Supporting adherence and improving quality of life in haemophilia care

British Journal of Nursing

Volumn 22, Issue 12, 2013, Pages 692-

  Khair, Kate ^a  

^a GREAT ORMOND STREET HOSPITAL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84879649150     PISSN: 09660461     EISSN: None     Source Type: Journal    
DOI: 10.12968/bjon.2013.22.12.692     Document Type: Note

References (11)

1. Aledort L, Bullinger M, von Mackensen S, Wasserman J, Young NL, Globe D (2012) Why should we care about quality of life in persons with haemophilia? Haemophilia 18(3): e154-7
2. Forrester C, Bielby H, Johns S, Efford J, Khair K (2013) Potential for development of haemophilia link nurse roles within UK hospitals. Haemophilia [Epub ahead of print]
3. Khair K (2006) Managing haemophilia at home. BJHH 1:10-11
4. Khair K, Lawrence K, Butler R, O'Shea E, Christie BE (2008) Assessment of treatment practice patterns for severe haemophilia: a global nurse perspective. Acta Haematol 119(2): 115-23
5. Khair K, Gibson F, Meerabeau L (2012) The benefits of prophylaxis: views of adolescents with severe haemophilia. Haemophilia 18(3): e286-9
6. Khair K, Meerabeau L, Gibson F (2013) Self-management and skills acquisition in boys with haemophilia. Health Expect [Epub ahead of print]
7. Lindvall K, Colstrup L, Wollter IM et al (2006) Compliance with treatment and understanding of own disease in patients with severe and moderate haemophilia. Haemophilia 12(1): 47-51
8. Lindvall K, Colstrup L, Loogna K, Wollter IM, Gronhaug S (2010) Knowledge of disease and adherence in adult patients with haemophilia. Haemophilia 16(4): 592-96
9. Mulders G, De Wee EM, Vahedi Nikbakht-Van De Sande MCVM et al (2012) E-learning improves knowledge and practical skills in haemophilia patients on home treatment: a randomized controlled trial. Haemophilia 18(5): 693-8
10. Schrijvers LH, Uitslager N, Schuurmans MJ, Fischer K (2013) Barriers and motivators of adherence to prophylactic treatment in haemophilia: a systematic review. Haemophilia 19(3): 355-61
11. Vidler V (1999) Teaching parents advanced clinical skills. Haemophilia 5(5): 349-53