A systematic review of the psychometric properties of self-reported scales assessing burn contractures reveals the need for a new tool to measure contracture outcomes

Wound Repair and Regeneration

Volumn 21, Issue 4, 2013, Pages 520-529

  Ehanire, Tosan ^a   Vissoci, Joao Ricardo Nickenig ^a,c,d   Slaughter, Keimun ^a,b   Coêlho, Rafael ^e   Bond, Jennifer ^a   Rodrigues, Clarissa ^a,f   Pietrobon, Ricardo ^a   Levinson, Howard ^a  

^a DUKE UNIVERSITY MEDICAL CENTER   (United States)

^b UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

^c Department of Medicine and Psychology   (Brazil)

^d PONTIFÍCIA UNIVERSIDADE CATÓLICA DE SÃO PAULO   (Brazil)

^e FEDERAL UNIVERSITY OF PERNAMBUCO   (Brazil)

^f INSTITUTO DE CARDIOLOGIA DO RIO GRANDE DO SUL   (Brazil)

Author keywords

[No Author keywords available]

Indexed keywords

ADL DISABILITY; ARTICLE; BURN CONTRACTURE; BURN PATIENT; DAILY LIFE ACTIVITY; DERMATOLOGY LIFE QUALITY INDEX; HUMAN; PRIORITY JOURNAL; PSYCHOMETRY; QUALITY OF LIFE; SCAR FORMATION; SELF REPORT; SHORT FORM 36; SYSTEMATIC REVIEW; WEAKNESS;

ACTIVITIES OF DAILY LIVING; BURNS; CICATRIX; CONTRACTURE; FACTOR ANALYSIS, STATISTICAL; HUMANS; PSYCHOMETRICS; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SELF REPORT; SENSITIVITY AND SPECIFICITY;

EID: 84879781121     PISSN: 10671927     EISSN: 1524475X     Source Type: Journal    
DOI: 10.1111/wrr.12058     Document Type: Article

References (47)

