Feelings of loss and uneasiness or shame after removal of a testicle by orchidectomy: A population-based long-term follow-up of testicular cancer survivors

International Journal of Andrology

Volumn 34, Issue 2, 2011, Pages 183-192

  Skoogh, J ^a   Steineck, G ^a,b   Cavallin Stahl E ^c   Wilderang U ^a   Hakansson U K ^c   Johansson, B ^d   Stierner, U ^d  

^a SAHLGRENSKA ACADEMY AT UNIVERSITY OF GOTHENBURG   (Sweden)

^b KAROLINSKA INSTITUTE   (Sweden)

^c LUND UNIVERSITY HOSPITAL   (Sweden)

^d UNIVERSITY OF GOTHENBURG   (Sweden)

Author keywords

Loss; Orchidectomy; Prosthesis; Testicular cancer; Uneasiness and shame

Indexed keywords

ADULT; AGED; ARTICLE; CANCER SURVIVOR; EMOTION; FOLLOW UP; HUMAN; MAJOR CLINICAL STUDY; MALE; ORCHIECTOMY; OUTCOME ASSESSMENT; PRIORITY JOURNAL; PROSTHESIS; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SELF CONCEPT; SHAME; SWEDEN; TESTIS CANCER;

ADULT; AGED; EMOTIONS; HUMANS; MALE; MIDDLE AGED; NEOPLASMS, GERM CELL AND EMBRYONAL; ORCHIECTOMY; PROSTHESES AND IMPLANTS; QUESTIONNAIRES; SHAME; SURVIVORS; SWEDEN; TESTICULAR NEOPLASMS; TESTIS;

EID: 79952713865     PISSN: 01056263     EISSN: 13652605     Source Type: Journal    
DOI: 10.1111/j.1365-2605.2010.01073.x     Document Type: Article

References (30)

1. Adshead J, Khoubehi B, Wood J & Rustin G. (2001) Testicular implants and patient satisfaction: a questionnaire-based study of men after orchidectomy for testicular cancer. BJU Int 88, 559-562.
2. Bergmark K, Åvall-Lundqvist E, Dickman PW, Henningsohn L & Steineck G. (1999) Vaginal changes and sexuality in women with a history of cervical cancer. N Engl J Med 340, 1383-1389.
3. Bjelland I, Dahl AA, Haug TT & Neckelmann D. (2002) The validity of the Hospital Anxiety and Depression Scale. An updated literature review. J Psychosom Res 52, 69-77.
4. Bodiwala D, Summerton DJ & Terry TR. (2007) Testicular prostheses: development and modern usage. Ann R Coll Surg Engl 89, 349-353.
5. Boy D & Carl P. (2002) Acceptance of silicone testicular prostheses in long-term follow-up. Urologe A 41, 462-469.
6. Brodsky MS. (1999) The young male experience with treatment for nonsemitous testicular cancer. Sex Disabil 17, 65-77.
7. Chapple A & McPherson A. (2004) The decision to have a prosthesis: a qualitative study of men with testicular cancer. Psychooncology 13, 654-664.
8. Dahl AA, Haaland CF, Mykletun A, Bremnes R, Dahl O, Klepp O, Wist E & Fosså SD. (2005) Study of anxiety disorder and depression in long-term survivors of testicular cancer. J Clin Oncol 23, 2389-2395.
9. Farrell W. (1974) The Liberated Man. Random House, New York, NY, USA.
10. Gascoigne P, Mason MD & Roberts E. (1999) Factors affecting presentation and delay in patients with testicular cancer: results of a qualitative study. Psychooncology 8, 144-154.
11. Gurevich M, Bishop S, Bower J, Malka M & Nyhof-Young J. (2004) (Dis)embodying gender and sexuality in testicular cancer. Soc Sci Med 58, 1597-1607.
12. Hauksdóttir A, Valdimarsdóttir U, Fürst CJ, Onelöv E & Steineck G. (2010) Health care-related predictors of husbands' preparedness for the death of a wife to cancer - a population-based follow-up. Ann Oncol 21, 354-361.
13. Hebert RS, Schulz R, Copeland VC & Arnold RM. (2009) Preparing family caregivers for death and bereavement. Insights from caregivers of terminally ill patients. J Pain Symptom Manage 37, 3-12.
14. Incrocci L, Bosch JL & Slob AK. (1999) Testicular prostheses: body image and sexual functioning. BJU Int 84, 1043-1045.
15. Kreicbergs U, Valdimarsdóttir U, Onelöv E, Henter JI & Steineck G. (2004) Talking about death with children who have severe malignant disease. N Engl J Med 351, 1175-1186.
16. Lautrette A, Darmon M, Megarbane B, Joly LM, Chevret S, Adrie C et al. (2007) A communication strategy and brochure for relatives of patients dying in the ICU. N Engl J Med 356, 469-478.
17. Liss-Levinson WS. (1982) Clinical observations on the emotional responses of males to cancer. Psychother; Theory, Res Pract 19, 325-330.
18. Lloyd SM, Watson M, Oaker G, Sacks N, Querci della Rovere U & Gui G. (2000) Understanding the experience of prophylactic bilateral mastectomy: a qualitative study of ten women. Psychooncology 9, 473-485.
19. Lynch MJ & Pryor JP. (1992) Testicular prostheses: the patient's perception. Br J Urol 70, 420-422.
20. Morman MT. (2000) The influence of fear appeals, message design, and masculinity on men's motivation to perform the testicular self-exam. J Appl Commun Res 28, 91-116.
21. Rieker PP. (1996) How should a man with testicular cancer be counseled and what information is available to him? Semin Urol Oncol 14, 17-23.
22. Rumsey N & Harcourt D. (2004) Body image and disfigurement: issues and interventions. Body Image 1, 83-97.
23. Skoogh J, Ylitalo N, Larsson Omeróv P, Hauksdóttir A, Nyberg U, Wilderäng U, Johansson B, Gatz M & Steineck G. (2010) "A No means No"- measuring depression using a single-item Question versus Hospital Anxiety and Depression Scale (HADS-D). Ann Oncol [Epub ahead of print].
24. Steineck G, Bergmark K, Henningsohn L, al-Abany M, Dickman PW & Helgason ÁR. (2002) Symptom documentation in cancer survivors as a basis for therapy modifications. Acta Oncol 41, 244-252.
25. Steineck G, Hunt H & Adolfsson J. (2006) A hierarchical step-model for causation of bias-evaluating cancer treatment with epidemiological methods. Acta Oncol 45, 421-429.
26. Thompson A & Kent G. (2001) Adjusting to disfigurement: processes involved in dealing with being visibly different. Clin Psychol Rev 21, 663-682.
27. Valdimarsdóttir U, Helgason ÁR, Fürst CJ, Adolfsson J & Steineck G. (2004) Awareness of husband's impending death from cancer and long-term anxiety in widowhood: a nationwide follow-up. Palliat Med 18, 432-443.
28. Valdimarsdóttir U, Kreicbergs U, Hauksdóttir A, Hunt H, Onelöv E, Henter JI & Steineck G. (2007) Parents' intellectual and emotional awareness of their child's impending death to cancer: a population-based long-term follow-up study. Lancet Oncol 8, 706-714.
29. White CA. (2000) Body image dimensions and cancer: a heuristic cognitive behavioural model. Psychooncology 9, 183-192.
30. Zigmond AS & Snaith RP. (1983) The hospital anxiety and depression scale. Acta Psychiatr Scand 67, 361-370.