Reported barriers to evaluation in chronic care: Experiences in six European countries

Health Policy

Volumn 110, Issue 2-3, 2013, Pages 220-228

  Knai, Cécile ^a   Nolte, Ellen ^b   Brunn, Matthias ^c   Elissen, Arianne ^d   Conklin, Annalijn ^b,e   Pedersen, Janice Pedersen ^b   Brereton, Laura ^b   Erler, Antje ^f   Frølich, Anne ^g   Flamm, Maria ^h,n   Fullerton, Birgitte ^f   Jacobsen, Ramune ^g   Krohn, Robert ⁱ   Saz Parkinson, Zuleika ^j   Vrijhoef, Bert ^k   Chevreul, Karine ^c,l   Durand Zaleski, Isabelle ^c,l   Farsi, Fadila ^m   Sarría Santamera, Antonio ^j   Soennichsen, Andreas ⁿ  

^a LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE   (United Kingdom)

^b RAND CORPORATION   (United States)

^c ASSISTANCE PUBLIQUE HÔPITAUX DE PARIS   (France)

^d MAASTRICHT UNIVERSITY   (Netherlands)

^e UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^f GOETHE UNIVERSITY   (Germany)

^g UNIVERSITY OF COPENHAGEN   (Denmark)

^h DANUBE UNIVERSITY KREMS   (Austria)

ⁱ AQUA Institut fur Angewandte Qualitatsforderung und Forschung im Gesundheitswesen GmbH   (Germany)

^j INSTITUTO DE SALUD CARLOS III   (Spain)

^k TILBURG UNIVERSITY   (Netherlands)

^l HENRI MONDOR HOSPITAL   (France)

^m Réseau Espace Santé Cancer Rhône Alpes ^*  (France)

ⁿ PARACELSUS MEDICAL UNIVERSITY   (Austria)

more..

Author keywords

Barriers; Chronic care; Chronic disease; Europe; Evaluation

Indexed keywords

ARTICLE; AUSTRIA; CHRONIC DISEASE; CLINICAL EVALUATION; DENMARK; DOCTOR PATIENT RELATION; EUROPE; FRANCE; GERMANY; HEALTH CARE PLANNING; HEALTH CARE POLICY; HEALTH INSURANCE; HUMAN; MEDICAL DECISION MAKING; NETHERLANDS; SEMI STRUCTURED INTERVIEW; SPAIN;

AUSTRIA; CHRONIC DISEASE; DELIVERY OF HEALTH CARE; DENMARK; EVALUATION STUDIES AS TOPIC; FRANCE; GERMANY; HUMANS; NETHERLANDS; QUALITY OF HEALTH CARE; SPAIN;

EID: 84876137695     PISSN: 01688510     EISSN: 18726054     Source Type: Journal    
DOI: 10.1016/j.healthpol.2013.01.019     Document Type: Article

References (51)

