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Volumn 2013, Issue , 2013, Pages

The impact of migrations on the health services for rare diseases in Europe: The example of haemoglobin disorders

Author keywords

[No Author keywords available]

Indexed keywords

HEMOGLOBIN C; HEMOGLOBIN E; HEMOGLOBIN S;

EID: 84876552799     PISSN: 1537744X     EISSN: 1537744X     Source Type: Journal    
DOI: 10.1155/2013/727905     Document Type: Article
Times cited : (54)

References (31)
  • 1
    • 0031855380 scopus 로고    scopus 로고
    • Global epidemiology of hemoglobin disorders
    • DOI 10.1111/j.1749-6632.1998.tb10482.x
    • Angastiniotis M., Modell B., Global epidemiology of hemoglobin disorders. Annals of the New York Academy of Sciences 1998 850 251 269 2-s2.0-0031855380 10.1111/j.1749-6632.1998.tb10482.x (Pubitemid 28369766)
    • (1998) Annals of the New York Academy of Sciences , vol.850 , pp. 251-269
    • Angastiniotis, M.1    Modell, B.2
  • 2
    • 44949128064 scopus 로고    scopus 로고
    • Global epidemiology of haemoglobin disorders and derived service indicators
    • DOI 10.2471/BLT.06.036673
    • Modell B., Darlison M., Global epidemiology of haemoglobin disorders and derived service indicators. Bulletin of the World Health Organization 2008 86 6 480 487 2-s2.0-44949128064 10.2471/BLT.06.036673 (Pubitemid 351821761)
    • (2008) Bulletin of the World Health Organization , vol.86 , Issue.6 , pp. 480-487
    • Modell, B.1    Darlison, M.2
  • 6
    • 77955899256 scopus 로고    scopus 로고
    • Thalassemia as a global health problem: Recent progress toward its control in the developing countries
    • 2-s2.0-77955899256 10.1111/j.1749-6632.2010.05546.x
    • Weatherall D. J., Thalassemia as a global health problem: recent progress toward its control in the developing countries. Annals of the New York Academy of Sciences 2010 1202 17 23 2-s2.0-77955899256 10.1111/j.1749-6632.2010.05546.x
    • (2010) Annals of the New York Academy of Sciences , vol.1202 , pp. 17-23
    • Weatherall, D.J.1
  • 7
    • 0022833871 scopus 로고
    • How thalassaemia was controlled in Cyprus
    • 2-s2.0-0022833871
    • Angastiniotis M., Kyriakidou S., Hadjiminas M., How thalassaemia was controlled in Cyprus. World Health Forum 1986 7 3 291 297 2-s2.0-0022833871
    • (1986) World Health Forum , vol.7 , Issue.3 , pp. 291-297
    • Angastiniotis, M.1    Kyriakidou, S.2    Hadjiminas, M.3
  • 8
    • 0022408942 scopus 로고
    • Prevention of thalassaemia major in Latium (Italy)
    • Bianco I., Graziani B., Lerone M., Prevention of thalassaemia major in Latium (Italy). The Lancet 1985 2 8460 888 889 2-s2.0-0022408942 (Pubitemid 16242686)
    • (1985) Lancet , vol.2 , Issue.8460 , pp. 888-889
    • Bianco, I.1    Graziani, B.2    Lerone, M.3
  • 9
    • 0028596524 scopus 로고
    • The UK control programme for the haemoglobin disorders
    • 2-s2.0-0028596524
    • Petrou M., The UK control programme for the haemoglobin disorders. Fetal and Maternal Medicine Review 1994 6 4 191 201 2-s2.0-0028596524
    • (1994) Fetal and Maternal Medicine Review , vol.6 , Issue.4 , pp. 191-201
    • Petrou, M.1
  • 10
    • 0032415999 scopus 로고    scopus 로고
    • Prenatal diagnosis and screening of the haemoglobinopathies
    • DOI 10.1016/S0950-3536(98)80076-0
    • Cao A., Galanello R., Rosatelli M. C., Prenatal diagnosis and screening of the haemoglobinopathies. Bailliere's Clinical Haematology 1998 11 1 215 238 2-s2.0-0032415999 10.1016/S0950-3536(98)80076-0 (Pubitemid 29039024)
    • (1998) Bailliere's Clinical Haematology , vol.11 , Issue.1 , pp. 215-238
    • Cao, A.1    Galanello, R.2    Rosatelli, M.C.3
  • 11
    • 84872062977 scopus 로고    scopus 로고
    • Global epidemiology of sickle haemoglobin in neonates: A contemporary geoststistical model-based map and population estimates
