Early counselling and support for patients with mild Alzheimer's disease and their caregivers: A qualitative study on outcome

Aging and Mental Health

Volumn 12, Issue 4, 2008, Pages 444-450

  Sørensen, Lisbeth V ^a   Waldorff, Frans B ^a,b   Waldemar, Gunhild ^a  

^a International Center for Research and Research Training in Endocrine Disruption of Male Reproduction and Child Health   (Denmark)

^b UNIVERSITY OF COPENHAGEN   (Denmark)

Author keywords

Alzheimer's disease; Caregivers; Coping; Home living patients; Psychosocial intervention

Indexed keywords

AGED; ALZHEIMER DISEASE; ARTICLE; CAREGIVER; CLINICAL ARTICLE; COUNSELING; FEMALE; HUMAN; HUMAN RELATION; MALE; PATIENT EDUCATION; PRIORITY JOURNAL; SELF ESTEEM; SEMI STRUCTURED INTERVIEW; SOCIAL SUPPORT; SUPPORT GROUP;

ADAPTATION, PSYCHOLOGICAL; AGED; AGED, 80 AND OVER; ALZHEIMER DISEASE; CAREGIVERS; COUNSELING; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; OUTCOME ASSESSMENT (HEALTH CARE); SOCIAL SUPPORT;

EID: 51849140923     PISSN: 13607863     EISSN: 13646915     Source Type: Journal    
DOI: 10.1080/13607860802224342     Document Type: Article

References (31)

