Estimating the attitude of immigrants toward primary prevention of the hemoglobinopathies

Prenatal Diagnosis

Volumn 25, Issue 10, 2005, Pages 885-893

  Giordano, Piero C ^a   Dihal, Ashwin A ^a   Harteveld, Cornelis L ^a  

^a LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

Immigrants; Prevention; Sickle cell disease; Thalassemia

Indexed keywords

ADULT; AFRICAN AMERICAN; AGED; ARTICLE; BLOOD ANALYSIS; ETHNOLOGY; FEMALE; HEMOGLOBINOPATHY; HETEROZYGOTE DETECTION; HUMAN; ILLEGAL ABORTION; IMMIGRANT; MAJOR CLINICAL STUDY; MALE; MOROCCO; NETHERLANDS; NORTH AFRICA; PATIENT ATTITUDE; POPULATION RESEARCH; PRENATAL DIAGNOSIS; PRIMARY PREVENTION; PRIORITY JOURNAL; RELIABILITY; RELIGION; SELECTIVE ABORTION; SICKLE CELL ANEMIA; SURINAME; THALASSEMIA;

ABORTION, THERAPEUTIC; ANEMIA, SICKLE CELL; ARABS; ATTITUDE; EMIGRATION AND IMMIGRATION; FEMALE; HEMOGLOBINOPATHIES; HETEROZYGOTE DETECTION; HUMANS; MOROCCO; NETHERLANDS; PHENOBARBITAL; PREGNANCY; PRENATAL DIAGNOSIS; SURINAME; THALASSEMIA; WEST INDIES;

EID: 27144517469     PISSN: 01973851     EISSN: None     Source Type: Journal    
DOI: 10.1002/pd.1206     Document Type: Article

References (22)

1. Ahmed S, Saleem M, Modell B, Petrou M. 2002. Screening extended families for genetic hemoglobin disorders in Pakistan. N Engl J Med 347(15): 1162-1168.
2. Alami MH, Pirou N, Bezad R, Alaoui MT. 1998. Therapeutic abortion. Critical study of 22 cases. Contracept Fertil Sex 26(3): 225-228.
3. Atkin K, Ahmad WI. 1998. Genetic screening and haemoglobinopathies: ethics, politics and practice. Soc Sci Med 46(3): 445-458.
4. Brett M, Fentress E. 1997. Berbers. Oxford: Blackwell Publishers, Inc..
5. CBS. 2003. Centraal Bureau voor de Statistiek. (http://www.cbs.nl/).
6. De long A, de Wert G. 2002. Screening for carriers of the fragile X syndrome; ethical exploration. Ned Tijdschr Geneeskd 30; 146(13): 611-615.
7. Elion-Gerritsen WE, Giordano PC, Haak HL. 2002. De standaard 'Anemie in de eerstelijns verloskundige praktijk' van de Koninklijke Nederlandse Organisatie van Verloskundigen (KNOV): risico voor het niet onderkennen van ijzergebrek en hemoglobinopathie. Ned Tijdschr Geneeskd 146: 457-459.
8. Giordano PC, Harteveld CL. 1998. Hemoglobinopathieën in Nederland: de roi van de huisarts in dragerschapsdiagnostiek en preventie. Huisarts Wet 6: 290-295.
9. Giordano PC, Breuning MH. 2000. Van gen naar ziekte; van hemoglobinegenen naar thalassemie en sikkelcelanemie. Ned Tijdschr Geneeskd 144(40): 1910-1913.
10. Giordano PC, Bouva MJ, Harteveld CL. 2004. A confidential enquiry estimating the number of patients affected with sickle cell disease and thalassemia major confirms the need for a prevention strategy in the Netherlands. Hemoglobin 28(4): 287-296.
11. Gurgey A, Beksac S, Gumruk E, et al. 1996. Prenatal diagnosis of hemoglobinopathies in Turkey: Hacettepe experience. J Pediatr Hematol Oncol 13(2): 163-166.
12. Hitti PK, Khalidi W. 2002. History of the Arabs. Palgrave Macmillan.
13. Keskin A, Turk T, Polat A, Koyuncu H, Saracoglu B. 2000. Premarital screening of beta-thalassemia trait in the province of Denizli, Turkey. Acta Haematol 104(1): 31-33.
14. Modell B, Harris R, Lane B, et al. 2000. Informed choice in genetic screening for thalassaemia during pregnancy: audit from a national confidential inquiry. BMJ 320: 337-341.
15. Naamane-Guessous S. 1993. Traditional methods still widely used. Plan Parent Chall 1: 14-16.
16. Payne D. 2001. Dutch ship fails to offer Irish women abortions. BMJ 23; 322(7301): 1507.
17. Schulpen TW, van der Lee JH, van der Most van Spijk MW, Beemer FA. 1998. Genetic carrier screening for hemoglobinopathies in the Netherlands is not opportune. Ned Tijdschr Geneeskd 142(18): 1019-1022.
18. Stuart MA, van der Wal MF, Schilthuis W. 2002. Abortions among Amsterdam teenagers according to ethnicity, 1996-1998. Ned Tijdschr Geneeskd 146(6): 263-267.
19. Teebi AS, Farag TI. 1997. Genetic Disorders Among Arab Populations. Oxford University Press. ISBNO-19-509305-4.
20. Tuzmen S, Tadmouri GO, Ozer A, et al. 1996. Prenatal diagnosis of beta-thalassaemia and sickle cell anaemia in Turkey. Prenat Diagn 16(3): 252-258.
21. Weatherall DJ, Clegg JB. 2001. The Thalassemia Syndromes. Blackwell Science.
22. Van Wijk MAM, Mel M, Muller PA, Silverentand WGJ, Pijnenborg L, Kolnaar BGM. 2003. NHG Standaard Anemie. Huisarts Wet 46: 3-11.