Patient-perceived facilitators in the transition of care for young adult survivors of childhood cancer

Pediatric Blood and Cancer

Volumn 60, Issue 8, 2013, Pages 1365-1368

  Sadak, Karim Thomas ^a,b,c   Dinofia, Amanda ^a   Reaman, Gregory ^a,b  

^a CHILDREN'S NATIONAL MEDICAL CENTER   (United States)

^b GEORGE WASHINGTON UNIVERSITY SCHOOL OF MEDICINE AND HEALTH SCIENCES   (United States)

^c GEORGE WASHINGTON UNIVERSITY   (United States)

Author keywords

Cancer; Childhood; Survivor; Transition; Young adult

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CANCER SURVIVOR; CENTRAL NERVOUS SYSTEM TUMOR; CHILDHOOD CANCER; CROSS-SECTIONAL STUDY; DESCRIPTIVE RESEARCH; FEMALE; HEALTH SERVICE; HUMAN; LEUKEMIA; LYMPHOMA; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; PATIENT CARE; PRIORITY JOURNAL; QUESTIONNAIRE;

ADOLESCENT; ADULT; AGE FACTORS; CROSS-SECTIONAL STUDIES; DECISION MAKING; DELIVERY OF HEALTH CARE; FEMALE; HUMANS; MALE; NEOPLASMS; QUESTIONNAIRES; SOCIAL FACILITATION; SURVIVORS; YOUNG ADULT;

EID: 84879216529     PISSN: 15455009     EISSN: 15455017     Source Type: Journal    
DOI: 10.1002/pbc.24494     Document Type: Article

References (16)

1. Reis LAG, Smith MA, Gurney JG, et al. editors. SEER Cancer Statistics Review, 1975-2004: Based on Nov 2006 SEER data submission (posted to SEER web site). Bethesda, MD: NCI; 2007. http://seer.cancer.gov/csr/1975_2004/
2. Mariotto AB, Rowland JH, Yabroff KR, et al. Long-term survivors of childhood cancers in the United States. Cancer Edipdemiol Biomarkers Prev 2009; 18:1033-1040.
3. Schidlow DV, Fiel SB. Life beyond pediatrics. Transition of chronically ill adolescents from pediatric to adult health care systems. Med Clin North Am 1990; 74:1113-1120.
4. Freyer DR. Transition of care for young adult survivors of childhood and adolescent cancer: Rationale and approaches. J Clin Oncol 2010; 28:4810-4818.
5. Ginsberg JP, Hobbie WL, Carlson CA, et al. Delivering long-term follow-up care to pediatric cancer survivors: Transitional care issues. Pediatr Blood Cancer 2006; 46:169-173.
6. Nathan PC, Hayes-Lattin B, Sisler JJ, et al. Critical issues in transition and survivorship for adolescents and young adults with cancer. Cancer 2011; 117:2335-2341.
7. Hobbie WL, Ogle S. Transitioning care for young adult survivors of childhood cancer. Semin Oncol Nurs 2001; 17:268-273.
8. Blum RW. Introduction. Improving transition for adolescents with special health care needs from pediatric to adult-centered health care. Pediatrics 2002; 110:1301-1303.
9. Oeffinger KC, Eshelman DA, Tomlinson GE, et al. Programs for adult survivors of childhood cancer. J Clin Oncol 1998; 16:2864-2867.
10. Friedman DL, Freyer DR, Levitt GA. Models of care for survivors of childhood cancer. Pediatr Blood Cancer 2006; 46:159-168.
11. Henderson TO, Friedman DL, Meadows AT. Childhood cancer survivors: Transition to adult-focused risk-based care. Pediatrics 2010; 126:129-136.
12. Zebrack BJ, Eshelman DA, Hudson MM, et al. Health care for childhood cancer survivors: Insights and perspectives from a Delphia panel of young adult survivors of childhood cancer. Cancer 2004; 100:843-850.
13. Kinahan KE, Sharp LK, Arntson P, et al. Adult survivors of childhood cancer and their parents: Experiences with survivorship and long term-term follow-up. J Pediatr Hematol Oncol 2008; 30:651-658.
14. Michel G, Greenfield DM, Absolom K, et al. Follow-up care after childhood cancer: Survivor's expectations and preferences for care. Eur J Cancer 2009; 45:1616-1623.
15. Casillas J, Kahn KL, Doose M, et al. Transitioning childhood cancer survivors to adult-centered healthcare: Insights from parents, adolescent, and young adult survivors. Psychooncology 2010; 19:982-990.
16. Harris PA, Taylor R, Thielke R, et al. Research electronic data capture (REDCap)-A metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform 2009; 42:377-381.