Psychological needs when diagnosed with testicular cancer: Findings from a population-based study with long-term follow-up

BJU International

Volumn 111, Issue 8, 2013, Pages 1287-1293

  Skoogh, Johanna ^a,b,c   Steineck, Gunnar ^c   Johansson, Boo ^b   Wilderäng, Ulrica ^a   Stierner, Ulrika ^d  

^a SAHLGRENSKA ACADEMY AT UNIVERSITY OF GOTHENBURG   (Sweden)

^b KAROLINSKA INSTITUTE   (Sweden)

^c UNIVERSITY OF GOTHENBURG   (Sweden)

^d SAHLGRENSKA UNIVERSITY HOSPITAL   (Sweden)

Author keywords

counselling; crisis; information; psychological needs; psychological support; testicular cancer

Indexed keywords

ADULT; AGED; ARTICLE; CANCER STAGING; CANCER SURVIVOR; FOLLOW UP; HEALTH CARE NEED; HUMAN; MAJOR CLINICAL STUDY; MALE; PATIENT INFORMATION; PEER COUNSELING; POPULATION RESEARCH; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL NEED; QUESTIONNAIRE; STRESS; TESTIS CANCER;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; FOLLOW-UP STUDIES; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INCIDENCE; MALE; MIDDLE AGED; POPULATION SURVEILLANCE; QUESTIONNAIRES; RETROSPECTIVE STUDIES; SURVIVORS; SWEDEN; TESTICULAR NEOPLASMS; TIME FACTORS; YOUNG ADULT;

EID: 84878318238     PISSN: 14644096     EISSN: 1464410X     Source Type: Journal    
DOI: 10.1111/j.1464-410X.2012.11696.x     Document Type: Article

References (34)