1. Nolte E., Knai C., McKee M. Managing chronic conditions: experience in eight countries 2008, World Health Organization on behalf of the European Observatory on Health Systems and Policies, Copenhagen.
2. de Bruin S.R., Heijink R., Lemmens L.C., Struijs J.N., Baan C.A. Impact of disease management programs on healthcare expenditures for patients with diabetes, depression, heart failure or chronic obstructive pulmonary disease: a systematic review of the literature. Health Policy 2011, 101:105-121.
3. Gress S., Baan C.A., Calnan M., Dedeu T., Groenewegen P., Howson H., et al. Co-ordination and management of chronic conditions in Europe: the role of primary care - position paper of the European Forum for Primary Care. Quality in Primary Care 2009, 17:75-86.
4. Nuno-Solinis R., Orueta J.F., Mateos M. An answer to chronicity in the Basque Country: primary care-based population health management. Journal of Ambulatory Care Management 2012, 35:167-173.
5. Nolte E., McKee M. Caring for people with chronic conditions. A health system perspective 2008, World Health Organization on behalf of the European Observatory on Health Systems and Policies, Copenhagen.
6. McKee M., Nolte E. Responding to the challenge of chronic diseases: ideas from Europe. Clinical Medicine 2004, 4:336-342.
7. Nolte E, Conklin A, Adams A, Brunn M, Cadier B, Chevreul K, et al. Evaluating chronic disease management. Recommendations for funders and users. DISMEVAL Project. Prepared for the European Commission on behalf of the DISMEVAL Consortium; 2012.
8. Linden A., Adams J.L., Roberts N. Strengthening the case for disease management effectiveness: un-hiding the hidden bias. Journal of Evaluation in Clinical Practice 2006, 12:140-147.
9. Linden A., Roberts N. A user's guide to the disease management literature: recommendations for reporting and assessing program outcomes. American Journal of Managed Care 2005, 11:113-120.
10. Steuten L., Vrijhoef B., Severens H., van Merode F., Spreeuwenberg C. Are we measuring what matters in health technology assessment of disease management? Systematic literature review. International Journal of Technology Assessment in Health Care 2006, 22:47-57.
11. Campbell N.C., Murray E., Darbyshire J., Emery J., Farmer A., Griffiths F., et al. Designing and evaluating complex interventions to improve health care. BMJ 2007, 334:455-459.
12. Craig P., Dieppe P., Macintyre S., Michie S., Nazareth I., Petticrew M. Developing and evaluating complex interventions: new guidance 2008, Medical Research Council, London.
13. Ogilvie D., Cummins S., Petticrew M., White M., Jones A., Wheeler K. Assessing the evaluability of complex public health interventions: five questions for researchers, funders, and policymakers. Milbank Quarterly 2011, 89:206-225.
14. Cretin S., Shortell S.M., Keeler E.B. An evaluation of collaborative interventions to improve chronic illness care. Framework and study design. Evaluation Review 2004, 28:28-51.
15. Linden A., Adams J.L., Roberts N. Evaluating disease management program effectiveness: an introduction to time-series analysis. Disease Management 2003, 6:243-255.
16. The DISMEVAL Project Consortium. Developing and validating disease management evaluation methods for European healthcare systems. Final report, DISMEVAL Project. Prepared by the Project Coordinator for the European Commission on behalf of the DISMEVAL Consortium; 2011.
17. Gilson L., Raphaely N. The terrain of health policy analysis in low and middle income countries: a review of published literature 1994-2007. Health Policy and Planning 2008, 23:294-307.
18. Kingdon J. Agendas, alternatives, and public policies 1995, Longman, New York.
19. Reich M. Political mapping of health policy - a guide for managing the political dimensions of health policy 1994, Harvard School of Public Health, Boston, MA.
20. Walt G. Health policy: an introduction to process and power 1994, Zed Books, London.
21. Walt G., Gilson L. Reforming the health sector in developing countries: the central role of policy analysis. Health Policy and Planning 1994, 9:353-370.
22. Walt G., Shiffman J., Schneider H., Murray S.F., Brugha R., Gilson L. 'Doing' health policy analysis: methodological and conceptual reflections and challenges. Health Policy and Planning 2008, 23:308-317.
23. Leichter H. A comparative approach to policy analysis: health care policy in four nations 1979, Cambridge University Press, Cambridge.
24. Ritchie J., Spencer L. Qualitative data analysis for applied policy research. Analysing qualitative data 1994, Routledge, London. A. Bryman, R. Burgess (Eds.).
25. Chevreul K, Brunn M, Cadier B, Durand-Zaleski I, Farsi F, Labrosse H. Evaluation of disease management in France. In: Nolte E, Hinrichs S, editors. Developing and validating disease management evaluation methods for European healthcare systems Final report. Santa Monica, CA: RAND Corporation and DISMEVAL Consortium; 2012.
