A comparison of two internet programs for adolescents with type 1 diabetes: Design and methods

Contemporary Clinical Trials

Volumn 33, Issue 4, 2012, Pages 769-776

  Grey, Margaret ^a   Whittemore, Robin ^a   Liberti, Lauren ^a   Delamater, Alan ^b   Murphy, Kathryn ^c   Faulkner, Melissa S ^d  

^a YALE UNIVERSITY SCHOOL OF NURSING   (United States)

^b UNIVERSITY OF MIAMI   (United States)

^c CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^d UNIVERSITY OF ARIZONA   (United States)

Author keywords

Adolescents; Diabetes; Internet; Methods

Indexed keywords

ADAPTATION; ADOLESCENT; ADOLESCENT DISEASE; ARTICLE; COMPARATIVE STUDY; CONFLICT; COPING BEHAVIOR; COST BENEFIT ANALYSIS; DISEASE CONTROL; FAMILY; HEALTH PROGRAM; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; INTERNET; MAJOR CLINICAL STUDY; OUTCOME ASSESSMENT; PATIENT SATISFACTION; PILOT STUDY; PSYCHOEDUCATION; QUALITY OF LIFE; SELF CONCEPT; SOCIAL COMPETENCE; STRESS;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; BIOLOGICAL MARKERS; CHILD; CLINICAL PROTOCOLS; DIABETES MELLITUS, TYPE 1; FAMILY CONFLICT; FOLLOW-UP STUDIES; HEMOGLOBIN A, GLYCOSYLATED; HUMANS; INTERNET; PATIENT EDUCATION AS TOPIC; PATIENT SATISFACTION; PSYCHOTHERAPY, GROUP; QUALITY OF LIFE; REGRESSION ANALYSIS; RESEARCH DESIGN; SOCIAL SUPPORT; TREATMENT OUTCOME;

EID: 84861527043     PISSN: 15517144     EISSN: 15592030     Source Type: Journal    
DOI: 10.1016/j.cct.2012.03.012     Document Type: Article

References (39)

