Women's perceptions of their involvement in treatment decision making for early stage breast cancer

Supportive Care in Cancer

Volumn 21, Issue 6, 2013, Pages 1717-1723

  O'Brien, Mary Ann ^a   Charles, Cathy ^b   Whelan, Timothy J ^c   Ellis, Peter M ^c   Gafni, Amiram ^b   Lovrics, Peter ^c,d  

^a UNIVERSITY OF TORONTO   (Canada)

^b MCMASTER UNIVERSITY   (Canada)

^c MCMASTER UNIVERSITY   (Canada)

^d MCMASTER UNIVERSITY   (Canada)

Author keywords

Breast cancer; Patient involvement; Treatment decision making

Indexed keywords

ANTINEOPLASTIC AGENT;

ADJUVANT THERAPY; ADULT; AGED; ARTICLE; AUDIO RECORDING; BREAST CANCER; BREAST SURGERY; CANCER RADIOTHERAPY; CANCER STAGING; CLINICAL ARTICLE; CONSULTATION; DATA ANALYSIS; FAMILY DECISION MAKING; FEMALE; HUMAN; MASTECTOMY; MEDICAL DECISION MAKING; MEDICAL INFORMATION; MEDICAL SPECIALIST; PARTIAL MASTECTOMY; PATIENT ATTITUDE; PATIENT DECISION MAKING; PATIENT EDUCATION; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; SOCIAL INTERACTION; SOCIAL NETWORK; TREATMENT PLANNING;

ADULT; AGED; ATTITUDE TO HEALTH; BREAST NEOPLASMS; DECISION MAKING; FEMALE; HUMANS; MASTECTOMY; MASTECTOMY, SEGMENTAL; MIDDLE AGED; PATIENT PARTICIPATION; RADIOTHERAPY, ADJUVANT;

EID: 84879146212     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-013-1718-6     Document Type: Article

References (43)