1. Lesley D,. Sex, gender, and health: the need for a new approach. BMJ 2001; 323: 1061-1063
2. Helgason AR, Dickman PW, Adolfsson J, Steineck G,. Emotional isolation: prevalence and the effect on well-being among 50-80-year-old prostate cancer patients. Scand J Urol Nephrol 2001; 35: 97-101 (Pubitemid 32475756)
3. Harrison J, Maguire P, Pitceathly C,. Confiding in crisis: gender differences in pattern of confiding among cancer patients. Soc Sci Med 1995; 41: 1255-1260
4. Courtenay WH,. Key determinants of the health and well-being of men and boys. Int J Men's Health 2003; 2: 1-30
5. Galdas PM, Cheater F, Marshall P,. Men and health help-seeking behaviour: literature review. J Adv Nurs 2005; 49: 616-623 (Pubitemid 40417364)
6. Tandstad T, Dahl O, Cohn-Cedermark G, et al. Risk-adapted treatment in clinical stage I nonseminomatous germ cell testicular cancer: the SWENOTECA management program. J Clin Oncol 2009; 27: 2122-2128
7. Olofsson SE, Tandstad T, Jerkeman M, et al. Population-based study of treatment guided by tumor marker decline in patients with metastatic nonseminomatous germ cell tumor: a report from the Swedish-Norwegian Testicular Cancer Group. J Clin Oncol 2011; 29: 2032-2039
8. Skoogh J,. Towards a Retained Health in Testicular-Cancer Patients-Long-Term Cognitive Function, Missing a Testicle and Psychological Needs. Gothenburg: Gothenburg University, 2012
9. Bergmark K, Åvall-Lundqvist E, Dickman PW, Henningsohn L, Steineck G,. Vaginal changes and sexuality in women with a history of cervical cancer. N Engl J Med 1999; 340: 1383-1389 (Pubitemid 29205401)
10. Kreicbergs U, Valdimarsdõttir U, Onelöv E, Henter JI, Steineck G,. Talking about death with children who have severe malignant disease. N Engl J Med 2004; 351: 1175-1186 (Pubitemid 39296305)
11. Skoogh J, Ylitalo N, Larsson Omerov P, et al. 'A no means no'-measuring depression using a single-item question versus Hospital Anxiety and Depression Scale (HADS-D). Ann Oncol 2010; 21: 1905-1909
12. Steineck G, Bergmark K, Henningsohn L, al-Abany M, Dickman PW, Helgason A,. Symptom documentation in cancer survivors as a basis for therapy modifications. Acta Oncol 2002; 41: 244-252 (Pubitemid 34833048)
13. Steineck G, Hunt H, Adolfsson J,. A hierarchical step-model for causation of bias-evaluating cancer treatment with epidemiological methods. Acta Oncol 2006; 45: 421-429 (Pubitemid 43884610)
14. Skoogh J, Steineck G, Stierner U, et al. Testicular-cancer survivors experience compromised language following chemotherapy: findings in a Swedish population-based study 3-26 years after treatment. Acta Oncol 2012; 51: 185-197
15. Skaali T, Fosså SD, Andersson S, Langberg CW, Lehne G, Dahl AA,. Is psychological distress in men recently diagnosed with testicular cancer associated with their neuropsychological test performance? Psychooncology 2011; 20: 369-377
16. Tuinman MA, Hoekstra HJ, Sleijfer DT, et al. Testicular cancer: a longitudinal pilot study on stress response symptoms and quality of life in couples before and after chemotherapy. Support Care Cancer 2007; 15: 279-286 (Pubitemid 46295203)
17. Trask PC, Paterson AG, Fardig J, Smith DC,. Course of distress and quality of life in testicular cancer patients before, during, and after chemotherapy: results of a pilot study. Psychooncology 2003; 12: 814-820 (Pubitemid 38035272)
18. Grov EK, Fosså SD, Bremnes RM, et al. The personality trait of neuroticism is strongly associated with long-term morbidity in testicular cancer survivors. Acta Oncol 2009; 48: 842-849
19. Fleer J, Sleijfer D, Hoekstra H, Tuinman M, Klip E, Hoekstra-Weebers J,. Objective and subjective predictors of cancer-related stress symptoms in testicular cancer survivors. Patient Educ Couns 2006; 64: 142-150 (Pubitemid 44772953)
20. Mykletun A, Dahl AA, Haaland CF, et al. Side effects and cancer-related stress determine quality of life in long-term survivors of testicular cancer. J Clin Oncol 2005; 23: 3061-3068 (Pubitemid 46224128)
21. Dahlstrand H, Hauksdõttir A, Valdimarsdõttir U, Furst CJ, Bergmark K, Steineck G,. Disclosure of incurable illness to spouses: do they want to know? A Swedish population-based follow-up study. J Clin Oncol 2008; 26: 3372-3379
22. Fallowfield LJ, Jenkins VA, Beveridge HA,. Truth may hurt but deceit hurts more: communication in palliative care. Palliat Med 2002; 16: 297-303 (Pubitemid 34785126)
23. Meredith C, Symonds P, Webster L, et al. Information needs of cancer patients in west Scotland: cross sectional survey of patients' views. BMJ 1996; 313: 724-726 (Pubitemid 26313073)
24. Sorlie T, Rosenvinge JH, Bremnes R, et al. Management satisfaction in survivors of testicular cancer. Anticancer Res 2006; 26: 1463-1469
25. Moynihan C,. Testicular cancer: the psychosocial problems of patients and their relatives. Cancer Surv 1987; 6: 477-510
26. Rieker PP,. How should a man with testicular cancer be counseled and what information is available to him? Semin Urol Oncol 1996; 14: 17-23 (Pubitemid 26084336)
27. Rieker PP, Fitzgerald EM, Kalish LA, et al. Psychosocial factors, curative therapies, and behavioral outcomes. A comparison of testis cancer survivors and a control group of healthy men. Cancer 1989; 64: 2399-2407
28. Skoogh J, Steineck G, Cavallin-Ståhl E, et al. Feelings of loss and uneasiness or shame after removal of a testicle by orchidectomy: a population-based long-term follow-up of testicular cancer survivors. Int J Androl 2011; 34: 183-192
29. Devine EC, Westlake SK,. The effects of psychoeducational care provided to adults with cancer: meta-analysis of 116 studies. Oncol Nurs Forum 1995; 22: 1369-1381
30. Goodwin PJ, Leszcz M, Ennis M, et al. The effect of group psychosocial support on survival in metastatic breast cancer. N Engl J Med 2001; 345: 1719-1726
31. Jacobsen PB, Jim HS,. Psychosocial interventions for anxiety and depression in adult cancer patients: achievements and challenges. CA Cancer J Clin 2008; 58: 214-230
32. Lautrette A, Darmon M, Megarbane B, et al. A communication strategy and brochure for relatives of patients dying in the ICU. N Engl J Med 2007; 356: 469-478 (Pubitemid 46193074)
33. Carlson LE, Bultz BD,. Efficacy and medical cost offset of psychosocial interventions in cancer care: making the case for economic analyses. Psychooncology 2004; 13: 837-849; discussion 850-6 (Pubitemid 40011925)
34. Trijsburg RW, van Knippenberg FC, Rijpma SE,. Effects of psychological treatment on cancer patients: a critical review. Psychosom Med 1992; 54: 489-517