1. Bell R.A., Mayer-Davis E.J., Beyer J.W., D'Agostino R.B., Lawrence J.M., Linder B., et al. Diabetes in non-Hispanic white youth: prevalence, incidence, and clinical characteristics: the SEARCH for Diabetes in Youth Study. Diabetes Care 2009, 32(Suppl. 2):S102-S111.
2. Mayer-Davis E.J., Beyer J., Bell R.A., Dabelea D., D'Agostino R., Imperatore G., et al. Diabetes in African American youth: prevalence, incidence, and clinical characteristics: the SEARCH for Diabetes in Youth Study. Diabetes Care 2009, 32(Suppl. 2):S112-S122.
3. Centers for Disease Control, Prevention National Diabetes Fact Sheet: national estimates and general information on diabetes and prediabetes in the United States 2011.
4. American Diabetes Association Economic costs of diabetes in the U.S. in 2007. Diabetes Care 2008, 31(3):596-615.
5. Insabella G., Grey M., Knafl G., Tamborlane W. The transition to young adulthood in youth with type 1 diabetes on intensive treatment. Pediatr Diabetes 2007, 8(4):228-234.
6. Grey M., Boland E.A., Davidson M., Tamborlane W. Coping skills training for youth with diabetes mellitus has long-lasting effects on metabolic control and quality of life. J Pediatr 2000, 137(1):107-113.
7. Anderson B., Loughlin C., Goldberg E., Laffel L. Comprehensive, family-focused outpatient care for very young children living with chronic disease: lessons from a program in pediatric diabetes. Children's Services: Social Policy, Research, and Practice 2001, 4:235-240.
8. Laffel L.M., Vangsness L., Connell A., Goebel-Fabbri A., Butler D., Anderson B.J. Impact of ambulatory, family-focused teamwork intervention on glycemic control in youth with type 1 diabetes. J Pediatr 2003, 142(4):409-416.
9. Pew Research Center Demographics of teen internet users 2009, 2011.
10. Nielsen J. Usability of websites for teenagers 2005, 2011.
11. Grey M., Thurber F.W. Adaptation to chronic illness in childhood: diabetes mellitus. J Pediatr Nurs 1991, 6(5):302-309.
12. Grey M., Davidson M., Boland E.A., Tamborlane W.V. Clinical and psychosocial factors associated with achievement of treatment goals in adolescents with diabetes mellitus. J Adolesc Health 2001, 28(5):377-385.
13. Whittemore R., Jaser S., Guo J., Grey M. A conceptual model of childhood adaptation to type 1 diabetes. Nurs Outlook 2010, 58(5):242-251.
14. Van Voorhis C.W., Morgan B.L. Understanding power and rules of thumb for determining samples sizes. Tutrials Quant Methods Psych 2007, 3(2):43-50.
15. Whittemore R., Grey M., Lindemann E., Ambrosino J., Jaser S. Development of an Internet coping skills training program for teenagers with type 1 diabetes. Comput Inform Nurs 2010, 28(2):103-111.
16. Ehehalt S., Gauger N., Blumenstock G., Feldhahn L., Scheffner T., Schweizer R., et al. Hemoglobin A1c is a reliable criterion for diagnosing type 1 diabetes in childhood and adolescence. Pediatr Diabetes 2010, 11(7):446-449.
17. Varni J.W., Seid M., Rode C.A. The PedsQL: measurement model for the Pediatric Quality of Life Inventory. Med Care 1999, 37(2):126-139.
18. Varni J.W., Seid M., Kurtin P.S. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 Generic Core Scales in healthy and patient populations. Med Care 2001, 39(8):800-812.
19. Varni J.W., Burwinkle T.M., Jacobs J.R., Gottschalk M., Kaufman F., Jones K.L. The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module. Diabetes Care 2003, 26(3):631-637.
20. Hood K.K., Butler D.A., Anderson B.J., Laffel L.M. Updated and revised Diabetes Family Conflict Scale. Diabetes Care 2007, 30(7):1764-1769.
21. Rubin R., Young-Hyman D., Peyrot M. Parent-child responsibility and conflict in diabetes care. Diabetes 1989, 38(1):28.
22. Cohen S., Kamarck T., Mermelstein R. A global measure of perceived stress. J Health Soc Behav 1983, 24(4):385-396.
23. Connor-Smith J.K., Compas B.E., Wadsworth M.E., Thomsen A.H., Saltzman H. Responses to stress in adolescence: measurement of coping and involuntary stress responses. J Consult Clin Psychol 2000, 68:976-992.
24. Davidson M., Penney E.D., Muller B., Grey M. Stressors and self-care challenges faced by adolescents living with type 1 diabetes. Appl Nurs Res 2004, 17(2):72-80.
25. Compas B.E., Boyer M.C., Stanger C., Colletti R.B., Thomsen A.H., Duftoon L.M., et al. Latent variable analysis of coping, anxiety/depression, and somatic symptoms in adolescents with chronic pain. J Consult Clin Psychol 2006, 74(6):1132-1142.
26. Grossman H.Y., Brink S., Hauser S.T. Self-efficacy in adolescent girls and boys with insulin-dependent diabetes mellitus. Diabetes Care 1987, 10(3):324-329.
27. Harter S. Manual for the adolescent self-perception profile 1988.
28. Schilling L.S., Knafl K.A., Grey M. Changing patterns of self-management in youth with type I diabetes. J Pediatr Nurs 2006, 21(6):412-424.
29. Peterson A., Crockett L., Richards M., Boxer A. A self-report of pubertal status: reliability, validity, and initial norms. J Youth Adolesc 1988, 17:117-133.
30. Kovacs M. The Children's Depression, Inventory (CDI). Psychopharmacol Bull 1985, 21(4):995-998.
31. Smucker M.R., Craighead W.E., Craighead L.W., Green B.J. Normative and reliability data for the Children's Depression Inventory. J Abnorm Child Psychol 1986, 14(1):25-39.
32. Kovacs M., Brent D., Steinberg T.F., Paulauskas S., Reid J. Children's self-reports of psychologic adjustment and coping strategies during first year of insulin-dependent diabetes mellitus. Diabetes Care 1986, 9(5):472-479.
33. Kovacs M., Iyengar S., Goldston D., Stewart J., Obrosky D.S., Marsh J. Psychological functioning of children with insulin-dependent diabetes mellitus: a longitudinal study. J Pediatr Psychol 1990, 15(5):619-632.
34. Baron R.M., Kenny D.A. The moderator-mediator variable distinction in social psychological research: conceptual, strategic, and statistical considerations. J Pers Soc Psychol 1986, 51:1173-1182.
35. Sobel M. Asymptotic intervals for indirect effects in structural equation models 1982, 290-312. Jossey Bass, San Francisco, CA. S. Leinhart (Ed.).
36. MacKinnon D.P., Fairchild A.J., Fritz M.S. Mediation analysis. Annu Rev Psychol 2007, 58:593-614.
37. Anderson B.J., Brackett J., Ho J., Laffel L.M. An office-based intervention to maintain parent-adolescent teamwork in diabetes management. Impact on parent involvement, family conflict, and subsequent glycemic control. Diabetes Care 1999, 22(5):713-721.
38. Wysocki T., Harris M.A., Greco P., et al. Randomized, controlled trial of behavior therapy for families of adolescents with insulin-dependent diabetes mellitus. J Pediatr Psychol 2000, 25(1):23-33.
39. Silverstein J., Klingensmith G., Copeland K., Bubb J., Danda C.E., Harvey L.M., et al. Care of children and adolescents with type 1 diabetes: a statement of the American Diabetes Association. Diabetes Care 2005, 28(1):186-212.