1. Capen K (1997) Supreme Court reaffirms landmark informed-consent ruling in chickenpox case. CMAJ 157:553-554
2. Etchells E, Sharpe G, Burgess MM, Singer PA (1996) Bioethics for clinicians: 2. Disclosure. CMAJ 155:387-391
3. Mazur DJ (2003) Influence of the law on risk and informed consent. Brit Med J 327:731-734
4. Moumjid N, Callu MF (2003) Informed consent and risk communication in France. Brit Med J 327:734-735
5. Ontario Ministry of Health (1994) Consent to treatment: a guide to the act. Queen's Printer for Canada, Ontario
6. Breitsameter C (2010) Medical decision making and communication of risks: an ethical perspective. J Med Ethics 36:349-352
7. Gnant M, Steger GG (2009) Fighting overtreatment in adjuvant breast cancer therapy. Lancet 374:2029-2030
8. O'Brien MA, Whelan TJ, Villasis-Keever M, Gafni A, Charles C, Roberts R, Schiff S, Cai W (2009) Are cancer-related decision aids effective? A systematic review and meta-analysis. J Clin Oncol 27:974-985
9. Waljee JF, Rogers MA, Alderman AK (2007) Decision aids and breast cancer: do they influence choice for surgery and knowledge of treatment options? J Clin Oncol 25:1067-1073
10. Stacey D, Samant R, Bennett C (2008) Decision making in oncology: a review of patient decision aids to support patient participation. CA Cancer J Clin 58:293-304
11. Spiegle G, Al-Sukhni E, Schmocker S, Gagliardi AR, Victor JC, Baxter NN, Kennedy ED (2012) Patient decision aids for cancer treatment: are there any alternatives? Cancer. doi: 10.1002/cncr.27641
12. Brown R, Butow P, Wilson-Genderson M, Bernhard J, Ribi K, Juraskova I (2012) Meeting the decision making preferences of patients with breast cancer in oncology consultations: impact on decision-related outcomes. J Clin Oncol 30:857-862
13. Moumjid N, Gafni A, Bremond A, Carriere MO (2007) Shared decision making in the medical encounter: are we all talking about the same thing? Medical Decision Making 27:539-546
14. Charles C, Gafni A, Whelan T (2005) Treatment decision aids: conceptual issues and future directions. Heal Expect 8:114-125
15. Nelson WL, Han Paul K, Fagerlin A, Michael S, Ubel PA (2007) Rethinking the objectives of decision aids: a call for conceptual clarity. Medical Decision Making 27:609-618
16. Say R, Murtagh M, Thomson R (2006) Patients' preference for involvement in medical decision making: a narrative review. Patient Educ Couns. 60:102-114
17. Hubbard G, Kidd L, Donaghy E (2008) Preferences for involvement in treatment decision making of patients with cancer: a review of the literature. Eur J Oncol Nurs 12:299-318
18. Tariman JD, Berry DL, Cochrane B, Doorenbos A, Schepp K (2010) Preferred and actual participation roles during health care decision making in persons with cancer: a systematic review. Ann Oncol 21:1145-1151
19. Degner LF, Sloan JA (1992) Decision making during serious illness: what role do patients really want to play? J Clin Epidemiol 45:941-950
20. Hack TF, Degner LF, Dyck DG (1994) Relationship between preferences for decisional control and illness information among women with breast cancer: a quantitative and qualitative analysis. Soc Sci Med 39:279-289
21. Beaver K, Luker KA, Owens RG, Leinster SJ, Degner LF, Sloan JA (1996) Treatment decision making in women newly diagnosed with breast cancer. Cancer Nurs 19:8-19
22. Degner LF, Kristjanson LJ, Bowman D, Sloan JA, Carriere KC, O'Neil J et al (1997) Information needs and decisional preferences in women with breast cancer. J Amer Med Assoc 277:1485-1492
23. Charles C, Redko C, Whelan T, Gafni A, Reyno L (1998) Doing nothing is no choice: lay constructions of treatment decision making among women with early-stage breast cancer. Sociology of Health and Illness 20:71-95
24. Kenny P, Quine S, Shiell A, Cameron S (1999) Participation in treatment decision making by women with early stage breast cancer. Health Expect 2:159-168
25. Bruera E, Willey JS, Palmer JL, Rosales M (2002) Treatment decisions for breast carcinoma: patient preferences and physician perceptions. Cancer 94:2076-2080
26. Henman MJ, Butow PN, Brown RF, Boyle F, Tattersall MH (2002) Lay constructions of decision making in cancer. Psychooncology 11:295-306
27. Beaver K, Jones D, Susnerwala S, Craven O, Tomlinson M, Witham G, Luker KA (2005) Exploring the decision making preferences of people with colorectal cancer. Health Expect. 8:103-113
28. O'Brien MA, Whelan TJ, Charles C, Ellis PM, Gafni A, Lovrics P, Mukherjee SD, Hodgson N (2008) Women's perceptions of their treatment decision making about breast cancer treatment. Patient Educ Couns 73:431-436
29. O'Brien MA, Ellis PM, Whelan TJ, Charles C, Gafni A, Lovrics P, Mukherjee SD, Hodgson N (2011) Physician-related facilitators and barriers to patient involvement in treatment decision making in early stage breast cancer: perspectives of physicians and patients. Health Expect Sep 16. doi: 10.1111/j.1369-7625.2011.00712.x
30. Sandelowski M (2000) Whatever happened to qualitative description? Res Nurs Health 23:334-340
31. Bowen GA (2008) Naturalistic inquiry and the saturation concept: a research note. Qual Res 8(1):137-152
32. Charles C, Gafni A, Whelan T (1999) Decision making in the physician-patient encounter: revisiting the shared treatment decision making model. Soc Sci Med 49:651-661
33. Bowen G (2006) Grounded theory and sensitizing concepts. International Journal of Qualitative Methods 5(2). Available at http://www.ualberta.ca/~iiqm/ backissues/5-3/pdf/bowen.pdf. Accessed on 24 October 2011
34. Guba EG, Lincoln YS (1989) Fourth generation evaluation. Sage, Newbury Park
35. Constructing CK, Theory G (2006) A practical guide through qualitative analysis. Sage, Thousand Oaks
36. Boeije H (2002) A purposeful approach to the constant comparative method in the analysis of qualitative data. Qual Quant 36:391-409
37. Fraenkel L, McGraw S (2007) Participation in medical decision making: the patients' perspective. Med Decis Making 27:533-538
38. Entwistle VA, Watt IS (2006) Patient involvement in treatment decision making: the case for a broader conceptual framework. Patient Educ Couns 63:268-278
39. Rapley T (2008) Distributed decision making: the anatomy of decisions-in-action. Sociol Health Illn 30:429-444
40. Entwistle V, Prior M, Skea ZC, Francis JJ (2008) Involvement in treatment decision making: its meaning to people with diabetes and implications for conceptualisation. Soc Sci Med 66:362-375
41. Scholl I, Loon MK, Sepucha K, Elwyn G, Légaré F, Härter M, Dirmaier J (2011) Measurement of shared decision making - a review of instruments. Z Evid Fortbild Qual Gesundhwes [German Journal for Evidence and Quality in Healthcare] 105:313-324
42. Entwistle VA, Skea ZC, O'Donnell MT (2001) Decisions about treatment: interpretations of two measures of control by women having a hysterectomy. Soc Sci Med 53:721-732
43. Davey HM, Lim J, Butow PN, Barratt AL, Redman S (2004) Women's preferences for and views on decision making for diagnostic tests. Soc Sci Med 58:1699-1707