Type 1 diabetes ehealth psychoeducation: Youth recruitment, participation, and satisfaction

Journal of Medical Internet Research

Volumn 15, Issue 1, 2013, Pages

  Whittemore, Robin ^a   Jaser, Sarah S ^b   Faulkner, Melissa S ^c   Murphy, Kathryn ^d   Delamater, Alan ^e   Grey, Margaret ^a  

^a Universidade Yale   (United States)

^b VANDERBILT UNIVERSITY   (United States)

^c UNIVERSITY OF ARIZONA   (United States)

^d CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^e UNIVERSITY OF MIAMI   (United States)

Author keywords

Internet; Patient Participation Rates; Patient Satisfaction; Research Subject Recruitment Youth

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; FEMALE; HEALTH EDUCATION; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; INTERNET; MALE; METHODOLOGY; PATIENT PARTICIPATION; PATIENT SATISFACTION; PATIENT SELECTION; PSYCHOLOGICAL ASPECT; TELEMEDICINE; UNITED STATES; UTILIZATION REVIEW;

ADOLESCENT; CHILD; DIABETES MELLITUS, TYPE 1; FEMALE; HEALTH EDUCATION; HUMANS; INTERNET; MALE; PATIENT PARTICIPATION; PATIENT SATISFACTION; PATIENT SELECTION; TELEMEDICINE; UNITED STATES;

MLCS; MLOWN;

EID: 84877301754     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.2170     Document Type: Review

References (52)