1. World Health Organization. The global burden of disease: 2004 update. Vol. 2011. Geneva: World Health Organization, 2004.
2. ReSurge. Burns study 2007: the forgotten global health crisis. 2007.
3. Murray CJ, Lopez AD, Harvard School of Public Health, World Health Organization, & World Bank. The global burden of disease: a comprehensive assessment of mortality and disability from diseases, injuries, and risk factors in 1990 and projected to 2020. [Cambridge, Mass]: Published by the Harvard School of Public Health on behalf of the World Health Organization and the World Bank; Distributed by Harvard University Press, 1996.
4. World Health Organization. Facts about injuries: burns. 2004.
5. Akkose S, Armagan E, Bulut M, Tokyay R,. [In process citation]. Ulus Travma Derg 2002; 8: 1-2.
6. Schneider JC, Holavanahalli R, Helm P, Goldstein R, Kowalske K,. Contractures in burn injury: defining the problem. J Burn Care Res 2006; 27: 508-514.
7. Bayat A, McGrouther DA, Ferguson MW,. Skin scarring. BMJ 2003; 326: 88-92.
8. Fearmonti RM, Bond JE, Erdmann D, Levin LS, Pizzo SV, Levinson H,. The modified Patient and Observer Scar Assessment Scale: a novel approach to defining pathologic and nonpathologic scarring. Plast Reconstr Surg 2011; 127: 242-247.
9. Tyack Z, Simons M, Spinks A, Wasiak J,. A systematic review of the quality of burn scar rating scales for clinical and research use. Burns 2012; 38: 6-18.
10. U.S. Department of Health and Human Services F,. Patient-reported outcome measures: use in medical product development to support labeling claims. (2006).
11. Moher D, Liberati A, Tetzlaff J, Altman DG,. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med 2009; 6: e1000097.
12. Yang KM, Meho LI,. Citation analysis: a comparison of google scholar, scopus, and web of science. Proc Am Soc Info Sci Tech 2006; 43: 1-15.
13. Katzs S, Akpom CA,. Index of ADL. J Med Care 1976; 14 (5 Suppl): 116-118.
14. Yoder LH, Nayback AM, Gaylord K,. The evolution and utility of the burn specific health scale: a systematic review. Burns 2010; 36: 1143-1156.
15. Kildal M, Andersson G, Gerdin B,. Health status in Swedish burn patients. Assessment utilising three variants of the Burn Specific Health Scale. Burns 2002; 28: 639-645.
16. Blades B, Mellis N, Munster AM,. A burn specific health scale. J Trauma 1982; 22: 872-875.
17. Streiner DL, Norman GR,. Health measurement scales: a practical guide to their development and use. New York: Oxford University Press, 2008.
18. Munster AM, Horowitz GL, Tudahl LA,. The abbreviated Burn-Specific Health Scale. J Trauma 1987; 27: 425-428.
19. Blalock SJ, Bunker BJ, Moore JD, Foreman N, Walsh JF,. The impact of burn injury: a preliminary investigation. J Burn Care Rehabil 1992; 13: 487-492.
20. Ferreira E, Dantas RA, Rossi LA, Ciol MA,. The cultural adaptation and validation of the "Burn Specific Health Scale-Revised" (BSHS-R): version for Brazilian burn victims. Burns 2008; 34: 994-1001.
21. Edgar D, Dawson A, Hankey G, Phillips M, Wood F,. Demonstration of the validity of the SF-36 for measurement of the temporal recovery of quality of life outcomes in burns survivors. Burns 2010; 36: 1013-1020.
22. Kildal M, Andersson G, Fugl-Meyer AR, Lannerstam K, Gerdin B,. Development of a brief version of the Burn Specific Health Scale (BSHS-B). J Trauma 2001; 51: 740-746.
23. Willebrand M, Kildal M,. A simplified domain structure of the burn-specific health scale-brief (BSHS-B): a tool to improve its value in routine clinical work. J Trauma 2001; 64: 1581-1586.
24. Adam M, Leblebici B, Tarim MA, Yildirim S, Bagis S, Akman MN, et al. Validation of a Turkish version of the burn-specific health scale. J Burn Care Res 2009; 30: 288-291; discussion 292-383.
25. Dyster-Aas J, Kildal M, Willebrand M,. Return to work and health-related quality of life after burn injury. J Rehabil Med 2007; 39: 49-55.
26. Elsherbiny OE, Salem MA, El-Sabbagh AH, Elhadidy MR, Eldeen SM,. Quality of life of adult patients with severe burns. Burns 2011; 37: 776-789.
27. Daltroy LH, Liang MH, Phillips CB, Daugherty MB, Hinson M, Jenkins M, et al. American Burn Association/Shriners Hospitals for Children burn outcomes questionnaire: construction and psychometric properties. J Burn Care Rehabil 2000; 21: 29-39.
28. van Baar ME, Essink-Bot ML, Oen IM, Dokter J, Boxma H, Hinson MI, et al. Reliability and validity of the Dutch version of the American Burn Association/Shriners Hospital for Children Burn Outcomes Questionnaire (5-18 years of age). J Burn Care Res 2007; 27: 790-802.
29. Oster C, Willebrand M, Dyster-Aas J, Kildal M, Ekselius L,. Validation of the EQ-5D questionnaire in burn injured adults. Burns 2009; 35: 723-732.
30. Finlay AY, Khan GK,. Dermatology Life Quality Index (DLQI)-a simple practical measure for routine clinical use. Clin Exp Dermatol 1994; 19: 210-216.
31. Mazharinia N, Aghaei S, Shayan Z,. Dermatology Life Quality Index (DLQI) scores in burn victims after revival. J Burn Care Res 2007; 28: 312-317.
32. Burckhardt CS, Anderson KL, Archenholtz B, Hagg O,. The Flanagan Quality of Life Scale: evidence of construct validity. Health Qual Life Outcomes 2003; 1: 59-65.
33. Moi AL, Wentzel-Larsen T, Salemark L, Wahl AK, Hanestad BR,. Impaired generic health status but perception of good quality of life in survivors of burn injury. J Trauma 2006; 61: 961-968.
34. Wu A, Edgar DW, Wood FM,. The QuickDASH is an appropriate tool for measuring the quality of recovery after upper limb burn injury. Burns 2007; 33: 843-849.
35. Riordan CM, Vandenberg RJ,. A Central question in cross-cultural research-do employees of different cultures interpret work-related measures in an equivalent manner. J Manage 1994; 20: 643-671.
36. Guillemin F, Bombardier C, Beaton D,. Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol 1993; 46: 1417-1432.
37. Bowen NK, Guo S,. Measuring models. In: Structural equation modeling. New York: Oxford University Press, 2011: 73-108.
38. Litlere Moi A, Wentzel-Larsen T, Salemark L, Hanestad B,. Validation of a Norwegian version of the Burn Specific Health Scale. Burns 2003; 29: 563-570.
39. Kildal M, Willebrand M, Andersson G, Gerdin B, Ekselius L,. Personality characteristics and perceived health problems after burn injury. J Burn Care Rehabil 2004; 25: 228-235.
40. Willebrand M, Wikehult B, Ekselius L,. Social desirability, psychological symptoms, and perceived health in burn injured patients. J Nervous Mental Dis 2005; 193: 820-824.
41. Kildal M, Willebrand M, Andersson G, Gerdin B, Ekselius L,. Coping strategies, injury characteristics and long-term outcome after burn injury. Injury 2005; 36: 511-518.
42. Willebrand M, Kildal M,. Burn Specific Health up to 24 months after the Burn-A prospective validation of the simplified model of the Burn Specific Health Scale-Brief. J Ttrauma 2011; 71: 78-84.
43. Salvador Sanz JF, Sanchez-Paya J, Rodriguez Marin J,. Spanish version of the Burn-Specific Health Scale. J Trauma 1998; 45: 581-587.
44. Melzack R,. The McGill Pain Questionnaire: major properties and scoring methods. Pain 1975; 1: 277-299.
45. Montazeri A, Vahdaninia M, Ebrahimi M, Jarvandi S,. The Hospital Anxiety and Depression Scale (HADS): translation and validation study of the Iranian version. Health Qual Life Outcomes 2003; 1: 14-18.
46. Raat H, Botterweck AM, Landgraf JM, Hoogeveen WC, Essink-Bot ML,. Reliability and validity of the short form of the child health questionnaire for parents (CHQ-PF28) in large random school based and general population samples. J Epidemiol Community Health 2005; 59: 75-82.
47. Zapata DM, Estrada A,. [Quality of life related to the health of the people affected by burns after the healing]. Biomedica: revista del Instituto Nacional de Salud 2010; 30: 492-500.