Data Citizenship and Informed Consent

American Journal of Bioethics

Volumn 13, Issue 4, 2013, Pages 38-39

  Francis, Leslie P ^a   Francis, John G ^a  

^a UNIVERSITY OF UTAH   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; EPIDEMIOLOGY; ETHICS; HEALTH CARE FACILITY; HUMAN; INFORMED CONSENT; MEDICAL RESEARCH; PERSONAL AUTONOMY; RESEARCH SUBJECT;

BIOLOGICAL SPECIMEN BANKS; BIOMEDICAL RESEARCH; HUMANS; INFORMED CONSENT; PERSONAL AUTONOMY; RESEARCH SUBJECTS; SELECTION BIAS;

EID: 84875956404     PISSN: 15265161     EISSN: 15360075     Source Type: Journal    
DOI: 10.1080/15265161.2013.768862     Document Type: Article

References (7)

1. Baily, M. A. 2006. The ethics of using QI methods to improve health care quality and safety. Hastings Center Report, 36(4): S1-40.
2. Dankar, F. K. 2012. Estimating the re-identification risk of clinical data sets. BMC Medical Informatics and Decision Making, 66(12) doi:10.1186/1472-6947-12-66
3. Francis, L. P. 2008. Privacy and confidentiality: The importance of context. Monist, 91(1): 52-67.
4. Kaiser Family Foundation. 2012. Black Americans and HIV/AIDS. Available at: http://www.kff.org/hivaids/6089.cfm
5. National Committee on Vital and Health Statistics. 2012. Letter to the Secretary: A stewardship framework for the use of community health data. Available at: http://www.ncvhs.hhs.gov
6. Rothstein, M. A. 2010. Is de-identification sufficient to protect health privacy in research?. American Journal of Bioethics, 10(9): 3-11. doi:10.1080/15265161.2010.494215
7. Rothstein, M. A. and Shoben, A. B. 2013. Does consent bias research?. American Journal of Bioethics, 13(4): 27-37.