Next of kin's experiences of sudden and unexpected death from stroke - a study of narratives

BMC Nursing

Volumn 12, Issue 1, 2013, Pages

  Rejnö, Åsa ^a,b   Danielson, Ella ^a,c   Berg, Linda ^a  

^a UNIVERSITY OF GOTHENBURG   (Sweden)

^b SKARABORG HOSPITAL   (Sweden)

^c MID SWEDEN UNIVERSITY   (Sweden)

Author keywords

Acute stroke; Carer; Death and dying; Narratives; Next of kin; Nursing; Sudden and unexpected

Indexed keywords

EID: 84876093341     PISSN: None     EISSN: 14726955     Source Type: Journal    
DOI: 10.1186/1472-6955-12-13     Document Type: Article

References (45)

1. Andershed B, Harstäde CW. Next of kin's feelings of guilt and shame in end-of-life care. Contemp Nurse 2007, 27(1):61-72. 10.5172/conu.2007.27.1.61, 18386956.
2. Andersson M, Ekwall A, Hallberg IR, Edberg AK. The experience of being next of kin to an older person in the last phase of life. Palliat Support Care 2010, 8(1):17-26. 10.1017/S1478951509990666, 20163756.
3. Boucher J, Bova C, Sullivan-Bolyai S, Theroux R, Klar R, Terrien J, Kaufman DA. Next-of-kin's perspectives of end-of-life care. J Hosp Palliat Nurs 2010, 12(1):41-50.
4. Norris K, Merriman MP, Curtis JR, Asp C, Tuholske L, Byock IR. Next of kin perspectives on the experience of end-of-life care in a community setting. J Palliat Med 2007, 10(5):1101-1115. 10.1089/jpm.2006.2546, 17985967.
5. Carlander I, Sahlberg-Blom E, Hellström I, Ternestedt B-M. The modified self: family caregivers' experiences of caring for a dying family member at home. J Clin Nurs 2011, 20(7-8):1097-1105.
6. World Stroke Organization. Inventory of International Stroke-Related Best Practice Guidelines. World Stroke Organization, http://www.world-stroke.org/images/WSO_International%20Stroke%20Guildelines%202012.pdf. Accessed 2013 14 April.
7. Socialstyrelsen Strokesjukvård. Vetenskapligt underlag för nationella riktlinjer 2009. Stroke hospital care. Scientific basis for national guidelines 2009 2009, Stockholm: Socialstyrelsen [National Board of Health and Welfare] (in Swedish), Socialstyrelsen.
8. Kjellström T, Norrving B, Shatchkute A. Helsingborg Declaration 2006 on European stroke strategies. Cerebrovasc Dis 2007, 23(2-3):231-241.
9. Lindsay P, Bayley M, Hellings C, Hill M, Woodbury E, Phillips S. Canadian best practice recommendations for stroke care (updated 2008). Can Med Assoc J 2008, 179(12):S1-S25.
10. Clinical guidelines for stroke management 2010 2010, National Stroke Foundation, http://strokefoundation.com.au/site/media/clinical_guidelines_stroke_managment_2010_interactive.pdf.
11. Riks-Stroke Riks-Stroke årsrapport 2010 2011, 116. [The Swedish Stroke Register Annual Report 2010]. Riks-Stroke [Swedish Stroke Register] (in Swedish), http://www.riks-stroke.org/content/analyser/Riks-Stroke_Arsrapport2010.pdf, Riks-Stroke.
12. Roger VL, Go AS, Lloyd-Jones DM, Benjamin EJ, Berry JD, Borden WB, Bravata DM, Dai S, Ford ES, Fox CS, Fullerton HJ, Gillespie C, Hailpern SM, Heit JA, Howard VJ, Kissela BM, Kittner SJ, Lackland DT, Lichtman JH, Lisabeth LD, Makuc DM, Marcus GM, Marelli A, Matchar DB, Moy CS, Mozaffarian D, Mussolino ME, Nichol G, Paynter NP, Soliman EZ, et al. Heart disease and stroke statistics-2012. Circulation 2011, 1:e2-e220.
13. Eurostat Health statistics: atlas on mortality in the European Union 2009, Luxembourg: Office for Official Publications of the European Communities, Eurostat.
14. The global burden of disease. World Health Organization http://www.who.int/healthinfo/global_burden_disease/GBD_report_2004update_full.pdf.
15. Bäckström B, Sundin K. The meaning of being a middle-aged close relative of a person who has suffered a stroke, 1 month after discharge from a rehabilitation clinic. Nurs Inq 2007, 14(3):243-254. 10.1111/j.1440-1800.2007.00373.x, 17718750.
16. Payne S, Burton C, Addington-Hall J, Jones A. End-of-life issues in acute stroke care: a qualitative study of the experiences and preferences of patients and families. Palliat Med 2010, 24(2):146-153. 10.1177/0269216309350252, 19926644.
17. Rejnö T, Danielson E, Von Post I. The unexpected force of acute stroke leading to patients' sudden death as described by nurses. Scand J Caring Sci E 2013, 27(1):123-130.
18. Li S, Chan C, Lee D. Helpfulness of nursing actions to suddenly bereaved family members in an accident and emergency setting in Hong Kong. J Adv Nurs 2002, 40(2):170-180. 10.1046/j.1365-2648.2002.02359.x, 12366647.
19. Lloyd-Williams M, Morton J, Peters S. The end-of-life care experiences of relatives of brain dead intensive care patients. J Pain Symptom Manage 2009, 37(4):659-664. 10.1016/j.jpainsymman.2008.04.013, 18789640.
