Assessment of clinical practices among cancer genetic counselors

Familial Cancer

Volumn 9, Issue 3, 2010, Pages 459-468

  Wham, Deborah ^a   Vu, Thuy ^b   Chan Smutko, Gayun ^c   Kobelka, Christine ^d   Urbauer, Diana ^b   Heald, Brandie ^e  

^a AURORA HEALTH CARE   (United States)

^b UNIVERSITY OF TEXAS   (United States)

^c MASSACHUSETTS GENERAL HOSPITAL   (United States)

^d Genetics Department   (United States)

^e LERNER RESEARCH INSTITUTE   (United States)

Author keywords

Cancer genetic counseling; Genetic counseling; Hereditary breast ovarian cancer; Practice efficiency; Results disclosure; Service delivery model

Indexed keywords

ADULT; ARTICLE; CANCER GENETICS; CLINICAL PRACTICE; DOCUMENTATION; FEMALE; GENETIC COUNSELING; HEALTH CARE DELIVERY; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL STAFF; PATIENT CARE; PATIENT SCHEDULING; PHYSICIAN; PILOT STUDY; PRACTICE GUIDELINE; PRIORITY JOURNAL; SELF REPORT; TASK PERFORMANCE; TELECONSULTATION;

ADULT; COUNSELING; FEMALE; GENETIC COUNSELING; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; QUESTIONNAIRES; YOUNG ADULT;

EID: 78650194982     PISSN: 13899600     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10689-010-9326-9     Document Type: Article

References (22)

1. Biesecker BB, Boehnke M et al (1993) Genetic counseling for families with inherited susceptibility to breast and ovarian cancer. JAMA 269(15):1970-1974
2. International Huntington Association and the World Federation of Neurology Research Group on Huntington's Chorea (1994) Guidelines for the molecular genetics predictive test in Huntington's disease. Neurology 44(8):1533-1536
3. International Huntington Association and the World Federation of Neurology Research Group on Huntington's Chorea (1994) Guidelines for the molecular genetics predictive test in Huntington's disease. J Med Genet 31(7):555-559
4. Brain K, Sivell S et al (2005) An exploratory comparison of genetic counselling protocols for HNPCC predictive testing. Clin Genet 68(3):255-261
5. American Society of Clinical Oncology (2003) American Society of Clinical Oncology policy statement update: genetic testing for cancer susceptibility. J Clin Oncol 21(12):2397-2406
6. Khatcheressian JL, Wolff AC et al (2006) American Society of Clinical Oncology 2006 update of the breast cancer follow-up and management guidelines in the adjuvant setting. J Clin Oncol 24(31):5091-5097
7. Lancaster JM, Powell CB et al (2007) Society of Gynecologic Oncologists Education Committee statement on risk assessment for inherited gynecologic cancer predispositions. Gynecol Oncol 107(2):159-162
8. Murphy CD, Lee JM et al (2008) The American Cancer Society guidelines for breast screening with magnetic resonance imaging: an argument for genetic testing. Cancer 113(11):3116-3120
9. Winawer S, Fletcher R et al (2003) Colorectal cancer screening and surveillance: clinical guidelines and rationale-update based on new evidence. Gastroenterology 124(2):544-560
10. Trepanier A, Ahrens M et al (2004) Genetic cancer risk assessment and counseling: recommendations of the national society of genetic counselors. J Genet Couns 13(2):83-114
11. Bernhardt BA, Tumpson JE, Pyeritz RE (1992) The economics of clinical genetics services. IV. Financial impact of outpatient genetic services on an academic institution. Am J Hum Genet 50(1):84-91
12. Bernhardt BA, Weiner J et al (1987) The economics of clinical genetics services. II. A time analysis of a medical genetics clinic. Am J Hum Genet 41(4):559-565
13. Cooksey JA, Forte G et al (2006) The medical genetics workforce: an analysis of clinical geneticist subgroups. Genet Med 8(10):603-614
14. Schneider K (2002) Counseling about cancer, 2nd edn. Wiley-Liss, Inc., New York City
15. McPherson E, Zaleski C et al (2008) Clinical genetics provider real-time workflow study. Genet Med 10(9):699-706
16. Kausmeyer DT, Lengerich EJ et al (2006) A survey of patients' experiences with the cancer genetic counseling process: recommendations for cancer genetics programs. J Genet Couns 15(6):409-431
17. Stopfer JE (2000) Genetic counseling and clinical cancer genetics services. Semin Surg Oncol 18(4):347-357
18. Armel SR, McCuaig J et al (2009) The effectiveness of family history questionnaires in cancer genetic counseling. J Genet Couns 18(4):366-378
19. Jenkins J, Calzone KA et al (2007) Randomized comparison of phone versus in-person BRCA1/2 predisposition genetic test result disclosure counseling. Genet Med 9(8):487-495
20. Baumanis L, Evans JP et al (2009) Telephoned BRCA1/2 genetic test results: prevalence, practice, and patient satisfaction. J Genet Couns 18(5):447-463
21. Baker D, Eash T et al (2002) Guidelines for writing letters to patients. J Genet Counsel 11(5):399-418
22. Irons M (2008) The genetics clinic: where does the time go? Genet Med 10(9):657-658