1. SEARCH for Diabetes in Youth Study Group, Liese AD, D'Agostino RB, Hamman RF, Kilgo PD, Lawrence JM, et al. The burden of diabetes mellitus among US youth: prevalence estimates from the SEARCH for Diabetes in Youth Study. Pediatrics 2006 Oct;118(4):1510-1518 [FREE Full text] [doi: 10.1542/peds.2006- 0690] [Medline: 17015542]
2. Bell RA, Mayer-Davis EJ, Beyer JW, D'Agostino RB, Lawrence JM, Linder B, SEARCH for Diabetes in Youth Study Group. Diabetes in non-Hispanic white youth: prevalence, incidence, and clinical characteristics: the SEARCH for Diabetes in Youth Study. Diabetes Care 2009 Mar;32 Suppl 2:S102-S111 [FREE Full text] [doi: 10.2337/dc09-S202] [Medline: 19246575]
3. Lawrence JM, Mayer-Davis EJ, Reynolds K, Beyer J, Pettitt DJ, D'Agostino RB, SEARCH for Diabetes in Youth Study Group. Diabetes in Hispanic American youth: prevalence, incidence, demographics, and clinical characteristics: the SEARCH for Diabetes in Youth Study. Diabetes Care 2009 Mar;32 Suppl 2:S123-S132 [FREE Full text] [doi: 10.2337/dc09-S204] [Medline: 19246577]
4. Mayer-Davis EJ, Beyer J, Bell RA, Dabelea D, D'Agostino R, Imperatore G, SEARCH for Diabetes in Youth Study Group. Diabetes in African American youth: prevalence, incidence, and clinical characteristics: the SEARCH for Diabetes in Youth Study. Diabetes Care 2009 Mar;32 Suppl 2:S112-S122 [FREE Full text] [doi: 10.2337/dc09-S203] [Medline: 19246576]
5. American Diabetes Association. Standards of medical care in diabetes-2012. Diabetes Care 2012 Jan;35 Suppl 1:S11-S63. [doi: 10.2337/dc12-s011] [Medline: 22187469]
6. Anderson BJ, Vangsness L, Connell A, Butler D, Goebel-Fabbri A, Laffel LM. Family conflict, adherence, and glycaemic control in youth with short duration Type 1 diabetes. Diabet Med 2002 Aug;19(8):635-642. [Medline: 12147143]
7. Anderson BJ, Holmbeck G, Iannotti RJ, McKay SV, Lochrie A, Volkening LK, et al. Dyadic measures of the parent-child relationship during the transition to adolescence and glycemic control in children with type 1 diabetes. Fam Syst Health 2009 Jun;27(2):141-152 [FREE Full text] [doi: 10.1037/a0015759] [Medline: 19630455]
8. Ingerski LM, Anderson BJ, Dolan LM, Hood KK. Blood glucose monitoring and glycemic control in adolescence: contribution of diabetes-specific responsibility and family conflict. J Adolesc Health 2010 Aug;47(2):191-197 [FREE Full text] [doi: 10.1016/j.jadohealth.2010.01.012] [Medline: 20638012]
9. Anderson BJ, Brackett J, Ho J, Laffel LM. An office-based intervention to maintain parent-adolescent teamwork in diabetes management. Impact on parent involvement, family conflict, and subsequent glycemic control. Diabetes Care 1999 May;22(5):713-721 [FREE Full text] [Medline: 10332671]
10. Grey M, Boland EA, Davidson M, Li J, Tamborlane WV. Coping skills training for youth with diabetes mellitus has long-lasting effects on metabolic control and quality of life. J Pediatr 2000 Jul;137(1):107-113. [doi: 10.1067/mpd.2000.106568] [Medline: 10891831]
11. Wysocki T, Harris MA, Buckloh LM, Mertlich D, Lochrie AS, Mauras N, et al. Randomized trial of behavioral family systems therapy for diabetes: maintenance of effects on diabetes outcomes in adolescents. Diabetes Care 2007 Mar;30(3):555-560. [doi: 10.2337/dc06-1613] [Medline: 17327320]
12. Barlow JH, Ellard DR. Psycho-educational interventions for children with chronic disease, parents and siblings: an overview of the research evidence base. Child Care Health Dev 2004 Nov;30(6):637-645. [doi: 10.1111/j.1365-2214. 2004.00474.x] [Medline: 15527474]
13. Pew Internet. Trend data for teens. Washington, DC: Pew Internet & American Life Project; 2009. URL: http://pewinternet.org/Static-Pages/Trend- Data-(Teens).aspx [accessed 2012-12-19] [WebCite Cache ID 6D24tqmBK]
14. Stinson J, Wilson R, Gill N, Yamada J, Holt J. A systematic review of internet-based self-management interventions for youth with health conditions. J Pediatr Psychol 2009 Jun;34(5):495-510 [FREE Full text] [doi: 10.1093/jpepsy/jsn115] [Medline: 19029142]
15. Ritterband LM, Gonder-Frederick LA, Cox DJ. Internet interventions: in review, in use, and into the future. Professional Psychology: Research and Practice 2003;34(5):527-534. [doi: 10.1037/0735-7028.34.5.527]
16. Mulvaney SA, Rothman RL, Wallston KA, Lybarger C, Dietrich MS. An internet-based program to improve self-management in adolescents with type 1 diabetes. Diabetes Care 2010 Mar;33(3):602-604 [FREE Full text] [doi: 10.2337/dc09-1881] [Medline: 20032275]