20. Ivarsson B, Larsson S, Johnsson P, Lührs C, Sjöberg T. From hope and expectation to unexpected death after cardiac surgery. Intensive Crit Care Nurs 2008, 24(4):242-250. 10.1016/j.iccn.2008.02.002, 18387301.
21. Rejnö T, Berg L, Danielson E. Ethical problems: In the face of sudden and unexpected death. Nurs Ethics 2012, 19(5):642-653. 10.1177/0969733011412099, 22140179.
22. Riessman CK. Narrative Methods for the Human Sciences 2008, London: Sage.
23. Sandelowski M. Telling stories: Narrative approaches in qualitative research. J Nurs Scholarsh 1991, 23(3):161-166.
24. McCance TV, Mckenna HP, Boore JRP. Exploring caring using narrative methodology: an analysis of the approach. J Adv Nurs 2001, 33(3):350-356. 10.1046/j.1365-2648.2001.01671.x, 11251722.
25. Frid I, Öhlen J, Bergbom I. On the use of narratives in nursing research. J Adv Nurs 2000, 32(3):695-703. 10.1046/j.1365-2648.2000.01530.x, 11012814.
26. Riessman CK. Narrative analysis 1993, Newbury Park: Sage.
27. Polkinghorne DE. Narrative Knowing and the Human Sciences 1988, Albany: State University of New York Press.
28. Bingley AF, Thomas C, Brown J, Reeve J, Payne S. Developing narrative research in supportive and palliative care: the focus on illness narratives. Palliat Med 2008, 22(5):653-658. 10.1177/0269216308089842, 18612032.
29. Börjeson S, Arweström C, Baker A, Berterö C. Nurses' experiences in the relief of postoperative nausea and vomiting. J Clin Nurs 2010, 19(13-14):1865-1872.
30. Socialstyrelsen Nationella riktlinjer för strokesjukvård 2009: stöd för styrning och ledning. [National guidelines for stroke care 2009: Support for steering and leading] 2009, Stockholm: Socialstyrelsen [National Board of Health and Welfare] (in Swedish), Socialstyrelsen.
31. Sandelowski M. Notes on transcription. Res Nurs Health 1994, 17(4):311-314. 10.1002/nur.4770170410, 8036279.
32. Declaration of Helsinki Ethical Principles for medical research involving human subjects http://www.wma.net/en/30publications/10policies/b3/17c.pdf, Declaration of Helsinki.
33. Williams BR, Woodby LL, Bailey FA, Burgio KL. Identifying and responding to ethical and methodological issues in after-death interviews with next-of-kin. Death Stud 2008, 32(3):197-236. 10.1080/07481180701881297, 18705168.
34. Fridh I, Forsberg A, Bergbom I. Close relatives' experiences of caring and of the physical environment when a loved one dies in an ICU. Intensive Crit Care Nurs 2009, 25(3):111-119. 10.1016/j.iccn.2008.11.002, 19112022.
35. Fridh I, Bergbom I. To watch - a study of the concept (in Swedish). Vard Nord Utveckl Forsk 2006, 26(1):4-8.
36. Lindahl B, Sandman P. The role of advocacy in critical care nursing: a caring response to another. Intensive Crit Care Nurs 1998, 14(4):179-186. 10.1016/S0964-3397(98)80499-0, 9849244.
37. Shield RR, Wetle T, Teno J, Miller SC, Welch LC. Vigilant at the end of life: family advocacy in the nursing home. J Palliat Med 2010, 13(5):573-579. 10.1089/jpm.2009.0398, 20420548.
38. Dawson KA. Palliative care for critically ill older adults: dimensions of nursing advocacy. Crit Care Nurs Q 2008, 31(1):19-23.
39. Negarandeh R, Oskouie F, Ahmadi F, Nikravesh M, Hallberg I. Patient advocacy: barriers and facilitators. BMC Nursing 2006, 5(1):3. 10.1186/1472-6955-5-3, 1420298, 16509969.
40. Van Der Smagt-Duijnstee ME, Hamers JPH, Abu-Saad HH, Zuidhof A. Relatives of hospitalized stroke patients: their needs for information, counselling and accessibility. J Adv Nurs 2001, 33(3):307-315. 10.1046/j.1365-2648.2001.01666.x, 11251717.
41. Young AJ, Rogers A, Dent L, Addington-Hall JM. Experiences of hospital care reported by bereaved relatives of patients after a stroke: a retrospective survey using the VOICES questionnaire. J Adv Nurs 2009, 65(10):2161-2174. 10.1111/j.1365-2648.2009.05081.x, 20568321.
42. Polkinghorne DE. Validity issues in narrative research. Qualitative Inquiry 2007, 13(4):471-486.
43. Stroebe M, Stroebe W, Schut H. Bereavement research: methodological issues and ethical concerns. Palliat Med 2003, 17(3):235-240. 10.1191/0269216303pm768rr, 12725476.
44. MacKay J, Mensah GA. The atlas of heart disease and stroke [Elektronisk resurs] 2005, Geneva: World Health Organization.
45. Addington-Hall J, McPherson C. After-death interviews with surrogates/bereaved family members: some issues of validity. J Pain Symptom Manage 2001, 22(3):784-790. 10.1016/S0885-3924(01)00330-X, 11532591.