    • 10.1016/S0140-6736(12)61229-X
    • Piel F. B., Patil A. P., Howes R. E., Nyangiri O. A., Gething P. W., Dewi M., Temperley W. H., Williams T. N., Weatherall D. J., Hay S. I., Global epidemiology of sickle haemoglobin in neonates: a contemporary geoststistical model-based map and population estimates. The Lancet 2012 381 9861 142 151 10.1016/S0140-6736(12)61229-X
    • (2012) The Lancet , vol.381 , Issue.9861 , pp. 142-151
    • Piel, F.B.1    Patil, A.P.2    Howes, R.E.3    Nyangiri, O.A.4    Gething, P.W.5    Dewi, M.6    Temperley, W.H.7    Williams, T.N.8    Weatherall, D.J.9    Hay, S.I.10
  • 12
    • 84863717880 scopus 로고    scopus 로고
    • Eurostat population database. http://epp.eurostat.ec.europa.eu/portal/ page/portal/population/data/database
    • Eurostat Population Database
  • 17
    • 84873816285 scopus 로고    scopus 로고
    • The management of iron chelation therapy: Preliminary data from a national registry of thalassaemic patients
    • 435683 10.1155/2011/435683
    • Ceci A., Mangiarini L., Felisi M., Bartoloni F., Ciancio A., Capra M., D'Ascola D., Cianculli P., Filosa A., The management of iron chelation therapy: preliminary data from a national registry of thalassaemic patients. Anemia 2011 2011 7 435683 10.1155/2011/435683
    • (2011) Anemia , vol.2011 , pp. 7
    • Ceci, A.1    Mangiarini, L.2    Felisi, M.3    Bartoloni, F.4    Ciancio, A.5    Capra, M.6    D'Ascola, D.7    Cianculli, P.8    Filosa, A.9
  • 19
    • 57349095277 scopus 로고    scopus 로고
    • Improved survival of thalassaemia major in the UK and relation to T 2 cardiovascular magnetic resonance
    • ARTICLE 42, 2-s2.0-57349095277 10.1186/1532-429X-10-42
    • Modell B., Khan M., Darlison M., Westwood M. A., Ingram D., Pennell D. J., Improved survival of thalassaemia major in the UK and relation to T 2 cardiovascular magnetic resonance. Journal of Cardiovascular Magnetic Resonance 2008 10 1, article 42 2-s2.0-57349095277 10.1186/1532-429X-10-42
    • (2008) Journal of Cardiovascular Magnetic Resonance , vol.10 , Issue.1
    • Modell, B.1    Khan, M.2    Darlison, M.3    Westwood, M.A.4    Ingram, D.5    Pennell, D.J.6
  • 20
    • 70350361982 scopus 로고    scopus 로고
    • Raising awareness of carrier testing for hereditary haemoglobinopathies in high-risk ethnic groups in the Netherlands: A pilot study among the general public and primary care providers
    • 2-s2.0-70350361982 10.1186/1471-2458-9-338
    • Weinreich S. S., De Lange-De Klerk E. S., Rijmen F., Cornel M. C., De Kinderen M., Plass A. M. C., Raising awareness of carrier testing for hereditary haemoglobinopathies in high-risk ethnic groups in the Netherlands: a pilot study among the general public and primary care providers. BMC Public Health 2009 9, article 338 2-s2.0-70350361982 10.1186/1471-2458-9-338
    • (2009) BMC Public Health , vol.9338
    • Weinreich, S.S.1    De Lange-De Klerk, E.S.2    Rijmen, F.3    Cornel, M.C.4    De Kinderen, M.5    Plass, A.M.C.6
  • 21
    • 0032547518 scopus 로고    scopus 로고
    • Thalassaemia in Britain: A tale of two communities
    • Gill P. S., Modell B., Thalassaemia in Britain: a tale of two communities. British Medical Journal 1998 317 7161 761 762 2-s2.0-0032547518 (Pubitemid 28427222)
    • (1998) British Medical Journal , vol.317 , Issue.7161 , pp. 761-762
    • Gill, P.S.1    Modell, B.2
  • 22
    • 0034606928 scopus 로고    scopus 로고
    • Informed choice in genetic screening for thalassaemia during pregnancy: Audit from a national confidential inquiry
    • Modell B., Harris R., Lane B., Khan M., Darlison M., Petrou M., John O., Layton M., Varnavides L., Informed choice in genetic screening for thalassaemia during pregnancy: audit from a national confidential inquiry. British Medical Journal 2000 320 7231 337 341 2-s2.0-0034606928 (Pubitemid 30083182)