17. Whittemore R, Jeon S, Jaser SS. Abstracts of the 37th Annual Meeting of the International Society for Pediatric and Adolescent Diabetes (ISPAD). October 19-22, 2011. Miami Beach, Florida, USA. Pediatr Diabetes 2011 Oct;12 Suppl 15(suppl 15):1-152. [doi: 10.1111/j.1399-5448.2011.01816.x] [Medline: 21978093]
18. Mulvaney SA, Rothman RL, Osborn CY, Lybarger C, Dietrich MS, Wallston KA. Self-management problem solving for adolescents with type 1 diabetes: intervention processes associated with an Internet program. Patient Educ Couns 2011 Nov;85(2):140-142 [FREE Full text] [doi: 10.1016/j.pec.2010.09.018] [Medline: 21030194]
19. Sun P, Unger JB, Palmer PH, Gallaher P, Chou CP, Baezconde-Garbanati L, et al. Internet accessibility and usage among urban adolescents in Southern California: implications for web-based health research. Cyberpsychol Behav 2005 Oct;8(5):441-453. [doi: 10.1089/cpb.2005.8.441] [Medline: 16232037]
20. Carroll AE, Rivara FP, Ebel B, Zimmerman FJ, Christakis DA. Household computer and Internet access: The digital divide in a pediatric clinic population. In: AMIA Annu Symp Proc. 2005 Presented at: AMIA Annu Symp Proc; 2005 p. 111-115 URL: http://europepmc.org/abstract/MED/16779012 [WebCite Cache]
21. Diviak KR, Wahl SK, O'Keefe JJ, Mermelstein RJ, Flay BR. Recruitment and retention of adolescents in a smoking trajectory study: who participates and lessons learned. Subst Use Misuse 2006;41(2):175-182. [doi: 10.1080/ 10826080500391704] [Medline: 16393741]
22. Hinshaw SP, Hoagwood K, Jensen PS, Kratochvil C, Bickman L, Clarke G, et al. AACAP 2001 research forum: challenges and recommendations regarding recruitment and retention of participants in research investigations. J Am Acad Child Adolesc Psychiatry 2004 Aug;43(8):1037-1045. [doi: 10.1097/01.chi. 0000129222.89433.3d] [Medline: 15266200]
23. Chan DS, Callahan CW, Hatch-Pigott VB, Lawless A, Proffitt HL, Manning NE, et al. Internet-based home monitoring and education of children with asthma is comparable to ideal office-based care: results of a 1-year asthma in-home monitoring trial. Pediatrics 2007 Mar;119(3):569-578 [FREE Full text] [doi: 10.1542/peds.2006-1884] [Medline: 17332210]
24. O'Kearney R, Kang K, Christensen H, Griffiths K. A controlled trial of a school-based Internet program for reducing depressive symptoms in adolescent girls. Depress Anxiety 2009;26(1):65-72. [doi: 10.1002/da.20507] [Medline: 18828141]
25. Williamson DA, Walden HM, White MA, York-Crowe E, Newton RL, Alfonso A, et al. Two-year internet-based randomized controlled trial for weight loss in African-American girls. Obesity (Silver Spring) 2006 Jul;14(7):1231-1243 [FREE Full text] [doi: 10.1038/oby.2006.140] [Medline: 16899804]
26. Frenn M, Malin S, Brown RL, Greer Y, Fox J, Greer J, et al. Changing the tide: an Internet/video exercise and low-fat diet intervention with middle-school students. Appl Nurs Res 2005 Feb;18(1):13-21. [doi: 10.1016/j.apnr.2004.04.003] [Medline: 15812731]
27. Neil AL, Batterham P, Christensen H, Bennett K, Griffiths KM. Predictors of adherence by adolescents to a cognitive behavior therapy website in school and community-based settings. J Med Internet Res 2009;11(1):e6 [FREE Full text] [doi: 10.2196/jmir.1050] [Medline: 19275982]
28. Christensen H, Reynolds J, Griffiths KM. The use of e-health applications for anxiety and depression in young people: challenges and solutions. Early Interv Psychiatry 2011 Feb;5 Suppl 1:58-62. [doi: 10.1111/j.1751-7893.2010. 00242.x] [Medline: 21208393]
29. Grey M, Whittemore R, Liberti L, Delamater A, Murphy K, Faulkner MS. A comparison of two internet programs for adolescents with type 1 diabetes: design and methods. Contemp Clin Trials 2012 Jul;33(4):769-776. [doi: 10.1016/j.cct.2012.03.012] [Medline: 22484337]
30. Kovacs M. The Children's Depression, Inventory (CDI). Psychopharmacol Bull 1985;21(4):995-998. [Medline: 4089116]
31. Grey M, Whittemore R, Jaser S, Ambrosino J, Lindemann E, Liberti L, et al. Effects of coping skills training in school-age children with type 1 diabetes. Res Nurs Health 2009 Aug;32(4):405-418 [FREE Full text] [doi: 10.1002/nur.20336] [Medline: 19488997]
32. Thompson D, Canada A, Bhatt R, Davis J, Plesko L, Baranowski T, et al. eHealth recruitment challenges. Eval Program Plann 2006 Nov;29(4):433-440. [doi: 10.1016/j.evalprogplan.2006.08.004] [Medline: 17950873]
33. Ritterband LM, Borowitz S, Cox DJ, Kovatchev B, Walker LS, Lucas V, et al. Using the internet to provide information prescriptions. Pediatrics 2005 Nov;116(5):e643-e647 [FREE Full text] [doi: 10.1542/peds.2005-0404] [Medline: 16263978]