26. Nolte E., Knai C., Hofmarcher M., Conklin A., Erler A., Elissen A., et al. Overcoming fragmentation in health care: chronic care in Austria, Germany and The Netherlands. Health Economics, Policy, and Law 2012, 7:125-146.
27. Noguès F., Noguès E. évaluation des réseaux de santé en France. Risques and Qualité en Milieu de Soins 2009, 3:139-144.
28. Grosen L. Electronic Health Record in Denmark. Health Policy Monitor; October 2009.
29. Swanson B., Bentz R., Sofranko A. Improving agricultural extension. A reference manual 1997, Food and Agriculture Organization of the United Nations, Rome.
30. Ling T. A framework for understanding the contribution of public services to public benefit. Performance audit handbook: routes to effective evaluation 2009, RAND Europe, Cambridge, UK. T. Ling, L. Villalba van Dijk (Eds.).
31. Taut S., Brauns D. Resistance to evaluation. A psychological perspective. Evaluation 2003, 9:247-264.
32. Wildavsky A. The self-evaluating organization. Public Administration Review 1972, 32:509-520.
33. Barbier J. Eléments pour une sociologie des évaluations publiques en France. Revue Française des Affaires Sociales 2010, 64:27-50.
34. Shortell S., Gillies R., Anderson D., Erickson K., Mitchell J. Remaking health care in America: building organized delivery systems 1996, Jossey-Bass, San Francisco.
35. Burton L.C., Anderson G.F., Kues I.W. Using electronic health records to help coordinate care. Milbank Quarterly 2004, 82:457-481.
36. European Commission. Commission proposes a comprehensive reform of the data protection rules (); 2012. http://ec.europa.eu/justice/newsroom/data-protection/news/120125_en.htm.
37. Chevreul K, Le Fur P, Sermet C. Systèmes d'information sur les pratiques médicales de ville: enseignements à partir de quelques expériences étrangères. Questions d'économie de la santé, Irdes, 2004;85.
38. Frenzel J.C., Kee S.S., Ensor J.E., Riedel B.J., Ruiz J.R. Ongoing provision of individual clinician performance data improves practice behavior. Anesthesia and Analgesia 2010, 111:515-519.
39. Guyatt G. Evidence-based medicine. ACP Journal Club 1991, 114:A16.
40. Evidence-Based Medicine Working Group Evidence-based medicine. A new approach to teaching the practice of medicine. JAMA 1992, 268:2420-2425.
41. Burgers J.S., Grol R., Klazinga N.S., Makela M., Zaat J. Towards evidence-based clinical practice: an international survey of 18 clinical guideline programs. International Journal for Quality in Health Care 2003, 15:31-45.
42. Knai C., Brusamento S., Legido-Quigley H., Saliba V., Panteli D., Turk E., et al. Systematic review of the methodological quality of clinical guideline development for the management of chronic disease in Europe. Health Policy 2012, 107(2):157-167.
43. Brusamento S., Legido-Quigley H., Panteli D., Turk E., Knai C., Saliba V., et al. Assessing the effectiveness of strategies to implement clinical guidelines for the management of chronic diseases at primary care level in EU Member States: a systematic review. Health Policy 2012, 107(2):168-183.
44. Legido-Quigley H., Panteli D., Brusamento S., Knai C., Saliba V., Turk E., Solé M., Augustin U., Car J., McKee M., Busse R. Clinical guidelines in the European Union: Mapping the regulatory basis, development, quality control, implementation and evaluation across member states. Health Policy 2012, 107(2):146-156.
45. Degen R.M., Hodgins J.L., Bhandari M. The language of evidence based medicine: answers to common questions?. Indian Journal of Orthopaedics 2008, 42:111-117.
46. Mayer D. Evidence-based medicine. Epilepsia 2006, 47(Suppl.). 1:3-5.
47. McDonald C.J. Medical heuristics: the silent adjudicators of clinical practice. Annals of Internal Medicine 1996, 124:56-62.
48. McQueen M.J. Overview of evidence-based medicine: challenges for evidence-based laboratory medicine. Clinical Chemistry 2001, 47:1536-1546.
49. ANAES (HAS). Evaluation des réseaux de soins: bilan de l'existant et cadre méthodologique. Paris, former Agence Nationale d'Accréditation et d'Evaluation en Santé (ANAES), now part of the Haute Autorité de Santé (HAS); 2001.
50. Ministry of Health F. Circulaire DHOS/O3/CNAM n° 2007-88 du 2 mars 2007 relative aux orientations de la DHOS et de la CNAMTS en matière de réseaux de santé et à destination des ARH et des URCAM; 2007.
51. Elissen A, Duimel-Peeters I, Spreeuwenberg C, Vrijhoef H. Evaluation of disease management in The Netherlands. In: Nolte E, Hinrichs S, editors. Developing and validating disease management evaluation methods for European healthcare systems Final report. Santa Monica, CA: RAND Corporation and DISMEVAL Consortium; 2012.