    • (2000) British Medical Journal , vol.320 , Issue.7231 , pp. 337-341
    • Modell, B.1    Harris, R.2    Lane, B.3    Khan, M.4    Darlison, M.5    Petrou, M.6    John, O.7    Layton, M.8    Varnavides, L.9
  • 23
    • 84857913732 scopus 로고    scopus 로고
    • Interpretations of informed choice in antenatal screening: A cross-cultural, Q-methodology study
    • 10.1016/j.socscimed.2011.12.021
    • Ahmed S., Bryant L. D., Tirzo Z., Shickle D., Interpretations of informed choice in antenatal screening: a cross-cultural, Q-methodology study. Social Science & Medicine 2012 74 7 997 1004 10.1016/j.socscimed.2011.12.021
    • (2012) Social Science & Medicine , vol.74 , Issue.7 , pp. 997-1004
    • Ahmed, S.1    Bryant, L.D.2    Tirzo, Z.3    Shickle, D.4
  • 24
    • 72149121088 scopus 로고    scopus 로고
    • Prevention strategies for severe hemoglobinopathies in endemic and nonendemic immigration countries: The Latium example
    • 10.1002/pd.2382
    • Amato A., Grisanti P., Lerone M., Ponzini D., Di Biagio P., Cappabianca M. P., Giordano P. C., Prevention strategies for severe hemoglobinopathies in endemic and nonendemic immigration countries: the Latium example. Prenatal Diagnosis 2009 29 12 1171 1174 10.1002/pd.2382
    • (2009) Prenatal Diagnosis , vol.29 , Issue.12 , pp. 1171-1174
    • Amato, A.1    Grisanti, P.2    Lerone, M.3    Ponzini, D.4    Di Biagio, P.5    Cappabianca, M.P.6    Giordano, P.C.7
  • 25
    • 0031832424 scopus 로고    scopus 로고
    • 'Race', ethnicity and haemoglobin disorders
    • DOI 10.1016/S0277-9536(98)00023-9, PII S0277953698000239
    • Dyson S. M., 'Race', ethnicity and haemoglobin disorders. Social Science and Medicine 1998 47 1 121 131 2-s2.0-0031832424 10.1016/S0277-9536(98)00023-9 (Pubitemid 28297277)
    • (1998) Social Science and Medicine , vol.47 , Issue.1 , pp. 121-131
    • Dyson, S.M.1
  • 26
    • 27144517469 scopus 로고    scopus 로고
    • Estimating the attitude of immigrants toward primary prevention of the hemoglobinopathies
    • DOI 10.1002/pd.1206
    • Giordano P. C., Dihal A. A., Harteveld C. L., Estimating the attitude of immigrants toward primary prevention of the hemoglobinopathies. Prenatal Diagnosis 2005 25 10 885 893 2-s2.0-27144517469 10.1002/pd.1206 (Pubitemid 41508870)
    • (2005) Prenatal Diagnosis , vol.25 , Issue.10 , pp. 885-893
    • Giordano, P.C.1    Dihal, A.A.2    Harteveld, C.L.3
  • 28
    • 65649119698 scopus 로고    scopus 로고
    • The influence of treatment in specialized centers on survival of patients with thalassemia major
    • 2-s2.0-65649119698 10.1002/ajh.21398
    • Forni G. L., Puntoni M., Boeri E., Terenzani L., Balocco M., The influence of treatment in specialized centers on survival of patients with thalassemia major. American Journal of Hematology 2009 84 5 317 318 2-s2.0-65649119698 10.1002/ajh.21398
    • (2009) American Journal of Hematology , vol.84 , Issue.5 , pp. 317-318
    • Forni, G.L.1    Puntoni, M.2    Boeri, E.3    Terenzani, L.4    Balocco, M.5
  • 29
    • 84876549949 scopus 로고    scopus 로고
    • WHO Resolution EB118. R1
    • WHO Resolution EB118. R1
  • 30
    • 84876564537 scopus 로고    scopus 로고
    • WHA.R20
    • WHA.R20
  • 31
    • 79961139740 scopus 로고    scopus 로고
    • Sickle cell and thalassaemia: Global public health issues come of age
    • 2-s2.0-79961139740 10.1080/13557858.2011.588397
    • Dyson S. M., Atkin K., Sickle cell and thalassaemia: global public health issues come of age. Ethnicity and Health 2011 16 4-5 299 311 2-s2.0-79961139740 10.1080/13557858.2011.588397
    • (2011) Ethnicity and Health , vol.16 , Issue.4-5 , pp. 299-311
    • Dyson, S.M.1    Atkin, K.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.