B. M. (Eds.). (2009). A guide to genetic counseling (2nd ed.). New York: Wiley-Blackwell.
16. Wham, D.; Vu, T.; Chan-Smutko, G.; Kobelka, C.; Urbauer, D.; Heald, B. (2010). Assessment of clinical practices among cancer genetic counselors. Familial Cancer. doi: 10.1007/s10689-010-9326-9.