34. Cafazzo JA, Casselman M, Hamming N, Katzman DK, Palmert MR. Design of an mHealth app for the self-management of adolescent type 1 diabetes: a pilot study. J Med Internet Res 2012;14(3):e70 [FREE Full text] [doi: 10.2196/jmir.2058] [Medline: 22564332]
35. Doyle AC, Goldschmidt A, Huang C, Winzelberg AJ, Taylor CB, Wilfley DE. Reduction of overweight and eating disorder symptoms via the Internet in adolescents: a randomized controlled trial. J Adolesc Health 2008 Aug;43(2):172-179 [FREE Full text] [doi: 10.1016/j.jadohealth.2008.01.011] [Medline: 18639791]
36. March S, Spence SH, Donovan CL. The efficacy of an internet-based cognitive-behavioral therapy intervention for child anxiety disorders. J Pediatr Psychol 2009 Jun;34(5):474-487 [FREE Full text] [doi: 10.1093/jpepsy/jsn099] [Medline: 18794187]
37. Lenhart A, Arafeh S, Smith A, Macgill A. The lives of teens and their technology. Washington, DC: Pew Internet & American Life Project; 2012 Apr 24. URL: http://www.pewinternet.org/Reports/2008/Writing-Technology-and-Teens/ 04-The-Lives-of-Teens-and-Their-Technology/01-Introduction.aspx [accessed 2012-12-19] [WebCite Cache ID 6D24xILOn]
38. Carroll AE, DiMeglio LA, Stein S, Marrero DG. Contracting and monitoring relationships for adolescents with type 1 diabetes: a pilot study. Diabetes Technol Ther 2011 May;13(5):543-549 [FREE Full text] [doi: 10.1089/dia.2010. 0181] [Medline: 21406011]
39. Carroll AE, DiMeglio LA, Stein S, Marrero DG. Using a cell phone-based glucose monitoring system for adolescent diabetes management. Diabetes Educ 2011;37(1):59-66. [doi: 10.1177/0145721710387163] [Medline: 21106908]
40. Franklin VL, Greene A, Waller A, Greene SA, Pagliari C. Patients' engagement with "Sweet Talk" - a text messaging support system for young people with diabetes. J Med Internet Res 2008;10(2):e20 [FREE Full text] [doi: 10.2196/jmir.962] [Medline: 18653444]
41. Franklin VL, Waller A, Pagliari C, Greene SA. A randomized controlled trial of Sweet Talk, a text-messaging system to support young people with diabetes. Diabet Med 2006 Dec;23(12):1332-1338. [doi: 10.1111/j.1464-5491.2006. 01989.x] [Medline: 17116184]
42. Frøisland DH, Arsand E, Skårderud F. Improving diabetes care for young people with type 1 diabetes through visual learning on mobile phones: mixed-methods study. J Med Internet Res 2012;14(4):e111 [FREE Full text] [doi: 10.2196/jmir.2155] [Medline: 22868871]
43. Skinner HA, Maley O, Norman CD. Developing internet-based eHealth promotion programs: the Spiral Technology Action Research (STAR) model. Health Promot Pract 2006 Oct;7(4):406-417. [doi: 10.1177/1524839905278889] [Medline: 16840770]
44. Thackara J. In the Bubble: Designing in a Complex World. Cambridge, MA: MIT Press; 2005.
45. Norman CD, Skinner HA. Engaging youth in e-health promotion: lessons learned from a decade of TeenNet research. Adolesc Med State Art Rev 2007 Aug;18(2):357-69, xii. [Medline: 18605651]
46. Wright MS, Wilson DK, Griffin S, Evans A. A qualitative study of parental modeling and social support for physical activity in underserved adolescents. Health Educ Res 2010 Apr;25(2):224-232 [FREE Full text] [doi: 10.1093/her/cyn043] [Medline: 18703530]
47. Cashen MS, Dykes P, Gerber B. eHealth technology and Internet resources: barriers for vulnerable populations. J Cardiovasc Nurs 2004;19(3):209-14; quiz 215. [Medline: 15191264]
48. Whittemore R, Grey M, Lindemann E, Ambrosino J, Jaser S. Development of an Internet coping skills training program for teenagers with type 1 diabetes. Comput Inform Nurs 2010;28(2):103-111 [FREE Full text] [doi: 10.1097/NCN.0b013e3181cd8199] [Medline: 20182161]
49. Kutner M, Greenberg E, Jin Y, Paulson C. The Health Literacy of America's Adults: Results From the 2003 National Assessment of Adult Literacy. Washington, DC: National Center for Education Statistics; 2006 Sep. URL: http://nces.ed.gov/pubs2006/2006483.pdf [accessed 2013-01-17] [WebCite Cache ID 6Dk94tWZo]
50. Mauriello LM, Ciavatta MM, Paiva AL, Sherman KJ, Castle PH, Johnson JL, et al. Results of a multi-media multiple behavior obesity prevention program for adolescents. Prev Med 2010 Dec;51(6):451-456 [FREE Full text] [doi: 10.1016/j.ypmed.2010.08.004] [Medline: 20800079]
51. Glasgow RE, Strycker LA, Kurz D, Faber A, Bell H, Dickman JM, et al. Recruitment for an internet-based diabetes self-management program: scientific and ethical implications. Ann Behav Med 2010 Aug;40(1):40-48. [doi: 10.1007/s12160-010-9189-1] [Medline: 20411443]
52. Eysenbach G, CONSORT-EHEALTH Group. CONSORT-EHEALTH: improving and standardizing evaluation reports of Web-based and mobile health interventions. J Med Internet Res 2011;13(4):e126 [FREE Full text] [doi: 10.2196/jmir.1923] [Medline: 22209829]