1. Bédard, M., Kuzik, R., Chambers, L., Molloy, D.W, Dobois, S., & Lever, J.A. (2005). Understanding burden differences between men and women caregivers: The contribution of care-recipient problem behaviours. International Psychogeriatrics, 17, 99-118.
2. Bond, J., & Corner, L. (2001). Researching dementia: Are there unique methodological challenges for health services research. Aging and Society, 21, 95-116.
3. Brodaty, H., Green, A., & Koschera, A. (2003). Meta-analysis of psychosocial interventions for caregivers of people with dementia. Journal of the American Geriatric Society, 51, 657-664.
4. Cooke, D.D., McNally, L., Mulligan, K.T., Harrison, M.J.G., & Newmann, S.P. (2001). Psychococial interventions for caregivers of people with dementia: A systematic review. Aging and Mental Health, 5, 120-135.
5. Cotrell, V., & Schulz, R. (1993). The perspective of the patient with Alzheimer's disease: A neglected dimension of dementia research. The Gerontologist, 33, 205-211.
6. Crabtree, B.F., & Miller, W.L. (1999). Using codes and code manuals: A template organizing style of interpretation. In B.F. Crabtree, & W.L. Miller (Eds.), Doing qualitative research (pp. 163-179). London: Sage Publications, Inc.
7. Croog, D.H., Burleson, J.A., Sudilovsky, A., & Baume, R.M. (2006). Spouse caregivers of Alzheimer patients: Problem responses to caregiver burden. Aging and Mental Health, 10, 87-100.
8. Dellve, L., Abramsson, K.H., Trulsson, U., & Hallberg, L.R.-M. (2002). Grounded theory in public health research. In L.R.-M. Hallberg (Ed.), Qualitative methods in public health research (pp. 137-173). Lund: Studentlitteratur.
9. Folkman, S. (1997). Positive psychological states and coping with severe stress. Social Science and Medicine, 45, 1207-1221.
10. Folstein, M.F., Folstein, S.E., & McHugh, P.R. (1975). 'Mini-mental State' a practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198.
11. Galasko, D., Bennet, D., Sano, M., Ernesto, D., Thomas, R., Grundman, M. et al. (1997). An inventory to assess activities of daily living for clinical trials in Alzheimer's disease. Alzheimer Disease and Associated Disorders, 11(Suppl. 2), S33-S39.
12. Hepburn, K.W., Tornatore, J., Center, B., & Ostwald, S.W. (2001). Dementia family caregiver training: Affecting beliefs about caregiving and caregiver outcomes. Journal of the American Geriatrics Society, 49, 450-457.
13. Hutchinson, S.A., Leger-Krall, S., & Wilson, H.S. (1997). Early probable Alzheimer's disease and awareness context theory. Social Science and Medicine, 45, 1399-1409.
14. Kneebone, I.I., & Martin, P.R. (2003). Coping and caregivers of people with dementia. British Journal of Health Psychology, 8, 1-17.
15. Kuzel, A.J. (1999). Sampling in qualitative inquiry. In B.F. Crabtree, & W.L. Miller (Eds.), Doing qualitative research (pp. 33-47). London: Sage Publications, Inc.
16. Kvale, S. (1996). Interviews. An introduction to qualitative research interviewing (pp. 81-160). London: Sage Publications.
17. Miller, W.L., & Crabtree, B.F. (1999). Depth interviewing. In B.F. Crabtree, & W.L. Miller (Eds.), Doing qualitative research (pp. 89-109). London: Sage Publications, Inc.
18. Mittelman, M.S., Ferris, S., Shulman, E., Steinberg, G., Ambinder, A., Mackell, J.A. et al. (1995). A comprehensive support program: Effect on depression in spouse-caregivers of AD patients. The Gerontologist, 35, 792-802.
19. Onor, M.L., Trevisiol, M., Negro, C., & Aguglia, E. (2006). Different perception of cognitive impairment, behavioral disturbances, and functional disabilities between persons with mild cognitive impairment and mild Alzheimer's disease and their caregivers. American Journal of Alzheimer's Disease and other Dementias, 21, 333-338.
20. Ory, A.G., Hoffmann, R.R., Yee, J.L., Tennstedt, S., & Schulz, R. (1999). Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. The Gerontologist, 39, 177-185.
21. Pinquart, M., & Sörensen, S. (2006). Helping caregivers of persons with dementia: Which interventions work and how large are their effects? International Psychogeriatrics, 18, 577-595.
22. Pusey, H., & Richards, D. (2001). A systematic review of the effectiveness of psychosocial interventions for carers of people with dementia. Aging and Mental Health, 5, 107-119.
23. Reed, B., Jagust, W.J., & Coulter, L. (1993). Anosognosia in Alzheimer's disease: Relationships to depression, cognitive function, and cerebral perfusion. Journal of Clinical and Experimental Neuropsychology, 15, 231-244.
24. Schulz, R., & Beach, R.S. (1999). Caregiving as a risk for mortality. Journal of the American Medical Association, 282, 2215-2219.
25. Schulz, R., O'Brien, A.T., Bookwala, J., & Fleissner, K. (1995). Psychiatric and physical morbidity effects of dementia caregivning: Prevalence, correlates, and causes. The Gerontologist, 35, 771-791.
26. Schulz, R., O'Brien, A., Czaja, S., Ory, M., Norris, R., Matire, L.M. et al. (2002). Dementia caregiver intervention research: In search of clinical significance. The Gerontologist, 42, 589-602.
27. Selwood, A., Johnston, K., Katona, C., Lyketos, C., & Livingstone, G. (2006). Systematic review of the effect of psychological interventions on family caregivers of people with dementia. Journal of Affective Disorders (doi:10.1016/j.jad.2006.10.025).
28. Sørensen, L.V., Waldorff, F.B., & Waldemar, G. (2007). Social participation in home-living patients with mild Alzheimer's disease. Archives of Gerontology and Geriatrics (doi:10.1016/j.archger.2007.08.011).
29. Waldemar, G., Waldorff, F., Buss, D.V., Eckermann, A., Keiding, N., Rishoej, S. et al. (2006). The Danish Alzheimer intervention study (DAISY): Rationale, design and baseline characteristics. Alzheimer's & Dementia, 2(Suppl. 1), S571.
30. Whitlatch, C.J., Feinberg, L.F., & Tucke, S.S. (2005). Measuring the values and preferences for everyday care of person with cognitive impairment and their family caregiver. The Gerontologist, 45, 370-380.
31. Whitlatch, C.J., Judge, K., Zarit, S.H., & Femia, E. (2006). Dyadic intervention for family caregivers and care receivers in early-stage dementia. The Gerontologist, 46, 688-694.