The meaning of spasticity to people with multiple sclerosis: What can health professionals learn?

Disability and Rehabilitation

Volumn 35, Issue 15, 2013, Pages 1284-1292

  Morley, Alex ^a   Tod, Angela ^a   Cramp, Mary ^b   Mawson, Sue ^c  

^a SHEFFIELD HALLAM UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF EAST LONDON   (United Kingdom)

^c UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

Life experience; Multiple sclerosis; Spasticity

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; FEMALE; HUMAN; INTERVIEW; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUESTIONNAIRE; SOCIAL SUPPORT; SOCIOECONOMICS; SPASTICITY;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; MUSCLE SPASTICITY; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUESTIONNAIRES; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS;

EID: 84879343645     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638288.2012.726691     Document Type: Article

References (25)

1. DOH [Internet] The NHS plan. London, Department of Health; 27 July 2000-[cited 3 July 2011]. Available at: http://www.dh.gov.uk/en/ Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH-4010198
2. DOH [Internet] Equity and excellence liberating the NHS. London, Department of Health; 12 July 2010-[cited 4 July 2011]. Available at: http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/ PublicationsPolicyAndGuidance/DH-117353
3. Malcomson KS, Lowe-Strong AS, Dunwoody L. What can we learn from the personal insights of individuals living and coping with multiple sclerosis? Disabil Rehabil 2008;30:662-674.
4. Shevil E, Finlayson M. Perceptions of persons with multiple sclerosis on cognitive changes and their impact on daily life. Disabil Rehabil 2006;28:779-788. (Pubitemid 43878898)
5. MS Society [Internet]. London, Multiple Sclerosis Society of Great Britain; 30 April 2011-[cited 30 June 2011]. Available at: http://www. mssociety.org.uk/about-ms/index.html
6. Paty D, Ebers C. Clinical features. In: Paty D, Ebers C, editors. Multiple sclerosis. Philidelphia, PA: F.A Davis company; 1998. pp 170.
7. Rizzo MA, Hadjimichael OC, Preiningerova J, Vollmer TL. Prevalence and treatment of spasticity reported by multiple sclerosis patients. Mult Scler 2004;10:589-595. (Pubitemid 39207235)
8. Pandyan AD, Gregoric M, Barnes MP, Wood D, Van Wijck F, Burridge J, Hermens H, Johnson GR. Spasticity: clinical perceptions, neurological realities and meaningful measurement. Disabil Rehabil 2005;27:2-6. (Pubitemid 40124834)
9. Burridge JH, Wood DE, Hermens HJ, Voerman GE, Johnson GR, van Wijck F, Platz T, et al. Theoretical and methodological considerations in the measurement of spasticity. Disabil Rehabil 2005;27:69-80. (Pubitemid 40124837)
10. Malhotra S, Pandyan AD, Day CR, Jones PW, Hermens H. Spasticity, an impairment that is poorly defined and poorly measured. Clin Rehabil 2009;23:651-658.
11. Lance J. Symposium synopsis. In: Feldman R,Young R, Koella W, editors. Spasticity:disordered motor control. Chicago: Yearbook Medical Publishers; 1980. pp 485-494.
12. Mahoney JS, Engebretson JC, Cook KF, Hart KA, Robinson-Whelen S, Sherwood AM. Spasticity experience domains in persons with spinal cord injury. Arch Phys Med Rehabil 2007;88:287-294. (Pubitemid 46281861)
13. Nicolson P, Anderson P. The psychosocial impact of spasticityrelated problems for people with multiple sclerosis: a focus group study. J Health Psychol 2001;6:551-567. (Pubitemid 33608035)
14. Barnes M. An overview of the clinical management of spasticity. In: Barnes M, Johnson G, editors. [ELECTRONIC BOOK] Upper motor neurone syndrome and spasticity: clinical management and neurophysiology. 2nd ed. Cambridge: Cambridge University Press; 2008. pp 1-8.
15. Hobart JC, Riazi A, Thompson AJ, Styles IM, Ingram W, Vickery PJ, Warner M, et al. Getting the measure of spasticity in multiple sclerosis: the Multiple Sclerosis Spasticity Scale (MSSS-88). Brain 2006;129:224-234. (Pubitemid 43063773)
16. Dey I. Concluding. In: Grounding grounded theory: guidelines for qualitative enquiry. Bingley: Emerald; 1999. pp 115-147.
17. Topping A. The quantitative-qualitative continuum. In: Gerrish K, Lacey A, editors. The research process in nursing. 5th ed. Oxford: Blackwell; 2006. pp 155-172.
18. Wengraf T. Lightly and heavily structured depth interviewing: theory questions and interviewer questions. In: Qualitative research interviewing. London: Sage; 2001. pp 60-70.
19. Tod A. Interviewing. In: Gerrish K, Lacey A, editors. The research process in nursing. 5th ed. Oxford: Blackwell; 2006. pp 337-352.
20. Spencer L, Ritchie J, O' Connor W. Analysis: practices, principles and processes. In: Ritchie J, Lewis J, editors. Qualitative research practice. London: Sage; 2003. pp 199-218.
21. Ritchie J, Spencer L, O'Connor W. Carrying out qualitative analysis. In: Ritchie J, Lewis J, editors. Qualitative research practice. London: Sage; 2003. pp 218-262.
22. Stevenson V, Jarrett L. Preface. In: Stevenson V, Jarrett L, editors. Spasticity management a practical multidisciplinary guide. Oxon: Informa healthcare; 2006. pp ix-x.
23. Charmaz K. The body, identity, and self. Sociological Quart 1995;36:657-680.
24. Lincoln Y, Guba E. Establishing trustworthyness. In: Naturalistic enquiry. London: Sage; 1985. pp 298-331.
25. Tod AM. Barriers to smoking cessation in pregnancy: a qualitative study. Br J Community Nurs 2003;8:56-64.