Patients' experiences of the implantable cardioverter defibrillator (ICD); with a focus on battery replacement and end-of-life issues

Heart and Lung: Journal of Acute and Critical Care

Volumn 42, Issue 3, 2013, Pages 202-207

  Fluur, Christina ^a   Bolse, Kärstin ^b   Strömberg, Anna ^a,c   Thylén, Ingela ^d  

^a Centre of Surgery and Oncology   (Sweden)

^b HALMSTAD UNIVERSITY   (Sweden)

^c LINKÖPING UNIVERSITY   (Sweden)

^d LINKÖPING UNIVERSITY HOSPITAL   (Sweden)

Author keywords

Battery replacement; Deactivation; End of life; Implantable cardioverter defibrillator; Patients' perspective

Indexed keywords

ADULT; AGED; ARTICLE; CLINICAL ARTICLE; EXPERIENCE; FEMALE; HUMAN; ILLNESS TRAJECTORY; IMPLANTABLE CARDIOVERTER DEFIBRILLATOR; MALE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; QUALITY OF LIFE; RECIPIENT; SEMI STRUCTURED INTERVIEW; TERMINAL CARE;

ADULT; AGED; AGED, 80 AND OVER; ATTITUDE OF HEALTH PERSONNEL; DEATH, SUDDEN, CARDIAC; DEFIBRILLATORS, IMPLANTABLE; FEMALE; FOLLOW-UP STUDIES; HUMANS; MALE; MIDDLE AGED; RETROSPECTIVE STUDIES; TERMINAL CARE;

EID: 84877119404     PISSN: 01479563     EISSN: 15273288     Source Type: Journal    
DOI: 10.1016/j.hrtlng.2012.11.006     Document Type: Article

References (22)

1. EUCOMED data from 2005-2010. Available at:; Last accessed 09.04.12. http://www.eucomed.org.
2. Hammill S.C., Kremers M.S., Stevenson L.W., et al. Review of the registry's fourth year, incorporating lead data and pediatric ICD procedures, and use as a national performance measure. Heart Rhythm 2010, 7:1340-1345.
3. Goldstein N.E., Lampert R., Bradley E., Lynn J., Krumholz H.M. Management of implantable cardioverter defibrillators in end-of-life care. Ann Intern Med 2004, 141:835-838.
4. Lewis W.R., Luebke D.L., Johnson N.J., Harrington M.D., Costantini O., Aulisio M.P. Withdrawing implantable defibrillator shock therapy in terminally ill patients. Am J Med 2006, 119:892-896.
5. Schron E.B., Exner D.V., Yao Q., et al. Quality of life in the antiarrhythmics versus implantable defibrillators trial: impact of therapy and influence of adverse symptoms and defibrillator shocks. Circulation 2002, 105:589-594.
6. Carroll D.L., Hamilton G.A. Quality of life in implanted cardioverter defibrillator recipients: the impact of a device shock. Heart & Lung 2005, 34:169-178.
7. Bilge A.K., Ozben B., Demircan S., Cinar M., Yilmaz E., Adalet K. Depression and anxiety status of patients with implantable cardioverter defibrillator and precipitating factors. Pacing Clin Electrophysiol 2006, 29:619-626.
8. Pedersen S.S., Sears S.F., Burg M.M., Van Den Broek K.C. Does ICD indication affect quality of life and levels of distress?. Pacing Clin Electrophysiol 2009, 32:153-156.
9. Lampert R., Hayes D.L., Annas G.J., et al. HRS expert consensus statement on the management of cardiovascular implantable electronic devices in patients nearing end of life or requesting withdrawal of therapy. Heart Rhythm 2010, 7:1008-1026.
10. Marinskis G., van Erven L. Deactivation of implanted cardioverter defibrillators at the end of life: results of the EHRA study. Europace 2010, 12:1176-1177. EHRA Scientific Initiatives Committee.
11. Kirkpatrick J.N., Gottlieb M., Sehgal P., Patel R., Verdino R.J. Deactivation of implantable cardioverter defibrillators in terminal illness and end of life care. Am J Cardiol 2012, 109:91-94.
12. Stewart G.C., Weintraub J.R., Pratibhu P.P., et al. Patients expectations from implantable cardioverter defibrillators to prevent death in heart failure. J Card Fail 2010, 16:106-113.
13. Goldstein N.E., Mehta D., Siddiqui S., et al. That's like an act of suicide. Patients' attitudes toward deactivation of implantable defibrillators. J Gen Intern Med 2008, 23:7-12.
14. Strachan P.H., Carroll S.L., de Laat S., Schwartz L., Arthur H.M. Patients' perspectives on EOL issues and implantable cardioverter defibrillators. J Palliat Care 2011, 27:6-11.
15. Raphael C.E., Koa-Wing M., Stain N., Wright I., Francis D.P., Kanagaratnam P. Implantable cardioverter defibrillator recipient attitudes towards device deactivation: how much do patients want to know?. PACE 2011, 34:1628-1633.
16. Epstein A.E., Dimarco J.P., Ellenbogen K.A., et al. ACC/AHA/HRS 2008 guidelines for device-based therapy of cardiac rhythm abnormalities. Heart Rhythm 2008, 5:e1-e62. American College of Cardiology, American Heart Association Task Force on Practice Guidelines, American Association for Thoracic Surgery, Society of Thoracic Surgeons.
17. Kuzel A. Sampling in qualitative inquiry. Doing Qualitative Research 1999, Sage Publications, Thousand Oaks, CA. 2nd ed. B. Crabtree, W. Miller (Eds.).
18. Krippendorff K. Content Analysis. An Introduction to Its Methodology 2004, SAGE Publications, Thousand Oaks. 2nd ed.
19. Patton M. Qualitative Research and Evaluation Methods 2002, SAGE Publications, London. 3rd ed.
20. Russo J.E. Deactivation of ICDs at the end of life: a systematic review of clinical practices and provider and patient attitudes. Am J Nurs 2011, 111:26-35.
21. Kramer D.B., Buxton A.E., Zimetbaum P.J. Time for a change - a new approach to ICD replacement. N Engl J Med 2012, 366:291-293.
22. Dunbar S.B., Dougherty C.M., Sears S.F., et al. Educational and psychological interventions to improve outcomes for recipients of implantable cardioverter defibrillators and their families: a scientific statement from the American Heart Association. Circulation 2012 Sep 24, Epub ahead of print. 10.1161/CIR.0b013e31825d59fd.